Re: [MedicaidforHDOT] Down to the Brass Tacks

[Guest guest]

>

>> My son, just returned from here with my wife. If you live at all

>near the

>> Canadian/Eastern US border check it out. 40 sessions for about

>$1,600.

>> Combining the HBOT with Conductive Educationtherapy when they offer

>the

>> moms and tots class early next year would give you 80 treatments

>plus

>> Conductive Ed for less than for the $10 Grand you mention below.

>

>============

>

>: Thank you SO much for the recommendation. I am in Wisconsin

>so this could be do-able for us. I've sent for the

>video/informational packet.

>

>Lynn

Lynn,

Is your son a Medicaid recipient? Wisconsin Medicaid has stated they will

reimburse hyperbaric oxygen therapy for a cp/pvl child.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" For everyone who asks receives; he who seeks finds; and to him who knocks,

the door will be opened. " [Luke 11:10]

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770/491-6776 (phone and fax)

707/220-7224 (efax, sends fax as email attachment)

mailto:dfreels@...

http://www.freelanceforum.org/df

[Guest guest]

My son, just returned from here with my wife. If you live at all near the

Canadian/Eastern US border check it out. 40 sessions for about $1,600.

Combining the HBOT with Conductive Educationtherapy when they offer the

moms and tots class early next year would give you 80 treatments plus

Conductive Ed for less than for the $10 Grand you mention below.

Conductive Education and Hyperbaric Oxygen Therapy

Special Prices Also free accomodations provided. Limited spaces available!

HBOT $25US/hr. When taking Conductive Education and Hyperbarics combined

during February 10th to March 14th 2003.

HBOT $35US/hr. When taking Hyperbarics only during Feb. 17th to Mar. 8th,

Mar. 10th to March 29th, and Mar. 31 to April 19th 2003

http://www.abilitycamp.com

The Group Living can be tough but the Children really benefit from it.

Dave Snow

At 02:44 AM 3/11/03 -0000, you wrote:

>Hello, all. I have been lurking and occasionally posting on this

>list, hoping to uncover whether HBOT might be an appropriate for my

>19-month-old son who suffers from a mild to moderate case of

>hemiplegic CP, specifically PVL. His symptoms include strabismus

>(surgically corrected), left leg and arm weakness, weak upper body

>and general lack of coordination.

>

>I've done a great deal of research on this treatment option and am

>overwhelmed by the extraordinary stories I've heard its success.

>Which leads me to my current concern - what can we *realistically*

>expect to see from a single round of 40 sessions?

>

>My husband and I are very close to committing to have my son treated

>in a chamber that will be open for business in early April. We have

>had discussions with the attending physician and his nurse manager

>and plan to tour the facility in early April. If all is a go, my son

>could be receiving treatment as early as mid- to late-April.

>

>As you can all appreciate, this will be a VERY expensive proposition

>for us and I cannot seem to get a handle on exactly what sort of

>success rate there is with HBOT in general or specific to children

>with issues such as my son's. I've read and heard many stories of

>miraculous recoveries (chldren seeing, walking, talking, etc. after a

>round of treatment) but I find it hard to believe that this is truly

>the norm. Those who oppose HBOT are so *strongly* opposed and talk

>so vehemently about the possible " dangers " of HBOT, that I cannot

>help but be concerned that we are being sold a (possibly dangerous)

>bill of goods. In addition, my son's physicians are unanimously

>opposed to this treatment, either because they feel it is a " snake

>oil " or it could be dangerous.

>

>I will be primarily responsible for making this decision for our

>family and for my son and I do not want to look back 6 months and $10

>grand from now and wonder how I got suckered or, worse yet, feel that

>I've done more harm than good for my son.

>

>I hope those of you who are true believers in HBOT will not take

>offense at my directness - I feel I need to get down to the brass

>tacks on this as we are very close to making this decision (HBOT

>treatment or no HBOT treatment) and I want to make the best one

>possible.

>

>Anyone who'd care to share their story with me or who feels they can

>offer some insight into my concerns, please feel free to contact me

>either on or off list. I welcome anyone's input as my ultimate goal,

>like all of you, is the best possible outcome for my son. Thank you.

>

>Lynn

>

>

>_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

>Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ ,

HDO-documentation/files/ and

http://www.drneubauerhbo.com/papers.htm

>

>Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

word " ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

>Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

>

>HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

>

>Unsubscribe? Click here mailto:medicaid-unsubscribe .

>

>

[Guest guest]

> My son, just returned from here with my wife. If you live at all

near the

> Canadian/Eastern US border check it out. 40 sessions for about

$1,600.

> Combining the HBOT with Conductive Educationtherapy when they offer

the

> moms and tots class early next year would give you 80 treatments

plus

> Conductive Ed for less than for the $10 Grand you mention below.

