Re: [MedicaidforHDOT] Facts and more facts.

October 15, 2003

Lucinda,

Thanks so much for taking the time to tell all of us what you encountered in

Montana in your effort to get some sort of an HBOT capability in your home

where it is so needed.

I had the same experience in Virginia when I was opening a hyperbaric clinic

and the local Lion's Club refused ; me 5 minutes to tell them what the clinic

was all about and how it was meant to help seniors with strokes such as my

wife.

So the challenge is nationwide. Surely something can be done with your

experience. I am hoping that Dr. Bill Duncan and his wife Anita. Will hear

about

it. Anita is Exec. Dir. of the new organization IHMA. which is currently in

the process of getting started.

Meanwhile those suffering brain injuries cannot wait, and the mystery is how

the few opponents of pressurized oxygen therapy can hold back the hundreds

o;f thousands needing the therapy.

I thought the fact that some 30 portable chambers were sent to Afghanistan

recently to deal with high altitude sickness and the 60 which were sent to Iraq

would be made public but so far not a peep. We are keeping secrets fro;m

ourselves and for whose benefit the world wonders. Certainly I remain mystified

by the blocking efforts to this miracle therapy.

Lucinda I suggest you e-mail copies of your letter to Montana's state and

national political leaders,, And send a copy to Gov. Arnold Schwartzneggar. He

may have some inside knowledge on hyperbaric miracles. Manson Capt. USN

Ret.

October 15, 2003

I go to all the Greater Cincinnati Autism Meetings for new cases. I get

looked at like I'm crazy. In addition, every time I show up they make a big

speech about how some people (me) just want everyone to do what they are

doing because then they (I) will feel better about it. (hun?) I just keep

going so I can live with myself. But make no mistake, they know about it.

Every time I go they act surprised like I'm way out there, but don't believe

them, they know. These poor people who run our Society have older children

and it has become their life, God forbid there be a cure, What would they

do? Yes, I know what I am accusing them of. And I accuse the doctors of

the same thing. They would have to find new careers, think of the money

they would lose.

However, I no longer get personally involved. I have spent too many hours

with people trying to convince them. It is all for nothing. When I have

gotten someone to try it, it seems their heart isn't in it. They miss too

much, are late, and don't take it seriously. With autism it takes a build up

of at least 30 treatments and sometimes more we have found with no breaks to

see a difference. We will keep putting the information out there but that

is all I have the energy for.

Love to all,

Rose

Re: [MedicaidforHDOT] Facts and more facts.

>

> rhartsoe wrote:

>

> " If you go out and begin asking every victim

> of brain injury including stroke, cp, ms, tbi, etc. you would find that

less

> than 5% have ever heard of hbot treatments. Go out and try it yourself,

> everyone. See how many victims know about hbot. Of stroke victims it

is

> probably 1% or less. Of CP it may be as high as 7%. If you are around

an

> area where a center is located, it could go as high as 10 or 12% "

>

> I have done this . I attended the local Brain Injury meeting's

> here in Montana this summer, the state BI Conference was coming up and

> was held right here in my town about two weeks ago. They had the

> conference here, because we have a BI Rehab Center that is supposedly

> cutting edge...... just about a mile from my house. I am sure you all

> know where this is going. Everyone I talked to looked at me like I had

> green cheese coming out of me ears. These experts claimed to have never

> heard of hbot for treating brain injury. I am not sure if I believed

> them, or if they just wanted me to go away, but clearly they did not

> want to even HEAR about HBOT. To add insult to injury, I am merely a

> Mom, so health professionals really do not want to hear from me about a

> possible therapy. I have less than zero credibility, because my

> emotions are invested, therefore my opinions and experiences are totally

> discounted. This is the reality, I am just offering the facts of my

> personal experience's here. (no offense intended to those professionals

> on the list. I do realize there are exceptions, but very few.)

>

> So long story short: the entire experience for me was extremely

> discouraging. My motives for this effort were entirely selfish, I want a

> chamber in my state for my family, or to find people interested in the

> co-op idea, but in this climate of thinking, forget about it. One very

> sweet elderly woman who has both toxic enceph. and is a stroke victim,

> took pity on me and said, " Whatever you do don't talk to the doctor's in

> charge of the Rehab Center, I am a patient there and they will really

> shoot you down. " She handed me a card for a chiropractor and said,

> " This doctor is helping me more than the rehab center. " A chiropractor!

>

> Well, I am now a patient of the chiropractor. He is great, but it ain't

> HBOT. This is the best my entire state has to offer....one lone

> chiropractor?!* I would laugh if it were not so sad.

