Exercise

[Guest guest]

Yes this is exactly what happens to me, although not so much now at my

present stage of recovery?/degeneration?/cycle. It was quite amazingly

absolute - I could never work out why I always got sick on a Thursday or

Friday - it was because I had exercised the weekend before.

n

At 06:42 31/05/01, you wrote:

>everytime i used to exercise before i had this even if

>it was a ten min walk i would alway get sick with

>avery long cold has this happen to anyone else?

>--- Judith Gilbert <jaegilbert@...> wrote:

[Guest guest]

Steve,

I'm sure you know the answer pretty much. Others on the list might know

specifically the aerobic /anaerobic issue re determining which types we

can do. However, no matter which it varies so from person to person,

from day to day, etc.

At one point early on, after initially being bedridden, I did some very

gentle running at dusk in the warm weather. It was truly wonderful. But

after my remission ended (I didn't know it was just a remission neither

did my doc, who should have) the activity issue is much more limited re

what I can tolerate and much more complicate re how much and what I can

do to stay maximally conditioned, not to mention some " fun . "

I do think that those exercises that risk injury (as you note) of a

severe type are to be avoided if possible because then during the healing

process when you can do virtually nothing you get so deconditioned that

it can be serious, long term.

I think stretching, swimming (if you can--I can no longer), and walking

are among the best.

But I'm pretty sick and for a long time now and maybe my advice is too

conservative.

Judith

On Tue, 29 May 2001 20:48:06 -0500 " " <moores@...>

writes:

Is there any type of exercise that folks can tolerate better than others.

For example exercise that involves lying down, swimming. About all I can

do

is light weight lifting and walking. But I am limited regarding how far

I

can walk and I keep my weight lifting down below the lactic acid

threshold.

I do stretching exercises almost ever day and a few sit ups. But I was so

active and now I am board sh**less. I like to ride a motor cycle but I

figure if I broke and ankle I would be totally helpless. I thought about

getting a horse but that can be dangerous too. I never have been scuba

diving --- can CFSers do that? Any suggestions?

[Guest guest]

You mentioned that you (people with CFS) go into " remission " . When you relapse,

can you tell that you're pushing too hard, or does a relapse happen suddenly and

unexpectantly? What has been anyone's experience with this?

Re: exercise

Steve,

I'm sure you know the answer pretty much. Others on the list might know

specifically the aerobic /anaerobic issue re determining which types we

can do. However, no matter which it varies so from person to person,

from day to day, etc.

At one point early on, after initially being bedridden, I did some very

gentle running at dusk in the warm weather. It was truly wonderful. But

after my remission ended (I didn't know it was just a remission neither

did my doc, who should have) the activity issue is much more limited re

what I can tolerate and much more complicate re how much and what I can

do to stay maximally conditioned, not to mention some " fun . "

I do think that those exercises that risk injury (as you note) of a

severe type are to be avoided if possible because then during the healing

process when you can do virtually nothing you get so deconditioned that

it can be serious, long term.

I think stretching, swimming (if you can--I can no longer), and walking

are among the best.

But I'm pretty sick and for a long time now and maybe my advice is too

conservative.

Judith

On Tue, 29 May 2001 20:48:06 -0500 " " <moores@...>

writes:

Is there any type of exercise that folks can tolerate better than others.

For example exercise that involves lying down, swimming. About all I can

do

is light weight lifting and walking. But I am limited regarding how far

I

can walk and I keep my weight lifting down below the lactic acid

threshold.

I do stretching exercises almost ever day and a few sit ups. But I was so

active and now I am board sh**less. I like to ride a motor cycle but I

figure if I broke and ankle I would be totally helpless. I thought about

getting a horse but that can be dangerous too. I never have been scuba

diving --- can CFSers do that? Any suggestions?

