Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Hello, You are definatly in the right place. I can remember when we first got our diagnosis and I was so scared! This group is full of caring people that can answer almost any question you come up with. Where are you? We are in Alabama. My son has Selective IgG Deficiency. He has a B Subclass disorder. We started gamma 2 years ago and the difference it has made is amazing! Welcome to the group, _________________________________________________________________ Windows Live™: E-mail. Chat. Share. Get more ways to connect. http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t2_allup_howitworks_022009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Welcome! Yes, you've come to the right place. Also, go to www.primaryimmune.org for info. They have some excellent publications. You'll want to keep an IVIg log (which u can find on the site). Also ask the group about how to reduce risk of side effects from IVIg and how to reduce stress/get line in easier, before you go. Mom to Dani, CVID Sent on the Now Network™ from my Sprint® BlackBerry I'm new here Hi everyone I am new here. I believe I have posted once before...but not sure. My child who is 3, was just diagnosed wiht functioning antibody defiecncy & will be starting IVIG in the next week or two. Am I in the right place or is this group not for me? Thanks in advance for your input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Thanks , I am not sure what exactly subclass...I am still new at the terminology. We are in Az. We are looking forward ot the IVIG as it is to help so many things not just his immune system from what the dr.s tell us. I am waiting to hear back from inusrance on IVIG. I am scared thoguh to hear it is from 1000 donors?? I know you all probably have good research on this already done...Anyone? You know how that goes - i haven't had any time to reseacrh IVIG yet. Not to mention he had blood in his stool tonight. So, i really didn't get anything done I had planned. Ugh....it is always something. I just feel so bad fo rhim...I can tell he is in pain even thogh he can't tell me Thanks in advance for any help on any articles > > > Hello, > > You are definatly in the right place. I can remember when we first got our diagnosis and I was so scared! This group is full of caring people that can answer almost any question you come up with. > > Where are you? We are in Alabama. My son has Selective IgG Deficiency. He has a B Subclass disorder. We started gamma 2 years ago and the difference it has made is amazing! Welcome to the group, > _________________________________________________________________ > Windows Live™: E-mail. Chat. Share. Get more ways to connect. > http://windowslive.com/howitworks? ocid=TXT_TAGLM_WL_t2_allup_howitworks_022009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Thanks , I will check that out group....any ideas on keeping down side effects?? And what are some side effects??? thanks again GIna > > Welcome! Yes, you've come to the right place. Also, go to www.primaryimmune.org for info. They have some excellent publications. You'll want to keep an IVIg log (which u can find on the site). Also ask the group about how to reduce risk of side effects from IVIg and how to reduce stress/get line in easier, before you go. > > > Mom to Dani, CVID > Sent on the Now Network™ from my Sprint® BlackBerry > > I'm new here > > > Hi everyone > I am new here. > I believe I have posted once before...but not sure. > My child who is 3, was just diagnosed wiht functioning antibody defiecncy & will be starting IVIG in the next week or two. > > Am I in the right place or is this group not for me? > > Thanks in advance for your input. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Hi , my son Mark is 7 with CVID, he was diagnosed with a PID when he was 3 months old, and has been on IVIG ever since. He started subQ this summer and is doing well on that too. It's a scary time, and that period of uncertainty was the worst for me, when we knew something was wrong but no clear diagnosis. For Mark, it took 2 years to figure out what exactly was going on. IVIG will significantly improve your child's health. Usually within a few treatments there are fewer infections, increased energy and usually overall better health. Some of the more common side effects are headache, flu-like symptoms (particularly when first starting), mild fever, tiredness. The first few infusions you may notice more of the tired, flu-like stuff because the IGG's are going in there and " mopping up " the system and clearing out all those bugs! The best thing you can do is have your child