Re: Digest Number 4282

April 29, 2006

Does anyone have ascites with this condition

sherry

April 29, 2006

Thankyou all so much much for replying to my message.I hope eventually i

might get a diagnosis.Although doctors are pretty sure its aih. My liver

function tests have been abnormal many times, every time i reduce steroids,

but i suffer when they are ok too. But it seems i am not the only one. I

havn`t worked for a while now, and worry about this, especially on good

days. My sisters are extremely jealous of this, but havn`t got a clue what i

have been through over the last few years. They are so unsupportive and

uncaring. They hate me to say i don`t feel well. Once my sister`s reply was

" half the population don`t feel well but they have to go to F*****g work. So

as you can understand, i`m finding it really hard to cope with.

Sometimes i think should i try and hope for the best, but then i get so ill

again. Even when i was being sick in my sister`s presence all she could say

was " disgusting " . These remarks are as hard as being constantlt ill. I long

for a family that gives a little support, thank God for this site. If anyone

wants to get in touch please feel free to e mail me. Love and hugs. jackie x

Re: Hi everyone!

>

> Here goes my two cents worth on Milk Thistle -

>

> First, I order mine from a company on the web called Puritan Pride. They

> have a buy one get one free offer all the time - once in awhile they will

> give you two free.

>

> Second, my hepatologist told me it was a waste of money for people that

> have PBC or AIH (I have both). It was helpful with people that Hep C.

> Not sure about any other liver ailments. I keep taking it. Don't really

> know if it has made a difference or not. Had one flare up of AIH just

> recently, but once I was taken off the Welbutrin my blood tests showed a

> dramatic drop in my " counts. " in two weeks.

>

> I have been reading about all the aches and pains. I make myself walk

> two miles a day, I try to do yard work, etc. I hurt so bad that some

> nights I can't even sleep - every spot I lay in hurts. I am looking for

> opinions - is this PBC or AIH related? Is it from medication (I take URSO

> and Imuran)? I am 53 - is it arthritis setting in?

>

> Thank you - ALL of you have been more informative then any other website

> I have been to. I appreciate all of your answers, real concerns for each

> and everyone no matter what. You guys are great!

>

> Nina Eskelinen <nina_eskelinen@...> wrote:

> I've been away for a while but I've seen that you guys have been talking

> about Milk Thistle!?! Since I got curious I went and bought it (and it

> wasn't cheap..) But I'm determined to try it anyway although I'm not quite

> sure what it is supposed to do?!?

> I've had a wonderful time in Canada with my sister and her children but

> it feels really good to be home again. It was quite tuff for me to travel

> like that, and I still haven't quite recovered.

> Take care!

> Nina!

>

April 30, 2006

I do have a litlle bit of ascites-not too bad at this point. But my stomach is

" hard as a rock " and it's really noticeable because in less than a year, I

dropped four sizes in clothes. (I've saved all the clothes for when I start to

gain again). Since I quit work and I'm not running up & down the halls of the

hospital for 12 hours a night, I've stayed the same size.

Do you have ascites? If so, how bad?

SOWeepee@... wrote:

Does anyone have ascites with this condition

sherry

April 30, 2006

It is my son and he has ascites. Not as bad as it was, but, he had 4

bleeders and this has been so serious

sherry

April 30, 2006

Jackie - your sisters are jealous - the problem with AIH is that we look healthy

but feel awful. Your sisters think you are " pretending. " I get that LOOK all

the time from my coworkers and some of my family. There are days when I feel

awful and can't seem to do much - I barely make it through the day...yet I still

look good. Here is what I do - when someone makes a RUDE comment to me

regarding my fatigue or limitations, I always say " thanks for your

understanding, I hope I never have to do the same for you. " Shuts them up and

gives me some satisfaction. I realize people are going to say that it is awful

of me to be this way, but one can only take so much before you want to " fight "

back. Families are the cruelest. Hang in there - you can spout off to us

anytime.

Jo Anne - I asked my doctor about Cymbalta. She said no. My blood work was

still way out of control. I was taking the Welbutrin for weight loss and not

because I am depressed. She did say that it is great for depression and aches

and pains and that maybe once my blood work continues to drop we would

reconsider.

My advice to anyone with AIH - don't take Welbutrin if you can possibly help

it. I am still trying to reach some normalcy, mentally and physically from

going off of it. In the three months I was on it, my blood work showed an

increase every month. My specialist told me that Welbutrin was not a good

choice for AIH patients. I guess the moral of this story is I should have

checked with her after asking my regular m.d.

Nada

" J. Paterson " <jaknjills@...> wrote: