RE: New to group & question

[Guest guest]

Kim there is a wonderfull organization called the IHMA Interational

Hyperbaric Medical Association. There is also anothe organization called the IHA

International Hyperbaric Association. Both are wonderfull organizations and both

have wondefull resources. IHMA is more on the govermental side to push the

insurance carriers and Dr.s and so forth and is very helpfull in changeing law's

to help this feild. One thing you must know this feild is very critical and

people sometimes say things they don't really mean don't get caught up in

that. I did at one time and it was a very akward cituation. Just remember to

keep the one thing in mind to better this feild. There is a international

Symposium going on in Ft. Lauderdale Florida the 28th through the 1st find out

more

about this by visiting _www.oceanhbo.com_ (http://www.oceanhbo.com) Click

on the symposium site. This is a very informative conference for Dr.s and

parents. I went last year and found it to be very helpfull to me. If you would

like to know more about this therapy there website will also be very

informative to you. There is also a place called Sunshine therapy or the Adelli

suit

you can call 954-771-4000 and they can get you in touch wiht those people with

Sunshine therapy. This would be very helpfull in most cases like your child.

I hope I have been of some assitance to you. If I can ever help again let me

know. My private email is _bry8825@..._ (mailto:bry8825@...) If you

would like you can go to my daughters webpage and see what Hyperbaric and Dr.

Neubauer was able to do for her she passed In Jan. 26, 2004 however she had

an amazeing 6 year recovery that would not have been possible without Dr.

Neubuaer they told us she would only live 6 months Through Dr. Neubauer we had

6

years.

_Katy's Place_ (http://home.fullmoonwebs.com/katysplace/)

With Much respect,

Darin

[Guest guest]

Dear Kim:

It's wonderful to hear la and your family, has recognized so many

improvements. Every time I hear a parent discover new improvements I can't

help, but to be brought back in time when I myself was fascinated with this

therapy and how it helped my own daughter. Truly, I believe hearing positive

stories like yours, makes everyone's daily struggles and ongoing battles

within the HBOT community to have this therapy more excepted by doctors and

insurances worth while. Many have spent countless hours trying to help us

parents and this therapy to be recognize by government officials, insurance

companies etc. for quite some time and I have to say they have made great

strides in helping -------( Hats off to those who know who you are ! ).

I have to say I like your idea and believe it's the first I've heard

something like this within this forum. Sometimes all it takes is some

positive media to shake things up! Several months ago the TV show 60min. did

a show on Conductive Education (one other therapy that has helped so many

people). The response from the public went so well that I have heard they

will be airing it again around Aug. 2nd. I once wrought to the editors to

cover something about HBOT, but have not received a response. What would

this type of exposure do to help with our plight? Your question reminded me,

so I will try writing them again and perhaps drop a dime, or two, for it

would be great to see a well put together documentation for HBOT. One other

thought if many people write to the editors we could increase our chance of

having this aired. Best wishes and congratulation to Gabby.

Sincerely,

The Rose Center

O , Director of Operations

(570) 421-3415

Http://www.thejennyrosecenter.com

[ ] New to group & question

Hello everyone,

My name is Kim, my daughter is la, (www.gabbyrose.org). Gabby is 5

yrs old and was injured by the Hep B vaccine she recieved at one day old.

She was diagnoised with static encephalopathy, global developmental delay,

cerebral plasy, PDD, leaky gut, ect, ect, ect. She has had over 120 HBOT.

This wonderful therapy is like a miracle for her. She is now able to drink

thru a straw, eye contact improved, gross motor and fine motor skills

improved, she can get into a standing position by herself, her balance has

improved greatly, she can walk unassisted in the grass and other surfaces,

she is climbing on the furniture and the kitchen table! She is starting to

perspire like a normal child, she initiated and said new words, she is

making more sounds and is trying to sing, dance and jump.

I was wondering if there is a way that you know of to share information

about this fantastic treatment. There are soooo many children and adults

who can benefit from it. Has anyone written editorials for the newspaper or

found another way to really get the word out about this treatment. It seems

it is usually the last thing people try and sometimes parents are so

involved with just managing their children and their circumstances that they

don't have the time to research this option. If we could really 'go public'

(major newspaper, TV, radio) with this, it would make it more available to

people and the more people ask for HBOT, perhaps this will push insurance

companies to cover the 'off label' diagnoises that can so benefit from HBOT.

Any ideas?

Thanks,

Kim Waldele

gabbyrose.org

[Guest guest]

I have also contacted all the shows with no response back. I guess these

shows only what to do stories on people killing each other. My son has had over

180 treatments and we have seen great progress with HBO.

Rita

[Guest guest]

Hi Kim,

My name is and I have a 3 year old near drowning little boy. He is

severly delayed, g-tube, trache.....We also saw wonderful changes with HBOT,

prior to his 120 dives he was vegetative, he now eats orally (50%) of his

calories. I contacted our local media and a story was done on him, I had

several parents (and still do) who contact me with questions and info regarding

HBO. I also sent (paper mail) packets to ABC, NBC, CBS, CNN to all of the news

shows dateline, frontline etc. the packets included RYan's article, research and

studies done on HBO testimonials from our parents support group, I did all this

in January and I have never gotten a response from anyone. I also contacted the

Montell show and Oprah, with no response.

I tried, I don't know how else or who else to contact oh yes don't let me forget

I sent all of the our mayor, legislative and representatives and the govenor

here in California the same packets with absalutely no response. WAHhh, ;-)

Fresno CA.

The Waldele <applepie123@...> wrote:

Hello everyone,

My name is Kim, my daughter is la, (www.gabbyrose.org). Gabby is 5 yrs

old and was injured by the Hep B vaccine she recieved at one day old. She was

diagnoised with static encephalopathy, global developmental delay, cerebral

plasy, PDD, leaky gut, ect, ect, ect. She has had over 120 HBOT. This wonderful

therapy is like a miracle for her. She is now able to drink thru a straw, eye

contact improved, gross motor and fine motor skills improved, she can get into a

standing position by herself, her balance has improved greatly, she can walk

unassisted in the grass and other surfaces, she is climbing on the furniture and

the kitchen table! She is starting to perspire like a normal child, she

initiated and said new words, she is making more sounds and is trying to sing,

dance and jump.

I was wondering if there is a way that you know of to share information about

this fantastic treatment. There are soooo many children and adults who can

benefit from it. Has anyone written editorials for the newspaper or found

another way to really get the word out about this treatment. It seems it is

usually the last thing people try and sometimes parents are so involved with

just managing their children and their circumstances that they don't have the

time to research this option. If we could really 'go public' (major newspaper,

TV, radio) with this, it would make it more available to people and the more

people ask for HBOT, perhaps this will push insurance companies to cover the

'off label' diagnoises that can so benefit from HBOT.

Any ideas?

Thanks,

Kim Waldele

gabbyrose.org