>

> So PLEASE, educate these BI Centers and hospitals! They will not hear

> it or accept it from the patients or the mother's of patients. I would

> hand out brochures all day if I thought it would make a difference. I

> wanted to become involved with the local BI chapter. They even have the

> state office here, but it is too depressing to see so many injuries and

> no one wants to even think about something new, except the patients who

> have no money and no ability to do this on their own.

>

> I was not even going to post my recent experiences, but 's post

> today gave me the umph to share this.

>

> For some reason, I really hate to buy a home chamber and give up on

> medically supervised treatment, even though I know the home chamber

> would work out great for my family, and it is clearly the most cost

> effective way to go when your whole family is brain injured, as mine is,

> and we have great insurance but they aren't going to pay. So, I guess a

> home chamber is the way to go, because I can not afford to continually

> travel and disrupt my family for HBOT. It makes no sense, and to wait

> for the local's to catch on could take several life times. But, after

> the reactions I received from the professional's I feel like I would

> hide the chamber and what we were doing except from close friends. That

> is pathetic isn't it? I live in a town that advertise's world class,

> cutting edge, brain injury rehab and I am hiding from them. There is

> definitely something wrong with this picture.

>

> Lucinda

>

> _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> Join the International Hyperbaric Medical Association

http://www.hyperbaricmedicalassociation.org/forms/Friends_of_IHMA_Join.pdf

>

> Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ ,

HDO-documentation/files/ and

http://www.drneubauerhbo.com/papers.htm

>

> Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word

" ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

> Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

>

> HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

>

> Unsubscribe? Click here mailto:medicaid-unsubscribe

..

>

October 15, 2003

rhartsoe wrote:

" If you go out and begin asking every victim

of brain injury including stroke, cp, ms, tbi, etc. you would find that less

than 5% have ever heard of hbot treatments. Go out and try it yourself,

everyone. See how many victims know about hbot. Of stroke victims it is

probably 1% or less. Of CP it may be as high as 7%. If you are around an

area where a center is located, it could go as high as 10 or 12% "

I have done this . I attended the local Brain Injury meeting's

here in Montana this summer, the state BI Conference was coming up and

was held right here in my town about two weeks ago. They had the

conference here, because we have a BI Rehab Center that is supposedly

cutting edge...... just about a mile from my house. I am sure you all

know where this is going. Everyone I talked to looked at me like I had

green cheese coming out of me ears. These experts claimed to have never

heard of hbot for treating brain injury. I am not sure if I believed

them, or if they just wanted me to go away, but clearly they did not

want to even HEAR about HBOT. To add insult to injury, I am merely a

Mom, so health professionals really do not want to hear from me about a

possible therapy. I have less than zero credibility, because my

emotions are invested, therefore my opinions and experiences are totally

discounted. This is the reality, I am just offering the facts of my

personal experience's here. (no offense intended to those professionals

on the list. I do realize there are exceptions, but very few.)

So long story short: the entire experience for me was extremely

discouraging. My motives for this effort were entirely selfish, I want a

chamber in my state for my family, or to find people interested in the

co-op idea, but in this climate of thinking, forget about it. One very

sweet elderly woman who has both toxic enceph. and is a stroke victim,

took pity on me and said, " Whatever you do don't talk to the doctor's in

charge of the Rehab Center, I am a patient there and they will really

shoot you down. " She handed me a card for a chiropractor and said,

" This doctor is helping me more than the rehab center. " A chiropractor!

Well, I am now a patient of the chiropractor. He is great, but it ain't

HBOT. This is the best my entire state has to offer....one lone

chiropractor?!* I would laugh if it were not so sad.

So PLEASE, educate these BI Centers and hospitals! They will not hear

it or accept it from the patients or the mother's of patients. I would

hand out brochures all day if I thought it would make a difference. I

wanted to become involved with the local BI chapter. They even have the

state office here, but it is too depressing to see so many injuries and

no one wants to even think about something new, except the patients who

have no money and no ability to do this on their own.

I was not even going to post my recent experiences, but 's post

today gave me the umph to share this.

For some reason, I really hate to buy a home chamber and give up on

medically supervised treatment, even though I know the home chamber

would work out great for my family, and it is clearly the most cost

effective way to go when your whole family is brain injured, as mine is,

and we have great insurance but they aren't going to pay. So, I guess a

home chamber is the way to go, because I can not afford to continually

travel and disrupt my family for HBOT. It makes no sense, and to wait

for the local's to catch on could take several life times. But, after

the reactions I received from the professional's I feel like I would

hide the chamber and what we were doing except from close friends. That

is pathetic isn't it? I live in a town that advertise's world class,

cutting edge, brain injury rehab and I am hiding from them. There is

definitely something wrong with this picture.

