CFIDS

[Guest guest]

Welcome to the group!

Gee! 17 is awefully young to be bedridden. I am very hopeful regarding these

new modalities. I personally use a lot of homeopathy, and herbs.... hope to

soon get a zapper.

Essential oils are good things to look into as well. Oregano oil can be used

internally as well as externally. For external use, one has to be careful to

dilute it, as it can burn your skin....

There are other suppliments that work on viral things... Perhaps, if these

were used along with zapping, it may give a synergistic effect?

Welcome to Dotsie's list... Everyone is friendly and helpful here, and

you'll love this list.

Health, Hope, Joy & Healing :

May you Prosper, even as your Soul Prospers 3 2

Ruby

Email advice is not a substitute for medical treatment.

SymphonicHealth

______________________________________________

«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤

¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯

hewlett2000au wrote:

> I have just recently joined this group and have been reading the

> posts with great interest. The post from Ruby on the book was

> especially interesting - thanks! My daughter (only 17 yrs of age)

> has CFIDS and we have just started her using a Beck pulser some 2-3

> weeks ago. Does anyone out there have any info on successful

> outcomes using the Pulser? She was diagnosed over a year ago and

> has been unwell for almost 2 years. She has been taking a natural

> treatment vitamins/minerals etc for 9 months and has made enormous

> progress - she is no longer bedridden. But she still has a way to

> go. The CFIDS seems so painfully slow and I would hate to think

> that this is as well as she gets.

[Guest guest]

Hi, there's some confusion as to terms: Beck pulser there are two:

magnetic pulser and blood electrifier, which one?

The wrist type electrifier I have seen clear up herpes zoster

(shingles) in an elderly woman in a week or so. Was quite a

remarkable remission. She was quite surprised, and refuses to this

day to return the device. We have another case of some skin

eruptions clearing up which could have been some form of herpes.

Also, it is looking like Hep-C may be responding.

For the shingles, it was a simple plastic box with 4 9volt

batteries, a 22k resistor and 100k potentiometer in series. It had

a switch to reverse the current manually every few minutes. There's

plans for it at the group . Costs

about ten bucks to make one. IF you already have one, probably not

necessary, but it does deliver a huge amount of current, since you

can lower it way down to switch, then raise it up very high.

Good luck,

bG

> I have just recently joined this group and have been reading the

> posts with great interest. The post from Ruby on the book was

> especially interesting - thanks! My daughter (only 17 yrs of

age)

> has CFIDS and we have just started her using a Beck pulser some 2-

3

> weeks ago. Does anyone out there have any info on successful

> outcomes using the Pulser? She was diagnosed over a year ago and

> has been unwell for almost 2 years. She has been taking a

natural

> treatment vitamins/minerals etc for 9 months and has made enormous

> progress - she is no longer bedridden. But she still has a way

to

> go. The CFIDS seems so painfully slow and I would hate to think

> that this is as well as she gets.

[Guest guest]

Dear Hewlett,

I've had cfids for 13 years, and sometimes I forget how very dark the dark

days can be. The most acute stage of cfids usually last 2 to 3 years. What

I've found that has been so helpful for me was the liver cleanse. I did 5

cleanses until I now longer had any stones. Now I do a parasite and liver

cleanse twice yearly. Also, what helped stop the relapses were B12

injections. At first I started out on 5,000 mcg. twice weekly for the bulk

of a year, then went down to 1,000 mcg. twice weekly. Now I only take a B

complex pill. If you cannot find a doctor to prescribe the injections for

your daughter, you can get a sublingual liquid B 12 that goes under the

tongue at most any health food store. One dropper full equals 1,000 mcg. of

B 12. It's almost as good as the injections. I've also done the Beck

Protocol. I still use the BE unit twice weekly, take a few supplements and

have recently started rebounding. I found that it is starting to really

help with the mental fog. Life's looking pretty nice at the moment for me.

It can for your daughter, too!