drink LOTS of fluids the day before/of. It significantly helps with the stick, and it also helps reduce some of the side effects, like headache. Don't be surprised if they give tylenol or benadryl at the start of the infusion to help reduce some of the side effects also. In 7 years of IVIG, Mark ran a mild fever once or twice, threw a low BP once, and had a couple headaches. He would finish his treatment, get down and play like nothing. When he was older, I would take him in to school after it was done and he did fine. Plan for it to take quite a while at first though, take some good movies and books (like those big sticker books) to occupy him and pack some snacks. They like to run it really slow at first, and that helps reduce the side effects too. I hope things go smoothly for your son, and although it's overwhelming right now, in time it will just become part of you. I would recommend IDF for their books too, they have some great books for young children. Baxter Pharm. (type keyword Baxter) also has some good books for kids, I believe they are the ones that have a book called " Charlie's IVIG " or something like that. It's about the story of a little boy who travels to the hospital for IVIG, and it's very helpful for little ones to see they aren't alone. Best wishes to you! mom to Mark 7 CVID > > > > Welcome! Yes, you've come to the right place. Also, go to > www.primaryimmune.org for info. They have some excellent > publications. You'll want to keep an IVIg log (which u can find on > the site). Also ask the group about how to reduce risk of side > effects from IVIg and how to reduce stress/get line in easier, before > you go. > > > > > > Mom to Dani, CVID > > Sent on the Now Network™ from my Sprint® BlackBerry > > > > I'm new here > > > > > > Hi everyone > > I am new here. > > I believe I have posted once before...but not sure. > > My child who is 3, was just diagnosed wiht functioning antibody > defiecncy & will be starting IVIG in the next week or two. > > > > Am I in the right place or is this group not for me? > > > > Thanks in advance for your input. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 , You may want to print this and take it with: http://www.primaryimmune.org/publications/infusion_log.pdf For us, the key things were: hydration and keeping the rate slow. Keeping the rate slow usually falls to mom and, sometimes, the nurses -- not the doctors. Just to give you a sense... our daughter could only tolerate 25-35/cc hour (as the maximum rate) but the pharmacy label indicated that a rate of 90 cc/hour was her max rate. When they moved it up to 40cc/hour she started shaking violently and later developed aseptic meningitis (a " rare " condition that has happened to several kiddos here...migraine, vomiting, fever). Shaking is not acceptable. When the treatment is done lovingly, there are rarely any side effects that require more than motrin or tylenol. Other things we did to minimize pain: EMLA (to numb the skin), warm packs just before getting stuck with a needle, lots of distraction (e.g., headset, jelly beans, etc.). As for the donor pool, I don't know how many there are. These days, IVIG is considered a relatively safe product. In our case, any potential drawbacks with IVIG were outweighed by the significant increase in quality of life (e.g., ending recurrent infections and organ damage). My daughter's gut was also bleeding just prior to starting IVIG and it got better after a couple of months...probably 6 months to clear all infections and get her strength back. But her GI is permenantly affected by the recurrent infections of the past. She would have ended up on a stomach tube if it weren't for IVIG. You'll have plenty of time to catch up on the reading. Bring the essentials with you. I'm still trying to stay on top of all of the literature -- and we've been at this for years. : ) But it gets so much easier when baby is " well " . Hang in there. mom to CVIDer ________________________________ From: mom2twoinaz <mom2twoinaz@...