============

: Thank you SO much for the recommendation. I am in Wisconsin

so this could be do-able for us. I've sent for the

video/informational packet.

Lynn

[Guest guest]

> > Lynn,

>

> Is your son a Medicaid recipient? Wisconsin Medicaid has stated

they will

> reimburse hyperbaric oxygen therapy for a cp/pvl child.

====

: No my son is not a Medicaid recipient but the more I read,

the more I think perhaps he ought to be. How do I go about doing

this, i.e. what steps do I follow? Is it income based? Also, has

anyoen tested this statement? When I talked to Gordon, she

indicated this was not happening so I didn't really pursue Medicaid.

If that has changed or she is mistaken, I will pursue it. Also, how

long a process is it to get signed up and have the benefits

activated? Your help would be greatly appreciated, .

Lynn

[Guest guest]

> My son, just returned from here with my wife. If you live at all

near the Canadian/Eastern US border check it out.

====

: My response to you last night was brief as it was late and I

was quite tired. I only had had a chance to take a quick look at the

website and order the video. Now, in the light of morning, I have a

few more questions for you.

* How old is your son, what is his condition and what sort of

improvements did you see from his stay at Ability Camp?

* Wow, 5 weeks - that is a long time to be away from home. How did

your wife manage that? Do you have other children that require care

and, if so, how did you accomodate your wife being gone for so long?

* I have twin boys and I am concerned about being separated from one

for so long, as well as their being separated from each other. Were

y'all able to see each other over the course of 5 weeks?

* I understand the conductive therapy is quite intense? Is this a

bit like being in boot camp or did your son find it enjoyable?

* Is the HBO chamber well-maintained and well-staffed? Is there a

physician present? Did your wife have any concerns about what would

happen if your son had a negative reaction in the chamber or to the

treatment? The cost seems so inexpensive compared to other clinics

that I've looked into that I cannot help but wonder about the quality

of the care, equipment, etc.

* Had your son undergone HBOT prior to visiting Ability Camp?

* What sort of " pre-op " exam did your son undergo in order to make

sure he was " fit " for HBO therapy?

* Did you look into any of the conductive therapy centers in the U.S.

and, if so, what made you choose Ability Camp?

* What sort of protocol did they use in his treatment? I've read

that sometimes Canadian facilities can be a bit excessive in the

pressure they use.

* How were the accomodations?

Sorry for the intense grilling. I'm just very intrigued by this

option because just within the last week, my son's PT mentioned

conductive therapy as an option she'd consider if she had a CP child

who needed treatment. Considering how unsupportive she's been about

my quest to find out more about HBOT, this is high praise indeed.

Anything else you'd care to share about the experience would be

appreciated. My greatest concern is how to swing the 5 weeks away

from home but, if this is the best option for my son, we will

certainly suck it up and do it. Thanks, .

Lynn

[Guest guest]

Lynn,

My son turns three years old this month and he was the most challenged at the

Moms and Tots class this past January. He suffered quite alot of damage to his

brain due to a breach birth trauma and a forceps induced fractured skull. He

came back from the Ability Camp much stronger physically and much more alert

mentally. He has more self integration and awareness of himself and his

surroundings now. It was very tough on my wife. She had to assist with

every aspect of his Conductive Education training. The realities of group living

in the dead of winter resulted in raw nerves and petty disputes between adults

and the obligatory childhood illnesses (respiratory and ear infections)

that were passed around. But the goal is long term improvement in your child so

you go through with it because it is the most cost effective HBOT/Physical

Therapy location in North America. I have two daughters and my parents picked

them up from school every day and assisted in their care and feeding in the

evening. I was not able to drive up there and see them during the five weeks

which made it much harder on my wife. Everyone else had friends and family

visiting often or at least that is what she tells me. I met the owner and

chamber operator and he is very dedicated, responsible and professional. I

thought the large tank was great. I had taken our son last September to Ocean

Hyperbaric Institute to be with him in the clam-shell tanks under the

supervision of Dr. Neubauer. Once I saw that he could handle the hyperbaric

environment without incident, I knew that we could try other places. ,

owner of Ability Camp, has a nurse on staff. There is a doctor in town. He runs

an excellent HBOT and Conductive Ed facility. He has a child with CP and

understands the value of Conductive Ed. Please feel free to call my wife and

talk with her about the Ability Camp. I will email you my telephone number

off-line.

Dave Snow

-- Re: [MedicaidforHDOT] Down to the Brass Tacks

>

>

> My son, just returned from here with my wife. If you live at all

near the Canadian/Eastern US border check it out.

