Guest guest Posted June 4, 2000 Report Share Posted June 4, 2000 Hi, & , > It is very possible that you have Thalassemia trait commonly known as >Mediterranean anemia. It is nothing to be alarmed about it just means >that you >are a carrier of this disease. It becomes a major problem if you have >children >with someone who is also is a carrier -- these children require >transfusions and >don't live very long. Are you of Mediterranean descent? There are populations with high rates of thalassemia in many spots around the world - China, Africa, India, and several places around the Med. The highest rate of thalassemia major is in the Caribbean where oriental and African populations mixed - most other populations the rate of T major is lower, while T minor is more common. Jerry ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 In a message dated 2/14/02 6:13:05 PM, writes: << Right, but you DO have rights under 504, to accomadations which are considered Civil Rights. >> You are entitled to accommodations only if your disability substantially limits a major life activity ( like learning). Just having a disability itself is not enough to qualify for the accommodations. So, a student with a disability that is not experiencing adverse effects on their academic progress because of that disability is a regular ed student. >> Right..but I'm sure DS would fall into that catagory... health impaired and learning disabled fall into the 504 catagory. My daughter ( doesnt have DS) who has diabetes has a 504..she doesn't have any learning problems..but needs accomadations like being allowed to eat in class and have access to water...Also the physically disabled are protected by this as well. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 In a message dated 2/14/2002 9:45:04 PM Eastern Standard Time, muracat@... writes: > Right..but I'm sure DS would fall into that catagory... health impaired and > learning disabled fall into the 504 catagory. My daughter ( doesnt have > DS) > who has diabetes has a 504..she doesn't have any learning problems..but > needs > accomadations like being allowed to eat in class and have access to > water...Also the physically disabled are protected by this as well. > , You have to be individually evaluated for 504 accommodations ... it's not a given because you have a disability. So a physical disability that impacts you in one of the life skills area would then qualify .... but not every child with DS would. There is no blanket automatic because of a disability. Plenty of children are turned down for 504 where we live and parents lose appeals. Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 The educational system here is set up so that a parent can go due process (this is sort of like going to court within the educational system) if they don't agree with the professional findings and placement recommendations. However, this is America and anyone can sue anyone for anything, although they may not win. I would be willing to skip the due process altogether if I felt my daughter's civil rights were being violated...and just sue them, periold. We did feel that the principal was doing this at a school where she attended. We would have taken her to court for being in violation of someone's civil rights, but fortuneately, she backed down. Stereotyping a person because of race, skin-color or religion violates their civil rights. Stereotyping a person just because they have Down syndrome and not based on any clinical findings, also violates that person's civil rights. Re: Digest Number 951 > > In a message dated 2/14/02 6:13:05 PM, writes: > > << Right, but you DO have rights under 504, to accomadations which are > considered Civil Rights. >> > > You are entitled to accommodations only if your disability substantially > limits a major life activity ( like learning). Just having a disability > itself is not enough to qualify for the accommodations. So, a student with a > disability that is not experiencing adverse effects on their academic > progress because of that disability is a regular ed student. >> > > Right..but I'm sure DS would fall into that catagory... health impaired and > learning disabled fall into the 504 catagory. My daughter ( doesnt have DS) > who has diabetes has a 504..she doesn't have any learning problems..but needs > accomadations like being allowed to eat in class and have access to > water...Also the physically disabled are protected by this as well. > > M. > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi , This is totally off the subject ,but I was wondering does anyone know if autisic children have too wait in line at Disney World? We are about too go thier next week ,and I heard that they do not have too or they have some special policy does anyone know for sure? I know if your in a wheelchair you can go right up any info I would be greatful for! dannilynn700231@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Dannilynn, We