Guest guest Posted November 20, 1999 Report Share Posted November 20, 1999 it is hard enough to lift my toothbrush, to lift a glass of water to my lips... if i took chenney's advice and lifted a one or twenty pound weight for anaerobic exercise i will die of pain and exhaustion. as a matter of fact, just thinking about it has exhausted me.. must rest... mayra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 1999 Report Share Posted November 21, 1999 >it is hard enough to lift my toothbrush, to lift a glass of water to my >lips... if i took chenney's advice and lifted a one or twenty pound weight >for anaerobic exercise i will die of pain and exhaustion. as a matter of >fact, just thinking about it has exhausted me.. must rest... > >mayra Ditto and amen!! Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Gardening is one possibility- if you get enough under cultivation, you will find weeding, digging, give a nice mild workout that varies nicely. We both use a top of the line rowing machine (Concept II) often, and planning to resume kayaking soon. Be very aware that your mind may not keep you as safe as before CFS... so try to keep to activities that do not put you at risk if brain-fog clouds up, or if you become exhausted. For example, if you are duck hunting and heading back, slip and have your waders full of water.... if CFS exhaustion is triggered, then you are in a real dangerous situation!!! I became very aware of this while working the loader on our tractor... for the first 4 loads, I was fine; on the fifth load I was getting edgy whenever I went over a slight bump; on the sixth load, the tractor went into the ditch and almost tipped over (I have a roll bar on it and use the seat belts)... This happened twice... .... so how, I set an alarm on my clock whenever I start using machinery and stop when it sounds (and before carelessness sets in) Ken ----- Original Message ----- From: Dr. Steve <moores@...> > When you are starting to feel good what type of exercise is least likely to lead to relapse Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 I also have a very nice rowing machine, and I like to kyak. What is it about exercise that cause relapse (I realize we are in the area of conjecture here) is it heart rate, heat? I am on both growth hormone and testosterone and I have exercised vigorously all my life. My muscle strength returns quickly but I do tripod you think that because rowing puts you in a horizontal position it is less taxing. Steve Lassesen wrote: > From: " Lassesen " <KenL@...> > > Gardening is one possibility- if you get enough under cultivation, you will > find weeding, digging, give a nice mild workout that varies nicely. > > We both use a top of the line rowing machine (Concept II) often, and > planning to resume kayaking soon. > > Be very aware that your mind may not keep you as safe as before CFS... so > try to keep to activities that do not put you at risk > if brain-fog clouds up, or if you become exhausted. For example, if you are > duck hunting and heading back, slip and have your waders full of water.... > if CFS exhaustion is triggered, then you are in a real dangerous > situation!!! > > I became very aware of this while working the loader on our tractor... for > the first 4 loads, I was fine; on the fifth load I was getting edgy whenever > I went over a slight bump; on the sixth load, the tractor went into the > ditch and almost tipped over (I have a roll bar on it and use the seat > belts)... This happened twice... > ... so how, I set an alarm on my clock whenever I start using machinery and > stop when it sounds (and before carelessness sets in) > > Ken > > ----- Original Message ----- > From: Dr. Steve <moores@...> > > When you are starting to feel good what type of exercise is least likely > to lead to relapse > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Dr. Cheney's comments are at: http://www.folkarts.com/idef/exercise.htm The " balancing act " is governed by the reduced ability of your body to release O2 and that Mycoplasma hates oxygen.... if you work up to the point of using the amount of O2 that is 'surplus' then you are fine.... but if you go slightly over it, you have created a more friendly environment for mycoplasma (just added a spoonful of sugar to a cup of yeast!)... and the next day, you will feel worst!!!... Thus it is a very slow gradual build-up of exercise until you feel poorly the next day...then taking two giant step back and using that as yoiur limit for a month (before pressing ahead again). Over the last five years, my wife, Laurie, has gotten worked up to exercise again... have a good workout and the next day crashes with the flu or a bug... and hated it... She now understands that it was not flu or a bug, but CFS, and what needs to happen each day... Ken PS: Use http://www.folkarts.com/idef/contents.htm to find pages quickly on my site ... ----- Original Message ----- > From: " Dr. Steve " <moores@...> > > What is it about exercise that cause relapse (I realize we are in the area of conjecture here) is it heart rate, heat? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 > ... I have never done much swimming or water exercising but it sound like it might > good way to exercise. Floating in a pool uses fewer calories than lying in bed, provided the water is warm enough, e.g. 80 degrees or more. It is the ideal way to begin an exercise program because one can start very slowly and begin toning all the muscles in the body long before the " aerobic " benefits of exercise are achieved. Immersion in water reduced average specific gravity drastically. It is the closest one can get to weightless on earth. Astronauts at one time trained in water for this reason. The near weightlessness makes swimming ideal for those with NMH since gravity aggravates pooling of blood in extremities. In addition, swimming makes exercising easier for those with low blood volume, often seen in CFS in combination with NMH. The water increases pressure on the body forcing blood away from the surface of the body toward the muscles where it is needed for exercise. The ideal water temperature for a PWC is about 85 degrees. Therapeutic pools are heated to 90 degrees or higher. Not even an olympic athletic should swim vigorously in water this warm because of the potential for heat stroke. A plunge into 80 degree water often feels cold because the water is 18 degrees cooler than the body. For PWCs with slowed metabolic rate or body temperature that is especially low, water that is too cool may provoke relapse. Swimming is not recommended as an exercise for weight loss. To burn enough calories to loose weight, one must be a competent swimmer and be able to achieve their target heart rate. Further the swimming muscles must be developed before one can reach the target heart rate. Because of the near weightlessness, the target heart rate for swimming is higher than on dry land. Various aerobic and stretching exercises can be done in water. Muscles will stretch more easily and stretch out further in water. I cannot say enough good things about swimming for PWCs. Two summers ago I was swimming 2 miles every morning. Every time I attempted a sprint of 50 meters, I crashed for two days. Due to a major relapse I stopped swimming last year. Today I am finally returning to swimming in a pool that is heated to 85 degrees, is enclosed on three sides by glass, has a roof of glass and overlooks the East River, it is in Manhattan. I can hardly wait to put on my bathing suit and take the plunge! Bonnes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Ken-- Good advice. When I'm struggling I don't seem to know it for awhile, though it's obvious to people around me if they know me at all. Why does judgment go with the crash? I've always assumed it's insufficient oxygen to the brain--I'm amazed we all haven't had more car accidents. Any thoughts? in North Carolina > > From: " Lassesen " <KenL@...> > > > > Be very aware that your mind may not keep you as safe as before > CFS... so > try to keep to activities that do not put you at risk > if brain-fog clouds up, or if you become exhausted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 >Good advice. When I'm struggling I don't seem to know it for awhile, though >it's obvious to people around me if they know me at all. Why does judgment >go with the crash? I've always assumed it's insufficient oxygen to the >brain--I'm amazed we all haven't had more car accidents. Any thoughts? > > in North Carolina Dear , I've been in 2 fender benders in the past and enough near misses to keep my heart pounding. Back in Oct. of 1998 when I had to finally quit my job I lived in constant fear of falling asleep at the wheel and finishing the job! My judgement is definitely impaired at times like this and I don't remember to keep a safe following distance. Since then I try not to drive if I am not well rested and feeling pretty good. I do drop things around the house etc. but that is far less dangerous to life and limb. Fortunately I'm doing pretty well at this time. -Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 some say between 4:00 & 6:00 pm and avoid doing it before bedtime it can interpt sleep pattern. Since you are exercising indoors you do not need to worry about pollen or traffic polution. Steve Zazzue wrote: > From: Zazzue <Zazzue@...> > > My son and I are starting to go to the gym. Him, to lift weights, me > to sit in the steam room. When I feel better, maybe a little > treadmill. But what I need to know, is, any special time of day > better than another and when should we eat, before or after exercise? > I know some of you former jocks can give me advice. > > Zazzue > > http://www.CreativeAddiction.com > mailto:Zazzue@... > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 Hi, I was a gym fanatic. Then I couldn't execise in the morning, then at night. Only way I could overcome pain and fatigue of exercising was to mix half water, half beer, with hefty does of caynene pepper to keep on exercise bike. This from person who did jazz dance, hip-hop with teens!, now I am sorry excuse of what I used to be - and I used to look wonderful. This is a blow to the vainest women in the universe! Now I'm told that exercise is out with myopathy - I will decide what to do on my own at this point as docs have been little help; but you all have been immense help and I thank you so much. Christie At 02:41 PM 1/11/00 -0600, you wrote: >From: " Dr. Steve " <moores@...