[Guest guest]

>>>You mentioned that you (people with CFS) go into " remission " . When you

>>>relapse,

can you tell that you're pushing too hard, or does a relapse happen suddenly

and

unexpectantly? What has been anyone's experience with this?

this was addressed to judith, but i'll take it on too...I was initially sick

for 6 months then relapsing/remitting (every time i got a cold...cfs

symptoms returned, put me out for 1-4 weeks). Be very, very careful with

exercise. I was always athletic before, and i think I might have just been

relapsing/remitting if I had not been pushing myself so hard...but now, i've

been sick for over 3 years, not working, laying on the floor mostly due to

oi/pots probs. thnak God for laptops.

My relapses happened mostly when I was stressed out, working out too hard

(used to be an avid cyclist, rollerblader)...etc. and got a cold. but i

think my own stubbornness in insisting to push myself (despite what my body

was clearly telling me) prolonged each of my relapses, and finally pushed me

over the edge to chronic. it's easy when you start to feel a little better

to get so psyched about feeling a little bit better that you ignore your

body telling you to slow down--you just don't want to hear it. but it's

really important to be attentive to your body and how it responds to

exercise. i still do a bit of exercise--some leg stuff on the floor (how

boring!), yoga (floor stuff, inverted poses), some light weight training

mostly for my legs (supposed to help oi). water walking has been helpful to

me as well when i'm able to tolerate something that aerobic...the water

pressure and cool temp of a workout pool feel good.

so that's my take on exercise. don't let yourself atrophy or anything, but

listen to your body and be conservative. and if you're in a phase that

anything aerobic feels like crap, respect that and do some strength stuff.

i'm always telling people i'm going to be a triathlete when i'm 90--by then,

they'll have figured this stuff out and i won't have to worry about relapse.

and now, in my mid-20s, i'm going thru the feeling-like-i'm-90 thing. not

sure if i'm making sense anymore. hope my babblings are helpful to someone,

anyway.

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[Guest guest]

Thank you for your replies. One thing that felt soooo wonderful to me when I

was actually feeling pretty bad was some very LIGHT swimming or just standing in

chest deep water. I was amazed at how good it felt to feel light again. With

this fatigue I feel like I'm carrying around a body that is made of lead and

soooo hard to move. The water made me light and bouyant. It was almost as if I

wasn't sick any more.

Re: exercise

>>>You mentioned that you (people with CFS) go into " remission " . When you

>>>relapse,

can you tell that you're pushing too hard, or does a relapse happen suddenly

and

unexpectantly? What has been anyone's experience with this?

this was addressed to judith, but i'll take it on too...I was initially sick

for 6 months then relapsing/remitting (every time i got a cold...cfs

symptoms returned, put me out for 1-4 weeks). Be very, very careful with

exercise. I was always athletic before, and i think I might have just been

relapsing/remitting if I had not been pushing myself so hard...but now, i've

been sick for over 3 years, not working, laying on the floor mostly due to

oi/pots probs. thnak God for laptops.

My relapses happened mostly when I was stressed out, working out too hard

(used to be an avid cyclist, rollerblader)...etc. and got a cold. but i

think my own stubbornness in insisting to push myself (despite what my body

was clearly telling me) prolonged each of my relapses, and finally pushed me

over the edge to chronic. it's easy when you start to feel a little better

to get so psyched about feeling a little bit better that you ignore your

body telling you to slow down--you just don't want to hear it. but it's

really important to be attentive to your body and how it responds to

exercise. i still do a bit of exercise--some leg stuff on the floor (how

boring!), yoga (floor stuff, inverted poses), some light weight training

mostly for my legs (supposed to help oi). water walking has been helpful to

me as well when i'm able to tolerate something that aerobic...the water

pressure and cool temp of a workout pool feel good.

so that's my take on exercise. don't let yourself atrophy or anything, but

listen to your body and be conservative. and if you're in a phase that

anything aerobic feels like crap, respect that and do some strength stuff.

i'm always telling people i'm going to be a triathlete when i'm 90--by then,

they'll have figured this stuff out and i won't have to worry about relapse.

and now, in my mid-20s, i'm going thru the feeling-like-i'm-90 thing. not

sure if i'm making sense anymore. hope my babblings are helpful to someone,

anyway.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

This (below) ? is almost too complicated to answer fairly (i.e.,

comprehensively). The short version is that if ever you start to

experience an increase in symptoms (worsening/less functionality) it

might very well be due to your having increased your activity level too

much (either one time or, more likely, over time, which can be a few days

or months). This means you have to be very sensitive/aware of your body

talking, and that self-awawreness is to me very draining in itself. But

it has to be mastered without making you neurotically self-pre-occupied.

