Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi , Both work for our special kids. I swear by hard chambers for the higher pressure treatments (1.5 ATA 100% O2) because it is well researched, much is known and measured and it works well with most kids. But, home chambers have issues because you have to be able to maintain the equipment, it has to be easy to use, and less expensive. Hard chambers, including O2 delivery start at $50,000 and go up to $225,000. Soft chambers are $9-18,000! Also, soft chambers are extremely safe.... it is very difficult to get into a possibly dangerous situation with them because they only go to 1.3 ATA air, unlike hard chambers that go to 3.0 ATA with 100% O2. So, if families are going the home route, I often direct them to soft chambers in most cases unless there are compelling reasons otherwise. Please note that the CHERISH Foundation sells both Oxy Health and Performance soft chambers at whatever the best prices that can be attained by the parents. www.CHERISHfoundation.org All commissions go to treating children with HBOT and supporting CHERISH's research. CHERISH is in the middle of an important HBOT for autism pilot study with the UC Medical School's MIND Institute. The results have been catching their " mainstream medical " attention. CHERISH's next study is going to be a seizure study to prove, once and for all, that HBOT helps control, and cure seizures. So, if you purchase a chamber, please consider doing so through CHERISH. Let me know if you have any questions. Blessings, Ed At 11:16 AM 6/24/2008, you wrote: >We had a fundraiser this last weekend and have enough to buy a chamber >for in home or to go through two more rounds at the hospital. I'm >looking for any input either way on which route to go. I have had two >doctors say please don't buy a home chamber you need to stick with what >you know works. I'd appreciate anyones experiences either way. Thanks > > > Ed Nemeth President, CEO Spectrum Events 444 North Third Street, Suite 304 Sacramento, CA 95814 916-856-7044 x 339 916-856-7040 (fax) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 ERin, Possibly I did not exactly answer your questions... it seems like you might be looking for direction of whether to continue with clinical HBOT verses a home chamber as well as the issues of hard, vs soft chambers. It depends on the severity of your child to some degree and your financial resources... which seem limited since you are already doing fund raisers. Look, if your child is fairly severe, (this may seem contradictory so think carefully about what i am saying) a soft chamber might be a good answer. Again, I swear by the results from 1.5-1.75 ATA 100% O2. But, a soft chamber controls you costs, while giving you unlimited HBOT. I don't think it is optimal HBOT, but it is unlimited. You could do it twice a day every day, for an extreme example. Whereas the clinic has costs and those are the sessions you get. In that case, it might pay off to look at the soft, home chamber, for ongoing HBOT, while still saving money to go to the clinic every few months for a week of higher pressure HBOT. AND, DO NOT DISCOUNT THE VALUE OF THOSE HIGHER PRESSURE SESSIONS! THEY CAN ADD A LOT! the real questions have to do with your sons diagnosis, severity, home, family needs, clinic location and costs, etc. So, there is no " answer " . just trade-off's. My daughter has had about 600 hard chamber sessions, and is still making gains from them. Blessings, Ed At 11:16 AM 6/24/2008, you wrote: >We had a fundraiser this last weekend and have enough to buy a chamber >for in home or to go through two more rounds at the hospital. I'm >looking for any input either way on which route to go. I have had two >doctors say please don't buy a home chamber you need to stick with what >you know works. I'd appreciate anyones experiences either way. Thanks > > > Ed Nemeth President, CEO Spectrum Events 444 North Third Street, Suite 304 Sacramento, CA 95814 916-856-7044 x 339 916-856-7040 (fax) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 , During my extensive time at The Family Hope Center, I met many families who are getting fantastic results from the portable chambers. It seems like most of the families reported the portables were working wonderfully for their children. My personal experience has not been the same. My son made dramatic gains with the hard chamber and through repeated and extensive portable chamber treatment, no real changes. His main issue helped by hbot is vision. His nystagmus, and thus depth perception, were quite miraculously improved. I have NO documented evidence, only anecdotal reports from hundreds of families----it seems to me that vision improves best in the hard chamber, but other symptoms do well with the portables. It's a difficult decision to make. Best wishes on your journey to recovery. On Tue, Jun 24, 2008 at 1:32 PM, Ed Nemeth <nemeth@...