====

: My response to you last night was brief as it was late and I

was quite tired. I only had had a chance to take a quick look at the

website and order the video. Now, in the light of morning, I have a

few more questions for you.

* How old is your son, what is his condition and what sort of

improvements did you see from his stay at Ability Camp?

* Wow, 5 weeks - that is a long time to be away from home. How did

your wife manage that? Do you have other children that require care

and, if so, how did you accomodate your wife being gone for so long?

* I have twin boys and I am concerned about being separated from one

for so long, as well as their being separated from each other. Were

y'all able to see each other over the course of 5 weeks?

* I understand the conductive therapy is quite intense? Is this a

bit like being in boot camp or did your son find it enjoyable?

* Is the HBO chamber well-maintained and well-staffed? Is there a

physician present? Did your wife have any concerns about what would

happen if your son had a negative reaction in the chamber or to the

treatment? The cost seems so inexpensive compared to other clinics

that I've looked into that I cannot help but wonder about the quality

of the care, equipment, etc.

* Had your son undergone HBOT prior to visiting Ability Camp?

* What sort of " pre-op " exam did your son undergo in order to make

sure he was " fit " for HBO therapy?

* Did you look into any of the conductive therapy centers in the U.S.

and, if so, what made you choose Ability Camp?

* What sort of protocol did they use in his treatment? I've read

that sometimes Canadian facilities can be a bit excessive in the

pressure they use.

* How were the accomodations?

Sorry for the intense grilling. I'm just very intrigued by this

option because just within the last week, my son's PT mentioned

conductive therapy as an option she'd consider if she had a CP child

who needed treatment. Considering how unsupportive she's been about

my quest to find out more about HBOT, this is high praise indeed.

Anything else you'd care to share about the experience would be

appreciated. My greatest concern is how to swing the 5 weeks away

from home but, if this is the best option for my son, we will

certainly suck it up and do it. Thanks, .

Lynn

_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

Unrestricted downloads of 50+ pdf files on HBOT efficacy <a target=_blank

href= " medicaid/files/ " >http://groups..\

com/group/medicaid/files/</a> , <a target=_blank

href= " HDO-documentation/files/ " >http://groups.yaho\

o.com/group/HDO-documentation/files/</a> and <a target=_blank

href= " http://www.drneubauerhbo.com/papers.htm " >http://www.drneubauerhbo.com/pape\

rs.htm</a>

Download your state EPSDT program <a target=_blank

href= " http://www.hcfa.gov/medicaid/stateplan/Map.asp " >http://www.hcfa.gov/medica\

id/stateplan/Map.asp</a> by doing a search on the word " ameliorate " . State

Medicaid websites

<a target=_blank

href= " http://www.medi-cal.ca.gov/RelSites_Oth_States.asp " >http://www.medi-cal.ca\

..gov/RelSites_Oth_States.asp</a> . Medicaid waiver

programs: <a target=_blank

href= " http://www.geocities.com/HotSprings/Villa/1029/medicaid.html " >http://www.g\

eocities.com/HotSprings/Villa/1029/medicaid.html</a>

Find a hyperbaric clinic <a target=_blank

href= " http://www.netnet.net/mums/hbolist.htm " >http://www.netnet.net/mums/hbolist\

..htm</a>

HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

Unsubscribe? Click here mailto:medicaid-unsubscribe

..

[Guest guest]

Lynn,

There is no question that linking the two (conductive Ed and HBOT) is a

strong formula.

And, I maintain that HBOT is a generic and fundamental treatment for all

brain injuries (stroke, TBI, near drowning, toxins, etc.) If you doubt

this go to:

www.HyperbaricOxygen.info

go to Medical News

click on Congressional Presentation (pdf)

view the various brain injuries and the before and after

SPECT scans

I am a very, very strong advocate that every family should start this

journey by attending the very best clinic they can get to, to start their

journey. This first step will guide the rest of your journey with your

. This first clinic will be a learning experience, and it will be

the most important group of clinical sessions will have. From

there, you will know 's personal response to HBOT, HBOT safety

practices, ancillary nutritional supports, etc.

What can you expect:

That is the most difficult question to answer. Every brain is unique;

every brain injury is unique; every child's response to their brain injury

is unique and, of course, every unique child's response to HBOT is unique.

Published research has shown about 85% of the kids show good to significant

improvements.

Overall you should expect your child to be healthier, with a healthier

brain (in relation to the injury). Also, you should hope that your child

can overcome some deficiencies on his own (this obviously depends on the

child and their injuries). However, you should also expect that your child

begins to respond (learn) from therapies faster and makes quicker gains.

The question is when?!

