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Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________________________________________________________

FTD.com

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I am fighting in Michigan for HBOT for my husband who was in an automobile

accident 13 years ago which left him with a TBI. We drove 51/2 hours away to

receive HBOT treatments in St. Clair Shores, MI. in January of 2008. I needed

to see if he would tolerate the treatments, check out the clinic, doctors and

accomodations. Our BC/BS approved the treatment. I was shocked but excited. I

received a call post treatment from the Clinic's owner stating that BC/BS had

called him saying that they were not going to cover the treatments in the future

but would extend the benefits for 2 months. I set up as many treatments as

possible so that my insurance would cover as many treatments at possible in the

amount of time they said they would extend the benefits. I got 2 weeks off

work, arranged for accomodations and health aid workers to help me and scheduled

as many treatments as possible. Two days before we left, BC/BS informed the

facility that they would not be paying...they recanted.

We went anyway, I paid out of pocket. My husband, for the first time in

13 years, after only 12 treatments, is able to lift his right and left leg (with

much effort and encouragement) can focus and is more alert, acknowledging those

around him. He turns his head when asked and has improved his swallowing so

much that he now enjoys tasting foods through a net bag and actually swallowing

puddings, ice cream and such. He can lift his right shoulder and move his right

arm when prompted. My husband could do none of these things for 13 years prior

to HBOT. I always knew he was in there, many thought he was in a vegetatiive

state. HBOT helped with only 12 treatments and I am anxious to get back to do a

round of 40 as suggested. That will be happening soon but I have been fighting

with the auto insurance over much more than just HBOT treatments and it is a

difficult journey. I am trying to sue for treatments as they are helping and

improving his condition. It is always a fight...my lawyers don't seem to know

much on how to fight this, my husband's doctors are supportive but not experts

such as Dr. Harch and don't have all the evidence and documentation. ANY help

is appreciated and HBOT is our only hope for more improvement. My husband could

of given up, he hasn't and I'm very proud of him. He deserves the opportunity

to improve and get better...especially when it is such an non-invasive,

inexpensive, proven treatment.

Yes, please persuade this evidence to be exposed...How could ANYONE in good

consciousness NOT want to reveal it and help the world of people who see it as

their only hope.

Thank you for my husband and thank you for all the others out there who can't

speak it themselves.

Greenwood

medicaid@...: dfreels@...: Tue, 3 Feb

2009 20:17:03 -0500Subject: [ ] New evidence of HBOT efficacy.

Two weeks ago I was informed that a person within the off-label HBOT community

is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS)

wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and

brain-injured people--adults and children--are improved through hyperbaric

therapy. However, the documentation further states the UHMS believes the

correction/amelioration is not enough to move brain-injured people from a state

of dependence to a state of independence--therefore the UHMS will not " approve "

brain-injury as an accepted indication for HBOT.The UHMS justifies this position

based upon a cost/benefit analysis--albeit at UHMS prices which are typically

1000% higher than the prices charged at freestanding, non-UHMS facilities.The

relevance to the parents is this: Federal law mandates providing

whatever is " necessary to correct or ameliorate " and does not require a minimum

level of correction and/or amelioration. There certainly is no asterisk at the

end of Paragraph 5 that says *unless the UHMS says " No. " If this documentation of

UHMS recognition of HBOT improvement were available to parents,

HBOT would immediately and universally be recognized. This would inevitably lead

to near-immediate investment in HBOT research in the tens of millions of

dollars--if not even more. Given Harch's data on the effect of HBOT in

induced-TBI in rat brain (see

http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum), i.e., the growth of new

tissue, it's very possible a cure for brain-injury could be discovered if the

research investment were made.Obviously, this is incredibly frustrating. I have

known of this document's existence for a couple of weeks. I contacted UHMS

leadership and have not heard any reply despite four requests for

information--which, to me, means the UHMS does have some heretofore undisclosed

acknowledgement and/or documentation.I never withhold relevant information, but

it's my understanding this person refuses to release this information--despite

the fact they have a brain-injured loved one and despite the fact this person

has claimed very, very publicly for years to be an advocate for making HBOT for

brain-injury universally available. This person now has the power to make that

dream a reality for not just hundreds, not just thousands, but for millions of

people around the world--and for all time. Yet this individual will not release

this documentation.I am raising this issue now because there have been many,

many good people who have been in the trenches fighting this fight in courtrooms

and hearings, and now yet another Mom is stepping into the Arizona ring to do

battle.A couple of months ago I had the privilege to sit in on a telephone

hearing, attempting to help Meleah Corner in her fight with North Carolina

Medicaid. Mrs. Corner has not one, not two, but three autistic children.Three.

Three. Can you imagine?And Mrs. Corner is visually impaired. She's blind. Can

you imagine how difficult just one day in her life is? Multiply that times

everyday. Do you realize how much better her life and the life of her children

would be if this UHMS document were released?I am thinking of releasing this

person's name publicly in the hope that other people (by the hundreds) will

pressure this person to release this document.Thoughts?

Freelshttp://www.davidfreels.comdaviddavidfreels

_________________________________________________________________

Windows Live™ Hotmail®…more than just e-mail.

http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitwor\

ks_012009

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I agree, .  It's time!