> Sent: Friday, February 6, 2009 10:16:58 PM Subject: Re: I'm new here Thanks , I am not sure what exactly subclass...I am still new at the terminology. We are in Az. We are looking forward ot the IVIG as it is to help so many things not just his immune system from what the dr.s tell us. I am waiting to hear back from inusrance on IVIG. I am scared thoguh to hear it is from 1000 donors?? I know you all probably have good research on this already done...Anyone? You know how that goes - i haven't had any time to reseacrh IVIG yet. Not to mention he had blood in his stool tonight. So, i really didn't get anything done I had planned. Ugh....it is always something. I just feel so bad fo rhim...I can tell he is in pain even thogh he can't tell me Thanks in advance for any help on any articles > > > Hello, > > You are definatly in the right place. I can remember when we first got our diagnosis and I was so scared! This group is full of caring people that can answer almost any question you come up with. > > Where are you? We are in Alabama. My son has Selective IgG Deficiency. He has a B Subclass disorder. We started gamma 2 years ago and the difference it has made is amazing! Welcome to the group, > ____________ _________ _________ _________ _________ _________ _ > Windows Live™: E-mail. Chat. Share. Get more ways to connect. > http://windowslive. com/howitworks? ocid=TXT_TAGLM_ WL_t2_allup_ howitworks_ 022009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Thanks so much fo rth eencouraging words . You all have been so kind to me. I appreciate it. I am anxious to start IVIG for him to get back on a path of health. mom to Hayden -3- variable of common immune deficiency & functioning antibody deficiency ________________________________ From: Schulman <dietdoc@...> Sent: Sunday, February 8, 2009 1:43:28 AM Subject: Re: Re: I'm new here , You may want to print this and take it with: http://www.primaryimmune.org/publications/infusion_log.pdf For us, the key things were: hydration and keeping the rate slow. Keeping the rate slow usually falls to mom and, sometimes, the nurses -- not the doctors. Just to give you a sense... our daughter could only tolerate 25-35/cc hour (as the maximum rate) but the pharmacy label indicated that a rate of 90 cc/hour was her max rate. When they moved it up to 40cc/hour she started shaking violently and later developed aseptic meningitis (a " rare " condition that has happened to several kiddos here...migraine, vomiting, fever). Shaking is not acceptable. When the treatment is done lovingly, there are rarely any side effects that require more than motrin or tylenol. Other things we did to minimize pain: EMLA (to numb the skin), warm packs just before getting stuck with a needle, lots of distraction (e.g., headset, jelly beans, etc.). As for the donor pool, I don't know how many there are. These days, IVIG is considered a relatively safe product. In our case, any potential drawbacks with IVIG were outweighed by the significant increase in quality of life (e.g., ending recurrent infections and organ damage). My daughter's gut was also bleeding just prior to starting IVIG and it got better after a couple of months...probably 6 months to clear all infections and get her strength back. But her GI is permenantly affected by the recurrent infections of the past. She would have ended up on a stomach tube if it weren't for IVIG. You'll have plenty of time to catch up on the reading. Bring the essentials with you. I'm still trying to stay on top of all of the literature -- and we've been at this for years. : ) But it gets so much easier when baby is " well " . Hang in there. mom to CVIDer ________________________________ From: mom2twoinaz <mom2twoinaz@...> Sent: Friday, February 6, 2009 10:16:58 PM Subject: Re: I'm new here Thanks , I am not sure what exactly subclass...I am still new at the terminology. We are in Az. We are looking forward ot the IVIG as it is to help so many things not just his immune system from what the dr.s tell us. I am waiting to hear back from inusrance on IVIG. I am scared thoguh to hear it is from 1000 donors?? I know you all probably have good research on this already done...Anyone? You know how that goes - i haven't had any time to reseacrh IVIG yet. Not to mention he had blood in his stool tonight. So, i really didn't get anything done I had planned. Ugh....it is always something. I just feel so bad fo rhim....I can tell he is in pain even thogh he can't tell me Thanks in advance for any help on any articles > > > Hello, > > You are definatly in the right place. I can remember when we first got our diagnosis and I was so scared! This group is full of caring people that can answer almost any question you come up with. > > Where are you? We are in Alabama. My son has Selective IgG Deficiency. He has a B Subclass disorder. We started gamma 2 years ago and the difference it has made is amazing! Welcome to the group, > ____________ _________ _________ _________ _________ _________ _ > Windows Live™: E-mail. Chat.. Share. Get more ways to connect. > http://windowslive. com/howitworks? ocid=TXT_TAGLM_ WL_t2_allup_ howitworks_ 022009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Thanks for the name of the book !!! That is great! I have to use social stories ( ashort picture book to explain procedure to reduce transition problem & meltdowns) for everything with my son as he has autism as well as all of these medical issues. They have really helped with the multiple dr. visits a week & what not. Thanks again all of you..... ________________________________ From: rfrench496 <bluemtnfarm@...