Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 In response to Jon's update and letter about preferential treatment. I live in Minnesota, which happens to be the home of the famous Mayo Clinic. As we all see on the news, whenever someone " important " from another part of the world needs an organ it seems they show up here. Which means they take a donated organ from the region, out of the region. Even if all protocols are followed correctly, people from the area that need organs have one more obstacle. This has bothered me for the last couple of years. (I am on a heart transplant waiting list, status 7) Am I wrong in my thoughts of unfairness? I brought this up to a Lifesource representative at a support group meeting. She could not dispute my claim, and brushed off the question in a way that led me to believe it was a subject they had talked about before. I wonder if any children have died because a sick king from another part of the world came to Minnesota? Pete E Peiden@... www.healthyheartmarket.com ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 Pete @ Healthy Heart Market wrote: > > In response to Jon's update and letter about preferential treatment. I live > in Minnesota, which happens to be the home of the famous Mayo Clinic. As we > all see on the news, whenever someone " important " from another part of the > world needs an organ it seems they show up here. Which means they take a > donated organ from the region, out of the region. Even if all protocols are > followed correctly, people from the area that need organs have one more > obstacle. This has bothered me for the last couple of years. (I am on a > heart transplant waiting list, status 7) Am I wrong in my thoughts of > unfairness? I brought this up to a Lifesource representative at a support > group meeting. She could not dispute my claim, and brushed off the question > in a way that led me to believe it was a subject they had talked about > before. I wonder if any children have died because a sick king from another > part of the world came to Minnesota? > > Pete E > Peiden@... > > www.healthyheartmarket.com > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 I just had to tell you that ou ae right on the money about that. I personally think is a dam shame to ut someone before other people that are on a list Something should be done about it,I wish ou the very best and hope they move you up real soon. Have youchecked into any other Hositals that specialize in hert replacement?? ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 In a message dated 7/23/00 10:40:29 PM Central Daylight Time, aisha@... writes: << Whats everyones views on organ donation. Would you donate your organs? Would you want someone to donate their's to safe your life? >> Aisha, I am an organ donor. I just hope they'll take them!!! I know they will only use them if you die traumatically. I know my eyes are good and my kidneys work well. Well that sounds a bit strange of me to say! LOL! ^,,^ >:< **** @lison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Aisha Elderwyn wrote: "I "Thank God" everyday that the family of the 20 yr. old male that was killed, would think of others in their time of horrendous grief, especially so close to Christmas. My friend is alive today ONLY because of the young man's family." Whats everyones views on organ donation. Would you donate your organs? Would you want someone to donate their's to safe your life? xox A I have been an organ donor since I was 16 years old. And I would give up any of my organs so that someone else could live, in a heartbeat! Preferably after I die, but whenever! I have many friends..... Kerry, , and others that would NOT be here, if someone hadn't donated organs for them! So yes, I will donate my organs! And my mom is on the Heart & Lung Transplant Teams... so she is a donor too! Love Always, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 I was helping a man who had diabetes and end stage renal failure. We were sitting in the hospital cafeteria one day and they had a card of 50 things you could donate from your body. He wanted to go through all of them to see if he could donate anything, even though I tried to discourage him. It was so depressing. There was not one thing he could donate, unless if possibly some of his bones were not too brittle. And possibly some of his skin that wasn't ulcerated. He was in terrible shape before he died. He had one leg amputated and one finger. Lee wishkas@... wrote: In a message dated 7/23/00 10:40:29 PM Central Daylight Time, aisha@... writes:<< Whats everyones views on organ donation. Would you donate your organs? Would you want someone to donate their's to safe your life? >>Aisha,I am an organ donor. I just hope they'll take them!!! I know they will only use them if you die traumatically. I know my eyes are good and my kidneys work well. Well that sounds a bit strange of me to say! LOL! ^,,^>:<**** @lison------------------------------------------------------------------------Remember four years of good friends, bad clothes, explosive chemistry experiments.1/7077/6/_/817445/_/964412511/------------------------------------------------------------------------The Being Sick CommunityChat RoomDaily Chat at # on IRC DALnethttp://www.elderwyn.com/members/chat.htmlMemorial Pagehttp://www.elderwyn.com/members/inlovingmemory.htmlMembers Lounge*FREE counselling via email*Daily Horoscopes*FREE psychic/tarot readings via email*Daily cartoons*Medical Resources and more....http://www.elderwyn.com/members Members Profiles, locations and birthdaysMessage Archivesmessages/Upload your PictureTo subscribe or unsubscribesubscribe/ ~~~~~~~~~~~~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Aisha, I am an organ donor. I just hope they'll take them!!! I know they will only use them if you die traumatically. I know my eyes are good and my kidneys work well. Well that sounds a bit strange of me to say! LOL! ^,,^ >:< **** @lison Although most donors are from traumatic injuries... I have seen other organs be used for transplant after cardiac arrest. Or sudden cardiac death. You just don't hear as much about donations from other types of death. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 I am totally in favor of organ donation, when my son died I really wished someone would have approached me because I did not think about it. That was in 1980 and they were doing some then not as much as they are now though. I have told my family that when I dye due to my conditions I would not be a great donor but I would like to leave my body to a medical school for research. I am having some problems with my kids as they return the body after it is cremated. But if it would advance the study of science it would be well worth it. Hugs to all Jan SclerodermaHope PartnersinCaring http://www.geocities.com/HotSprings/Villa/3892/index.html ICQ # 24934693 AIM: FargJan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Hi all, l harris wrote: <<I was helping a man who had diabetes and end stage renal failure.... ......He wanted to go through all of them to see if he could donate anything, even though I tried to discourage him. It was so depressing. There was not one thing he could donate,...>> There is one thing that I am puzzled about? Are all diabetics not eligible for organ donation? Diabetes is a systemic disease....? Ling Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 In a message dated 7/23/00 11:40:37 PM Eastern Daylight Time, aisha@... writes: << Whats everyones views on organ donation. Would you donate your organs? Would you want someone to donate their's to safe your life? >> I firmly believe that the body is only the shell that we reside in. So if part of that body can be used to help someone else, when I am no longer in need of it, the go for it. Granted, none of the organs I have now will be useful to anyone else, but if science can learn something with it, then please do. What is left, cremate and toss into Lake Superior. My cousin received a heart transplant almost 15 years ago and we will be forever grateful. I pray that I will never have to be a part of making such a decision for a member of my family, but if I had to do so, I would in a heartbeat. I have a bumper sticker on my car that sums it all up: " Don't take your tissues and organs to heaven. Heaven knows we need them here! " My friend, who is a kidney transplant recipient sent the bumper sticker to me. What a small thing we can do with a body that is only borrowed, but to share with others. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 In a message dated 7/24/00 12:52:18 PM Eastern Daylight Time, tulips3@... writes: << There is one thing that I am puzzled about? Are all diabetics not eligible for organ donation? Diabetes is a systemic disease....? >> Ling, Well I would think that just because a person is diabetic does not mean that they would not be able to donate some organs. Hypothetically - a person is dagnosed with diabetes and it is a very early diagnosis. They leave the clinic and are hit by a car and declared brain dead. Their organs are most likely healthy enough to be used in atransplant. Hearts, lungs, retinas, bone marrow, skin and possibly even their liver would most likely still be healthy. It isn't that diabetes " invades " the organs causing them to be damaged. But it can cause problems with other organs as a secondary illness as it destroys other body tissues. Now, I do not know if they WILL use the organs of a diabetic (I am diabetic, but mine are shot to hell). But I would think that it would be dependent on the status of the organ itself. Too bad if they just don't give it a chance. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 "I am an organ donor. I just hope they'll take them!!! I know they will only use them if you die traumatically." Really? Thats so stupid? I wonder if its the same here? , Nerys? Anyone know? xox A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Hey Aisha. Just my thoughts... I think that people who are organ donors, and the family members that usually have to make this decision for them, are some of the bravest, my giving and unselfish people there are. From their tragedy, from their pain and their loss, someone else lives, has a better life. I wanted to donate Matty's organs, but unfortunately, mito is a multi-system disease, and none of his organs could be used. They all had the mutation in their cells, and most were badly damaged from the disease itself... Aisha Elderwyn wrote: > " I " Thank God " everyday that the family of the 20 yr. old > male that was killed, would think of others in their time of > horrendous grief, especially so close to Christmas. My > friend is alive today ONLY because of the young man's > family. " > > Whats everyones views on organ donation. Would you donate > your organs? Would you want someone to donate their's to > safe your life? > > xox A > > > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > The Being Sick Community > > Chat Room > Daily Chat at # on IRC DALnet > http://www.elderwyn.com/members/chat.html > > Memorial Page > http://www.elderwyn.com/members/inlovingmemory.html > > Members Lounge > *FREE counselling via email > *Daily Horoscopes > *FREE psychic/tarot readings via email > *Daily cartoons > *Medical Resources and more.... > http://www.elderwyn.com/members > > Members Profiles, locations and birthdays > > > Message Archives > messages/ > > Upload your Picture > > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to > what you believe, even if it's a tree that stands by itself. Hold on > to what you must do even, if it's a long way from here. Hold on to > your life, even if it's easier to let go. " - Pueblo Prayer > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 "Contrary to what most people would think. I have decided not to be a donor or a recipient. <snip> To me, organ donation is very foreign." *hugs* , My mother is not an organ donor either, and you have every right to your opinions and beliefs. You are the only one who knows how you feel and if someone dont like it they can shove it! (ohh I'm eloquenly spoken today!) " (who believes his beliefs are not the popular ones)" Perhaps, but its better to be true to yourself and stand your ground then go with the herd and be miserable for the rest of your life. I have far more respect for someone who can make up their own mind and follow their own beliefs rather then do something cause they think they "should." Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 I have signed a donor card,BUT I plan to use up all my body parts!!! I'm going to live to 200 or die trying!!!! LOL ne >From: TABco <tabco@...> >Reply-egroups >egroups >Subject: Re: Organ donation >Date: Mon, 24 Jul 2000 21:36:14 -0400 > > > >>Whats everyones views on organ donation. Would you donate your organs? > >>Would you want someone to donate their's to safe your life? > >Aisha, > Contrary to what most people would think. I have decided not to be a >donor or a recipient. This is strange to most people, as I'm much more >likely to be in need of a transplant, before I could be a donor. Most >people want to be saved, even though they are less prone to give. > To me, organ donation is very foreign. To me, there are certain >things we should not be tampering with. I believe we should not be doing >invasive procedures on the brain or heart. I believe these are the anchors >to the soul. I also believe we should not be putting other living tissue >in our bodies. > > (who believes his beliefs are not the popular ones) >E-Mail: mailto:tabco@... >Web Page: http://www.jaguarsystems.com/~tabco/ >Net Pager: http://wwp.mirabilis.com/3106983 >ICQ # 3106983 > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 I understand completely this is a personal choice and know many who feel as you do. I think it is actually 50/50 on choice. There are legal and moral issues concerned with this that are still being decided. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 At 10:21 PM 07/24/2000 -0500, you wrote: >>To me, organ donation is very foreign. To me, there are certain >>things we should not be tampering with. I believe we should not be doing >>invasive procedures on the brain or heart. >You have every right to feel the way you do. If others have a problem >with it, it is just that.... THEIR problem! Thanks Anne, Several people I know, even some family members have a hard time understanding my wishes, and opinions on this. Still, It's my body, and if I don't want something done, it shouldn't be done. I support other peoples wishes to have such procedures, if they so desire. To me, it's a very personal decision. E-Mail: mailto:tabco@... Web Page: http://www.jaguarsystems.com/~tabco/ Net Pager: http://wwp.mirabilis.com/3106983 ICQ # 3106983 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 >> " (who believes his beliefs are not the popular ones) " >> >>Perhaps, but its better to be true to yourself and stand your ground then >>go with the herd and be miserable for the rest of your life. I have far >>more respect for someone who can make up their own mind and follow their >>own beliefs rather then do something cause they think they " should. " Aisha, Another example of why we love you so much. You have such a way with saying things. Thanks, E-Mail: mailto:tabco@... Web Page: http://www.jaguarsystems.com/~tabco/ Net Pager: http://wwp.mirabilis.com/3106983 ICQ # 3106983 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 > <Whats everyones views on organ donation. Would you donate > > your organs? Would you want someone to donate their's to > > safe your life?> i would donate mine...what would i need them for when i 'm gone... > as for getting them...it would seem strange to me..i was never good at accepting gifts... My 18 y.o. nephew died suddenly 3 yrs ago...his eyes went to another....i think that would be a priceless gift.you could never put a dollar value on something like that. > My best friends daughter lost both her eyes to cancer by age 3....one at 2 then the other by three...she's a beautiful girl....sings like an angel....smart...swims like a fish...in fact she's qualified for the canadianswim team for the paralympics in austraila in > the fall.we are fundraising right now for her expenses and to get enough for her parents to get there too...to see their daughter reach for the stars!so to speak.....and if i sell my house ...i'm going too..that has always been a dream place for me to > visit...anyhow...gotta go proof read that candida info that i scanned...have a great day everyone! Sheena:) > . > > > > > > > > ----------------------------------------------------------------------- > > > > ----------------------------------------------------------------------- > > The Being Sick Community > > > > Chat Room > > Daily Chat at # on IRC DALnet > > http://www.elderwyn.com/members/chat.html > > > > Memorial Page > > http://www.elderwyn.com/members/inlovingmemory.html > > > > Members Lounge > > *FREE counselling via email > > *Daily Horoscopes > > *FREE psychic/tarot readings via email > > *Daily cartoons > > *Medical Resources and more.... > > http://www.elderwyn.com/members > > > > Members Profiles, locations and birthdays > > > > > > Message Archives > > messages/ > > > > Upload your Picture > > > > > > To subscribe or unsubscribe > > subscribe/ > > > > ~~~~~~~~~~~~~~~ > > > > “Hold on to what is good, even if it's a handful of earth. Hold on to > > what you believe, even if it's a tree that stands by itself. Hold on > > to what you must do even, if it's a long way from here. Hold on to > > your life, even if it's easier to let go. " - Pueblo Prayer > > > > > > ------------------------------------------------------------------------ > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > 1/7077/6/_/817445/_/964495119/ > ------------------------------------------------------------------------ > > The Being Sick Community > > Chat Room > Daily Chat at # on IRC DALnet > http://www.elderwyn.com/members/chat.html > > Memorial Page > http://www.elderwyn.com/members/inlovingmemory.html > > Members Lounge > *FREE counselling via email > *Daily Horoscopes > *FREE psychic/tarot readings via email > *Daily cartoons > *Medical Resources and more.... > http://www.elderwyn.com/members > > Members Profiles, locations and birthdays > > > Message Archives > messages/ > > Upload your Picture > > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 i already sined all the papers and have donated every organ i have so there will not be much of me to barrie when i go {smile } will cost my wife less for the coffen if i ma light enough i told her to throw me in a carb bord box and just dump me in a hole i have never understanded why all the fuss over the casket for me the less cost to may famly i have always thought would be the best way to go <>~ ÐRKBEING ~<> ~~{ H Young }~~ E-mail .Young@... organ donation This is important to me, not that I want everyone to donate their organs... that is totally up to each and everyone. What I think is important is that you say either yes or no, so the doctors know what you want if you ever end up in that situation. There is a shortage of organs in all countries, 2/3 of everyone awaiting a lung transplant die before they can get an organ. Transplants do save lifes. Please read this link, i know it's long... but it's worth reading. http://archive.nandotimes.com/sproject/shelby/story.html Love, Jo ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Memorial Page http://www.dreamwater.net/lovingmemory/ Message Archives and Digest Attachment Pictures:- /messages Chat:- Scheduled Daily Chats at # on IRC DALnet. /files/chat.htm Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator email: -owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~ “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 Friends and fellow " Zappers " ..... I would like to remind everyone that organ and tissue donation are so very important (as is blood and platelets). Even though we have one organ that may not be in proper working order, doesn't mean we can't donate others at the time of death. We do however have to register with our state agency and make our wishes known to our family. In addition, we should ask family and friends to donate these gifts of life, and see that they get the info needed to carry through on this. If you would really like to help, volunteer. If you could get donation pamplets in just the Drs. office and hospitals that you go to. The CCU & ICU is also an important place to have brochures. This may seem a bit cold, but the family who has just lost a loved one, can know that their death can help many others live. A coordinator with the hospital will be the one to talk to the family and knows how to handle the situation. If we don't get the info out there, people won't donate. Please do your part. Blessings to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 In Minnesota you just need to tell your loved ones. Even if you have an organ donor designation on your driver's license or ID it is still up to the next of kin. Tell your loved ones that you want to be a donor. Pete ____________________________________________ " If you want to live a long and happy life, get a chronic disease and manage it. " Oliver ll Holmes Re: Organ donation Friends and fellow " Zappers " ..... I would like to remind everyone that organ and tissue donation are so very important (as is blood and platelets). Even though we have one organ that may not be in proper working order, doesn't mean we can't donate others at the time of death. We do however have to register with our state agency and make our wishes known to our family. In addition, we should ask family and friends to donate these gifts of life, and see that they get the info needed to carry through on this. If you would really like to help, volunteer. If you could get donation pamplets in just the Drs. office and hospitals that you go to. The CCU & ICU is also an important place to have brochures. This may seem a bit cold, but the family who has just lost a loved one, can know that their death can help many others live. A coordinator with the hospital will be the one to talk to the family and knows how to handle the situation. If we don't get the info out there, people won't donate. Please do your part. Blessings to all Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Something unbelievably, sorrowfully amazing has come to my attention. Not everyone with autoimmune diseases is an " organ " donor. How can this be possible? Who is going to save your life if all on this planet feel the same way? What are you waiting for? what the heck is wrong with those who didn't make this happen YESTERDAY? Tissues, corneas, bone, all parts of the body can be used if deemed viable. We won't know and the family won't be able to tell. Think Nike and JUST DO IT. Kay_TX, AIH/PBC Quote Link to comment Share on other sites More sharing options...
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