From: KP Stoller, MD <hbotnm@...>

Subject: Re: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:24 PM

Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________ _________ _________ _________ _________ _________ _

FTD.com

Shop now and save $15 on Flowers and Gifts from FTD!

http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM

JZaWxE8URBZe9887 pw6opiRZ/

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,

Release the name! Anyone who has info that could help our children but

doesn¹t share it deserves our full attention. To be willing to keep

important info hidden certainly requires someone to have no compassion,

empathy or morals. We will always have these types in society but we will

be far safer if we all know exactly who they are!

Janet

On 2/3/09 8:17 PM, " Freels " <dfreels@...> wrote:

>

>

>

> Two weeks ago I was informed that a person within the off-label HBOT community

> is holding documentation from the Undersea and Hyperbaric Medical Society

> (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects

> brain-injury and brain-injured people--adults and children--are improved

> through hyperbaric therapy. However, the documentation further states the UHMS

> believes the correction/amelioration is not enough to move brain-injured

> people from a state of dependence to a state of independence--therefore the

> UHMS will not " approve " brain-injury as an accepted indication for HBOT.

>

> The UHMS justifies this position based upon a cost/benefit analysis--albeit at

> UHMS prices which are typically 1000% higher than the prices charged at

> freestanding, non-UHMS facilities.

>

> The relevance to the parents is this: Federal law mandates

> providing whatever is " necessary to correct or ameliorate " and does not

> require a minimum level of correction and/or amelioration. There certainly is

> no asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. "

>

> If this documentation of UHMS recognition of HBOT improvement were available

> to parents, HBOT would immediately and universally be

> recognized. This would inevitably lead to near-immediate investment in HBOT

> research in the tens of millions of dollars--if not even more. Given

> Harch's data on the effect of HBOT in induced-TBI in rat brain (see

> http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P

> Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

> <http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst

> em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> ), i.e., the growth of

> new tissue, it's very possible a cure for brain-injury could be discovered if

> the research investment were made.

>

> Obviously, this is incredibly frustrating. I have known of this document's

> existence for a couple of weeks. I contacted UHMS leadership and have not

> heard any reply despite four requests for information--which, to me, means the

> UHMS does have some heretofore undisclosed acknowledgement and/or

> documentation.

>

> I never withhold relevant information, but it's my understanding this person

> refuses to release this information--despite the fact they have a

> brain-injured loved one and despite the fact this person has claimed very,

> very publicly for years to be an advocate for making HBOT for brain-injury

> universally available. This person now has the power to make that dream a

> reality for not just hundreds, not just thousands, but for millions of people

> around the world--and for all time. Yet this individual will not release this

> documentation.

>

> I am raising this issue now because there have been many, many good people who

> have been in the trenches fighting this fight in courtrooms and hearings, and

> now yet another Mom is stepping into the Arizona ring to do battle.

>

> A couple of months ago I had the privilege to sit in on a telephone hearing,

> attempting to help Meleah Corner in her fight with North Carolina Medicaid.

> Mrs. Corner has not one, not two, but three autistic children.

>

> Three. Three. Can you imagine?

>

> And Mrs. Corner is visually impaired. She's blind. Can you imagine how

> difficult just one day in her life is? Multiply that times everyday. Do you

> realize how much better her life and the life of her children would be if this

> UHMS document were released?

>

> I am thinking of releasing this person's name publicly in the hope that other

> people (by the hundreds) will pressure this person to release this document.

>

> Thoughts?

>

> Freels

> http://www.davidfreels.com

> david@... <mailto:david%40davidfreels.com>

>

>

>

>

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,

Does this person have the initials A. C.?

On Wed, Feb 4, 2009 at 8:43 AM, janet presson <

janet.presson@...> wrote:

> ,

>

> Release the name! Anyone who has info that could help our children but

> doesn¹t share it deserves our full attention. To be willing to keep

> important info hidden certainly requires someone to have no compassion,

> empathy or morals. We will always have these types in society but we will

> be far safer if we all know exactly who they are!

>

> Janet

>

> On 2/3/09 8:17 PM, " Freels "

<dfreels@...<dfreels%40mindspring.com>>

> wrote:

>

> >

> >

> >

> > Two weeks ago I was informed that a person within the off-label HBOT

> community

> > is holding documentation from the Undersea and Hyperbaric Medical Society

> > (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects

> > brain-injury and brain-injured people--adults and children--are improved

> > through hyperbaric therapy. However, the documentation further states the

> UHMS

> > believes the correction/amelioration is not enough to move brain-injured

> > people from a state of dependence to a state of independence--therefore

> the

> > UHMS will not " approve " brain-injury as an accepted indication for HBOT.

> >

> > The UHMS justifies this position based upon a cost/benefit

> analysis--albeit at

> > UHMS prices which are typically 1000% higher than the prices charged at

> > freestanding, non-UHMS facilities.

> >

> > The relevance to the parents is this: Federal law

> mandates

> > providing whatever is " necessary to correct or ameliorate " and does not

> > require a minimum level of correction and/or amelioration. There

> certainly is

> > no asterisk at the end of Paragraph 5 that says *unless the UHMS says

> " No. "

> >

> > If this documentation of UHMS recognition of HBOT improvement were

> available

> > to parents, HBOT would immediately and universally be

> > recognized. This would inevitably lead to near-immediate investment in

> HBOT

> > research in the tens of millions of dollars--if not even more. Given

> > Harch's data on the effect of HBOT in induced-TBI in rat brain (see

> >

> http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P

> > Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

> > <

>

http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst<ht\

tp://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSyst>

> > em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> ), i.e., the

> growth of

> > new tissue, it's very possible a cure for brain-injury could be

> discovered if

> > the research investment were made.