just got back from Disney and had a great time.They are so understanding and helpful.When you arrive go to guest relations and tell them your situation and you get a pass that allows you to go right to the front of most attractions.My 4 yr. old daughter loved the rides,water parks and parades.She did not like the movie type shows and usually was done by about 2:00 pm.I went back to the hotel pool with her and my husband and son kept going all night.Also you can get a free stroller with your pass.It is like a wagon/stroller combo.Bring your own food.It is overpriced and the lines are long.Have fun!!! Regards, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 --- dannilynn700231@... wrote: > Hi , This is totally off the subject ,but I was > wondering does anyone know if > autisic children have too wait in line at Disney > World? We are about too go > thier next week ,and I heard that they do not have > too or they have some > special policy does anyone know for sure? I know if > your in a wheelchair you > can go right up any info I would be greatful for! > dannilynn700231@... > I am not sure about walt disney world but we just visited Paramounts Great America in Ca and I called ahead of time and they told me all I had to bring was a letter stating my childs disability and that entitled her to all disability access which included no waiting in line, 3 guests besides herself also. It was so nice. Some of the rides we had to get times as to when we would ride but it was well worth it. Hope this helps. Try and call walt disney world. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Regarding Disney World or Disneyland. It would be wise to get a doctor's letter with a diagnosis to take to Guest Relations. Warm regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Just to add: With Disneyland & Universal Studios - NOT only will that letter get you a no waiting pass (you enter the rides thru the exit). BUT - that same letter will allow you a discount at the gates (most? all? large amusement parks will do it). Neither place has a 'handicapped rate' posted - yet, they both have it!!! Once at D/Land, the girl at the gate was nice enough to apply the discount to all 3 of us - not just my daughter. ALSO (very important) - put a safety pin in your wallet, so that you can pin your pass on your shirt. If you have to keep pulling it in/out of your shorts (while holding a coke & ice cream) - it'll get shredded very quickly!! This way - when you want to get the attention of a staff member (while you're waiting in line at the exit) - you can just point to the pass (on your chest). You can pre-purchase D/land or D/World tickets at your local Disney Store- BUT the 'handicapped discount' is ONLY available at the gates. One more tip (last one) - dress your child/ren in bright yellow shirts. Once at D/land, Maya was wearing a bright yellow shirt/shorts & realized how easy it was to 'spot' her in a group of kids because of the bright yellow. If you go back to D/Land (or Univ Studios) the next day - bring the prev. day's 'No Waiting Pass' & they will issue a new one for that day. Good Luck Mona Re: Digest Number 951 --- dannilynn700231@... wrote: > Hi , This is totally off the subject ,but I was > wondering does anyone know if > autisic children have too wait in line at Disney > World? We are about too go > thier next week ,and I heard that they do not have > too or they have some > special policy does anyone know for sure? I know if > your in a wheelchair you > can go right up any info I would be greatful for! > dannilynn700231@... > I am not sure about walt disney world but we just visited Paramounts Great America in Ca and I called ahead of time and they told me all I had to bring was a letter stating my childs disability and that entitled her to all disability access which included no waiting in line, 3 guests besides herself also. It was so nice. Some of the rides we had to get times as to when we would ride but it was well worth it. Hope this helps. Try and call walt disney world. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > Êtold policeÊshe hadn't been taking her anger medicine...and > doesn't > remember what happened after she hit in the face. > Bet it was Paxhell!!! Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > Êtold policeÊshe hadn't been taking her anger medicine...and > doesn't > remember what happened after she hit in the face. > Bet it was Paxhell!!! Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > Do you have an e-mail address for this idiot???????? I can't stand it > anymore I got so mad yesterday that I DID write this morong. & amp;nbsp; Letter is below: Dear Dr. : I have always enjoyed your viewpoint on medical issues, but this time I am totally outraged and appalled at the following comments you have made. " Since depressed children are already at a seriously increased risk of suicide, it is hard to know if the drug or the disease is causing suicidal behavior. Also, when people who are depressed start taking antidepressants and begin to feel better they often gather enough mental and physical strength to commit suicide, said. You seem to have some knowledge of the condition known as akathisia. & amp;nbsp; It is usually this condition which sparks a depressed person to commit suicide, not this magical strength (akathisia is anything BUT magical) that they suddenly get from taking an SSRI. & amp;nbsp; You have obviously never experienced akathisia, but I can tell you from my own experience that compared to suffering with this internal restlessness, death is a better alternative. You said: & amp;nbsp; & amp;nbsp; & amp;nbsp; & amp;nbsp; & amp;nbsp; There is some evidence that adolescents - the main group of people under 18 who are prescribed the drugs - may metabolize these antidepressants at a faster rate than adults. " That means the drugs could disappear from their bloodstream at a faster rate, leaving them with less of the drug in their system, " said. " So it's possible the teens are not getting enough of the drugs and that they may need higher doses. " What evidence do you have to back up this theory Dr. ? & amp;nbsp; Let me reduce my premise to the simplest terms: if someone were exhibiting signs of an adverse reaction to penicillin would you double their dose, or get them off the drug immediatley? & amp;nbsp; The very concept that a patient who exhibits aberrant behavior or suicidal thoughts & amp;nbsp; after being prescribed an SSRI should have their dose increased, often doubled, is the most ridiculous thing I have ever heard. & amp;nbsp; That you are parroting drug company propaganda tells me that you have not done your research into this subject. & amp;nbsp; I have been researching SSRIs drugs exclusively for the last 7 years. & amp;nbsp; I have never once come across any articles that imply that an adolescent metabolizes these drugs quicker and therefore should have higher doses. & amp;nbsp; And wouldn't it be simple to perform a P450 2D6 test to see how a patient metabolizes these drugs? & amp;nbsp; I can speak from experience on this issue. & amp;nbsp; Within two weeks of being prescribed Paxil for chronic pain, I went into a hypomanic rage and threatened suicide. & amp;nbsp; I was taken to the hospital where I was told that the reason I was suicidal was that I had not taken enough of this drug, and my 10 mg dose was promptly doubled to 20, then later upped to 30, then 40 mgs. & amp;nbsp; I was NOT suicidal BEFORE taking Paxil. & amp;nbsp; This drug induced these impulses I had never ever experienced and I will go so far as to say that the thoughts that this drug produced were so frightening that I decided to get off of it two months later only to discover that the withdrawal from Paxil is a fast descent into a Hieronymous Bosch tableau of hell. & amp;nbsp; Remember, I was put on this drug for pain, not a mental illness. & amp;nbsp; Yet this drug MADE me suicidal, homicidal, and completely psychiatrically deranged. & amp;nbsp; The withdrawal from this drug, even after weaning off over a 2+ month peiod lasted more than two years, and resulted in my suffering numerous neurological problems that ultimately totally disabled me. & amp;nbsp; Heroin is easier to get off of than Paxil, Dr. , and I suggest that you do some research into the very substance from which Paxil is derived -- phenylpiperidine. & amp;nbsp; I am part of a massive movement to enlighten the public and the medical profession about the kinds of effects these drugs (SSRIs) can have on a person's mind. & amp;nbsp; I have more than a dozen friends whose children committed suicide while on these drugs. & amp;nbsp; Children who were only mildly depressed, and a couple of them weren't depressed at all, and yet one minute these children appeared normal and happy on their new medication and the next minute they were either dangling from a shoelace, a bungee cord, put a bullet in their head, or had plunged a butcher knife into their chest. & amp;nbsp; This is the kind of thing these drugs causes you to do!!!! & amp;nbsp; That these drugs are given to children at all is an outrage. & amp;nbsp; They are strictly banned in the UK for the under 18 population. & amp;nbsp; That you advocate an increase in dosage WHEN a child exhibits suicidal behavior makes YOU part of the problem, Dr. . & amp;nbsp; Someone who exhibits the side effects listed in the PIL should not have their dose raised, but rather discontinued. & amp;nbsp; Does that make any sense to you? & amp;nbsp; It does to me, and I'm not a doctor. & amp;nbsp; I'm just another casualty of misinformed and uninformed doctors such as yourself. & amp;nbsp; Please help save our children from this pharmaceutical scourge. Sincerely, Trisha S_______ Paxil survivor, Paxil plaintiff, and author of & amp;nbsp; & amp;nbsp; Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > Do you have an e-mail address for this