Re: Truth about HBOT - mHBOT GA

December 24, 2006

I agree!! Just thought i would post www.hypertc.com as an alernative to OH.

This is mHBOT in GA (Atlanta area).

Sharon

moscarello8 <moscarello8@...> wrote:

Hi everyone,

First of all, Merry Christmas! Second of all, how about the real

truth about hyperbaric oxygen?- at least pertaining to " my "

knowledge.

This is per my opinion and my 4 year old daughter's HBOT experiences

in the past 2.5 years. Thought I would share since I am very active

in the state of Ohio in trying to get HBOT Medicaid approved. I see

so many posts full of hope and questions, but so few with any

answers or guidance. I was in that situation myself in 2003.

Did hyperbaric work for my daughter? Yes. Is it an absolute cure?

No. Will it be a cure in the long term? I don't know. Is this

therapy promising? Yes! Am I hopeful? Yes. Has she had measureable

improvement? Yes! Yes! Yes! Can this improvement be explained by

traditional PT, OT, Speech " therapy " . No!!!! and another resounding

NO!!!! Absolutely not, No!! Do I have proof of this??? Yes!! What

is this proof??? GMFM tests. Therapy reports. Physician reports,

even physicians who know nothing about HBOT, but only saw the

before/after clnical " evidence " . Bella has improved with HBOT that

cannot be explained by traditional therapy. Period.

Will your child need more than 40 treatments? More than probably,

yes! Should that discourage you? No. Will it discourage you? Of

course it will. We all want 40 to be the magical number. How many

of us want to be gone for a month from our families paying $4,000 -

$8,000 for treatments, plus hotels, food, gas, and the most

priceless cost of being away from our husbands, our wives, our other

children, our family??? Zero, none of us. How do you put a price

on that? You can't. I have done this 5 times now. It is

heartbreakingly difficult on me and my hubby and other children (5

of them) that I had to leave behind while getting treatment.

What have I seen in Bella that can't be explained away by bogus

traditional 30 minute per week therapy that is useless? In my

humble opinion, 30 minutes per day is useless too. Go through the

motions, write your treatment plan, bill the insurance company,

order the special equipment, strap the child down, use the special

exercises, and oh my gosh, your 30 minutes is up (more like 22

minutes after you get their coat off and spend 8 minutes complaining

about life with your disabled child). Time to schedule next week's

appointment. Yep, your child is making progress. She can hold a

toy now in her hand for 1 billionth of a second compared to one

billioth quadrillonth gazillionth of a second last month. Yeh!!!

Oh, and she can kinda roll over maybe, kinda, a little, sorta, I

think. And if we order some of this special million dollar

equipment that your insurance might pay for if we send in 200 prior

authorizations for, that might help too.

How about reality and truth? Uh, how about hyperbaric????

Oh, no Mrs. Moscarello, don't waste your money!!! It is useless!!!

Don't stress out your other kids. They will resent you. Blah,

blah, blah....

Show me your statistics to back up what you say. Oh, gee, you

can't. Show me your " proof " . Oh, that's right no other child

you " treated " had hyperbaric,

BARIATRIC, hypo bari, bari??? What was it called??

My response??? How can you tell me this hypo, hyper, bariatric,

treatment is not helpful????? Especially when you cannot even

pronounce it, or spell it and you think this treatment is somehow

related to bariatric lipsuction fat reduction.

How do we know this treatment isn't helpful?? Well, it just isn't.

How do you know????? Have you ever clinically treated a child

before/after HBOT???

What is the answer??? NO!!

Then my response is. Then how do you know????

Uh..... Conversation ended. Goodbye.

Moving on..........

How has Bella been helped?????

Stridor - almost completely gone (laryngomalacia)

Drooling - gone

Fine motor improvement - yes

Gross motor improvement - yes - and measureable. Taking many steps

with help. Trying to walk in her gait trainer. Rolling everywhere

and out of her bed. Getting out of her bed independently. Making

improvements every week now. Little ones in most people's eyes, but

huge ones for her.