> >

> > Obviously, this is incredibly frustrating. I have known of this

> document's

> > existence for a couple of weeks. I contacted UHMS leadership and have not

> > heard any reply despite four requests for information--which, to me,

> means the

> > UHMS does have some heretofore undisclosed acknowledgement and/or

> > documentation.

> >

> > I never withhold relevant information, but it's my understanding this

> person

> > refuses to release this information--despite the fact they have a

> > brain-injured loved one and despite the fact this person has claimed

> very,

> > very publicly for years to be an advocate for making HBOT for

> brain-injury

> > universally available. This person now has the power to make that dream a

> > reality for not just hundreds, not just thousands, but for millions of

> people

> > around the world--and for all time. Yet this individual will not release

> this

> > documentation.

> >

> > I am raising this issue now because there have been many, many good

> people who

> > have been in the trenches fighting this fight in courtrooms and hearings,

> and

> > now yet another Mom is stepping into the Arizona ring to do battle.

> >

> > A couple of months ago I had the privilege to sit in on a telephone

> hearing,

> > attempting to help Meleah Corner in her fight with North Carolina

> Medicaid.

> > Mrs. Corner has not one, not two, but three autistic children.

> >

> > Three. Three. Can you imagine?

> >

> > And Mrs. Corner is visually impaired. She's blind. Can you imagine how

> > difficult just one day in her life is? Multiply that times everyday. Do

> you

> > realize how much better her life and the life of her children would be if

> this

> > UHMS document were released?

> >

> > I am thinking of releasing this person's name publicly in the hope that

> other

> > people (by the hundreds) will pressure this person to release this

> document.

> >

> > Thoughts?

> >

> > Freels

> > http://www.davidfreels.com

> > david@... <david%40davidfreels.com> <mailto:

> david%40davidfreels.com <david%2540davidfreels.com>>

> >

> >

> >

> >

>

>

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e Creacy has the initials A.C.

> >

> > >

> > >

> > >

> > > Two weeks ago I was informed that a person within

> the off-label HBOT

> > community

> > > is holding documentation from the Undersea and

> Hyperbaric Medical Society

> > > (UHMS) wherein the UHMS leadership acknowledges

> that HBOT corrects

> > > brain-injury and brain-injured people--adults and

> children--are improved

> > > through hyperbaric therapy. However, the

> documentation further states the

> > UHMS

> > > believes the correction/amelioration is not

> enough to move brain-injured

> > > people from a state of dependence to a state of

> independence--therefore

> > the

> > > UHMS will not " approve " brain-injury as

> an accepted indication for HBOT.

> > >

> > > The UHMS justifies this position based upon a

> cost/benefit

> > analysis--albeit at

> > > UHMS prices which are typically 1000% higher than

> the prices charged at

> > > freestanding, non-UHMS facilities.

> > >

> > > The relevance to the parents is

> this: Federal law

> > mandates

> > > providing whatever is " necessary to correct

> or ameliorate " and does not

> > > require a minimum level of correction and/or

> amelioration. There

> > certainly is

> > > no asterisk at the end of Paragraph 5 that says

> *unless the UHMS says

> > " No. "

> > >

> > > If this documentation of UHMS recognition of HBOT

> improvement were

> > available

> > > to parents, HBOT would

> immediately and universally be

> > > recognized. This would inevitably lead to

> near-immediate investment in

> > HBOT

> > > research in the tens of millions of dollars--if

> not even more. Given

> > > Harch's data on the effect of HBOT in

> induced-TBI in rat brain (see

> > >

> >

> http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P

> > > Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

> > > <

> >

>

http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst<ht\

tp://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSyst>

> > >

> em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum>

> ), i.e., the

> > growth of

> > > new tissue, it's very possible a cure for

> brain-injury could be

> > discovered if

> > > the research investment were made.

> > >

> > > Obviously, this is incredibly frustrating. I have

> known of this

> > document's

> > > existence for a couple of weeks. I contacted UHMS

> leadership and have not

> > > heard any reply despite four requests for

> information--which, to me,

> > means the

> > > UHMS does have some heretofore undisclosed

> acknowledgement and/or

> > > documentation.

> > >

> > > I never withhold relevant information, but

> it's my understanding this

> > person

> > > refuses to release this information--despite the

> fact they have a

> > > brain-injured loved one and despite the fact this

> person has claimed

> > very,

> > > very publicly for years to be an advocate for

> making HBOT for

> > brain-injury

> > > universally available. This person now has the

> power to make that dream a

> > > reality for not just hundreds, not just

> thousands, but for millions of

> > people

> > > around the world--and for all time. Yet this

> individual will not release

> > this

> > > documentation.

> > >

> > > I am raising this issue now because there have

> been many, many good

> > people who

> > > have been in the trenches fighting this fight in

> courtrooms and hearings,

> > and

> > > now yet another Mom is stepping into the Arizona

> ring to do battle.

