Re: [MedicaidforHDOT] Dosage of HBOT sessions

[Guest guest]

Grace,

Dr. Harch strongly endorses more limited HBOT (20 sessions at 1.5 ATA)

after the first 80 / 120 sessions. However, we have decided to let our

dictate her HBOT's since our clinic opened last summer.

She had 40 sessions in August/Sept. with a few weeks off; she then kept

going through the holiday season for 65 sessions straight before taking

another 3-4 weeks off. SHe did not have any problems with that regimen and

we have seen continued progress.

I would not advocate this for other kids, but present it for food for

thought. Each child is very different and should have HBOT in accordance

with their sensitivity to it.

Also, please note that does take Dr. Perlmutter's " Brain Sustain "

and I credit that with some of the improvements as well as her ability to

tolerate continued HBOT. But, that is just a guess, not a fact. (PS try

his new children's chocolate brain sustain... the kids enjoy it!).

Everything else continues the same as always and remains well and hectic

here for us.

Take Care,

Ed Nemeth

At 07:11 AM 4/11/2004, you wrote:

>Dear all, my name is Grace, from Indonesia.

>

>Our daughter Rosita (6 yo) was congenital blind, osteopetrosis, and

>suffering many developmental delays. We have done 80 sessions of HBOT.

>

>The first row: 40 session (5 times a week) :Dec 2002 - March 2003

>The second row: 40 session (5 times a week): June - Sept. 2003

>

>We are planning to do the third row. How many times a week does she

>need? How many session is ideal in this row (another 40 sessions of 20

>sessions maybe)?

>

>Thanks.

>

>Look forward to hearing from you.

>

>Grace

>

>

>

[Guest guest]

Greetings,

Thanks Ed for your suggestion. I've been looking for a comprehensive

formula for liese, instead ofbuying all she needs separately.

It's good to hear you resurface after many months of hard work that I

know you have been doing.

With Much Respect,

Marlena

> >Dear all, my name is Grace, from Indonesia.

> >

> >Our daughter Rosita (6 yo) was congenital blind, osteopetrosis,

and

> >suffering many developmental delays. We have done 80 sessions of

HBOT.

> >

> >The first row: 40 session (5 times a week) :Dec 2002 - March 2003

> >The second row: 40 session (5 times a week): June - Sept. 2003

> >

> >We are planning to do the third row. How many times a week does

she

> >need? How many session is ideal in this row (another 40 sessions

of 20

> >sessions maybe)?

> >

> >Thanks.

> >

> >Look forward to hearing from you.

> >

> >Grace

> >

> >

> >

[Guest guest]

Dear Ed, thanks for your response.

You mentioned that had 40 sessions last August. How many sessions

had she gone through before? How about the frequency, was it 3 times a week

of 5 times a week?

After Rosita's third session, how long the break would you suggest? Thanks.

Look forward to hearing from you.

Grace

Re: [MedicaidforHDOT] Dosage of HBOT sessions

> Grace,

>

> Dr. Harch strongly endorses more limited HBOT (20 sessions at 1.5 ATA)

> after the first 80 / 120 sessions. However, we have decided to let our

> dictate her HBOT's since our clinic opened last summer.

>

> She had 40 sessions in August/Sept. with a few weeks off; she then kept

> going through the holiday season for 65 sessions straight before taking

> another 3-4 weeks off. SHe did not have any problems with that regimen and

> we have seen continued progress.

>

> I would not advocate this for other kids, but present it for food for

> thought. Each child is very different and should have HBOT in accordance

> with their sensitivity to it.

>

> Also, please note that does take Dr. Perlmutter's " Brain Sustain "

> and I credit that with some of the improvements as well as her ability to

> tolerate continued HBOT. But, that is just a guess, not a fact. (PS try

> his new children's chocolate brain sustain... the kids enjoy it!).

>

> Everything else continues the same as always and remains well and hectic

> here for us.

>

> Take Care,

> Ed Nemeth

>

>

>

>

> At 07:11 AM 4/11/2004, you wrote:

> >Dear all, my name is Grace, from Indonesia.

> >

> >Our daughter Rosita (6 yo) was congenital blind, osteopetrosis, and

> >suffering many developmental delays. We have done 80 sessions of HBOT.

> >

> >The first row: 40 session (5 times a week) :Dec 2002 - March 2003

> >The second row: 40 session (5 times a week): June - Sept. 2003

> >

> >We are planning to do the third row. How many times a week does she

> >need? How many session is ideal in this row (another 40 sessions of 20

> >sessions maybe)?

> >

> >Thanks.

> >

> >Look forward to hearing from you.

> >

> >Grace

> >

> >

> >

[Guest guest]

Dear Grace,

First, I am just a parent and this is just our opinion and personal

experience. We try not to take breaks. We do 5 or 6 a week. That's once a

day with a day or two off. We find that when we take breaks all

improvements stop and it then takes four to five weeks for us to begin

noticing improvements again. Our son is 14 now (his birthday was last

week). I have been told, not all kids can handle it. But if yours can, the

more treatments you do, the more improvement you'll see. We also seem to

find that it takes some (including us) around 30 treatments to start seeing

results, so sometimes we feel like the first 30 are a wash and so we

recommend doing more than just 10 after the improvements start. I wish you

all the luck in the world.

Love to all,

Rose Manning

Re: [MedicaidforHDOT] Dosage of HBOT sessions

>

>

> > Grace,

> >

> > Dr. Harch strongly endorses more limited HBOT (20 sessions at 1.5 ATA)

> > after the first 80 / 120 sessions. However, we have decided to let our

> > dictate her HBOT's since our clinic opened last summer.

> >

> > She had 40 sessions in August/Sept. with a few weeks off; she then kept

> > going through the holiday season for 65 sessions straight before taking

> > another 3-4 weeks off. SHe did not have any problems with that regimen

and

> > we have seen continued progress.

> >

> > I would not advocate this for other kids, but present it for food for

> > thought. Each child is very different and should have HBOT in

accordance

> > with their sensitivity to it.

> >

> > Also, please note that does take Dr. Perlmutter's " Brain

Sustain "

> > and I credit that with some of the improvements as well as her ability

to

> > tolerate continued HBOT. But, that is just a guess, not a fact. (PS try

> > his new children's chocolate brain sustain... the kids enjoy it!).

> >

> > Everything else continues the same as always and remains well and hectic

> > here for us.

> >

> > Take Care,

> > Ed Nemeth

> >

> >

> >

> >

> > At 07:11 AM 4/11/2004, you wrote:

> > >Dear all, my name is Grace, from Indonesia.

> > >

> > >Our daughter Rosita (6 yo) was congenital blind, osteopetrosis, and

> > >suffering many developmental delays. We have done 80 sessions of HBOT.

> > >

> > >The first row: 40 session (5 times a week) :Dec 2002 - March 2003

> > >The second row: 40 session (5 times a week): June - Sept. 2003

> > >

> > >We are planning to do the third row. How many times a week does she

> > >need? How many session is ideal in this row (another 40 sessions of 20

> > >sessions maybe)?

> > >

> > >Thanks.

> > >

> > >Look forward to hearing from you.

> > >

> > >Grace

> > >

> > >

> > >