idiot???????? I can't stand it > anymore I got so mad yesterday that I DID write this morong. & amp;nbsp; Letter is below: Dear Dr. : I have always enjoyed your viewpoint on medical issues, but this time I am totally outraged and appalled at the following comments you have made. " Since depressed children are already at a seriously increased risk of suicide, it is hard to know if the drug or the disease is causing suicidal behavior. Also, when people who are depressed start taking antidepressants and begin to feel better they often gather enough mental and physical strength to commit suicide, said. You seem to have some knowledge of the condition known as akathisia. & amp;nbsp; It is usually this condition which sparks a depressed person to commit suicide, not this magical strength (akathisia is anything BUT magical) that they suddenly get from taking an SSRI. & amp;nbsp; You have obviously never experienced akathisia, but I can tell you from my own experience that compared to suffering with this internal restlessness, death is a better alternative. You said: & amp;nbsp; & amp;nbsp; & amp;nbsp; & amp;nbsp; & amp;nbsp; There is some evidence that adolescents - the main group of people under 18 who are prescribed the drugs - may metabolize these antidepressants at a faster rate than adults. " That means the drugs could disappear from their bloodstream at a faster rate, leaving them with less of the drug in their system, " said. " So it's possible the teens are not getting enough of the drugs and that they may need higher doses. " What evidence do you have to back up this theory Dr. ? & amp;nbsp; Let me reduce my premise to the simplest terms: if someone were exhibiting signs of an adverse reaction to penicillin would you double their dose, or get them off the drug immediatley? & amp;nbsp; The very concept that a patient who exhibits aberrant behavior or suicidal thoughts & amp;nbsp; after being prescribed an SSRI should have their dose increased, often doubled, is the most ridiculous thing I have ever heard. & amp;nbsp; That you are parroting drug company propaganda tells me that you have not done your research into this subject. & amp;nbsp; I have been researching SSRIs drugs exclusively for the last 7 years. & amp;nbsp; I have never once come across any articles that imply that an adolescent metabolizes these drugs quicker and therefore should have higher doses. & amp;nbsp; And wouldn't it be simple to perform a P450 2D6 test to see how a patient metabolizes these drugs? & amp;nbsp; I can speak from experience on this issue. & amp;nbsp; Within two weeks of being prescribed Paxil for chronic pain, I went into a hypomanic rage and threatened suicide. & amp;nbsp; I was taken to the hospital where I was told that the reason I was suicidal was that I had not taken enough of this drug, and my 10 mg dose was promptly doubled to 20, then later upped to 30, then 40 mgs. & amp;nbsp; I was NOT suicidal BEFORE taking Paxil. & amp;nbsp; This drug induced these impulses I had never ever experienced and I will go so far as to say that the thoughts that this drug produced were so frightening that I decided to get off of it two months later only to discover that the withdrawal from Paxil is a fast descent into a Hieronymous Bosch tableau of hell. & amp;nbsp; Remember, I was put on this drug for pain, not a mental illness. & amp;nbsp; Yet this drug MADE me suicidal, homicidal, and completely psychiatrically deranged. & amp;nbsp; The withdrawal from this drug, even after weaning off over a 2+ month peiod lasted more than two years, and resulted in my suffering numerous neurological problems that ultimately totally disabled me. & amp;nbsp; Heroin is easier to get off of than Paxil, Dr. , and I suggest that you do some research into the very substance from which Paxil is derived -- phenylpiperidine. & amp;nbsp; I am part of a massive movement to enlighten the public and the medical profession about the kinds of effects these drugs (SSRIs) can have on a person's mind. & amp;nbsp; I have more than a dozen friends whose children committed suicide while on these drugs. & amp;nbsp; Children who were only mildly depressed, and a couple of them weren't depressed at all, and yet one minute these children appeared normal and happy on their new medication and the next minute they were either dangling from a shoelace, a bungee cord, put a bullet in their head, or had plunged a butcher knife into their chest. & amp;nbsp; This is the kind of thing these drugs causes you to do!!!! & amp;nbsp; That these drugs are given to children at all is an outrage. & amp;nbsp; They are strictly banned in the UK for the under 18 population. & amp;nbsp; That you advocate an increase in dosage WHEN a child exhibits suicidal behavior makes YOU part of the problem, Dr. . & amp;nbsp; Someone who exhibits the side effects listed in the PIL should not have their dose raised, but rather discontinued. & amp;nbsp; Does that make any sense