> > >

> > > A couple of months ago I had the privilege to sit

> in on a telephone

> > hearing,

> > > attempting to help Meleah Corner in her fight

> with North Carolina

> > Medicaid.

> > > Mrs. Corner has not one, not two, but three

> autistic children.

> > >

> > > Three. Three. Can you imagine?

> > >

> > > And Mrs. Corner is visually impaired. She's

> blind. Can you imagine how

> > > difficult just one day in her life is? Multiply

> that times everyday. Do

> > you

> > > realize how much better her life and the life of

> her children would be if

> > this

> > > UHMS document were released?

> > >

> > > I am thinking of releasing this person's name

> publicly in the hope that

> > other

> > > people (by the hundreds) will pressure this

> person to release this

> > document.

> > >

> > > Thoughts?

> > >

> > > Freels

> > > http://www.davidfreels.com

> > > david@...

> <david%40davidfreels.com> <mailto:

> > david%40davidfreels.com

> <david%2540davidfreels.com>>

> > >

> > >

> > >

> > >

> >

> >

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,

I’ve been terribly busy as you can imagine with a zillion therapies,

constantly advocating for my children, ect. Our hearing is scheduled for the

week of March 2nd, but a date hasn’t been put on the court calendar yet. I am

in the midst of writing the prehearing statement ordered by the ALJ in the case.

We are going to request the hearing be postponed a few weeks because we received

our documents a month late. The judge has allowed discovery, so I’m open to

any suggestions that you or anyone else can give me on what to ask for from the

state. I am planning to request they disclose to me all diagnosis codes that

have been used in a pediatric case where HBOT was paid for by NC Medicaid since

you have a letter in your possession that states they’ve been covering it for

TBI since 1994. Any other suggestions? As if I don’t have enough to do, I

now have filed an appeal because we submitted an EPSDT request for ABA that was

denied. It was reviewed by Value Options whom the state hires to review

request, and either recommend treatment be denied or covered. VO recommended it

be covered, and Medicaid then denied it anyway. We also now have a request

submitted for specialized nutritional supplements, so we’ll see if they deny

that. I have more lab work than they can shake a stick at to document the need.

I’ll let you know when the hearing date is set. Pray for us.

Meleah

From: medicaid [mailto:medicaid ]

On Behalf Of Freels

Sent: Tuesday, February 03, 2009 8:17 PM

medicaid

Subject: [ ] New evidence of HBOT efficacy.

Two weeks ago I was informed that a person within the off-label HBOT community

is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS)

wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and

brain-injured people--adults and children--are improved through hyperbaric

therapy. However, the documentation further states the UHMS believes the

correction/amelioration is not enough to move brain-injured people from a state

of dependence to a state of independence--therefore the UHMS will not " approve "

brain-injury as an accepted indication for HBOT.

The UHMS justifies this position based upon a cost/benefit analysis--albeit at

UHMS prices which are typically 1000% higher than the prices charged at

freestanding, non-UHMS facilities.

The relevance to the parents is this: Federal law mandates

providing whatever is " necessary to correct or ameliorate " and does not require

a minimum level of correction and/or amelioration. There certainly is no

asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. "

If this documentation of UHMS recognition of HBOT improvement were available to

parents, HBOT would immediately and universally be recognized.

This would inevitably lead to near-immediate investment in HBOT research in the

tens of millions of dollars--if not even more. Given Harch's data on the

effect of HBOT in induced-TBI in rat brain (see

http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1

<http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum>

& itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum), i.e.,

the growth of new tissue, it's very possible a cure for brain-injury could be

discovered if the research investment were made.

Obviously, this is incredibly frustrating. I have known of this document's

existence for a couple of weeks. I contacted UHMS leadership and have not heard

any reply despite four requests for information--which, to me, means the UHMS

does have some heretofore undisclosed acknowledgement and/or documentation.

I never withhold relevant information, but it's my understanding this person

refuses to release this information--despite the fact they have a brain-injured

loved one and despite the fact this person has claimed very, very publicly for

years to be an advocate for making HBOT for brain-injury universally available.

This person now has the power to make that dream a reality for not just

hundreds, not just thousands, but for millions of people around the world--and

for all time. Yet this individual will not release this documentation.

I am raising this issue now because there have been many, many good people who

have been in the trenches fighting this fight in courtrooms and hearings, and

now yet another Mom is stepping into the Arizona ring to do battle.

A couple of months ago I had the privilege to sit in on a telephone hearing,

attempting to help Meleah Corner in her fight with North Carolina Medicaid. Mrs.

Corner has not one, not two, but three autistic children.

Three. Three. Can you imagine?

And Mrs. Corner is visually impaired. She's blind. Can you imagine how difficult

just one day in her life is? Multiply that times everyday. Do you realize how

much better her life and the life of her children would be if this UHMS document

were released?

I am thinking of releasing this person's name publicly in the hope that other

people (by the hundreds) will pressure this person to release this document.

Thoughts?

Freels

http://www.davidfreels.com

david@... <mailto:david%40davidfreels.com>

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Please release it!!!! That information would help so many people! Along

with contact information so we can plead our cases!