Take care,

Gail

cfids

> I have just recently joined this group and have been reading the

> posts with great interest. The post from Ruby on the book was

> especially interesting - thanks! My daughter (only 17 yrs of age)

> has CFIDS and we have just started her using a Beck pulser some 2-3

> weeks ago. Does anyone out there have any info on successful

> outcomes using the Pulser? She was diagnosed over a year ago and

> has been unwell for almost 2 years. She has been taking a natural

> treatment vitamins/minerals etc for 9 months and has made enormous

> progress - she is no longer bedridden. But she still has a way to

> go. The CFIDS seems so painfully slow and I would hate to think

> that this is as well as she gets.

>

>

>

>

>

>

[Guest guest]

Re: cfids

bG wrote:

For the shingles, it was a simple plastic box with 4 9volt

batteries, a 22k resistor and 100k potentiometer in series. It had

a switch to reverse the current manually every few minutes. There's

plans for it at the group . Costs

about ten bucks to make one. IF you already have one, probably not

necessary, but it does deliver a huge amount of current, since you

can lower it way down to switch, then raise it up very high.

Good luck,

bG

I haven't read about this machine, but I would sure like to! Unfortunately, I

couldn't locate it from your description and wondered if you could please be a

little more specific?

Regards,

Bill Onslow

[Guest guest]

With CFIDS, patients usually neglect glutathione levels as part of the

therapy. That is to say, that as the infection is being cleared, the toxins

are not. In some people the diagnosis should not have been CFIDS, but a

close relative multiple chemical sensitivity, which has remarkably similar

symptoms.

Low glutathione levels often result in CFIDS, myalgia and bowel disturbances

becasue the glutathione precursors are taken preferentially by the 'more

important' organs, leaving the tissues, bowel, and detoxification mechanism

short. This allows free radical cascades to go unquenched in the tissues and

bowel lining, and the toxin buildup throughout the body produces fatigue

symptoms and brain fog. Toxin buildup also eventually results in

hypo-oxygenation and cancer.

Following links into Medline references on this subject from my father's

website, you will see what I mean.

On its own, Immunocal and HMS-90 can clear CFIDS, IBD and myalgia. There are

examples of that even here in town. It is dose-dependent. Depending on a

person's weight and degree of health challenge they may need two or even

three pouches a day for awhile before they cut back. People respond for

three months, many continue to improve for another three.

ciao

Duncan

_______________________________________________________

Get HMS-90 (Canadian Immunocal) for less than US distributor cost.

50% of US retail or lower. WideWest Enterprises Ltd. ships worldwide.

http://members.shaw.ca/widewest/HMS-90.html -- PayPal Accepted!

______________________________

[Guest guest]

In a message dated 1/31/2007 12:59:48 PM Eastern Standard Time, wanda85929@... writes:

Could you expand on how you built up your immune system

Hi Gail,

At that time, it was a combination of immune support (Pycnogenol, Beta Glucan, Olive Leaf, CMO, CS, Kombucha, etc.), a 14 day juice fast and the Beck protocol. I only used the BE for 90 days. After that, I slowly resumed my normal diet.

Dotsie

[Guest guest]

>

> I am the mother of a 12 year old who has CFIDS. After having

> problems for about a year and a half he was diagnosed this past

> July. We have the support of a wonderful doctor who immediately

> started him on prescription meds as well as high doses of vitamins

> and minerals. They finally seem to be helping. He is better than

> he was four months ago but not a healthy carfree child by any

> means. The school system has decided he is not sick because he

> doesn't look sick and has no temperature. They have cancelled his

> homebound services but have a schedule I am excited for him to

try.

> They contacted his doctor and pressured her into having him return

> to school before she wanted him to. They have threatened to take

me

> to court and have a social worker on staff that tells me he looks

> fine to her. I do want my son back in school if he is able to do

> it. He will be trying a modified schedule and I pray that it works

> for him. However, if it doesn't work I know I am going to have a

> major battle on my hands. He will be going back tomorrow to try the

> new schedule. Can anyone give me any advice on how to deal with

the

> school system or how to help my son through this? If it helps to

> know we live in North Carolina and my son has always been an honor

> roll student so they should see he is trying.

>

> Kaye

I live in Caldwell OCunty, NC. Do you have the credentials to home

school? I do not know what they are. Can you do it physically etc....

Alot of people are doing that now...