> Sent: Saturday, February 7, 2009 7:07:30 PM Subject: Re: I'm new here Hi , my son Mark is 7 with CVID, he was diagnosed with a PID when he was 3 months old, and has been on IVIG ever since. He started subQ this summer and is doing well on that too. It's a scary time, and that period of uncertainty was the worst for me, when we knew something was wrong but no clear diagnosis. For Mark, it took 2 years to figure out what exactly was going on. IVIG will significantly improve your child's health. Usually within a few treatments there are fewer infections, increased energy and usually overall better health. Some of the more common side effects are headache, flu-like symptoms (particularly when first starting), mild fever, tiredness. The first few infusions you may notice more of the tired, flu-like stuff because the IGG's are going in there and " mopping up " the system and clearing out all those bugs! The best thing you can do is have your child drink LOTS of fluids the day before/of. It significantly helps with the stick, and it also helps reduce some of the side effects, like headache. Don't be surprised if they give tylenol or benadryl at the start of the infusion to help reduce some of the side effects also. In 7 years of IVIG, Mark ran a mild fever once or twice, threw a low BP once, and had a couple headaches. He would finish his treatment, get down and play like nothing. When he was older, I would take him in to school after it was done and he did fine. Plan for it to take quite a while at first though, take some good movies and books (like those big sticker books) to occupy him and pack some snacks. They like to run it really slow at first, and that helps reduce the side effects too. I hope things go smoothly for your son, and although it's overwhelming right now, in time it will just become part of you. I would recommend IDF for their books too, they have some great books for young children. Baxter Pharm. (type keyword Baxter) also has some good books for kids, I believe they are the ones that have a book called " Charlie's IVIG " or something like that. It's about the story of a little boy who travels to the hospital for IVIG, and it's very helpful for little ones to see they aren't alone. Best wishes to you! mom to Mark 7 CVID > > > > Welcome! Yes, you've come to the right place. Also, go to > www.primaryimmune. org for info. They have some excellent > publications. You'll want to keep an IVIg log (which u can find on > the site). Also ask the group about how to reduce risk of side > effects from IVIg and how to reduce stress/get line in easier, before > you go. > > > > > > Mom to Dani, CVID > > Sent on the Now Network™ from my Sprint® BlackBerry > > > > I'm new here > > > > > > Hi everyone > > I am new here. > > I believe I have posted once before...but not sure. > > My child who is 3, was just diagnosed wiht functioning antibody > defiecncy & will be starting IVIG in the next week or two. > > > > Am I in the right place or is this group not for me? > > > > Thanks in advance for your input. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 ---If he does well with social stories, you MUST get Charlies book:) Its " written " by a little boy whose mom is on this board. Its great......its not a cartoon, its real pics of him on infusion day, and goes thru all the steps of what will happen. Two of my kids have sensory problems, which have improved since being on IVIG--IMO, when everything else is miserable, sensory issues will feel much worse. But there are also kids who are on IVIG FOR autism.......I think the rate is higher. But Ive read of good experiences for ASD kids and IVIG. valarie mom to 3 w/cvid In , Blair <mom2twoinaz@...> wrote: > > Thanks for the name of the book !!! > That is great! > I have to use social stories ( ashort picture book to explain procedure to reduce transition problem & meltdowns) for everything with my son as he has autism as well as all of these medical issues. > They have really helped with the multiple dr. visits a week & what not. > Thanks again all of you..... > > > > > > ________________________________ > From: rfrench496 <bluemtnfarm@...