True community

[Guest guest]

WOW!!! Is there some proof to this?

Karla

[Guest guest]

thank you. You are such a trooper. I new it would come out who this

was. Just wasn't sure when. I seen the pattern also and told him in a email on

the list he knew who this person was.

Darin

[Guest guest]

There has been a great deal of discussion these last few days on the

hyperbaric community finally coming together as a true community.

Many people have worked toward this end for several years, some have

worked for many, many years.

Such a utopian community exists only when relationships are based on

mutual trust, but trust can only exist when all parties concerned are

honest with each other, when everybody tells the truth about who they

are and what they're saying is actually true.

As the parent of a brain-injured child, I have found Truth to be

invaluable when making decisions on what is the best and most

appropriate care for our child. Since neurologists can provide us no

answers, as parents, we have relied tremendously on the experience(s)

of other parents who have gone before us, depending in good faith

upon them to provide direction and guidance that we can rely on.

This in turn has humbled me, and made me realize that I too have an

awesome responsibility to always tell other parents the truth about

what I know to be true and in turn to also speak when I know

something is not true when the opposite is claimed instead. Often I

try to set the record straight without conflict but often the

conflict is just part of the mix. Squabbles result when these

disagreements occur, and it's often seen as petty arguing, but it's

not. Not really. We are all here to arrive at the truth of what's

best for our children and sometimes these disagreements force the

cream to rise to the top during this process.

Sort of like pasteurization. You see, the truth will always manifest itself.

Sadly, some six months ago, it was brought to my attention by a

number of parents who contacted me off-list that a member of the

listserv was using an alias, pretending to be someone

else. As the alias, this person was claiming to be the mother of a

brain-injured child who had experienced tremendous success at only

one particular hyperbaric facility. This person even claimed to have

been at other clinics and " her " " child " had never experienced as good

results as had been experienced at only one particular facility. This

person even claimed to have bought a portable Oxyhealth chamber and

after dozens of treatments decided to sell the portable and go back

to the one and only facility where " her child " had experienced the

most improvents.

The parents told me who the alias belonged to, and I took the suspect

email address and did a search on the archived messages for both the

list

( /messages) and the

NeuroHBOT list (neurohbot/messages). I

read through twenty or thirty messages from each list and came away

convinced that the parents who contacted me were correct. What most

convinced me was the number of times the alias used the word " crap. "

While I have had a number of disagreements with this member, I cannot

begin to describe to you the level of disappointment and betrayal I

felt. So I confronted Hartsoe in an email (which I will post

if neccessary), and told him I knew all about " JaniceC11945@... " ,

and expressed my disappointment. I explained that parents depend on

other parent experiences when making critical decisions, and he had

violated that most sacred trust. He had even taken advantage of that

sacred trust for his own personal gain. Further, the #1 comment

skeptical traditional practitioners make about those who advocate and

provide off-label HBOT for brain-injury is that all such people are

unscrupulous liars, and he had just provided them the proof. His

reply to me was denial, and he never accepted responsibility.

At that time I assured that if such activity occurred in the

future I would not hesitate to fully disclose what I knew about

JaniceC11945@.... Even though he denied using

JaniceC11945@... as an alias, all posts by JaniceC11945@...

immediately ceased.

Then last week amidst all the flurry of activity and discussions

about how to best help and Lief, someone new joined the

listserv. Because of previous posts by spamming

pornographers, all new subscribers are automatically put on a

moderated status. When they make their first post I can see if

they're legitimate or not, and I'll usually lift the moderation.

Last Wednesday and Thursday I was out of town for Thanksgiving and

didn't have access to the Internet. When I got back Friday I found a

stack of pending messages by this one new member, waiting to be

approved. I approved one or two. I hesitated to approve any more

because they all sounded so much like something written by

JaniceC11945@...--except the word " crap " wasn't used.

Then, incredibly, this person also claimed to be the mother of a

brain-injured child, and even had the gall to claim the child was

born 14 weeks prematurely. My son was born almost 12 weeks early, and

I can assure you I don't appreciate someone claiming our difficulty

as an identity without actually experiencing the heartache. I don't

appreciate someone so disrepecting the experience of truly parenting

a child born prematurely who's had lifelong developmental

disabilities. I don't appreciate the insult, and I know the members

of this list won't appreciate it either.

After all the struggle Gilbert has endured on behalf of Lief,

I'm quite sure making light of the difficulty our children face will

hardly be something she appreciates either.

This person doesn't sign her name and is only known by the email

address " 26wkrmom@.... " " Her " profile identity is

" emlezmom. " She claims to have treated her daughter to 60 treatments

of HBOT in July, 2004 in Bolingbrook, Illinois--that Illinois

Medicaid paid for. 60 treatments is 2x a day for all 30 days of the

month--Saturday and Sunday too.

With a screen-capture program I have made JPEG files of the

unapproved posts. There's definitely a single-purpose pattern to

these posts, just like the posts of JaniceC11945@.... You can see

the JPEGS at

http://photos./group/medicaid/lst? & .dir=/26wkr & .src=gr & .v\

iew=t & .url=http%3a//us.f1.fs.com/groups/g_4010157/26wkr/26wkr_6thPost---1.j\

pg%3fbc_8VrwB8Aq7wlSE & .cx=150 & .cy=67 & .type=u

I have decided to make this public to the other members of the group

because we will never have true community unless we have mutual trust

and respect. That trust will never exist unless we are all truly

honest about who we are and what our purposes and intentions are.

In the future, if such deceitful activity occurs again, the deceit

will be immediately disclosed. When the dishonesty is revealed, it's

up to individual members to decide if they can ever trust the

deceiver again.