However, sometimes, shorter (but still unpleasant and sometimes not short

enuf) relapses occur with little discernible message. The only info is

looking back over what you did. When you see you can often determine

what it was, which is either a one-shot too muchness or repeated

not-too-muchensses without sufficient pacing, as in " days off. "

But that's the short version.

Judith

On Thu, 31 May 2001 14:46:13 -0500 " Tania & " <fe38@...>

writes:

You mentioned that you (people with CFS) go into " remission " . When you

relapse, can you tell that you're pushing too hard, or does a relapse

happen suddenly and unexpectantly? What has been anyone's experience

with this?

Re: exercise

Steve,

I'm sure you know the answer pretty much. Others on the list might

know

specifically the aerobic /anaerobic issue re determining which types we

can do. However, no matter which it varies so from person to person,

from day to day, etc.

At one point early on, after initially being bedridden, I did some very

gentle running at dusk in the warm weather. It was truly wonderful.

But

after my remission ended (I didn't know it was just a remission neither

did my doc, who should have) the activity issue is much more limited re

what I can tolerate and much more complicate re how much and what I can

do to stay maximally conditioned, not to mention some " fun . "

I do think that those exercises that risk injury (as you note) of a

severe type are to be avoided if possible because then during the

healing

process when you can do virtually nothing you get so deconditioned that

it can be serious, long term.

I think stretching, swimming (if you can--I can no longer), and walking

are among the best.

But I'm pretty sick and for a long time now and maybe my advice is too

conservative.

Judith

On Tue, 29 May 2001 20:48:06 -0500 " "

<moores@...>

writes:

Is there any type of exercise that folks can tolerate better than

others.

For example exercise that involves lying down, swimming. About all I

can

do

is light weight lifting and walking. But I am limited regarding how

far

I

can walk and I keep my weight lifting down below the lactic acid

threshold.

I do stretching exercises almost ever day and a few sit ups. But I was

so

active and now I am board sh**less. I like to ride a motor cycle but I

figure if I broke and ankle I would be totally helpless. I thought

about

getting a horse but that can be dangerous too. I never have been scuba

diving --- can CFSers do that? Any suggestions?

[Guest guest]

Hello all -

Just wanted to add some comments about my exercise

regimen. Ever since I got diagnosed, I have made sure

that every day I do light housework, like making the

bed, putting the dishes in the dishwater, general

tidying up, and laundry, even if it takes about four

days to finish. These tasks keep me moving and get

rid of the morning stiffness I always have. Then I

walk my dog for 30 minutes, even if we only go 1/2

mile - it's nice being out in the fresh air, and I do

stretches while she stops to sniff and do her

business. We also go to the dog park most days, and I

throw her a ball and play a little with the other

dogs. Lastly, I try to do my physical therapy

stretches for my back, although not every day.

I used to love swimming, but unless I go in a very

warm pool it aggrevates my fm pain too much. Very

gentle yoga works for me, but I'd belong in the senior

class and I'm only 43!

But all this has helped me maintain my normal weight

even after three years of being housebound, and my

flexibility is still reasonably good, just not what it

used to be.

FWIW - Jennie

__________________________________________________

[Guest guest]

> On Tue, 29 May 2001 20:48:06 -0500 " "

> <moores@...>

> writes:

> Is there any type of exercise that folks can tolerate better than

> others.

> For example exercise that involves lying down, swimming. About all I

> can

> do

> is light weight lifting and walking. But I am limited regarding how

> far

> I

> can walk and I keep my weight lifting down below the lactic acid

> threshold.

