Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Dear Amy, Yeah, I take fevers and pretty much anything seriously nowdays. I am hoping to start the combo interferon / ribavirin treatment next month, I want to be as healthy as I can when I do. I am taking neurontin, a med prescribed by a neurologist for this numbness I have in my left jaw. It took me a month to finally see this guy last Thursday. He has me scheduled for a cat scan on Wed, check out the ol' brain. I used to have a more cavalier attitude when I was healthy. I'd say things like "when germs land on my body they die instantly!" That sounds kinda silly, but in a way it was effective. Thinking that you can't get sick is a form of positive thinking. So, I never hesitated to see someone who had a cold or worse, I'd just mentally proclaim myself too healthy to get sick. Today unfortunately I'm not that positive. In fact I'm starting to wonder if I've been getting a bit negative. I've had to fight and struggle with the medical establshment, that kind of wears on you after awhile. I will admit to being a stubborn sob. I want to do things My way! I ditched my last doctor because he wanted me to go Peg-Intron, whereas I prefer Pegasys. It caused months of delays, but now I have a much better doctor! Rambling, moi? Lol Be forwarned folks! I talks too much! *s* Thanks Amy, Ray holzboog@... wrote: Dear Ray, Welcome! It sounds like you may need to be seen or perhaps a flu? Don't mess around. I'm told to check in at 101. I had peritonitis once with 103, a few bladder infections that caused my fever to jump. So you want to keep on top of things and go to the ER if necessary. Are you on any meds? You've been doing well it sounds like for a very long time. I'm glad you have a good dr. that helps a lot and I can relate to the insurance - some folks here haven't been able to get any even. Scary. Hope we hear from you again! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Dear Ray, Welcome to the group! My husband has AIH and alot of the symptoms you describe are very similiar to the ones he had before being dx'd with AIH. The tx docs thought he had AIH about 10-12 years before DX... they looked at his past medical history and tests. His liver numbers were also slightly elevated for many, many years. He was sick with what he thought was a case of the flu and went to the ER. They admitted him and ran many tests and told him he would need a TX within 3 years. That was 12/97. It seems the AIH was just doing its nasty damage all those years and then when his body could no longer compensate, his liver crashed. As for your fever, anything over 101 required a call to the doctor. Best to let the doctor determine the cause of the temp. rise. Your immune system is compromised with the liver condition to begin with and catching and treating any infection, virus, etc is crucial. Each person is different and only their doctor can tell them which med. to use for fever/pain reduction. Randy's doctors allowed him to take tylenol both pre and post tx but in moderate amounts. A couple of years ago, he broke his leg at work in a freak accident and was on a pain med for about 6 months which had a tylenol base. The tx team ok'd the use of the drug. It did elevate some of his liver numbers slightly but he was having his numbers monitored every two weeks. The doctors decided to do a liver biopsy just to make sure (he hadnt had one done since the tx) and the bx came back fine. Within 10 days of stopping the pain med, his lab numbers returned to normal and have stayed there. We do run any new med past the tx team and to date they have ok'd all of them. I guess we just have a really good local doctor and a good hospital. Considering we are 100 miles from nowhere in the mountains, we are fortunate. Cheryl & Randy Randy tx 12-14-99 AIH Cheryl is his living liver donor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Ray i am so sorry. I hope yu get some good news today. I will keep you in my prayers. I hope there is some alternative. Keep your chin up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Dear Ray, I was shocked and saddened to hear of you liver cancer. I'm so glad that you can get to Stanford and be fully evaluated and all options explored. Give your wife a big smooch and hang on tight, it could be quite a ride for awhile. I will be thinking of you constantly! Amy Quote Link to comment Share on other sites More sharing options...
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