to you? & amp;nbsp; It does to me, and I'm not a doctor. & amp;nbsp; I'm just another casualty of misinformed and uninformed doctors such as yourself. & amp;nbsp; Please help save our children from this pharmaceutical scourge. Sincerely, Trisha S_______ Paxil survivor, Paxil plaintiff, and author of & amp;nbsp; & amp;nbsp; Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > " When you're clinically depressed the serotonin in your brain is out of > balance and probably always will be out of balance. So I take medication to get > that proper balance back. I'll probably have to be on it the rest of my > life. " > Let's see, didn't they always refer to Terry Bradshaw as being DUMB??? & amp;nbsp; He's certainly doing a splendid job of parroting pharma propaganda. & amp;nbsp; Man, I can't wait til this idiot misses a dose or two. & amp;nbsp; yeah, he'll be on this stuff for life but not for the reason he thinks! & amp;nbsp; LOL Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 In a message dated 2/6/04 3:45:40 AM Mountain Standard Time, SSRI medications writes: > " When you're clinically depressed the serotonin in your brain is out of > balance and probably always will be out of balance. So I take medication to get > that proper balance back. I'll probably have to be on it the rest of my > life. " > Let's see, didn't they always refer to Terry Bradshaw as being DUMB??? & amp;nbsp; He's certainly doing a splendid job of parroting pharma propaganda. & amp;nbsp; Man, I can't wait til this idiot misses a dose or two. & amp;nbsp; yeah, he'll be on this stuff for life but not for the reason he thinks! & amp;nbsp; LOL Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? & amp;nbsp; Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 We have also noticed decrease to complete absence of drooling in patients with HBOT. Grant, President Professional Hyperbaric Associates, Inc. chris@... ProHBO 1455 Bells Ferry Rd., Suite 100 Marietta, Georgia 30066 O: 770-421-8094 F: 770-421-8096 info@... www.prohbo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hey guys thanks everyone for the welcomes :)I put this thing on digest because i can't deal with the volume of email - i'm just starting to write my dissertation - i'm finally in my final year woo hoo!Even in digest form this is hard to manage so sorry if i miss some messages!Thanks to the support i've gotten here and from a select few friends who know what i'm doing i've lost 22 lbs since sept last year. I veered off plan on my vacation but i'm back on.Bless you guys for the inspiration i find here and may everyone have a wonderful year of working out!Luv you guys!Kris wrote: There are 25 messages in this issue.Topics in this digest: 1. RE: Re: feb challenge From: Darcy 2. RE: breakfast From: Darcy 3. Re: Turbo Jam vs taebo From: Darcy 4. Re: Saturday Night: CIA 2401 Cardio Crazy From: "billsgirl93" 5. Re: feb challenge From: "billsgirl93" 6. Re: Kathy - Sunday's workout - Yogilates Advanced From: Donna M-P 7. Re: Digest Number 949 From: kris alcs 8. Monday Morning - Calorie Killer & Caribbean Workout Pilates From: Donna M-P 9. Re: Donna// Good Morning Everyone From: "~Anela~" 10. Re: // Good Morning Everyone From: "~Anela~" 11. RE: Bananas From: " Tigani" 12. Re: Carolyn//Good Morning Everyone From: "~Anela~" 13. Photos of Gilad:) From: "billsgirl93" 14. Re:Kassia// Kris and Anela From: "~Anela~" 15. Re: Kathy - Sunday's workout - Yogilates Advanced From: "kvetro60" 16. Re: Digest Number 949 From: Darcy 17. yoga for every body From: "Carolyn or Visser" 18. RE: Re: feb challenge From: "Carolyn or Visser" 19. RE: Re: feb challenge From: "Carolyn or Visser" 20. RE: breakfast From: "Carolyn or Visser" 21. RE: Saturday Night: CIA 2401 Cardio Crazy From: "Carolyn or Visser" 22. RE: Monday Morning - Calorie Killer & Caribbean Workout Pilates From: "Carolyn or Visser" 23. RE: RE: Bananas From: "Carolyn or Visser" 24. RE: way to go kris! From: "Carolyn or Visser" 25. Subject: - starving! From: " Hardin" ________________________________________________________________________________________________________________________________________________Message: 1 Date: Mon, 23 Jan 2006 17:57:58 -0600 From: Darcy Subject: RE: Re: feb challengeI really don't think I can do it guys I have really been struggling with THIS challenge...Maybe I'll be a "black shadow" and secretly try to keep up with you guys but not beat myself up if I do take a day off...Darcy who is eating a piece of chocolate and has NOT exercised yet today..ho-hum.......At 03:04 PM 1/23/2006, you wrote:> > Would you like to join the upcoming Challenge in February??? So far it> > is Carolyn, Donna, Jen, and myself.(sorry if I missed anyone else) The> > challenge is to move everyday!!>>did we talk darcy into it yet?? >anyone who wants to join in, please do!>:*carolyn.>>>> Quote Link to comment Share on other sites More sharing options...
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