> wrote: > Hi , > > Both work for our special kids. I swear by hard chambers for the > higher pressure treatments (1.5 ATA 100% O2) because it is well > researched, much is known and measured and it works well with most kids. > > But, home chambers have issues because you have to be able to > maintain the equipment, it has to be easy to use, and less expensive. > Hard chambers, including O2 delivery start at $50,000 and go up to > $225,000. Soft chambers are $9-18,000! > > Also, soft chambers are extremely safe.... it is very difficult to > get into a possibly dangerous situation with them because they only > go to 1.3 ATA air, unlike hard chambers that go to 3.0 ATA with 100% O2. > > So, if families are going the home route, I often direct them to soft > chambers in most cases unless there are compelling reasons otherwise. > > Please note that the CHERISH Foundation sells both Oxy Health and > Performance soft chambers at whatever the best prices that can be > attained by the parents. > > www.CHERISHfoundation.org > > All commissions go to treating children with HBOT and supporting > CHERISH's research. CHERISH is in the middle of an important HBOT > for autism pilot study with the UC Medical School's MIND Institute. > > The results have been catching their " mainstream medical " > attention. CHERISH's next study is going to be a seizure study to > prove, once and for all, that HBOT helps control, and cure seizures. > > So, if you purchase a chamber, please consider doing so through CHERISH. > > Let me know if you have any questions. > > Blessings, > Ed > > At 11:16 AM 6/24/2008, you wrote: > > >We had a fundraiser this last weekend and have enough to buy a chamber > >for in home or to go through two more rounds at the hospital. I'm > >looking for any input either way on which route to go. I have had two > >doctors say please don't buy a home chamber you need to stick with what > >you know works. I'd appreciate anyones experiences either way. Thanks > > > > > > > > Ed Nemeth > President, CEO > Spectrum Events > 444 North Third Street, Suite 304 > Sacramento, CA 95814 > > 916-856-7044 x 339 > 916-856-7040 (fax) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 , Donna brings up a very important point... all HBOT is specific to the patient. Possibly the best answer is to try a soft chamber and see what happens. As I mentioned, they help, but 1.5 ATA 100%V O2 is far more optimal. So, you have to think about your family situation, and what works for your son. Using a soft chamber for a couple of weeks might make the decision for you. Ed At 11:46 AM 6/24/2008, you wrote: >, >During my extensive time at The Family Hope Center, I met many families who >are getting fantastic results from the portable chambers. It seems like >most of the families reported the portables were working wonderfully for >their children. > >My personal experience has not been the same. My son made dramatic gains >with the hard chamber and through repeated and extensive portable chamber >treatment, no real changes. His main issue helped by hbot is vision. His >nystagmus, and thus depth perception, were quite miraculously improved. > >I have NO documented evidence, only anecdotal reports from hundreds of >families----it seems to me that vision improves best in the hard chamber, >but other symptoms do well with the portables. > >It's a difficult decision to make. Best wishes on your journey to recovery. > >On Tue, Jun 24, 2008 at 1:32 PM, Ed Nemeth ><<mailto:nemeth%40spectrumevents.com>nemeth@...> >wrote: > > > Hi , > > > > Both work for our special kids. I swear by hard chambers for the > > higher pressure treatments (1.5 ATA 100% O2) because it is well > > researched, much is known and measured and it works well with most kids. > > > > But, home chambers have issues because you have to be able to > > maintain the equipment, it has to be easy to use, and less expensive. > > Hard chambers, including O2 delivery start at $50,000 and go up to > > $225,000. Soft chambers are $9-18,000! > > > > Also, soft chambers are extremely safe.... it is very difficult to > > get into a possibly dangerous situation with them because they only > > go to 1.3 ATA air, unlike hard chambers that go to 3.0 ATA with 100% O2. > > > > So, if families are going the home route, I often direct them to soft > > chambers in most cases unless there are compelling reasons otherwise. > > > > Please note that the CHERISH Foundation sells both Oxy Health and > > Performance soft chambers at whatever the best prices that can be > > attained by the parents. > > > > www.CHERISHfoundation.org > > > > All commissions go to treating children with HBOT and supporting > > CHERISH's research. CHERISH is in the middle of an important HBOT > > for autism pilot study with the UC Medical School's MIND Institute. > > > > The results have been catching their " mainstream medical " > > attention. CHERISH's next study is going to be a seizure study to > > prove, once and for all, that HBOT helps control, and cure seizures. > > > > So, if you purchase a chamber, please consider doing so through CHERISH. > > > > Let me know if you have any questions. > > > > Blessings, > > Ed > > > > At 11:16 AM 6/24/2008, you wrote: > > > > >We had a fundraiser this last weekend and have enough