>

[Guest guest]

> >

> > I am the mother of a 12 year old who has CFIDS. After having

> > problems for about a year and a half he was diagnosed this past

> > July. We have the support of a wonderful doctor who immediately

> > started him on prescription meds as well as high doses of

vitamins

> > and minerals. They finally seem to be helping. He is better

than

> > he was four months ago but not a healthy carfree child by any

> > means. The school system has decided he is not sick because he

> > doesn't look sick and has no temperature. They have cancelled

his

> > homebound services but have a schedule I am excited for him to

> try.

> > They contacted his doctor and pressured her into having him

return

> > to school before she wanted him to. They have threatened to

take

> me

> > to court and have a social worker on staff that tells me he

looks

> > fine to her. I do want my son back in school if he is able to

do

> > it. He will be trying a modified schedule and I pray that it

works

> > for him. However, if it doesn't work I know I am going to have

a

> > major battle on my hands. He will be going back tomorrow to try

the

> > new schedule. Can anyone give me any advice on how to deal with

> the

> > school system or how to help my son through this? If it helps to

> > know we live in North Carolina and my son has always been an

honor

> > roll student so they should see he is trying.

> >

> > Kaye

>

> I live in Caldwell OCunty, NC. Do you have the credentials to home

> school? I do not know what they are. Can you do it physically

etc....

> Alot of people are doing that now...

> >

>I do have everything I need from Raleigh to home school, but have

not purchased any type of curriculum. I would like this to be a last

resort due to social interactions and because I am just scared that

if I don't do a good job as his teacher, then he suffers in the long

run. This is a decision I struggle with every day.

[Guest guest]

Re: CFIDS

Lots of communities now provide social outlets for children who are home schooled. I'll bet Raleigh has something like that. I quickly found this, don't know if it will be of any help: http://www.homeschoolcentral.com/support/north_carolina_homeschool..htm

If you can't find out anything about social activities for home-schooled children, let me know. I'm from Durham and still have many friends in the Triangle area. I might be able to get some information for you.

Pam

> >> > I am the mother of a 12 year old who has CFIDS. After having > > problems for about a year and a half he was diagnosed this past > > July. We have the support of a wonderful doctor who immediately > > started him on prescription meds as well as high doses of vitamins > > and minerals. They finally seem to be helping. He is better than > > he was four months ago but not a healthy carfree child by any > > means. The school system has decided he is not sick because he > > doesn't look sick and has no temperature. They have cancelled his > > homebound services but have a schedule I am excited for him to > try. > > They contacted his doctor and pressured her into having him return > > to school before she wanted him to. They have threatened to take > me > > to court and have a social worker on staff that tells me he looks > > fine to her. I do want my son back in school if he is able to do > > it. He will be trying a modified schedule and I pray that it works > > for him. However, if it doesn't work I know I am going to have a > > major battle on my hands. He will be going back tomorrow to try the > > new schedule. Can anyone give me any advice on how to deal with > the > > school system or how to help my son through this? If it helps to > > know we live in North Carolina and my son has always been an honor > > roll student so they should see he is trying.> > > > Kaye> > I live in Caldwell OCunty, NC. Do you have the credentials to home > school? I do not know what they are. Can you do it physically etc.... > Alot of people are doing that now...> >>I do have everything I need from Raleigh to home school, but have not purchased any type of curriculum. I would like this to be a last resort due to social interactions and because I am just scared that if I don't do a good job as his teacher, then he suffers in the long run. This is a decision I struggle with every day.

[Guest guest]

GRRR THIS IS THE THING THAT GETS ME......WHEN YOU FINALLY GET HELP AND SOMEONE ELSE STEPS IN. I THINK I HAVE A COUSIN IN LAW THAT MIGHT KNOW A PERSON WHO KNOWS THESE LAWS TO HELP CHILDREN WITH SPECIAL NEEDS.tlc4smom <kcall@...> wrote: I am the mother of a 12 year old who has CFIDS. After having problems for about a year and a half he was diagnosed this past July. We have the support of a wonderful doctor who immediately started him on prescription meds as well as high doses of vitamins and minerals. They finally seem to be