One child's example:

I saw my become able to swallow thin liquids without choking for

the first time after 6 sessions in three days! I also saw her improve her

spasticity and gain better coordination and control within the first two

weeks. Thereafter (during the HBOT's) she showed no other

changes. Further, she showed no more changes until about 2 months post

HBOT. Then, one morning she woke up with noticeably better coordination

and control She also learned faster and improved noticeable more with her

therapies.

She also began developing her own skills (reaching and grasping, etc.)

while playing by herself. Personally, I know she would not have developed

those skills as she did without the HBOT; but, other more knowledgeable

experts can argue against this (you know, the ones that say nothing can

ever help you child so don't bother - then they say your child improves

because of the social environment of the clinic).

Re: physicians and those who sell snake oil:

Mutilating children by cutting tendons to " relieve spasticity " is snake

oil. Providing drugs to kids that have never been tested on kids is snake

oil. Disregarding well published and good research as anecdotal because

the reader doesn't understand the etiology and neuronal response of brain

injuries is snake oil. Each of these people should be lined up and shot for

their snake oil.. Except, it IS the basis of our medical system (snake

oil). Neurologists still do not accept neuronal plasticity because Cajal

(in 1907) said the brain is fixed! three years later studies were done

disproving this, yet, Cajal still rules!

Dr. Torsten Weisel (and Hubbel) won the nobel prize in medicine for

determining the plasticity of a kittens' brain by sewing an eye shut and

measuring the encroachment of neurons from the active eye in to the

nonactive visual cortex. (Thus they proved plasticity) They then opened

the the other eye and looked at its response, but, there was little

re-establishment of the weaker eye's neurons in to the visual cortex and

they guessed that this was not plastic - but, they missed the crucial issue

of covering the good eye to force the bad eye to work harder. They would

have found (then) that the weak eye would have recovered. This has been

proven. But, ask a neurologist about that brain's response to brain injury,

and their eyes glaze over. They have not been taught correctly.

As for our physicians, they are in a worse position, because they are not

neurologists. They are also in a better position, because they can simply

view your son's response to HBOT and then make their own judgement. Those

that see do support HBOT.

There are therefore two kinds of people in our children's world. Those who

wish to know; and those who wish to deny. The dabates at the In't Congress

of HBO Medicine in Oct, 2002 demonstrated this. With all the naysaying

experts given free reign to disprove HBOT, they could not come up with a

single reason. They could only say, well, I am not convinced. There is a

great distance between this and it doesn't work. There are still people

who are not convinced the earth is round!

RE: Response:

The issue is there are four variables governing response to HBOT and we

cannot measure any of them.

1 Extent of Necrosis

2 Cystic changes in gliosis

3 Nature and Position of Preserved Cells

4 Volume of Recoverable Tissue

If all of these factors are favorable, then really should do

well. If these factors are terrible, then he may not show much response.

However, I would like to suggest that (it is my opinion only) that even

when we do not see physical / movement changes; the child may be

significantly healthier and better off. One of 's changes, for

example, was that she could not maintain her body temp. and she had to

sleep in footed pj's at night to keep warm. After HBOT, she no longer has

any temp. problems. If that was all we got out of HBOT, I would have been

both disappointed (because I wanted more) but, I would also have been

satisfied because she did improve her health and well being. This is one

of those areas that no clinic measures, but we parents feel the

significance of the change.

RE: how many sessions? Who knows. The real issues are the extent of

's injuries as well as his abilities to respond. Dr. Neubauer has a

video of a beautiful little girl who was incapacitated from a car

accident. 48 sessions later, and then time to grow and develop (2-3 years)

she is a normal girl running around playing, etc. (this also shows the

post HBOT development) to view this go to Ocean Hyperbarics website and

click on videos.

RE: Ability Camp

There is no question that HBOT gives the brain more to work with; while

conductive Ed enables that enhanced tissue more to do. This are

fundamental medical physiological knowledge (healthier body and training

lead to better learning)

I cannot account for the Ability Camp as I have never been there. But, the

they have the key elements together. It should be beneficial to many children.

RE: the sacrifices at the camp: every family has different needs and

capabilities. I know I could not go someplace and be out of touch of my

businesses for long, nor could I tolerate the group setting while I am

trying to get my work done from 9: PM top 1 AM. So, we cannot consider

places like this. Other families can manage, better. These are decisions

each family must make.

I hope this helps.

If you have other Q's please let me know.

Also: you can read 's story be going to

www.LittlestAngel.com

click on " 's Book " (left hand column)

also, go to " Resources " page for more HBOT and other info.

Best Regards,

Ed Nemeth

At 02:44 AM 3/11/2003 +0000, you wrote:

>Hello, all. I have been lurking and occasionally posting on this

>list, hoping to uncover whether HBOT might be an appropriate for my

>19-month-old son who suffers from a mild to moderate case of

>hemiplegic CP, specifically PVL. His symptoms include strabismus

>(surgically corrected), left leg and arm weakness, weak upper body

>and general lack of coordination.

