Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Ady lolol its fun to see how many places this internet goes if you ever want to see atlanta ga i think its www.atlantaga.com www.stonemountain.com you can sit in your house and travel to places you have only dreamed of pick a city just do www.nashville.com or www.tennessee.com its so cool to see Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Hi there Thanks for this! Your words sound so familiar - this disease can have you feeling quite in control and confident one moment and then completely lost the next........... The person I battle the most with is my mom. is usually just around all of us, but the moment my mom walks into the room she suddenly acts as though she is completely paralysed.... It doesn't help that my mom doesn't realise, no matter what I say, that she shouldn't react to the way she does..... Some people have the power to make you feel completely stupid! Ady Ogilvie ) (011) 686 6323 (Telephone) (011) 686 6666 (Fax) > ady > > > Dear Ady, You are not alone feeling the way you do. n has had the > disease for 2 and 1/2 years. She has been pretty good for the last two > years, and she is now in a flare, so she is back on steroids. It is so > disappointing, and I find that I am going thru the same emotions that I > did > two years ago. It is a sneaky disease and I hate it. She was doing > great, > but now she has had to drop out of everything. > I find that sometimes I don't know how to react to her. I can't figure > out > if she has a high tolerance or a low tolerance of pain. She now tells me > every ache and pain. So I just wanted to let you know that you are not > alone. I can talk to friends and family, and they are supportive, but I > don't think they realize the real ups and downs of the disease. My > brother > understands the best. He was diagnosed with rheumatoid arthritis six > months > before n. So he understands (along with the people here) the joys > and > sorrows of going up or down on steroids. He is currently stuck at 3 mg. I > > guess I have rambled, but you are not alone. (n, age 13, > systemic) > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: <http://messenger.msn.com> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 LOL..had to jump on this one..other peoples opinions..oh and do they have so many..lol! I remember when tabitha was diagnosed back in 89', I had people say that it was my fault she got this disease because she use to fall asleep playing on the floor. Or i even have friends who claim they remember when she was little(before the jra showed up)how tired she was or days she could barely move..which before arthur decided to show his face..tabitha was a healthy four year old..i was looking at her birthday pictures when she turned 4 in march of 89' and of the ones when she turned 5 in march of 90'..such a big difference in those pictures..lot of damage the jra did, in a year. Anyways as far as people go..i look at it this way..they don't see my daughter 24/7 so they don't know what goes on..therefore opinion..USELESS! We as parents and people who deal with this disease know what goes on and the pain and toll it can have on a child or an adult...hopefully one day the other half of the world will open their eyes also.. ok enough said..have to call the school and have it out with the attendance office about tabithas absences.. hope all has a good day karen(tab16...poly) From: nLilly@... Reply- Subject: RE: ady Date: Tue, 29 Jan 2002 08:37:50 -0500 (EST) Dear Ady, I have just the opposite problem with Kate--she'll push so hard to act and appear " normal " around everyone--then let it all go at home. So other family members and others have a hard time understanding how bad she can really be. I agree it gets so frustrating having to deal with other's reactions and opinions. and Kate--7-severe poly and AVN _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 hi ady..yes it is me again..lol.. i had to say something to this post after i read it also..Let me tell you about my mother..lol..if tabitha would of lived with her these past...11 years(think i did the math right) tabitha would have never had to lift her fingers for anything..oh my..when we go to my moms..Tabitha knows she can have her own way..my step-dad was the same way with tabitha..she could do no wrong in his eyes..that was his baby..we lost my step-dad back in may of 2001 to lung cancer..poor soul found out on may 15 and died may 23..the bad thing is..the 15th was his 52nd birthday..what a present..anyways this man cried so hard when we found out what tabitha had in december of 89'..wanted to know why god could give a child this disease..from that day on..she had him wrapped tighter than before..not intentionally. Anyways i couldn't growl her or anything around