>

> Two weeks ago I was informed that a person within the off-label HBOT

community is holding documentation from the Undersea and Hyperbaric

Medical Society (UHMS) wherein the UHMS leadership acknowledges that

HBOT corrects brain-injury and brain-injured people--

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The annual conference is in June I beleve.  Show up and present with facts and

double blind studies and maybe you can get " some sunshine into the UHMS " .

 

Wayne McHowell, RN, BSN, ONC, CHRNA

From: KP Stoller, MD <hbotnmnetzero (DOT) net>

Subject: Re: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:24 PM

Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________ _________ _________ _________ _________ _________ _

FTD.com

Shop now and save $15 on Flowers and Gifts from FTD!

http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM

JZaWxE8URBZe9887 pw6opiRZ/

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Who is this mysterious person with secret documentation? Let me guess its the

Men in Black and another governmental conspiracy.

 

Wayne D. McHowell, RN, BSN, ONC, CHRNA

From: Freels <dfreels@...>

Subject: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:17 PM

Two weeks ago I was informed that a person within the off-label HBOT community

is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS)

wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and

brain-injured people--adults and children--are improved through hyperbaric

therapy. However, the documentation further states the UHMS believes the

correction/ameliora tion is not enough to move brain-injured people from a state

of dependence to a state of independence- -therefore the UHMS will not " approve "

brain-injury as an accepted indication for HBOT.

The UHMS justifies this position based upon a cost/benefit analysis--albeit at

UHMS prices which are typically 1000% higher than the prices charged at

freestanding, non-UHMS facilities.

The relevance to the parents is this: Federal law mandates

providing whatever is " necessary to correct or ameliorate " and does not require

a minimum level of correction and/or amelioration. There certainly is no

asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. "

If this documentation of UHMS recognition of HBOT improvement were available to

parents, HBOT would immediately and universally be recognized.

This would inevitably lead to near-immediate investment in HBOT research in the

tens of millions of dollars--if not even more. Given Harch's data on the

effect of HBOT in induced-TBI in rat brain (see http://www..ncbi. nlm.nih.gov/

pubmed/17869230? ordinalpos= 1 & itool=EntrezSy stem2..PEntrez. Pubmed.Pubmed_

ResultsPanel. Pubmed_RVDocSum), i.e., the growth of new tissue, it's very

possible a cure for brain-injury could be discovered if the research investment

were made.

Obviously, this is incredibly frustrating. I have known of this document's

existence for a couple of weeks. I contacted UHMS leadership and have not heard

any reply despite four requests for information- -which, to me, means the UHMS

does have some heretofore undisclosed acknowledgement and/or documentation.

I never withhold relevant information, but it's my understanding this person

refuses to release this information- -despite the fact they have a brain-injured

loved one and despite the fact this person has claimed very, very publicly for

years to be an advocate for making HBOT for brain-injury universally available.

This person now has the power to make that dream a reality for not just

hundreds, not just thousands, but for millions of people around the world--and

for all time. Yet this individual will not release this documentation.

I am raising this issue now because there have been many, many good people who

have been in the trenches fighting this fight in courtrooms and hearings, and

now yet another Mom is stepping into the Arizona ring to do battle.

A couple of months ago I had the privilege to sit in on a telephone hearing,

attempting to help Meleah Corner in her fight with North Carolina Medicaid. Mrs.

Corner has not one, not two, but three autistic children.

Three. Three. Can you imagine?

And Mrs. Corner is visually impaired. She's blind. Can you imagine how difficult

just one day in her life is? Multiply that times everyday. Do you realize how

much better her life and the life of her children would be if this UHMS document

were released?

I am thinking of releasing this person's name publicly in the hope that other

people (by the hundreds) will pressure this person to release this document.

Thoughts?

Freels

http://www.davidfre els.com

daviddavidfreels (DOT) com

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I wish people would wake up and get over the double blind study crap. It is not

necessary. Approval can be done without it, as has been seen in many cases,

especially in the pharma industry.

Re: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:24 PM

Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________ _________ _________ _________ _________ _________ _

FTD.com

Shop now and save $15 on Flowers and Gifts from FTD!

http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf

TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/

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So just because it is something that you want it shouldn't have to go through

the same verification process that the other indications were required for

approval?  If its not your way its " double blind crap " ?  Hyperbarics within the

last five year had to prove all the accepted indications were evidence based

practice to continue medicare/medicaid reimburesement. In case you are not aware

evidence based medicine is not reports from families of improvements, case

studies that lack comparison studies, etc.  Most of the " studies " that I have

seen presented could not pass consideration for publication in JAMA, etc.  The

studies for TBI in verterans is looking promising, but until they have

significant numbers of both patients treated with HBO and placebo treated

patients the studies are not much better than case studies.

 

Wayne D. McHowell, RN, BSN, ONC, CHRNA

From: KP Stoller, MD <hbotnmnetzero (DOT) net>

Subject: Re: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:24 PM

Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________ _________ _________ _________ _________ _________ _

FTD.com

Shop now and save $15 on Flowers and Gifts from FTD!

http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM

JZaWxE8URBZe9887 pw6opiRZ/

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Wayne,

The studies are there.  They problem with the US system is most everyone is too

ignorant to recognize the studies done in other countries.  We think we are so

much smarter than everyone else, and that is the reason our health care system

is broken and ineffective in too many cases.