>

>I've done a great deal of research on this treatment option and am

>overwhelmed by the extraordinary stories I've heard its success.

>Which leads me to my current concern - what can we *realistically*

>expect to see from a single round of 40 sessions?

>

>My husband and I are very close to committing to have my son treated

>in a chamber that will be open for business in early April. We have

>had discussions with the attending physician and his nurse manager

>and plan to tour the facility in early April. If all is a go, my son

>could be receiving treatment as early as mid- to late-April.

>

>As you can all appreciate, this will be a VERY expensive proposition

>for us and I cannot seem to get a handle on exactly what sort of

>success rate there is with HBOT in general or specific to children

>with issues such as my son's. I've read and heard many stories of

>miraculous recoveries (chldren seeing, walking, talking, etc. after a

>round of treatment) but I find it hard to believe that this is truly

>the norm. Those who oppose HBOT are so *strongly* opposed and talk

>so vehemently about the possible " dangers " of HBOT, that I cannot

>help but be concerned that we are being sold a (possibly dangerous)

>bill of goods. In addition, my son's physicians are unanimously

>opposed to this treatment, either because they feel it is a " snake

>oil " or it could be dangerous.

>

>I will be primarily responsible for making this decision for our

>family and for my son and I do not want to look back 6 months and $10

>grand from now and wonder how I got suckered or, worse yet, feel that

>I've done more harm than good for my son.

>

>I hope those of you who are true believers in HBOT will not take

>offense at my directness - I feel I need to get down to the brass

>tacks on this as we are very close to making this decision (HBOT

>treatment or no HBOT treatment) and I want to make the best one

>possible.

>

>Anyone who'd care to share their story with me or who feels they can

>offer some insight into my concerns, please feel free to contact me

>either on or off list. I welcome anyone's input as my ultimate goal,

>like all of you, is the best possible outcome for my son. Thank you.

>

>Lynn

>

>

>_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

>Unrestricted downloads of 50+ pdf files on HBOT efficacy

>medicaid/files/ ,

>HDO-documentation/files/ and

>http://www.drneubauerhbo.com/papers.htm

>

>Download your state EPSDT program

>http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

>word " ameliorate " . State Medicaid websites

>http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

>programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

>Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

>

>HBOT can save billions of dollars and millions of heartaches. Subscribe to

> by sending a blank email to

>mailto:medicaid-subscribe

>

>Unsubscribe? Click here mailto:medicaid-unsubscribe .

>

>

[Guest guest]

Ed: Thank you for taking the time to really address my concerns.

They were numerous and you gave each a great deal of consideration.

That is much appreciated.

Lynn

> >Hello, all. I have been lurking and occasionally posting on this

> >list, hoping to uncover whether HBOT might be an appropriate for my

> >19-month-old son who suffers from a mild to moderate case of

> >hemiplegic CP, specifically PVL. His symptoms include strabismus

> >(surgically corrected), left leg and arm weakness, weak upper body

> >and general lack of coordination.

> >

> >I've done a great deal of research on this treatment option and am

> >overwhelmed by the extraordinary stories I've heard its success.

> >Which leads me to my current concern - what can we *realistically*

> >expect to see from a single round of 40 sessions?

> >

> >My husband and I are very close to committing to have my son

treated

> >in a chamber that will be open for business in early April. We

have

> >had discussions with the attending physician and his nurse manager

> >and plan to tour the facility in early April. If all is a go, my

son

> >could be receiving treatment as early as mid- to late-April.

> >

> >As you can all appreciate, this will be a VERY expensive

proposition

> >for us and I cannot seem to get a handle on exactly what sort of

> >success rate there is with HBOT in general or specific to children

> >with issues such as my son's. I've read and heard many stories of

> >miraculous recoveries (chldren seeing, walking, talking, etc.

after a

> >round of treatment) but I find it hard to believe that this is

truly

> >the norm. Those who oppose HBOT are so *strongly* opposed and talk

> >so vehemently about the possible " dangers " of HBOT, that I cannot

> >help but be concerned that we are being sold a (possibly dangerous)

> >bill of goods. In addition, my son's physicians are unanimously

> >opposed to this treatment, either because they feel it is a " snake

> >oil " or it could be dangerous.

> >

> >I will be primarily responsible for making this decision for our

> >family and for my son and I do not want to look back 6 months and

$10

> >grand from now and wonder how I got suckered or, worse yet, feel

that

> >I've done more harm than good for my son.