> I do stretching exercises almost ever day and a few sit ups. But I was

> so

> active and now I am board sh**less. I like to ride a motor cycle but I

> figure if I broke and ankle I would be totally helpless. I thought

> about

> getting a horse but that can be dangerous too. I never have been scuba

> diving --- can CFSers do that? Any suggestions?

Steve,

I love my aqua exercise PT program. You sound in better shape than me, so a

regular Y program might work for you. Scuba involves great weight carrying. I

also had life threatening asthma attack last year while diving, so if you have

any allergy/asthma problems I would skip that for now.

When I was better I did Tai Chi and loved that. As I said, you seem better than

me, so I would look into various martial arts. Might improve physical wellbeing,

and help the boredom. Hope that helps...

tansy

--

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Get your free email from http://www.mail.com

[Guest guest]

> remember a time when a trip to the coffee pot was exercise for us!!!

For me, it's either to and from the bathroom or up and down the 3 flights of

stairs from my apartment to the washer in the basement.

Not fun, but it's got to be done.

Sue in NJ

[Guest guest]

Water aerobics went well today... I do feel myself getting healthier!

Taour wrote:

> Well I didn't get to finish all the posts but I refuse to miss water

> aerobics... I'll be back

>

>

>

>

[Guest guest]

>I do feel myself getting healthier!

OK then, , spread some of that good feeling around this way! LOL

Sue in NJ

[Guest guest]

I sent it out... Can you feel the wave!?!?!

Sue in NJ wrote:

> >I do feel myself getting healthier!

>

> OK then, , spread some of that good feeling around this way! LOL

>

> Sue in NJ

>

[Guest guest]

> I sent it out... Can you feel the wave!?!?!

I think it got mis-directed! Your email says 5:34p it was sent - that's

about the time Ed and his boss were in that car accident.

When he got in and told me what happened I *did* feel a jolt, through!

Walking over tot he doctor's (the office is only 2 blocks away) I *did* see

how out of shape I am, so I better not make any more excuses to avoid that

treadmill. Just doing the occasional video tape just isn't doing anything to

get this body back in shape.

Sue in NJ

[Guest guest]

Sue in NJ... I missed something here. When did Ed get in an accident? Is he

okay?

> I think it got mis-directed! Your email says 5:34p it was sent - that's

> about the time Ed and his boss were in that car accident.

>

> When he got in and told me what happened I *did* feel a jolt, through!

>

>

[Guest guest]

WTG FRANNIE! YOU ARE STRONG GIRL! RRRRRRRRRRRRRRRRRROAR!!

Exercise

Here's my exercise for today.........I just finished it up.......I got in 70 minutes all together doing aerobics, stairstepper, weightlifting, ab work and my thighmaster.............I'm probably heading out for a walk in the woods in a little while being that it is such a nice day out today.................I'm feeling good and strong.....................I loooooove my workouts!!!Hope you all are having a loverly day and be sure to do something good for you today...................remember that by taking care of you, you are taking care of everyone around you as well.............put yourself first today and everyday and everyone will benefit!!Enjoy your day!!!Francina

[Guest guest]

Way to Go Francina! You rock!!!!

Eleanora

> Here's my exercise for today.........I just finished it up.......I

> got in 70 minutes all together doing aerobics, stairstepper,

> weightlifting, ab work and my thighmaster.............I'm probably

> heading out for a walk in the woods in a little while being that it

> is such a nice day out today.................I'm feeling good and

> strong.....................I loooooove my workouts!!!

>

[Guest guest]

I wouldn't forget you!!!

WTG...I'm a little scared to work out today because my back is acting

up...I need it well before I leave town for Houston on Thursday!!

Mert

-- In 100-plus@y..., " Kate " <katiewtg@y...> wrote:

> don't forget me!!!

> i am doing my own challenge.....29-29 ...doing great with it.

> today i did 60 min of aerobics and 20 min. sculpting.... i exercise

> every day!