Second, take the time to review a PDR.  Over 50% of the drugs in the PDR have

not undergone any placebo controlled studies.  It is a double standard.  Most

are approved with nothing more than clinical trials.

If you have it all figured out, explain to me why drugs are approved with

clinical trails, than recalled a year later because of the dangerous side

effects, and that doesn't even take into account those that are still on the

market that have less than acceptable side effects. 

However, thousands of people have gotten better, the same quality clinical

trials have been done, but yet HBOT is still not approved.

I'm not saying the studies shouldn't be done.  What I am saying is that the

studies are there, more are being done, yet we are so far from insurance

coverage it makes me sick. 

  

Brett

From: KP Stoller, MD <hbotnmnetzero (DOT) net>

Subject: Re: [ ] New evidence of HBOT efficacy.

medicaid

Date: Tuesday, February 3, 2009, 8:24 PM

Time to bring sunshine to the UHMS

KP Stoller, MD, FACHM

President, International Hyperbaric Medical Assoc

Medical Director, Hyperbaric Medical Center of New Mexico

www.hbotnm.com

____________ _________ _________ _________ _________ _________ _

FTD.com

Shop now and save $15 on Flowers and Gifts from FTD!

http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM

JZaWxE8URBZe9887 pw6opiRZ/

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Wayne,

Where's the randomized, double-blind, placebo-controlled study proving HBOT

efficacy for decompression sickness?

DF

Re: [ ] New evidence of HBOT efficacy.

>medicaid

>Date: Tuesday, February 3, 2009, 8:24 PM

>

>Time to bring sunshine to the UHMS

>

>KP Stoller, MD, FACHM

>

>President, International Hyperbaric Medical Assoc

>

>Medical Director, Hyperbaric Medical Center of New Mexico

>

>www.hbotnm.com

>

>____________ _________ _________ _________ _________ _________ _

>

>FTD.com

>

>Shop now and save $15 on Flowers and Gifts from FTD!

>

>http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf

TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/

>

>

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I suppose the studies by the Navy when they developed the compression tables

don't count?

Wayne D. McHowell, RN, BSN, ONC, CHRNA

> >From: KP Stoller, MD <hbotnmnetzero (DOT) net>

> >Subject: Re: [ ] New evidence of HBOT

> efficacy.

> >medicaid

> >Date: Tuesday, February 3, 2009, 8:24 PM

> >

> >Time to bring sunshine to the UHMS

> >

> >KP Stoller, MD, FACHM

> >

> >President, International Hyperbaric Medical Assoc

> >

> >Medical Director, Hyperbaric Medical Center of New

> Mexico

> >

> >www.hbotnm.com

> >

> >____________ _________ _________ _________ _________

> _________ _

> >

> >FTD.com

> >

> >Shop now and save $15 on Flowers and Gifts from FTD!

> >

> >http://thirdpartyof fers.netzero. net/TGL2241/

> fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/

> >

> >

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No actually, as they are not derived from double blind clinicl trials. They

were made by people who had common sense, which these days seems to be lacking.

Re: [ ] New evidence of HBOT

> efficacy.

> >medicaid

> >Date: Wednesday, February 11, 2009, 11:03 AM

> >

> >

> >

> >

> >

> >

> >I wish people would wake up and get over the double

> blind study crap. It is not necessary. Approval can be done

> without it, as has been seen in many cases, especially in

> the pharma industry.

> >

> >-----Original Message-----

> >

> >From: Wayne McHowell <mackhborn (DOT) com>

> >Subj: Re: [ ] New evidence of HBOT

> efficacy.

> >Date: Wed Feb 11, 2009 7:36 am

> >Size: 15K

> >medicaid

> >

> >The annual conference is in June I beleve.  Show up

> and present with facts and double blind studies and maybe

> you can get " some sunshine into the UHMS " .

> > 

> >Wayne McHowell, RN, BSN, ONC, CHRNA

--- message truncated ---

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Wayne

If you read the legal brief I wrote for my HBOT case ( has it

archived as one of the documents on this list)you will understand the

duplicity in the double-blind requirement. If insurance companies

want to require that all treatments and drugs will only be approved

and paid for, if supported by double-blind studies, then that is

their perogtive. But they must be consistent and require it of all

treatments and drugs. The problem is insurance companies cherry pick

as to what does and does not have double-blind studies supporting the

treatment or drug. Again if you read my brief your eyes will be

opened. I documented the findings with the use of supporting

literature.

> > >

> > >From: szymonski@... <szymonski@...>

> > >Subject: Re: [ ] New evidence of HBOT

> > efficacy.

> > >medicaid

> > >Date: Wednesday, February 11, 2009, 11:03 AM

> > >

> > >

> > >

> > >

> > >

> > >

> > >I wish people would wake up and get over the double

> > blind study crap. It is not necessary. Approval can be done

> > without it, as has been seen in many cases, especially in

> > the pharma industry.

> > >

> > >-----Original Message-----

> > >

> > >From: Wayne McHowell <mackhborn (DOT) com>

> > >Subj: Re: [ ] New evidence of HBOT

> > efficacy.

> > >Date: Wed Feb 11, 2009 7:36 am

> > >Size: 15K

> > >medicaid

> > >

> > >The annual conference is in June I beleve.  Show up

> > and present with facts and double blind studies and maybe

> > you can get " some sunshine into the UHMS " .