helping. He is better than he was four months ago but not a healthy carfree child by any means. The school system has decided he is not sick because he doesn't look sick and has no temperature. They have cancelled his homebound services but have a schedule I am excited for him to try. They contacted his doctor and pressured her into having him return to school before she wanted him to. They have threatened to take me to court and have a social worker on staff that tells me he looks fine to her. I do want my son back in school if he is able to do it. He will be trying a modified schedule and I pray that it works for him. However, if it doesn't work I know I am going to have a major battle on my hands. He will be going back tomorrow to try the new schedule. Can anyone give me any advice on how to deal with the school system or how to help my son through this? If it helps to know we live in North Carolina and my son has

always been an honor roll student so they should see he is trying.Kaye

[Guest guest]

In response to Pam: Thanks for the info. I'll check out these web sites. I don't live in Raleigh, I just had to get approved from Raleigh to do home schooling. We actually live in Davie County.

Thanks again. Kaye

[Guest guest]

Dear Kaye, have you considered home schooling your son? I ask because I

went thru the same battles with an uncaring and uncompassionate public

school system with my daughter. She had congenital heart disease, and

was very frail and fragile. She never would have made it through the

public schools. I finally was able to put her in a private Christian

school, where they acknowledged her condition and sent her work home

during frequent times that she wasn't strong enought to attend. Back

then home schooling was barely getting started, and I had to work full

time so wouldn't have been able to do it. Sometimes there are

organizations with parents who homeschool their own children and may be

willing to take on another child if you have to work. Just a thought, I

sure do empathize with your situation! Good luck, dear,

Sincerely, Laurie Reeves (agapemom)

[Guest guest]

Kaye, I will be praying for your son, and you. Our school systems (politics) seem to be failing our students in ways we don't even see sometimes. Have you considered homeschooling? If you can't do it yourself, there are usually homeschooling groups that might be able to help you.

As far as the school goes, I would compile a report not only from your son's physicians, but from other specialists opinions regarding his disease, and submit this to the school board. Maybe we could even collect signatures in here to petition on his behalf.

Prayer is on your side, and God is bigger than the school board! Bless your heart my new friend.

Joyce

Re: CFIDS

GRRR THIS IS THE THING THAT GETS ME......WHEN YOU FINALLY GET HELP AND SOMEONE ELSE STEPS IN. I THINK I HAVE A COUSIN IN LAW THAT MIGHT KNOW A PERSON WHO KNOWS THESE LAWS TO HELP CHILDREN WITH SPECIAL NEEDS.tlc4smom <kcallyadtel (DOT) net> wrote:

I am the mother of a 12 year old who has CFIDS. After having problems for about a year and a half he was diagnosed this past July. We have the support of a wonderful doctor who immediately started him on prescription meds as well as high doses of vitamins and minerals. They finally seem to be helping. He is better than he was four months ago but not a healthy carfree child by any means. The school system has decided he is not sick because he doesn't look sick and has no temperature. They have cancelled his homebound services but have a schedule I am excited for him to try. They contacted his doctor and pressured her into having him return to school before she wanted him to. They have threatened to take me to court and have a social worker on staff that tells me he looks fine to her. I do want my son back in school if he is able to do it. He will be trying a modified schedule and I pray that it

works for him. However, if it doesn't work I know I am going to have a major battle on my hands. He will be going back tomorrow to try the new schedule. Can anyone give me any advice on how to deal with the school system or how to help my son through this? If it helps to know we live in North Carolina and my son has always been an honor roll student so they should see he is trying.Kaye

[Guest guest]

Joyce, thank you for your prayers for me and my son. Prayer is what has gotten us through this so far. I have considered home schooling but have not made a final decision on it yet. I have spoken with the school board and the school superintendent who both seemed more understanding than the school itself. My son returned to school today for a 3 hour day. He came home exhausted and had quiet a bit of leg pain. At least he made it but I'm not sure how long he can keep it up. It is so hard watching your child go through something like this when there is nothing you can do to make it go away. I need help understanding what he is feeling sometimes. Children don't express themselves as well as adults and since I have been fortunate enough to have never had any of this, I sometimes need someone who is going through it to explain things. He suffers from migraines, joint and muscle pain (especially in his legs and feet), extreme fatigue, sore throats with swollen lymph nodes, memory loss and brain fog, insomnia, and stones in his saliva glands (does anyone else experience these stones?). Some days he tells me he just doesn't feel good and that's all the explanation I get from him. Does that mean he is fatigued or what? I don't know any other children who have this so there are no other mothers in this area for me to talk to about this. I am so thankful for this group!

Kaye

[Guest guest]

http://www.cfidsselfhelp.org/ CFIDS and fibromyalsia

Because so many of us have other autoimmune diseases it is ok by me for us

to discuss any problems we have or any questions regrading these too. I am

sure some of us have found tips and information we can share. Joanne

http://www.cfidsselfhelp.org/library/about-chronic-fatigue-syndrome

Chronic Fatigue Syndrome, also known by other names such as Chronic Fatigue

and Immune Dysfunction Syndrome (CFIDS) and myalgic encephalomyelitis (ME),

is a long-term disorder affecting the brain and other systems, including the

immune system, the endocrine system and the autonomic system. Debilitating

fatigue is usually the most prominent symptom. Other common symptoms include

poor sleep, body pain and mental confusion ( " brain fog " ). Emotional problems

such as depression, anxiety, irritability and grief, are common.

The severity of CFS varies greatly. While some patients continue to lead

relatively normal lives, others are housebound or even bedridden. The

average case of CFS creates moderate to severe symptoms and reduces a person's

activity level by 50% to 85%.

As a severe, long-term illness, CFS affects many parts of patients' lives,

creating many challenges and requiring great adjustments. Patients must

struggle to control their symptoms and adapt their lives to the limits

imposed by their illness. Adaptations may include reducing or eliminating

paid work, adjusting family responsibilities, coping with increased stress

and intense emotions, and coming to terms with loss.

What Are Its Symptoms?

People with CFS usually experience several, or even many, symptoms. (CFS

symptoms lists can be several dozen items long.) The severity of symptoms

often waxes and wanes. One symptom may be the most prominent at one time,

another in a later period. The four most common symptoms are fatigue, pain,

poor sleep and cognitive problems.

Fatigue: Fatigue is experienced as a deep exhaustion that can be brought on

by low levels of activity or for no apparent reason. Fatigue is often

disproportional to the energy expended and lasts far longer than it would in

a healthy person. Fatigue can be intensified by overactivity, poor sleep,

deconditioning, stress, emotions and poor nutrition.

Pain: Pain may be experienced in the joints or, more commonly, as an overall

body pain that is often described as the feeling of being run over by a

truck. Pain may be intensified by overactivity, non-restorative sleep,

anxiety and stress, and changes in the weather.

Poor Sleep: Sleep is often experienced as unrefreshing. Patients often feel

as tired when they get up as before going to bed. Sleep problems are usually

a part of the illness, but they may be intensified by other factors such as

stress, overactivity, and the absence of a good sleep environment or good

sleep habits.

Cognitive Problems: Most CFS patients experience cognitive difficulties,

often called " brain fog. " Cognitive problems include feeling confused,

difficulty concentrating, fumbling for words and lapses in short-term

memory. Brain fog can be reduced by limiting activity, getting adequate

rest, managing stress and by limiting sensory input.

Other Symptoms: Patients often experience other symptoms as well, which

create further discomfort. Common additional symptoms include: headaches,

low-grade fevers, sore throat, tender lymph nodes, anxiety and depression,

ringing in the ears, dizziness, abdominal pain (gas, bloating, periods of

diarrhea and/or constipation), allergies and rashes, sensitivity to light

and sound, abnormal temperature sensations such as chills or night sweats,

weight changes and intolerance of alcohol.

____________________________________________________________

Best Weight Loss Program - Click Here!

http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYSwrDdXKF1XDd4sha3kETQwJU7t\

kJerMnCfZXkLaTeKmL5KF9zYQo/

[Guest guest]

CFIDS is listed as an autoimmune disease by AARDA. (American Autoimmune

Related Diseases Association), aarda.org.

However, this month a scientist in Utah isolated the gene for CFIDS. Another

study showed a retrovirus associated with CFIDS. I don't know what this says

about CFIDS being an autoimmune disease.