> > >some say between 4:00 & 6:00 pm and avoid doing it before bedtime it can interpt sleep pattern. Since you are exercising indoors you do not need to worry about pollen or traffic polution. > >Steve > >Zazzue wrote: > >> From: Zazzue <Zazzue@...> >> >> My son and I are starting to go to the gym. Him, to lift weights, me >> to sit in the steam room. When I feel better, maybe a little >> treadmill. But what I need to know, is, any special time of day >> better than another and when should we eat, before or after exercise? >> I know some of you former jocks can give me advice. >> >> Zazzue >> >> http://www.CreativeAddiction.com >> mailto:Zazzue@... >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2000 Report Share Posted July 7, 2000 Cute. I will have to remember all these excuses the next time the dr wants me to exercise lol. Thanks Tina1 >From: " Aisha Elderwyn " <aisha@...> >Reply-egroups > " Being Sick Support Group " <egroups> >Subject: Fw: exercise >Date: Sat, 8 Jul 2000 11:29:25 +1000 > >Exercise > >It is well documented that for every mile that you jog, you add one minute >to your life. This enables you at 85 years old to spend an additional 5 >months in a nursing home at $5000 per month. > >My grandmother started walking five miles a day when she was 60. She's 97 >now and we don't know where the heck she is. > >I joined a health club last year, spent about 400 bucks. Haven't lost a >pound. Apparently you have to show up. > >I have to exercise early in the morning before my brain figures out what >I'm doing. > >I don't exercise at all. If God meant us to touch our toes, he would have >put them further up on our body. > >I like long walks, especially when they are taken by people who annoy me. > >I have flabby thighs, but fortunately my stomach covers them. > >The advantage of exercise is that you die healthier. > >Jogging makes the ice jump right out of my glass > > > > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2000 Report Share Posted July 7, 2000 ExerciseIt is well documented that for every mile that you jog, you add one minuteto your life. This enables you at 85 years old to spend an additional 5months in a nursing home at $5000 per month.My grandmother started walking five miles a day when she was 60. She's 97now and we don't know where the heck she is.I joined a health club last year, spent about 400 bucks. Haven't lost apound. Apparently you have to show up.I have to exercise early in the morning before my brain figures out whatI'm doing.I don't exercise at all. If God meant us to touch our toes, he would haveput them further up on our body.I like long walks, especially when they are taken by people who annoy me.I have flabby thighs, but fortunately my stomach covers them.The advantage of exercise is that you die healthier.Jogging makes the ice jump right out of my glass Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2000 Report Share Posted July 7, 2000 loved this one!! ne >From: " Aisha Elderwyn " <aisha@...> >Reply-egroups > " Being Sick Support Group " <egroups> >Subject: Fw: exercise >Date: Sat, 8 Jul 2000 11:29:25 +1000 > >Exercise > >It is well documented that for every mile that you jog, you add one minute >to your life. This enables you at 85 years old to spend an additional 5 >months in a nursing home at $5000 per month. > >My grandmother started walking five miles a day when she was 60. She's 97 >now and we don't know where the heck she is. > >I joined a health club last year, spent about 400 bucks. Haven't lost a >pound. Apparently you have to show up. > >I have to exercise early in the morning before my brain figures out what >I'm doing. > >I don't exercise at all. If God meant us to touch our toes, he would have >put them further up on our body. > >I like long walks, especially when they are taken by people who annoy me. > >I have flabby thighs, but fortunately my stomach covers them. > >The advantage of exercise is that you die healthier. > >Jogging makes the ice jump right out of my glass > > > > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 >I was interested in finding a exercise tape for Lp's. >A while back I seen one in LPA Today, the LPA >newsletter, but haven't seen it in there since. >If someone could get back to me I would appreciate it. > Thanks. Go to LPA Online and click on " Products, " where you will find the very tape you're looking for. =========================================================== Dan Kennedy Internet services coordinator Little People of America, Inc. http://www.lpaonline.