to buy a chamber > > >for in home or to go through two more rounds at the hospital. I'm > > >looking for any input either way on which route to go. I have had two > > >doctors say please don't buy a home chamber you need to stick with what > > >you know works. I'd appreciate anyones experiences either way. Thanks > > > > > > > > > > > > > Ed Nemeth > > President, CEO > > Spectrum Events > > 444 North Third Street, Suite 304 > > Sacramento, CA 95814 > > > > 916-856-7044 x 339 > > 916-856-7040 (fax) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 I guess I should have included why we are doing HBOT in my post. Colby had a stroke last august from e.coli posioning. He damaged most of his basal ganglia and lost the majority of his motor skills. he doesn't talk or walk, or sit up anymore. After doing 40 treatments in the hard chamber he is saying 3 to 4 words, he can roll over front to back and back to front, he has more head control, he's not drooling anymore, he smiles again, and he was sleeping better during the treatments (this has since stopped and we're back to sleeping only 2 hours at a time). This is why we are wondering what to do because we know that the hard chamber works. I don't have access to a soft chamber to try it and see if it works. So that's where we are at with that. I appreciate all the advice we have gotten so far! Please keep it coming. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 we are in Logan Utah. > > >I guess I should have included why we are doing HBOT in my post. Colby > >had a stroke last august from e.coli posioning. He damaged most of his > >basal ganglia and lost the majority of his motor skills. he doesn't > >talk or walk, or sit up anymore. After doing 40 treatments in the hard > >chamber he is saying 3 to 4 words, he can roll over front to back and > >back to front, he has more head control, he's not drooling anymore, he > >smiles again, and he was sleeping better during the treatments (this > >has since stopped and we're back to sleeping only 2 hours at a time). > >This is why we are wondering what to do because we know that the hard > >chamber works. I don't have access to a soft chamber to try it and see > >if it works. So that's where we are at with that. I appreciate all the > >advice we have gotten so far! Please keep it coming. > > > > > > Ed Nemeth > President, CEO > Spectrum Events > 444 North Third Street, Suite 304 > Sacramento, CA 95814 > > 916-856-7044 x 339 > 916-856-7040 (fax) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 ED, Thanks for the information and it is a good to know that we probably can purchase a HBOT chamber through CHERISH Foundation at whatever the best prices that can be attained by parents. Can I call you for more information about it? My e-mail: lizhengus@... patty > > >We had a fundraiser this last weekend and have enough to buy a chamber > >for in home or to go through two more rounds at the hospital. I'm > >looking for any input either way on which route to go. I have had two > >doctors say please don't buy a home chamber you need to stick with what > >you know works. I'd appreciate anyones experiences either way. Thanks > > > > > > > > Ed Nemeth > President, CEO > Spectrum Events > 444 North Third Street, Suite 304 > Sacramento, CA 95814 > > 916-856-7044 x 339 > 916-856-7040 (fax) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Hey, . Glad to see you joined the group! www.samuelsmiracle.com > > > > >I guess I should have included why we are doing HBOT in my post. > Colby > > >had a stroke last august from e.coli posioning. He damaged most of > his > > >basal ganglia and lost the majority of his motor skills. he doesn't > > >talk or walk, or sit up anymore. After doing 40 treatments in the > hard > > >chamber he is saying 3 to 4 words, he can roll over front to back > and > > >back to front, he has more head control, he's not drooling > anymore, he > > >smiles again, and he was sleeping better during the treatments > (this > > >has since stopped and we're back to sleeping only 2 hours at a > time). > > >This is why we are wondering what to do because we know that the > hard > > >chamber works. I don't have access to a soft chamber to try it and > see > > >if it works. So that's where we are at with that. I appreciate all > the > > >advice we have gotten so far! Please keep it coming. > > > > > > > > > > Ed Nemeth > > President, CEO > > Spectrum Events > > 444 North Third Street, Suite 304 > > Sacramento, CA 95814 > > > > 916-856-7044 x 339 > > 916-856-7040 (fax) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 The website for free HBOT in St sburg is www.hyperbariccenter.org It's a program set up by the Masons to help kids (and adults) who need it. They're working on opening up a big center in the area so they can treat even more people for free - pretty amazing folks. www.wakeupsam.com > > Do you have a website or way of contacting them I couldn't get it off the Mums list or when I googled it. Sue > Quote Link to comment Share on other sites More sharing options...
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