Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 The IHMA Foundation is pleased to announce that 2 and part of a 3rd of the 22 evidence-based medicine studies outlined in the IHMA Foundation business plan have now been funded and are moving forward. These are: Autism (TD-DMPS & Hyperbaric Oxygen); Chronic traumatic brain injury; and Cerebral Palsy. The first two are fully funded, and we are using all proceeds from the sale of the TEXTBOOK OF HYPERBARIC MEDICINE 4TH EDITION to fund the third study, as well as all IHMA Foundation donations not otherwise designated. Each of these studies cost $5,000 each to organize and set up on the Internet so that every qualified clinic and every patient who meets the treatment criteria can participate. Why are the cp kids always last? Even among those who say they want to help, they're still last. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Louise, CP kids are not last with everyone. But it does seem that way sometimes doesn't it. Actually, CP adults seem to be at the bottom of the list. Unfortunately, when it comes to studies with any type therapy considered experimental, we have to wait for the opportunity and stick our foot in the door when we get a slight opening. Politics are involved and lots of lobbying is required. Hopefully with organizations like the AAHA and the IHMA, etc. working towards the same goals, maybe we can finally get something done. The important thing is to work together towards the same goals. This does not always happen and we have to remind ourselves of the end result we are seeking. If we can show results for autism, they will have to then consider CP, etc. It is a frustrating experience, to say the least. There will be a day when Brain injury is brain injury and they can no longer deny how well hbot works, regardless of the tag they put on the individual. Hartsoe www.miraclemountain.org > The IHMA Foundation is pleased to announce that 2 and part > of a 3rd of the 22 evidence-based medicine studies > outlined in the IHMA Foundation business plan have now > been funded and are moving forward. These are: Autism > (TD-DMPS & Hyperbaric Oxygen); Chronic traumatic brain > injury; and Cerebral Palsy. The first two are fully > funded, and we are using all proceeds from the sale of the > TEXTBOOK OF HYPERBARIC MEDICINE 4TH EDITION to fund the > third study, as well as all IHMA Foundation donations not > otherwise designated. Each of these studies cost $5,000 > each to organize and set up on the Internet so that every > qualified clinic and every patient who meets the treatment > criteria can participate. > > > Why are the cp kids always last? Even among those who say > they want to help, they're still last. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 In a message dated 10/25/04 6:38:04 AM Pacific Daylight Time, rhartsoe@... writes: Actually, CP adults seem to be at the bottom of the list. Adults with CP are not even on the list, never mind the bottom. We have very few medical doctors who are willing to treat us as adults, never mind anything else. Once we hit the grand old age of 23, the insurance companies dump us and " it's hasta la vista, go have a nice life, been nice knowing you, nothing else out there, we've done everything we can for you. bye, now " situation. We just started the CP Group specifically for adults with CP. We have no national organization or group that is geared specifically for and only for adults with CP unlike other special needs groups like MS, Muscular Dystrophy, Downs, and etc. The website is www.thecpgroup.org We had the first conference a few months ago in Rockville, MD and we are now trying to do something about this mess. We are the first full generation of adults with CP and have nowhere else to go. Dina Quote Link to comment Share on other sites More sharing options...
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