--

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770-491-6776 (phone)

720-234-5757 (fax)

mailto:dfreels@...

http://www.freelanceforum.org/df

[Guest guest]

, just for the record her last treatment was in July 2004, I never siad she

had 60 treaments in one month you ass!

-------------- Original message --------------

There has been a great deal of discussion these last few days on the

hyperbaric community finally coming together as a true community.

Many people have worked toward this end for several years, some have

worked for many, many years.

Such a utopian community exists only when relationships are based on

mutual trust, but trust can only exist when all parties concerned are

honest with each other, when everybody tells the truth about who they

are and what they're saying is actually true.

As the parent of a brain-injured child, I have found Truth to be

invaluable when making decisions on what is the best and most

appropriate care for our child. Since neurologists can provide us no

answers, as parents, we have relied tremendously on the experience(s)

of other parents who have gone before us, depending in good faith

upon them to provide direction and guidance that we can rely on.

This in turn has humbled me, and made me realize that I too have an

awesome responsibility to always tell other parents the truth about

what I know to be true and in turn to also speak when I know

something is not true when the opposite is claimed instead. Often I

try to set the record straight without conflict but often the

conflict is just part of the mix. Squabbles result when these

disagreements occur, and it's often seen as petty arguing, but it's

not. Not really. We are all here to arrive at the truth of what's

best for our children and sometimes these disagreements force the

cream to rise to the top during this process.

Sort of like pasteurization. You see, the truth will always manifest itself.

Sadly, some six months ago, it was brought to my attention by a

number of parents who contacted me off-list that a member of the

listserv was using an alias, pretending to be someone

else. As the alias, this person was claiming to be the mother of a

brain-injured child who had experienced tremendous success at only

one particular hyperbaric facility. This person even claimed to have

been at other clinics and " her " " child " had never experienced as good

results as had been experienced at only one particular facility. This

person even claimed to have bought a portable Oxyhealth chamber and

after dozens of treatments decided to sell the portable and go back

to the one and only facility where " her child " had experienced the

most improvents.

The parents told me who the alias belonged to, and I took the suspect

email address and did a search on the archived messages for both the

list

( /messages) and the

NeuroHBOT list (neurohbot/messages). I

read through twenty or thirty messages from each list and came away

convinced that the parents who contacted me were correct. What most

convinced me was the number of times the alias used the word " crap. "

While I have had a number of disagreements with this member, I cannot

begin to describe to you the level of disappointment and betrayal I

felt. So I confronted Hartsoe in an email (which I will post

if neccessary), and told him I knew all about " JaniceC11945@... " ,

and expressed my disappointment. I explained that parents depend on

other parent experiences when making critical decisions, and he had

violated that most sacred trust. He had even taken advantage of that

sacred trust for his own personal gain. Further, the #1 comment

skeptical traditional practitioners make about those who advocate and

provide off-label HBOT for brain-injury is that all such people are

unscrupulous liars, and he had just provided them the proof. His

reply to me was denial, and he never accepted responsibility.

At that time I assured that if such activity occurred in the

future I would not hesitate to fully disclose what I knew about

JaniceC11945@.... Even though he denied using

JaniceC11945@... as an alias, all posts by JaniceC11945@...

immediately ceased.

Then last week amidst all the flurry of activity and discussions

about how to best help and Lief, someone new joined the

listserv. Because of previous posts by spamming

pornographers, all new subscribers are automatically put on a

moderated status. When they make their first post I can see if

they're legitimate or not, and I'll usually lift the moderation.

Last Wednesday and Thursday I was out of town for Thanksgiving and

didn't have access to the Internet. When I got back Friday I found a

stack of pending messages by this one new member, waiting to be

approved. I approved one or two. I hesitated to approve any more

because they all sounded so much like something written by

JaniceC11945@...--except the word " crap " wasn't used.

Then, incredibly, this person also claimed to be the mother of a

brain-injured child, and even had the gall to claim the child was

born 14 weeks prematurely. My son was born almost 12 weeks early, and

I can assure you I don't appreciate someone claiming our difficulty

as an identity without actually experiencing the heartache. I don't

appreciate someone so disrepecting the experience of truly parenting

a child born prematurely who's had lifelong developmental

disabilities. I don't appreciate the insult, and I know the members

of this list won't appreciate it either.

After all the struggle Gilbert has endured on behalf of Lief,

I'm quite sure making light of the difficulty our children face will

hardly be something she appreciates either.

This person doesn't sign her name and is only known by the email

address " 26wkrmom@.... " " Her " profile identity is

" emlezmom. " She claims to have treated her daughter to 60 treatments

of HBOT in July, 2004 in Bolingbrook, Illinois--that Illinois

Medicaid paid for. 60 treatments is 2x a day for all 30 days of the

month--Saturday and Sunday too.

With a screen-capture program I have made JPEG files of the

unapproved posts. There's definitely a single-purpose pattern to

these posts, just like the posts of JaniceC11945@.... You can see

the JPEGS at

http://photos./group/medicaid/lst? & .dir=/26wkr & .src=gr & .v\

iew=t & .url=http%3a//us.f1.fs.com/groups/g_4010157/26wkr/26wkr_6thPost---1.j\

pg%3fbc_8VrwB8Aq7wlSE & .cx=150 & .cy=67 & .type=u

I have decided to make this public to the other members of the group

because we will never have true community unless we have mutual trust

and respect. That trust will never exist unless we are all truly

honest about who we are and what our purposes and intentions are.

In the future, if such deceitful activity occurs again, the deceit

will be immediately disclosed. When the dishonesty is revealed, it's

up to individual members to decide if they can ever trust the

deceiver again.

--

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770-491-6776 (phone)

720-234-5757 (fax)

mailto:dfreels@...

http://www.freelanceforum.org/df