Cognitive improvement - yes - in mommy's measure amounts, not

therapist because they don't interact with my daughter like I do.

Like choosing and demanding and temper tantrums. And she can be

bribed to do things that help get her moving. Like bribing her with

coke if she gets out of her own bed or takes a step or two.

Better quality of life improvement - yes! And better quality of

life for me and her family.

Is the heartache gone? No. Is it lessened? Yes, because now I have

more hope that she can get better no matter what any M.D. or

whatever their intials are. How about mine? M.0.6 - Mother of 6.

Does that earn a degree? Yep, maybe in reproductive science.

Will I give up?? No!

Have doctors who know NOTHING about hyperbaric been amazed? YES!!!

Have they become believers?? Yes. Will they admit it? The records

speak for themselves so the answer is yes.

Okay, now what????

You call Freels and tell him you want to help with Medicaid

for HBOT. You write to me. You write to Judy Burkholder. You tell

them you want help to get help for your child. Don't expect an easy

answer to getting hyperbaric for your child. It takes work, more

work, lots of heartache, headache, fight, more fight, and you know

what PERSISTENCE. Your child needs you to be an advocate. Don't

expect anyone in your county or state to do it for you because it

is " their job " . That is the biggest joke I have ever heard, and I

have a sense of humor and don't think that is funny. The more

parents that rock the boat and rock it hard the better. We need to

knock the people that are in charge of these boats out. Not only

out, but in the water and don't let them back in.

Let me tell you a few other facts.

is a friend of mine. Judy is a friend of mine. I have met

both in person. Why? Because I was in the right place at the right

time and met both of them. Coincidence? No way. Judy was in

Cleveland the same time I was in January 2005. I met her in the

Mc House library. We were there to get Bella a feeding

tube that she no longer needs.

I met in Florida in July, 2006 at Dr. Neubauer's HBOT

symposium. He was talking about reimbursement. I was there to help

Dr. Morley promote prevention of brain damage.

www.cordclamp.com (another email)

I had talked to numerous times about medicaid reimbursement

before.

I have talked to many wonderful people on the phone and on the

internet. The one thing I can tell all of you is to keep trying for

reimbursement for HBOT.. It will NOT happen without your help. At

least it won't happen for a long time. Other parents will fight,

but if it is only one, by one, by one, and it will take a long,

long, time..... How long do you want to wait for your child?

Both and Judy (and many others)only care about helping our

children heal the best way they can. The purest of motives (in my

opinion) is no personal motive for monetary gain, fortune, or fame.

That is the motive for those who seek HBOT for our children. Also

your motive and mine. We all know how much horror brain damage has

caused our families.

has worked tirelessly for us. I have now joined in the

fight. Judy has worked tirelessly for those of us in Ohio and for

those in other states who have reached out asking for help. We need

more parents to help fight this fight. It is easy to read an email

and sigh.... oh this is nice.....

But it takes a lot more work to call, write, complain, complain some

more, and even complain more for a cause that is worthwhile. HBOT

will not just happen for our children just because. It will be just

because only if parents like us make it so.

I am fighting the fight no matter how tired I am. It is my anger

that keeps me going. And fighting.

Thank you for all your hard work! And thank you Judy for all

of yours. And most importantly, thank you Bella for helping me to

believe not only for your recovery and the chance to have a life

that doctors told me you could not, but for helping me to believe

that miracles do happen, but only if you believe (and part of

believing is helping to make a miracle happen with your own efforts

and those of others who believe in miracles too.) Yes, God does

heal, and miracles do happen, but just remember that God uses YOUR

hands to help those miracles to be reality.

Ann Moscarello

__________________________________________________

December 25, 2006

Sharon there is also Prohbot in the Marietta area. We have gone there twice for

40 dives. Sue

sharon lang <flipperlang@...> wrote: I agree!! Just thought i

would post www.hypertc.com as an alernative to OH. This is mHBOT in GA (Atlanta

area).