Lucinda

October 15, 2003

Have you consider handing out medical, or other, literature about HBOT?

Marie

Re: [MedicaidforHDOT] Facts and more facts.

>

> >

> > rhartsoe wrote:

> >

> > " If you go out and begin asking every victim

> > of brain injury including stroke, cp, ms, tbi, etc. you would find that

> less

> > than 5% have ever heard of hbot treatments. Go out and try it

yourself,

> > everyone. See how many victims know about hbot. Of stroke victims it

> is

> > probably 1% or less. Of CP it may be as high as 7%. If you are around

> an

> > area where a center is located, it could go as high as 10 or 12% "

> >

> > I have done this . I attended the local Brain Injury meeting's

> > here in Montana this summer, the state BI Conference was coming up and

> > was held right here in my town about two weeks ago. They had the

> > conference here, because we have a BI Rehab Center that is supposedly

> > cutting edge...... just about a mile from my house. I am sure you all

> > know where this is going. Everyone I talked to looked at me like I had

> > green cheese coming out of me ears. These experts claimed to have never

> > heard of hbot for treating brain injury. I am not sure if I believed

> > them, or if they just wanted me to go away, but clearly they did not

> > want to even HEAR about HBOT. To add insult to injury, I am merely a

> > Mom, so health professionals really do not want to hear from me about a

> > possible therapy. I have less than zero credibility, because my

> > emotions are invested, therefore my opinions and experiences are totally

> > discounted. This is the reality, I am just offering the facts of my

> > personal experience's here. (no offense intended to those professionals

> > on the list. I do realize there are exceptions, but very few.)

> >

> > So long story short: the entire experience for me was extremely

> > discouraging. My motives for this effort were entirely selfish, I want a

> > chamber in my state for my family, or to find people interested in the

> > co-op idea, but in this climate of thinking, forget about it. One very

> > sweet elderly woman who has both toxic enceph. and is a stroke victim,

> > took pity on me and said, " Whatever you do don't talk to the doctor's in

> > charge of the Rehab Center, I am a patient there and they will really

> > shoot you down. " She handed me a card for a chiropractor and said,

> > " This doctor is helping me more than the rehab center. " A chiropractor!

> >

> > Well, I am now a patient of the chiropractor. He is great, but it ain't

> > HBOT. This is the best my entire state has to offer....one lone

> > chiropractor?!* I would laugh if it were not so sad.

> >

> > So PLEASE, educate these BI Centers and hospitals! They will not hear

> > it or accept it from the patients or the mother's of patients. I would

> > hand out brochures all day if I thought it would make a difference. I

> > wanted to become involved with the local BI chapter. They even have the

> > state office here, but it is too depressing to see so many injuries and

> > no one wants to even think about something new, except the patients who

> > have no money and no ability to do this on their own.

> >

> > I was not even going to post my recent experiences, but 's post

> > today gave me the umph to share this.

> >

> > For some reason, I really hate to buy a home chamber and give up on

> > medically supervised treatment, even though I know the home chamber

> > would work out great for my family, and it is clearly the most cost

> > effective way to go when your whole family is brain injured, as mine is,

> > and we have great insurance but they aren't going to pay. So, I guess a

> > home chamber is the way to go, because I can not afford to continually

> > travel and disrupt my family for HBOT. It makes no sense, and to wait

> > for the local's to catch on could take several life times. But, after

> > the reactions I received from the professional's I feel like I would

> > hide the chamber and what we were doing except from close friends. That

> > is pathetic isn't it? I live in a town that advertise's world class,

> > cutting edge, brain injury rehab and I am hiding from them. There is

> > definitely something wrong with this picture.

> >

> > Lucinda

> >

_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> > Join the International Hyperbaric Medical Association

> http://www.hyperbaricmedicalassociation.org/forms/Friends_of_IHMA_Join.pdf

> >

> > Unrestricted downloads of 50+ pdf files on HBOT efficacy

> medicaid/files/ ,

> HDO-documentation/files/ and

> http://www.drneubauerhbo.com/papers.htm

> >

> > Download your state EPSDT program

> http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

word

> " ameliorate " . State Medicaid websites

> http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

> programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

> >

> > Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

> >

> > HBOT can save billions of dollars and millions of heartaches. Subscribe

to

> by sending a blank email to

> mailto:medicaid-subscribe

> >

> > Unsubscribe? Click here

mailto:medicaid-unsubscribe

> .

> >

October 15, 2003

Another interesting message!

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI)

San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104