Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 Hi , Welcome to the group. My son is 8 months and has a DOC Band. We live in Greenville which is east of Dallas. Has Kaden been casted? Our experience with the casting was very good... didn't cry at all. Did your pediatrician diagnose him? If he did, that is wonderful. He is at a great time for treatment. got the band when he was 5.5 months old. Feel free to mail me with questions. I'd be glad to help. juan@... & > Hi my name is ...My youngest son Kaden (4mo) was just diagnosed > as having positional plagiocephaly and we were told he would need a > DOC Band. We have looked all over for info on this...and though what > we find is good information...there is not alot of it. > We are having to pay for the helmet out of pocket...Our insurance > doesn't want to cover it. > We live in Dallas and the people at Cranial Tech have been awsome. > Any advice or information you think I could benefit...please send it > my way... > Thanks in advance > > KRPHINEY@a... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Hello Essie and welcome to the forum where I hope you get the support you need. First, your GP is not a thyroid specialist and with a TSH above the reference range and your Free T4 right at the bottom, with the symptoms you are experiencing, you need to be referred to one. The best way to do this is to write a letter to your GP - setting out all your symptoms and also list your basal temperature for say, 4 to 5 days. Take your temperature before getting out of bed ion a morning and before having a drink. Normal is around 98.6, but those with hypothyroidism can be much lower such as 97.8 (or lower still). This shows you have a low metabolism. Write down whether there are members in your family who have an autoimmune or thyroid problem. In the letter write that you would like your Free T3 tested to see whether you might have a conversion problem or not. Also, ask to have a test to see whether you have antibodies to your thyroid. If that comes back positive, it means you have Hashimoto's disease. This is a cause of hypothyroidism but the treatment is the same as for any other cause. Thyroid antibodies see your thyroiod tissue as public enemy number one and set about its destruction. The more it becomes destroyed, the more your thyroid gland is able to put out the thyroid hormones your body requires. You should also ask for blood tests to test your ferritin level (stored iron), B12, Vitamin D, magnesium, Zinc and Copper. If you are low in any of these, your body will be unable to absorb the thyroid hormone you are making. Ask that your GP places your letter in your medical notes so it is on record that you requested these tests and a referral to a specialist in thyroid disease, then if your GP does nothing, or refuses to do anything, there might be a case to answer. GP's know this, and this is why it is always best to get something down on paper. Also send a copy to the Practice Manager. Let us know if this works Essie. Read everything you can in our FILES and also in our web site www.tpa-uk.org.uk and click on 'Hypothyroidism' ion the Menu there, and on the drop down Menu, click on 'Associated Conditions' that go along with being hypothyroid. Read the information there because if you suffer any of these, your thyroid hormones can't do the job they are supposed to. luv - Sheila My symptoms are getting worse, to the point that my work is suffering, my social life is nonexistent. I'm freezing cold all the time. My skin and hair is dry. I'm exhausted. I'm very pale, and my eyes seem almost sunken and are listless. I'm only 21 but i feel so much older. I asked my GP what was causing these symptoms if it wasn't my thyroid and he said that yes, these are symptoms of hypothyroid but he said it might be stress, or Chronic Fatigue Syndrome. He offered me antidepressants as the only thing he could suggest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Thank you for your advice Sheila, I had thought about asking for a referral, or more tests but didn't really know what to ask for. I also hadn't considered writing a letter, thats a very good suggestion. Thank you for your advice, I'm going to read up everything i can and then will try writing to my GP. Quote Link to comment Share on other sites More sharing options...
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