> > > Sent: Saturday, February 7, 2009 7:07:30 PM > Subject: Re: I'm new here > > > Hi , my son Mark is 7 with CVID, he was diagnosed with a PID when > he was 3 months old, and has been on IVIG ever since. He started > subQ this summer and is doing well on that too. > > It's a scary time, and that period of uncertainty was the worst for > me, when we knew something was wrong but no clear diagnosis. For > Mark, it took 2 years to figure out what exactly was going on. > > IVIG will significantly improve your child's health. Usually within > a few treatments there are fewer infections, increased energy and > usually overall better health. Some of the more common side effects > are headache, flu-like symptoms (particularly when first starting), > mild fever, tiredness. The first few infusions you may notice more > of the tired, flu-like stuff because the IGG's are going in there > and " mopping up " the system and clearing out all those bugs! The > best thing you can do is have your child drink LOTS of fluids the day > before/of. It significantly helps with the stick, and it also helps > reduce some of the side effects, like headache. Don't be surprised > if they give tylenol or benadryl at the start of the infusion to help > reduce some of the side effects also. In 7 years of IVIG, Mark ran a > mild fever once or twice, threw a low BP once, and had a couple > headaches. He would finish his treatment, get down and play like > nothing. When he was older, I would take him in to school after it > was done and he did fine. Plan for it to take quite a while at > first though, take some good movies and books (like those big sticker > books) to occupy him and pack some snacks. They like to run it > really slow at first, and that helps reduce the side effects too. > > I hope things go smoothly for your son, and although it's > overwhelming right now, in time it will just become part of you. I > would recommend IDF for their books too, they have some great books > for young children. Baxter Pharm. (type keyword Baxter) also has > some good books for kids, I believe they are the ones that have a > book called " Charlie's IVIG " or something like that. It's about the > story of a little boy who travels to the hospital for IVIG, and it's > very helpful for little ones to see they aren't alone. > > Best wishes to you! > mom to Mark 7 CVID > > > > > > > > Welcome! Yes, you've come to the right place. Also, go to > > www.primaryimmune. org for info. They have some excellent > > publications. You'll want to keep an IVIg log (which u can find on > > the site). Also ask the group about how to reduce risk of side > > effects from IVIg and how to reduce stress/get line in easier, > before > > you go. > > > > > > > > > Mom to Dani, CVID > > > Sent on the Now Network™ from my Sprint® BlackBerry > > > > > > I'm new here > > > > > > > > > Hi everyone > > > I am new here. > > > I believe I have posted once before...but not sure. > > > My child who is 3, was just diagnosed wiht functioning antibody > > defiecncy & will be starting IVIG in the next week or two. > > > > > > Am I in the right place or is this group not for me? > > > > > > Thanks in advance for your input. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Yes, I have read many articles that show it will benefit his brain functioning as well as his gut....of course not to mention his immune system. ________________________________ From: osdbmom <osdbmom@...> Sent: Sunday, February 8, 2009 9:48:34 AM Subject: Re: I'm new here ---If he does well with social stories, you MUST get Charlies book:) Its " written " by a little boy whose mom is on this board. Its great......its not a cartoon, its real pics of him on infusion day, and goes thru all the steps of what will happen. Two of my kids have sensory problems, which have improved since being on IVIG--IMO, when everything else is miserable, sensory issues will feel much worse. But there are also kids who are on IVIG FOR autism....... .I think the rate is higher. But Ive read of good experiences for ASD kids and IVIG. valarie mom to 3 w/cvid In groups (DOT) com, Blair <mom2twoinaz@ ...> wrote: > > Thanks for the name of the book !!! > That is great! > I have to use social stories ( ashort picture book to explain procedure to reduce transition problem & meltdowns) for everything with my son as he has autism as well as all of these medical issues. > They have really helped with the multiple dr. visits a week & what not. > Thanks again all of you..... > > > > > > ____________ _________ _________ __ > From: rfrench496 <bluemtnfarm@ ...