> however, that is " exercise " ....i do not count cleaning and shopping

> as exercise, cause i would of done that anyway....i need to add

more

> exercise to my day...one hour.

>

>

> > Ok so I got Kim, Gretchen, Eleanora, Sue R down for

> > exercise...Anybody else????

> >

> > Gretchen...WTG on the 2 pounds...I lost a lot pretty fast at

> > first...it may have been water...but it didn't come back...and

> thats

> > what counts!!!

[Guest guest]

WTG KATIE! burn those sour cream and onion chips girl!

Re: Exercise

don't forget me!!!i am doing my own challenge.....29-29 ...doing great with it. today i did 60 min of aerobics and 20 min. sculpting.... i exercise every day!however, that is "exercise"....i do not count cleaning and shopping as exercise, cause i would of done that anyway....i need to add more exercise to my day...one hour. > Ok so I got Kim, Gretchen, Eleanora, Sue R down for > exercise...Anybody else????> > Gretchen...WTG on the 2 pounds...I lost a lot pretty fast at > first...it may have been water...but it didn't come back...and thats > what counts!!!

[Guest guest]

Oh my goodness, I have some leg weights! Now where are they????

I will find them a lay in front of the TV and dream of thinner thighs!

Nikkie

-------Original Message-------

Re: Exercise

Well, I didn't join the 29 challenge, but for the record I did the usual curves workout and then did leglifts while watching Shrek. I dusted off my ankle weights for the occasion.

[Guest guest]

WTG CHRISTY! isan't shrek a riot!

Exercise

Ok so I got Kim, Gretchen, Eleanora, Sue R down for exercise...Anybody else????Gretchen...WTG on the 2 pounds...I lost a lot pretty fast at first...it may have been water...but it didn't come back...and thats what counts!!!

[Guest guest]

Hi Kate Wow you are doing great! I doing 29/ 29 too. What is

sculpting? I restore religious statues and work mostly in stone and

plaster, but I am guessing that is not this? Tell me about sculpting

please.

Love Eleanora I figure if I try everything something has to work!!!

> don't forget me!!!

> i am doing my own challenge.....29-29 ...doing great with it.

> today i did 60 min of aerobics and 20 min. sculpting.... i exercise

> every day!

[Guest guest]

Christy WTG on the exercise!!!!!!!!!!!!!!

Kim

-- Re: Exercise

Well, I didn't join the 29 challenge, but for the record I did the usual curves workout and then did leglifts while watching Shrek. I dusted off my ankle weights for the occasion.

Exercise

Ok so I got Kim, Gretchen, Eleanora, Sue R down for exercise...Anybody else????Gretchen...WTG on the 2 pounds...I lost a lot pretty fast at first...it may have been water...but it didn't come back...and thats what counts!!!

[Guest guest]

Kate WTG on the exercise girl!!!!!!!!!!!!!!!!!!

Kim

-- Re: Exercise

don't forget me!!!i am doing my own challenge.....29-29 ...doing great with it. today i did 60 min of aerobics and 20 min. sculpting.... i exercise every day!however, that is "exercise"....i do not count cleaning and shopping as exercise, cause i would of done that anyway....i need to add more exercise to my day...one hour. > Ok so I got Kim, Gretchen, Eleanora, Sue R down for > exercise...Anybody else????> > Gretchen...WTG on the 2 pounds...I lost a lot pretty fast at > first...it may have been water...but it didn't come back...and thats > what counts!!!

[Guest guest]

Good Idea Nikkie!!!!!!

Kim

-- Re: Exercise

Oh my goodness, I have some leg weights! Now where are they????

I will find them a lay in front of the TV and dream of thinner thighs!

Nikkie

-------Original Message-------

Re: Exercise

Well, I didn't join the 29 challenge, but for the record I did the usual curves workout and then did leglifts while watching Shrek. I dusted off my ankle weights for the occasion.

[Guest guest]

Oh yeah. Watching it as we speak, AGAIN!!!

Exercise