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Hi Barbara, Great questions! I'm no doctor here, duh I think everyone knew that sorry:-), but I have done lots of excercising all my life. One of the best ways to stay fit for me has been by stretching and dancing. Try yoga, or pilates. Blanks is also fantastic at that Tae Bo (love that!), and I also love kick boxing as well(makes me feel powerful!Ha!), I also have a " home gym " , it's the Total Gym, and I love it!! I wouldn't necessarily recommend it for anyone who has back problems, but if you are in good health(kind of an oxymoron, if someone is healthy why do they need excercise, but you get my point), then I say get one and use it! It works every single muscle in your body, including your mouth, cause you'll be complaining and grunting the whole time! :-) But remember to stretch!! Stretching is THE most important thing! Have fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 From: <SauceyKitty@...> > But remember to stretch!! Stretching is THE most important thing! So tell me folks, has ANYONE on the list every managed to STRETCH effectively? Surgery and bone breaking apart that is:-))))) Think of the headlines in the papers, " Dwarf tells fellow dwarfs the most important thing is stretching " Sorry, couldn't resist:-) By the way. Lin goes to a gym: has done ever since Orest Hurko (s Hopkins) told us BOTH to loose THIRTY pounds!!!!! It has done wonders for her, and apart from helping with the weight loss (along with Weight Watchers), has done her body the world of good. BUT, she ONLY uses the exercise beds. I.e. those beds which move, and do all the work for you. They are extremely safe, and ideal for us. Once I find a gym which allows men onto those beds, I'll be there like a shot! Fred, strapped on the rack, and Lin slowly turning the wheel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 I've exercised all my life .....specially at the gym. I've been very successful at circuit training. Little by little if you're not too intimidated there are always creative ways to use the machines even for a short statured person. It just takes a little experimenting on what feels comfortable. To be honest almost all of the machines I can't put my feet on the ground, but I can adjust the seat to a height that allows me to do what everyone else does...... I just suppport my legs other ways. I also use the free weights in many combinations, so I can get a variety of working my muscles...... It's quite funny too.....because I would work out at this GOLD's GYM near my work......and all you see are these huge masses of muscle all over the place....... and then comes little o'l me sitting in the middle with them pumping iron....it's actually quite empowering knowing and great for the self esteem. I've also been very successful with aerobics, step class and cardio/kick boxing.......The most important thing about those classes ......is to pace yourself and listen to your bones..... You can still get a great workout as long as you don't over do it....and slow down when you feel too much fatigue....... All the exercise has been a major factor why I don't have problems with my joints and hips. Having pseudoachondroplasia , those are big problems and many LP's end up having to have many operations. I've been very lucky and kept healthy and strong because of my continued exercise. Hope that helps --- Barbara Brullo <tobubba@...> wrote: <HR> <html><body> <tt> Hi there,<BR> <BR> Just wondering if anyone belongs to a gym and if so what they participate<BR> in. What equipment do you find beneficial? Do you take any aerobics classes?<BR> What about a class like Aerobox (Aerobics/kick boxing)...is that ok for<BR> people of our stature? This is a general question, I'm interested in hearing<BR> others thoughts on this.<BR> <BR> <BR> Thanks<BR> <BR> Barbara <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 HI there Barbara!!! I was taking AQUABICS up until Christmas. I found it to be WONDERFUL!!!! No pain in the back, knees, legs, or anywhere... and alot of fun at the same time. The class I took was in the DEEP end of the pool... where we ALL wore 'aqua-float-belts'. So it didn't matter that I was only 4'4 " in the 25 foot end of our local Olympic-size public pool!!!! I have also done alot of walking... over the winter here in Ontario the walking lacks...but now with TWO boys (canine) I am really planning on walking alot this summer. I actually took them BOTH for their first walk the other day... what a blast that was!! More of a work-out than I expected. I hope this helps ya out some... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Lee, Thanks again for the info but as I said before I can't make exercise a part of my daily routine even though I've tried. That also includes not being able to do stretches. I see a therapist for Stress Management and one of the things that she wanted me to do was to walk 3 times a week but I can't even do that b/c of my secondary female problem in addition to having the endometriosis. Other than that I'm hanging in there. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 In a message dated 5/30/01 1:05:40 PM Eastern Daylight Time, fe38@... writes: > There are other types of Yoga out there. Some are much more demanding than > others. > I did Kundalini and thought it was wonderful the first time, but after the 3rd time it was too much like trying to work out at gym in that I initially feel great but then a week later I begin to pay the price and become real lethargic. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 In a message dated 5/30/01 1:05:40 PM Eastern Daylight Time, fe38@... writes: > There are other types of Yoga out there. Some are much more demanding than > others. > I think maybe swimming is good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 I can't tolerate much exercise beyond walking either. One thing that a friend turned me onto was viniyoga. It's wonderful. Not only is it relaxing, but my body seems to love it. I'm mentally clearer, more relaxed, and my body feels stronger. One of my favorite books on the topic that has lots of pictures ( if you can't find a vini yoga instructor) is called Yoga For Your Life. There are other types of Yoga out there. Some are much more demanding than others. Emma exercise Is there any type of exercise that folks can tolerate better than others. For example exercise that involves lying down, swimming. About all I can do is light weight lifting and walking. But I am limited regarding how far I can walk and I keep my weight lifting down below the lactic acid threshold. I do stretching exercises almost ever day and a few sit ups. But I was so active and now I am board sh**less. I like to ride a motor cycle but I figure if I broke and ankle I would be totally helpless. I thought about getting a horse but that can be dangerous too. I never have been scuba diving --- can CFSers do that? Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 everytime i used to exercise before i had this even if it was a ten min walk i would alway get sick with avery long cold has this happen to anyone else? --- Judith Gilbert <jaegilbert@...> wrote: > > hi Steve M. and all - > > > Is there any type of exercise that folks can > tolerate better than > others. > > For example exercise that involves lying down, > swimming. About all I can > do > > is light weight lifting and walking. But I am > limited regarding how far > I > > can walk and I keep my weight lifting down below > the lactic acid > threshold. > > I do stretching exercises almost ever day and a > few sit ups. But I was > so > > active and now I am board sh**less. > > the fact that you are bored sh**less is a good > sign!!!! it means you have > the energy TO be bored!! As to exercise besides > walking, swimming is pretty > strenuous unless you are already in pretty good > shape, but walking through > waist-high water in a pool will give you a pretty > good workout. YMCA/YWCA > usually have acquatic exercise programs that are > great, and working out in > water tends to keep your body temperature lower > thereby lessening symptoms > you would get from on-land workouts. > > Judith > > > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Hi , This may be too tame for you, but have you tried rebounding (jumping on a mini trampoline)? It's great for PWCs because it helps the autonomic nervous system as well as helping with detox by pumping the lymphatic system. Plus, it's fun and rebounders are cheap. One word of caution: if you are sensitive, you will want to start slow. Good luck, > Is there any type of exercise that folks can tolerate better than others. > For example exercise that involves lying down, swimming. About all I can do > is light weight lifting and walking. But I am limited regarding how far I > can walk and I keep my weight lifting down below the lactic acid threshold. > I do stretching exercises almost ever day and a few sit ups. But I was so > active and now I am board sh**less. I like to ride a motor cycle but I > figure if I broke and ankle I would be totally helpless. I thought about > getting a horse but that can be dangerous too. I never have been scuba > diving --- can CFSers do that? Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 are you able to do this with being dizzy? --- <purplesparrow@...> wrote: > Hi , > > This may be too tame for you, but have you tried > rebounding (jumping on a > mini trampoline)? It's great for PWCs because it > helps the autonomic > nervous system as well as helping with detox by > pumping the lymphatic > system. Plus, it's fun and rebounders are cheap. > One word of caution: if > you are sensitive, you will want to start slow. > > Good luck, > > > > > > Is there any type of exercise that folks can > tolerate better than others. > > For example exercise that involves lying down, > swimming. About all I can > do > > is light weight lifting and walking. But I am > limited regarding how far I > > can walk and I keep my weight lifting down below > the lactic acid > threshold. > > I do stretching exercises almost ever day and a > few sit ups. But I was so > > active and now I am board sh**less. I like to ride > a motor cycle but I > > figure if I broke and ankle I would be totally > helpless. I thought about > > getting a horse but that can be dangerous too. I > never have been scuba > > diving --- can CFSers do that? Any suggestions? > > > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
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