> > groups (DOT) com > Sent: Saturday, February 7, 2009 7:07:30 PM > Subject: Re: I'm new here > > > Hi , my son Mark is 7 with CVID, he was diagnosed with a PID when > he was 3 months old, and has been on IVIG ever since. He started > subQ this summer and is doing well on that too. > > It's a scary time, and that period of uncertainty was the worst for > me, when we knew something was wrong but no clear diagnosis. For > Mark, it took 2 years to figure out what exactly was going on. > > IVIG will significantly improve your child's health. Usually within > a few treatments there are fewer infections, increased energy and > usually overall better health. Some of the more common side effects > are headache, flu-like symptoms (particularly when first starting), > mild fever, tiredness. The first few infusions you may notice more > of the tired, flu-like stuff because the IGG's are going in there > and " mopping up " the system and clearing out all those bugs! The > best thing you can do is have your child drink LOTS of fluids the day > before/of. It significantly helps with the stick, and it also helps > reduce some of the side effects, like headache. Don't be surprised > if they give tylenol or benadryl at the start of the infusion to help > reduce some of the side effects also. In 7 years of IVIG, Mark ran a > mild fever once or twice, threw a low BP once, and had a couple > headaches. He would finish his treatment, get down and play like > nothing. When he was older, I would take him in to school after it > was done and he did fine. Plan for it to take quite a while at > first though, take some good movies and books (like those big sticker > books) to occupy him and pack some snacks. They like to run it > really slow at first, and that helps reduce the side effects too. > > I hope things go smoothly for your son, and although it's > overwhelming right now, in time it will just become part of you. I > would recommend IDF for their books too, they have some great books > for young children. Baxter Pharm. (type keyword Baxter) also has > some good books for kids, I believe they are the ones that have a > book called " Charlie's IVIG " or something like that. It's about the > story of a little boy who travels to the hospital for IVIG, and it's > very helpful for little ones to see they aren't alone. > > Best wishes to you! > mom to Mark 7 CVID > > > > > > > > Welcome! Yes, you've come to the right place. Also, go to > > www.primaryimmune. org for info. They have some excellent > > publications. You'll want to keep an IVIg log (which u can find on > > the site). Also ask the group about how to reduce risk of side > > effects from IVIg and how to reduce stress/get line in easier, > before > > you go. > > > > > > > > > Mom to Dani, CVID > > > Sent on the Now Network™ from my Sprint® BlackBerry > > > > > > I'm new here > > > > > > > > > Hi everyone > > > I am new here. > > > I believe I have posted once before...but not sure. > > > My child who is 3, was just diagnosed wiht functioning antibody > > defiecncy & will be starting IVIG in the next week or two. > > > > > > Am I in the right place or is this group not for me? > > > > > > Thanks in advance for your input. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 , welcome to the group. I hope your baby is doing well. I am sure you are having problems with geting enough calories in for the both of you. Where do you live? If you have any questions please feel free to ask. We are glad that you have found the rest of your family now. in Georgia <FONT face= " comic sans ms " color=#ff0000 size=5> in Georgia </FONT><IMG src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " > ________________________________ From: lauravanauker23 <lauravanauker23@...> achalasia Sent: Sunday, March 29, 2009 8:01:31 PM Subject: I'm new here Hi All, I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants. Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Hi I know how you feel about anorexia. I am 5 " 4' tall and weigh about 45 kilos now. I still get people looking at me as if I am ill and sometimes they ask me if I have anorexia and of course I have to explain about Achalasia and it's swallowing difficulties. It is like giving a medical lecture about what happens when I try to eat. But of course I have had the ectomy (Oesophagectomy) for Achalasia and now find that I can only swallow small amounts of food twice a day (not enough to give me my nutrients for my level of activity). So now I have had a feeding J-Tube fitted which is leaking enourmously which again needs treatment. Please, please think carefully about what treatment that you may or may not have as you sound as if you are eating quite reasonably right now. My thoughts are with you. Keep in touch and read the posts here regularly. from the UK ________________________________ From: lauravanauker23 <lauravanauker23@...