> >

> >I hope those of you who are true believers in HBOT will not take

> >offense at my directness - I feel I need to get down to the brass

> >tacks on this as we are very close to making this decision (HBOT

> >treatment or no HBOT treatment) and I want to make the best one

> >possible.

> >

> >Anyone who'd care to share their story with me or who feels they

can

> >offer some insight into my concerns, please feel free to contact me

> >either on or off list. I welcome anyone's input as my ultimate

goal,

> >like all of you, is the best possible outcome for my son. Thank

you.

> >

> >Lynn

> >

> >

>

>_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._

.._._.

> >Unrestricted downloads of 50+ pdf files on HBOT efficacy

> >medicaid/files/ ,

> >HDO-documentation/files/ and

> >http://www.drneubauerhbo.com/papers.htm

> >

> >Download your state EPSDT program

> >http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search

on the

> >word " ameliorate " . State Medicaid websites

> >http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid

waiver

> >programs:

http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

> >

> >Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

> >

> >HBOT can save billions of dollars and millions of heartaches.

Subscribe to

> > by sending a blank email to

> >mailto:medicaid-subscribe

> >

> >Unsubscribe? Click here mailto:medicaid-

unsubscribe .

> >

> >

[Guest guest]

Lynn,

Without each other, we are all alone fighting for our kids!

You are welcome!

Ed

At 08:41 PM 3/11/2003 +0000, you wrote:

>Ed: Thank you for taking the time to really address my concerns.

>They were numerous and you gave each a great deal of consideration.

>That is much appreciated.

>

>Lynn

>

>

> > >Hello, all. I have been lurking and occasionally posting on this

> > >list, hoping to uncover whether HBOT might be an appropriate for my

> > >19-month-old son who suffers from a mild to moderate case of

> > >hemiplegic CP, specifically PVL. His symptoms include strabismus

> > >(surgically corrected), left leg and arm weakness, weak upper body

> > >and general lack of coordination.

> > >

> > >I've done a great deal of research on this treatment option and am

> > >overwhelmed by the extraordinary stories I've heard its success.

> > >Which leads me to my current concern - what can we *realistically*

> > >expect to see from a single round of 40 sessions?

> > >

> > >My husband and I are very close to committing to have my son

>treated

> > >in a chamber that will be open for business in early April. We

>have

> > >had discussions with the attending physician and his nurse manager

> > >and plan to tour the facility in early April. If all is a go, my

>son

> > >could be receiving treatment as early as mid- to late-April.

> > >

> > >As you can all appreciate, this will be a VERY expensive

>proposition

> > >for us and I cannot seem to get a handle on exactly what sort of

> > >success rate there is with HBOT in general or specific to children

> > >with issues such as my son's. I've read and heard many stories of

> > >miraculous recoveries (chldren seeing, walking, talking, etc.

>after a

> > >round of treatment) but I find it hard to believe that this is

>truly

> > >the norm. Those who oppose HBOT are so *strongly* opposed and talk

> > >so vehemently about the possible " dangers " of HBOT, that I cannot

> > >help but be concerned that we are being sold a (possibly dangerous)

> > >bill of goods. In addition, my son's physicians are unanimously

> > >opposed to this treatment, either because they feel it is a " snake

> > >oil " or it could be dangerous.

> > >

> > >I will be primarily responsible for making this decision for our

> > >family and for my son and I do not want to look back 6 months and

>$10

> > >grand from now and wonder how I got suckered or, worse yet, feel

>that

> > >I've done more harm than good for my son.

> > >

> > >I hope those of you who are true believers in HBOT will not take

> > >offense at my directness - I feel I need to get down to the brass

> > >tacks on this as we are very close to making this decision (HBOT

> > >treatment or no HBOT treatment) and I want to make the best one

> > >possible.

> > >

> > >Anyone who'd care to share their story with me or who feels they

>can

> > >offer some insight into my concerns, please feel free to contact me

> > >either on or off list. I welcome anyone's input as my ultimate

>goal,

> > >like all of you, is the best possible outcome for my son. Thank

>you.

> > >

> > >Lynn

> > >

> > >

> >

> >_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._

>._._.

> > >Unrestricted downloads of 50+ pdf files on HBOT efficacy

> > >medicaid/files/ ,

> > >HDO-documentation/files/ and

> > >http://www.drneubauerhbo.com/papers.htm

> > >

> > >Download your state EPSDT program

> > >http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search

>on the

> > >word " ameliorate " . State Medicaid websites

> > >http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid

>waiver

> > >programs:

>http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

> > >

> > >Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

> > >

> > >HBOT can save billions of dollars and millions of heartaches.

>Subscribe to

> > > by sending a blank email to

> > >mailto:medicaid-subscribe

> > >

> > >Unsubscribe? Click here mailto:medicaid-

>unsubscribe .