> > > 

> > >Wayne McHowell, RN, BSN, ONC, CHRNA

>

> --- message truncated ---

>

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Wayne,

The direct link to 's brief is

medicaid/files/Bals_Summary_Brief.PD\

F

,

Always good to hear from you. Don't be such a stranger.

DF

Re: [ ] New evidence of HBOT

>> > efficacy.

>> > >medicaid

>> > >Date: Wednesday, February 11, 2009, 11:03 AM

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >I wish people would wake up and get over the double

>> > blind study crap. It is not necessary. Approval can be done

>> > without it, as has been seen in many cases, especially in

>> > the pharma industry.

>> > >

>> > >-----Original Message-----

>> > >

>> > >From: Wayne McHowell <mackhborn (DOT) com>

>> > >Subj: Re: [ ] New evidence of HBOT

>> > efficacy.

>> > >Date: Wed Feb 11, 2009 7:36 am

>> > >Size: 15K

>> > >medicaid

>> > >

>> > >The annual conference is in June I beleve.  Show up

>> > and present with facts and double blind studies and maybe

>> > you can get " some sunshine into the UHMS " .

>> > > 

>> > >Wayne McHowell, RN, BSN, ONC, CHRNA

>>

>> --- message truncated ---

>>

>

>

Freels

http://www.davidfreels.com

david@...

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Thanks for the link, . I forwarded it to one of Congressman Oberstar's

aides.

I was listening to Minnesota Public Radio tonight, as I was moving my car from

one side of the street to the other (alternate side of the street parking

requires this), and heard a discussion about economic policy. One of the

economists remarked, and I thought it was worth remembering, " A politician will

hurry to get to the head of any parade. "

The more letters to your US Congressman in support of HR 7299 and making HBOT

the standard of treatment for TBI, the better. I would prefer an approach which

Texas uses, which as I understand it, requires that insurance pay for any

treatment for a neurologic condition which has been prescribed by that patient's

physician.

However, think of HR 7299 as having a foot in the door. Once medical facilities

have HBOT available, it will be easier for everyone to have access to treatment

locally, and medical clinics and hospitals which have HBOT chambers will start

advocating for expanded indications, in order to make their facilities more cost

effective. Or at least that's my belief.

> From: Freels <dfreels@...>

> Subject: Re: [ ] Re: New evidence of HBOT efficacy.

> medicaid

> Date: Sunday, February 15, 2009, 3:38 PM

> Wayne,

>

> The direct link to 's brief is

>

medicaid/files/Bals_Summary_Brief.PD\

F

>

>

>

> ,

>

> Always good to hear from you. Don't be such a stranger.

>

> DF

>

>

>

> Re: [ ] New

> evidence of HBOT

> >> > efficacy.

> >> > >medicaid

> >> > >Date: Wednesday, February 11, 2009, 11:03

> AM

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >I wish people would wake up and get over

> the double

> >> > blind study crap. It is not necessary.

> Approval can be done

> >> > without it, as has been seen in many cases,

> especially in

> >> > the pharma industry.

> >> > >

> >> > >-----Original Message-----

> >> > >

> >> > >From: Wayne McHowell <mackhborn (DOT)

> com>

> >> > >Subj: Re: [ ] New evidence

> of HBOT

> >> > efficacy.

> >> > >Date: Wed Feb 11, 2009 7:36 am

> >> > >Size: 15K

> >> > >medicaid

> >> > >

> >> > >The annual conference is in June I

> beleve.  Show up

> >> > and present with facts and double blind

> studies and maybe

> >> > you can get " some sunshine into the

> UHMS " .

> >> > > 

> >> > >Wayne McHowell, RN, BSN, ONC, CHRNA

> >>

> >> --- message truncated ---

> >>

> >

> >

>

>

> Freels

> http://www.davidfreels.com

> david@...

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,

Can you contact me off list?

Brett

> From: Freels <dfreelsmindspring (DOT) com>

> Subject: Re: [ ] Re: New evidence of HBOT efficacy.

> medicaid

> Date: Sunday, February 15, 2009, 3:38 PM

> Wayne,

>

> The direct link to 's brief is

> http://health. groups.. com/group/ medicaid/ files/Bals_

Summary_Brief. PDF

>

>

>

> ,

>

> Always good to hear from you. Don't be such a stranger.

>

> DF

>

>

>

> Re: [ ] New

> evidence of HBOT

> >> > efficacy.

> >> > >medicaid

> >> > >Date: Wednesday, February 11, 2009, 11:03

> AM

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >I wish people would wake up and get over

> the double

> >> > blind study crap. It is not necessary.

> Approval can be done

> >> > without it, as has been seen in many cases,

> especially in

> >> > the pharma industry.

> >> > >

> >> > >-----Original Message-----

> >> > >

> >> > >From: Wayne McHowell <mackhborn (DOT)

> com>

> >> > >Subj: Re: [ ] New evidence

> of HBOT

> >> > efficacy.

> >> > >Date: Wed Feb 11, 2009 7:36 am

> >> > >Size: 15K

> >> > >medicaid

> >> > >

> >> > >The annual conference is in June I

> beleve.  Show up

> >> > and present with facts and double blind

> studies and maybe

> >> > you can get " some sunshine into the

> UHMS " .