my parents..tabitha can be frustrating at times..especially being a teen..mouthiness she has inherited..i can not yell at her around my mom..i am not a mean mother..my kids can push my buttons.. I have learned from my parents that i it is better to let them say what they want..nothing will ever change their opinions on anything..when it comes to their grandchildren..even the healthy ones.. But i learned along time ago that these children..not saying they are bad..i go through this with tabitha..can use this disease to try and get special attention..and when i know tabitha is doing that around my mom..when we get home and she all of sudden isn't tired or feels better..i say sorry..didn't feel good at your Mamaws house..now you can go lie down for awhile..she gets huffy about it..but she gets the idea..lol good luck karen(tab16..poly) From: Adrienne Ogilvie <aogilvie@...> Reply- " ' ' " < > Subject: RE: ady Date: Tue, 29 Jan 2002 08:32:15 +0200 Hi there Thanks for this! Your words sound so familiar - this disease can have you feeling quite in control and confident one moment and then completely lost the next........... The person I battle the most with is my mom. is usually just around all of us, but the moment my mom walks into the room she suddenly acts as though she is completely paralysed.... It doesn't help that my mom doesn't realise, no matter what I say, that she shouldn't react to the way she does..... Some people have the power to make you feel completely stupid! Ady Ogilvie ) (011) 686 6323 (Telephone) (011) 686 6666 (Fax) > ady > > > Dear Ady, You are not alone feeling the way you do. n has had the > disease for 2 and 1/2 years. She has been pretty good for the last two > years, and she is now in a flare, so she is back on steroids. It is so > disappointing, and I find that I am going thru the same emotions that I > did > two years ago. It is a sneaky disease and I hate it. She was doing > great, > but now she has had to drop out of everything. > I find that sometimes I don't know how to react to her. I can't figure > out > if she has a high tolerance or a low tolerance of pain. She now tells me > every ache and pain. So I just wanted to let you know that you are not > alone. I can talk to friends and family, and they are supportive, but I > don't think they realize the real ups and downs of the disease. My > brother > understands the best. He was diagnosed with rheumatoid arthritis six > months > before n. So he understands (along with the people here) the joys > and > sorrows of going up or down on steroids. He is currently stuck at 3 mg. I > > guess I have rambled, but you are not alone. (n, age 13, > systemic) > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: <http://messenger.msn.com> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi! I laughed reading your mail! I'm SO glad I'm not the only one who has this frustration! I appreciate what my Mom does, but lordy, I do not have the luxury of being the way she is, I have to be a parent and a mom too! There are times when she fixes me with " that " look of hers, like I've just asked the kid to walk barefoot over a bed of nails! Had a chat to her new teacher today, and am relieved to find out that she will be dealing with the way I try to, with lots of firm and positive affirmation, with an accent sometimes on the firmness....... Ady Ogilvie ) > ady > > > > > > Dear Ady, You are not alone feeling the way you do. n has had the > > disease for 2 and 1/2 years. She has been pretty good for the last two > > years, and she is now in a flare, so she is back on steroids. It is so > > disappointing, and I find that I am going thru the same emotions that I > > did > > two years ago. It is a sneaky disease and I hate it. She was doing > > great, > > but now she has had to drop out of everything. > > I find that sometimes I don't know how to react to her. I can't figure > > out > > if she has a high tolerance or a low tolerance of pain. She now tells > me > > every ache and pain. So I just wanted to let you know that you are not > > alone. I can talk to friends and family, and they are supportive, but I > > don't think they realize the real ups and downs of the disease. My > > brother > > understands the best. He was diagnosed with rheumatoid arthritis six > > months > > before n. So he understands (along with the people here) the joys > > and > > sorrows of going up or down on steroids. He is currently stuck at 3 mg. > > I > > > > guess I have rambled, but you are not alone. (n, age 13, > > systemic) > > > > > > _________________________________________________________________ > > Chat with friends online, try MSN Messenger: < > <http://messenger.msn.com>> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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