> > >

> > >

[Guest guest]

Dear Lynn,

two neurologists from the Central Naval Hospital Buenos Aires,

the former President and the current Secretary of the Argentine Hyperbaric

Society (incidentally, very close to the UHMS),

with some other doctors, wrote a paper on leukoaraiosis and hyperbaric oxygen

in 1999.

Leukoaraiosis is another name for PVL, usually of circulatory cause.

It is also called Biswanger's disease.

Different names for a similar hypoxic injury.

.................................................................................\

.................................................................................\

.............

J.F. Vila , P.E. Balcarce , G.R.P. Abiusi , R.O. Domínguez ,

N. Subbotina , J.B. Pisarello

HYPERBARIC OXYGEN THERAPY IN SUBCORTICAL FRONTAL SYNDROME

DUE TO A DISORDER OF SMALL ARTERIES WITH LEUKOARAIOSIS

Summary. Introduction. Frontal leukoaraiosis (LA) is a common finding in

patients with subcortical small-vessel disease and

currently its pathogenesis is attributed to ischemic-hypoxic mechanisms. It

associates to a vascular subcortical frontal syndrome

(VSFS) for which an effective treatment does not exist. Clinical cases. We

present four subjects from a prospective patient-blind controlled pilot trial to

study efficacy and safety of hyperbaric oxygen therapy (HBO) vs hyperbaric air

in VSFS with LA. All of them had frontal or extended LA

on computed tomography scan and lacunes in basal ganglia and centrum ovale, with

moderate to severe gait disorders, urinary dysfunction, cognitive impairment,

and dependence in the daily living activities. Deficits had begun two to ten

years before and had remained stable three months

previous to the treatment. Patients were assessed with validated scales and

tests one week before and after being administrated ten daily sessions of HBO at

2.5 atmospheres absolute for 45 minutes with a multiplace chamber. Serious

adverse effects did not occur. After treatment a noticeable

gait, urinary and cognitive improvement was observed in all subjects, increasing

their independence. They remained clinically improved during four to five

months, after which the previous deficits reappeared. Then, three patients

received ten daily sessions of air at 1.1 atmospheres absolute

for 45 minutes (controls) and the other a new HBO regimen, which improved as the

first time. From the controls, there were no changes in two, while the other did

only improve cognitively. Conclusion. These patients show that HBO is effective

and safety in reversing, at least partially,

although at great length, chronic neurological deficits associated to vascular

frontal LA, highlighting that a functional reserve therapeutically useful

exists.

[REV NEUROL 1999; 28: 655-60].

Key words. Activities of the daily living. Gait disorder. Hyperbaric oxygen

therapy. Leukoaraiosis.

.................................................................................\

.........................................................................

It is not exactly the condition, but their underlying mechanisms are similar,

and the effects are different

only because the brain has been affected at different developmental stages,

so you can draw some general conclusions from this paper.

Realistically, you can expect a correction of the oxygen status, that will

enable your son's brain to heal

to the best possible extent. Accurate predictions (prognosis) are impossible,

but the rate of improvement will be much higher than if it is left to its

natural evolution.

Some gains will be immediately seen, while others will develop weeks after the

course is finished.

How much? To what extent? It is impossible to say.

As for the mentioned expenses, I cannot comment: here in Argentina, one session

is around $20, nowadays.

Forty sessions will cost you $800, and accomodations and food can be incredibly

inexpensive in Buenos Aires,

quite cosmopolitan a city.

The only issue would be the flights: I do not favour aerotransportation for

brain injured patients,

unless they use oxygen by mask during the flight.

There are no dangers at the usual pressures.

Those who vehemently remark the dangers or

oppose hyperbarics strongly, either have a limited real experience on it,

or have vested interests. In any case, shame on them.

Treatment pressures are comparable to a (protracted) dive to the bottom of a

swimming pool,

but very gradually done.

1.3ATA (4.5 PSI) and as little as 30% oxygen, -and even less-,

have been shown to be as effective as the higher pressures, or more so.

At these pressures there is little chance to elicit reactions against oxygen

in an eventually over-sensitive patient.

There are no " true believers " (in the sense of Hopper) here.

Most of us have been exposed to the various astounding effects of High Dosage

Oxygen,

either as parents, caregivers, doctors or also as patients.

Afterwards, you don't need to " believe " , anymore.

You know.

The urge to share and expand that knowledge both politically and scientifically,

has united many parents and doctors in the advocacy for this method that you may

have sensed here,

which, allow me to be repetitive,

has nothing to do with jus a belief.

Best regards.

Ignacio Fojgel, M.D.