> >> > > 

> >> > >Wayne McHowell, RN, BSN, ONC, CHRNA

> >>

> >> --- message truncated ---

> >>

> >

> >

>

>

> Freels

> http://www.davidfre els.com

> daviddavidfreels (DOT) com

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I have faithfully read the digest of this group for all these years. I just have

not had much

to say. Hope all is well.

> >> > >

> >> > >From: szymonski@ <szymonski@>

> >> > >Subject: Re: [ ] New evidence of HBOT

> >> > efficacy.

> >> > >medicaid

> >> > >Date: Wednesday, February 11, 2009, 11:03 AM

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >I wish people would wake up and get over the double

> >> > blind study crap. It is not necessary. Approval can be done

> >> > without it, as has been seen in many cases, especially in

> >> > the pharma industry.

> >> > >

> >> > >-----Original Message-----

> >> > >

> >> > >From: Wayne McHowell <mackhborn (DOT) com>

> >> > >Subj: Re: [ ] New evidence of HBOT

> >> > efficacy.

> >> > >Date: Wed Feb 11, 2009 7:36 am

> >> > >Size: 15K

> >> > >medicaid

> >> > >

> >> > >The annual conference is in June I beleve.  Show up

> >> > and present with facts and double blind studies and maybe

> >> > you can get " some sunshine into the UHMS " .

> >> > > 

> >> > >Wayne McHowell, RN, BSN, ONC, CHRNA

> >>

> >> --- message truncated ---

> >>

> >

> >

>

>

> Freels

> http://www.davidfreels.com

> david@...

>

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We live in Texas and I don't think that insurance companies who

operate in TX are required to pay for HBOT treatment if the patient

has a prescription for it. I wish that were true, but I do not think

it is. Texas Medicaid statutes state that Medicaid will pay for

hyperbaric if a physician is present during the hyperbaric session

(s). However, that's a Catch 22 because the medical facilities with

hyperbaric chambers and physicians attending will not treat children

with CP because it is not FDA approved for that condition and they

don't care if we have a prescription or not.

>

> > >> > >

>

> > >> > >From: szymonski@ . <szymonski@ ..>

>

> > >> > >Subject: Re: [ ] New

>

> > evidence of HBOT

>

> > >> > efficacy.

>

> > >> > >medicaid

>

> > >> > >Date: Wednesday, February 11, 2009, 11:03

>

> > AM

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >I wish people would wake up and get over

>

> > the double

>

> > >> > blind study crap. It is not necessary.

>

> > Approval can be done

>

> > >> > without it, as has been seen in many cases,

>

> > especially in

>

> > >> > the pharma industry.

>

> > >> > >

>

> > >> > >-----Original Message-----

>

> > >> > >

>

> > >> > >From: Wayne McHowell <mackhborn (DOT)

>

> > com>

>

> > >> > >Subj: Re: [ ] New evidence

>

> > of HBOT

>

> > >> > efficacy.

>

> > >> > >Date: Wed Feb 11, 2009 7:36 am

>

> > >> > >Size: 15K

>

> > >> > >medicaid

>

> > >> > >

>

> > >> > >The annual conference is in June I

>

> > beleve.  Show up

>

> > >> > and present with facts and double blind

>

> > studies and maybe

>

> > >> > you can get " some sunshine into the

>

> > UHMS " .

>

> > >> > > 

>

> > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA

>

> > >>

>

> > >> --- message truncated ---

>

> > >>

>

> > >

>

> > >

>

> >

>

> >

>

> > Freels

>

> > http://www.davidfre els.com

>

> > daviddavidfreels (DOT) com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Share on other sites

Call me darin 2149240202

Sent from my Verizon Wireless BlackBerry

Re: [ ] New

>

> > evidence of HBOT

>

> > >> > efficacy.

>

> > >> > >medicaid

>

> > >> > >Date: Wednesday, February 11, 2009, 11:03

>

> > AM

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >

>

> > >> > >I wish people would wake up and get over

>

> > the double

>

> > >> > blind study crap. It is not necessary.

>

> > Approval can be done

>

> > >> > without it, as has been seen in many cases,

>

> > especially in

>

> > >> > the pharma industry.

>

> > >> > >

>

> > >> > >-----Original Message-----

>

> > >> > >

>

> > >> > >From: Wayne McHowell <mackhborn (DOT)

>

> > com>

>

> > >> > >Subj: Re: [ ] New evidence

>

> > of HBOT

>

> > >> > efficacy.

>

> > >> > >Date: Wed Feb 11, 2009 7:36 am

>

> > >> > >Size: 15K

>

> > >> > >medicaid

>

> > >> > >

>

> > >> > >The annual conference is in June I

>

> > beleve.  Show up

>

> > >> > and present with facts and double blind

>

> > studies and maybe

>

> > >> > you can get " some sunshine into the

>

> > UHMS " .

>

> > >> > > 

>

> > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA

>

> > >>

>

> > >> --- message truncated ---

>

> > >>

>

> > >

>

> > >

>

> >

>

> >

>

> > Freels

>

> > http://www.davidfre els.com

>

> > daviddavidfreels (DOT) com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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