Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Hi, Doc C. was only ASKING for feedback, I believe, & I took the 2 out 2 comment as humor. I am SO glad Doc.C. is onboard. He not only offers information, but ASKS for advice and LISTENS to us. For that he has earned respect. And if we disagree with him, it should be with respect. I do not understand the dissention among CFIDS people; perhaps it is the frustration at having serious illness and having no answers. But why diss the doc who is offering support? Especially when he is asking our opinion? How many doctors do that, for heavens sake? Lincoln had it right: a house divided against itself is destined to fall. We are all in this illness together, so please let's work together. Christie tab@... At 11:10 AM 4/27/99 EDT, you wrote: >From: GAILRONDA@... > >In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time, >sco338@... writes: > ><< My Petrovich protocol people are still doing good 2 out of 2. Any >comments? >> >Two patients out of two patients? I hope that's not what you meant. That >doesn't mean anything. You can find two people doing " well " on nearly >anything. Please read the list rules again. I would hate for you to bend >the rules too much to be banned. You could add a lot, but this is not for >those who will counter others. There is no cure, nor an effective treatment. > There are some treatments that help....but not one that can be suggested for >everyone. The same treatment that can be a miracle for one can be a disaster >for another. That could be because of different causes, different phases of >the illness, or different stages in the development, but the fact remains >that there is no one effective treatment. That's the very reason for this >list. > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Amen Christie I felt he was trying to help too. He was very up to date on alot of things and acted really interested. Did he ever act like he was trying to make money off us?? I didn't feel like he was,but maybe I missed something somewhere or maybe I didn't pick up on something.. I have dated and worked with doctors....years ago!!...... and they often times are misunderstood.. They are tired and overworked and get mixed up... Maybe Dr C didn't mean what you thought or something along those lines. Gail,I know you want to protect us from any vultures etc,so I am not against you or anything for banning Dr C...You did what you felt was right. I was just baffled and upset about banning DR C from posting anymore...I thought I must have missed something somewhere. I appreciate all your input and info too. You are also very helpful to all of us. What exactly was it that he did or said....I am confused. Re: Unity >From: " C.Tab. " <tab@...> > > >Hi, > >Doc C. was only ASKING for feedback, I believe, & I took the 2 out 2 >comment as humor. I am SO glad Doc.C. is onboard. He not only offers >information, but ASKS for advice and LISTENS to us. For that he has >earned respect. And if we disagree with him, it should be with respect. I >do not understand the dissention among CFIDS people; perhaps it is the >frustration at having serious illness and having no answers. But why diss >the doc who is offering support? Especially when he is asking our opinion? > How many doctors do that, for heavens sake? Lincoln had it right: a house >divided against itself is destined to fall. We are all in this illness >together, so please let's work together. > > >Christie >tab@... > > > > >At 11:10 AM 4/27/99 EDT, you wrote: >>From: GAILRONDA@... >> >>In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time, >>sco338@... writes: >> >><< My Petrovich protocol people are still doing good 2 out of 2. Any >>comments? >> >>Two patients out of two patients? I hope that's not what you meant. That >>doesn't mean anything. You can find two people doing " well " on nearly >>anything. Please read the list rules again. I would hate for you to bend >>the rules too much to be banned. You could add a lot, but this is not for >>those who will counter others. There is no cure, nor an effective >treatment. >> There are some treatments that help....but not one that can be suggested >for >>everyone. The same treatment that can be a miracle for one can be a >disaster >>for another. That could be because of different causes, different phases of >>the illness, or different stages in the development, but the fact remains >>that there is no one effective treatment. That's the very reason for this >>list. >> >>------------------------------------------------------------------------ >>Has ONElist changed your life? >>http://www.ONElist.com >>Visit our homepage and share with us your experiences at ONElist of the Week! >>------------------------------------------------------------------------ >>This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. >> >> > >------------------------------------------------------------------------ >Are you hogging all the fun? >http://www.ONElist.com >Friends tell friends about ONElist! >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Greetings to the list, I agree with everyone posting about uniting in our support for folks on this list in crisis. I believe we can support , or any other individual in need, without undercutting the efforts of a particular group or making personal judgments. The confusion created with various funds and accounts, personal challenges, and old vendettas is creating an atmosphere of distrust that I don't think represents the goals of this list, nor does it well serve the people in need of our help. I for one, do not appreciate being goaded, challenged, or prodded into giving assistance. The information on how we can assist in enough. In hopes of some unity on this list, and blessings to all on the list for Thanksgiving, Lucinda aleskifine@... wrote: > Unfortunately I became a victim of this confusion. Originally I had my > donation ready to send to the IHMA, when I saw Mr. Hartsoe's email I > switched my > donation to the address he provided (Wachovia Bank). I didn't just > want to hold > it any longer. It is just a small donation, however, I'm probably not > the only > one confused with where to send donations. When confusion is created, > usually > the person opt for not sending the donation. I didn't want this to be > my case > and that is why I sent it today but before reading this email. I hope > this > change of directions do not affect 's fund assistance. > > Karla > > > > Quote Link to comment Share on other sites More sharing options...
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