Universidad Maimonides

Buenos Aires, Argentina

dubblmom wrote:

> Hello, all. I have been lurking and occasionally posting on this

> list, hoping to uncover whether HBOT might be an appropriate for my

> 19-month-old son who suffers from a mild to moderate case of

> hemiplegic CP, specifically PVL. His symptoms include strabismus

> (surgically corrected), left leg and arm weakness, weak upper body

> and general lack of coordination.

>

> I've done a great deal of research on this treatment option and am

> overwhelmed by the extraordinary stories I've heard its success.

> Which leads me to my current concern - what can we *realistically*

> expect to see from a single round of 40 sessions?

>

> My husband and I are very close to committing to have my son treated

> in a chamber that will be open for business in early April. We have

> had discussions with the attending physician and his nurse manager

> and plan to tour the facility in early April. If all is a go, my son

> could be receiving treatment as early as mid- to late-April.

>

> As you can all appreciate, this will be a VERY expensive proposition

> for us and I cannot seem to get a handle on exactly what sort of

> success rate there is with HBOT in general or specific to children

> with issues such as my son's. I've read and heard many stories of

> miraculous recoveries (chldren seeing, walking, talking, etc. after a

> round of treatment) but I find it hard to believe that this is truly

> the norm. Those who oppose HBOT are so *strongly* opposed and talk

> so vehemently about the possible " dangers " of HBOT, that I cannot

> help but be concerned that we are being sold a (possibly dangerous)

> bill of goods. In addition, my son's physicians are unanimously

> opposed to this treatment, either because they feel it is a " snake

> oil " or it could be dangerous.

>

> I will be primarily responsible for making this decision for our

> family and for my son and I do not want to look back 6 months and $10

> grand from now and wonder how I got suckered or, worse yet, feel that

> I've done more harm than good for my son.

>

> I hope those of you who are true believers in HBOT will not take

> offense at my directness - I feel I need to get down to the brass

> tacks on this as we are very close to making this decision (HBOT

> treatment or no HBOT treatment) and I want to make the best one

> possible.

>

> Anyone who'd care to share their story with me or who feels they can

> offer some insight into my concerns, please feel free to contact me

> either on or off list. I welcome anyone's input as my ultimate goal,

> like all of you, is the best possible outcome for my son. Thank you.

>

> Lynn

>

>

[Guest guest]

Dr. Fojgel, thank you so much for the article as well as your direct

responses to my questions.

Lynn

====================

>

> > Hello, all. I have been lurking and occasionally posting on this

> > list, hoping to uncover whether HBOT might be an appropriate for

my

> > 19-month-old son who suffers from a mild to moderate case of

> > hemiplegic CP, specifically PVL. His symptoms include strabismus

> > (surgically corrected), left leg and arm weakness, weak upper body

> > and general lack of coordination.

> >

> > I've done a great deal of research on this treatment option and am

> > overwhelmed by the extraordinary stories I've heard its success.

> > Which leads me to my current concern - what can we *realistically*

> > expect to see from a single round of 40 sessions?

> >

> > My husband and I are very close to committing to have my son

treated

> > in a chamber that will be open for business in early April. We

have

> > had discussions with the attending physician and his nurse manager

> > and plan to tour the facility in early April. If all is a go, my

son

> > could be receiving treatment as early as mid- to late-April.

> >

> > As you can all appreciate, this will be a VERY expensive

proposition

> > for us and I cannot seem to get a handle on exactly what sort of

> > success rate there is with HBOT in general or specific to children

> > with issues such as my son's. I've read and heard many stories of

> > miraculous recoveries (chldren seeing, walking, talking, etc.

after a

> > round of treatment) but I find it hard to believe that this is

truly

> > the norm. Those who oppose HBOT are so *strongly* opposed and

talk

> > so vehemently about the possible " dangers " of HBOT, that I cannot

> > help but be concerned that we are being sold a (possibly

dangerous)

> > bill of goods. In addition, my son's physicians are unanimously

> > opposed to this treatment, either because they feel it is a " snake

> > oil " or it could be dangerous.

> >

> > I will be primarily responsible for making this decision for our

> > family and for my son and I do not want to look back 6 months and

$10

> > grand from now and wonder how I got suckered or, worse yet, feel

that

> > I've done more harm than good for my son.

> >

> > I hope those of you who are true believers in HBOT will not take

> > offense at my directness - I feel I need to get down to the brass

> > tacks on this as we are very close to making this decision (HBOT

> > treatment or no HBOT treatment) and I want to make the best one

> > possible.

> >

> > Anyone who'd care to share their story with me or who feels they

can

> > offer some insight into my concerns, please feel free to contact

me

> > either on or off list. I welcome anyone's input as my ultimate

goal,

> > like all of you, is the best possible outcome for my son. Thank

you.

> >

> > Lynn

> >

> >