My daughter receives disability for CFIDS. It's not much, as she wasn't able to

work very long, but it gives her a sense of independence. I'd say her ability

level is reduced about 85%, averaged out over the course of a year. Sometimes

several days in a row will be " normal " , but the following days or weeks must be

spent in bed. The family -- her husband and we, her parents -- work together for

her well-being. Fortunately, she's always been an innately cheerful, kind,

person, blessed with intelligence and determination.

Incidentally, AARDA is a great source of information about autoimmune disorders

and their implicaitons. I forget to use it, but I intend to spend some time

looking at their information again.

Harper

[ ] CFIDS

http://www.cfidsselfhelp.org/ CFIDS and fibromyalsia

Because so many of us have other autoimmune diseases it is ok by me for us

to discuss any problems we have or any questions regrading these too. I am

sure some of us have found tips and information we can share. Joanne

http://www.cfidsselfhelp.org/library/about-chronic-fatigue-syndrome

Chronic Fatigue Syndrome, also known by other names such as Chronic Fatigue

and Immune Dysfunction Syndrome (CFIDS) and myalgic encephalomyelitis (ME),

is a long-term disorder affecting the brain and other systems, including the

immune system, the endocrine system and the autonomic system. Debilitating

fatigue is usually the most prominent symptom. Other common symptoms include

poor sleep, body pain and mental confusion ( " brain fog " ). Emotional problems

such as depression, anxiety, irritability and grief, are common.

The severity of CFS varies greatly. While some patients continue to lead

relatively normal lives, others are housebound or even bedridden. The

average case of CFS creates moderate to severe symptoms and reduces a person's

activity level by 50% to 85%.

As a severe, long-term illness, CFS affects many parts of patients' lives,

creating many challenges and requiring great adjustments. Patients must

struggle to control their symptoms and adapt their lives to the limits

imposed by their illness. Adaptations may include reducing or eliminating

paid work, adjusting family responsibilities, coping with increased stress

and intense emotions, and coming to terms with loss.

What Are Its Symptoms?

People with CFS usually experience several, or even many, symptoms. (CFS

symptoms lists can be several dozen items long.) The severity of symptoms

often waxes and wanes. One symptom may be the most prominent at one time,

another in a later period. The four most common symptoms are fatigue, pain,

poor sleep and cognitive problems.

Fatigue: Fatigue is experienced as a deep exhaustion that can be brought on

by low levels of activity or for no apparent reason. Fatigue is often

disproportional to the energy expended and lasts far longer than it would in

a healthy person. Fatigue can be intensified by overactivity, poor sleep,

deconditioning, stress, emotions and poor nutrition.

Pain: Pain may be experienced in the joints or, more commonly, as an overall

body pain that is often described as the feeling of being run over by a

truck. Pain may be intensified by overactivity, non-restorative sleep,

anxiety and stress, and changes in the weather.

Poor Sleep: Sleep is often experienced as unrefreshing. Patients often feel

as tired when they get up as before going to bed. Sleep problems are usually

a part of the illness, but they may be intensified by other factors such as

stress, overactivity, and the absence of a good sleep environment or good

sleep habits.

Cognitive Problems: Most CFS patients experience cognitive difficulties,

often called " brain fog. " Cognitive problems include feeling confused,

difficulty concentrating, fumbling for words and lapses in short-term

memory. Brain fog can be reduced by limiting activity, getting adequate

rest, managing stress and by limiting sensory input.

Other Symptoms: Patients often experience other symptoms as well, which

create further discomfort. Common additional symptoms include: headaches,

low-grade fevers, sore throat, tender lymph nodes, anxiety and depression,

ringing in the ears, dizziness, abdominal pain (gas, bloating, periods of

diarrhea and/or constipation), allergies and rashes, sensitivity to light

and sound, abnormal temperature sensations such as chills or night sweats,

weight changes and intolerance of alcohol.

__________________________________________________________

Best Weight Loss Program - Click Here!

http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYSwrDdXKF1XDd4sha3kETQwJU7t\

kJerMnCfZXkLaTeKmL5KF9zYQo/