> achalasia Sent: Monday, March 30, 2009 1:01:31 AM Subject: I'm new here Hi All, I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants. Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! - __.._,_.___ Messages in this topic (1) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Calendar Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity * 10 New MembersVisit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Hi , I am 29 and had two surgeries last year but I am doing great now. I had to have the second surgery because the first failed due to an improper fundoplication. For the second surgery I went to Dr.Rice in Cleveland Clinic as suggested by lot of members in this board and that trip was a life saver for me. I live in Birmingham,AL so had to plan a lot for the second surgery but it was all worth it. The point is as you are very young everyone will suggest you to undergo surgery as a long term treatment/relief option. And in case you decide to have surgery go to the best surgeon possible. Surgery is done laproscopic and you will have to stay around 1-2 days in hospital followed by 2 weeks of rest (no heavy lifting etc). I was also very cautious all the time while eating with other people but now I do much better. Hope it helps. Let me know if you have any questions. Ayondeep > > Hi All, > I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants.Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 --- Thanks for the info. I have family in Cleveland, so I am looking into the clinic there, as I will be there this summer. I wouldn't be ready for surgery for at least another year, but I am starting to research my options. What is a fundoplication? How is eating going for you now? In achalasia , " ayondatta " <ayondatta@...> wrote: > > Hi , > > I am 29 and had two surgeries last year but I am doing great now. I had to have the second surgery because the first failed due to an improper fundoplication. For the second surgery I went to Dr.Rice in Cleveland Clinic as suggested by lot of members in this board and that trip was a life saver for me. I live in Birmingham,AL so had to plan a lot for the second surgery but it was all worth it. The point is as you are very young everyone will suggest you to undergo surgery as a long term treatment/relief option. And in case you decide to have surgery go to the best surgeon possible. Surgery is done laproscopic and you will have to stay around 1-2 days in hospital followed by 2 weeks of rest (no heavy lifting etc). I was also very cautious all the time while eating with other people but now I do much better. > > Hope it helps. Let me know if you have any questions. > > Ayondeep > > > > > Hi All, > > I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants.Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! > > - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 --- Wow , what you are experiencing must be so terribly difficult. With the issues you have now, do you regret having the ectomy? You hit the nail on the head about having to give a medical lecture each time you eat. In achalasia , Hulmes <christine.hulmes@...> wrote: > > Hi > I know how you feel about anorexia. I am 5 " 4' tall and weigh about 45 kilos now. I still get people looking at me as if I am ill and sometimes they ask me if I have anorexia and of course I have to explain about Achalasia and it's swallowing difficulties. It is like giving a medical lecture about what happens when I try to eat. But of course I have had the ectomy (Oesophagectomy) for Achalasia and now find that I can only swallow small amounts of food twice a day (not enough to give me my nutrients for my level of activity). So now I have had a feeding J-Tube fitted which is leaking enourmously which again needs treatment. > Please, please think carefully about what treatment that you may or may not have as you sound as if you are eating quite reasonably right now. > My thoughts are with you. Keep in touch and read the posts here regularly. > from the UK > > > > > ________________________________ > From: lauravanauker23 <lauravanauker23@...> > achalasia > Sent: Monday, March 30, 2009 1:01:31 AM > Subject: I'm new here > > > Hi All, > I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist > who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants. Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! > - > > > __.._,_.___ > Messages in this topic (1) Reply (via web post) | Start a new topic > Messages | Files | Photos | Links | Database | Polls | Calendar > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > Recent Activity > * 10 > New MembersVisit Your Group > Give Back > for Good > Get inspired > by a good cause. > Y! Toolbar > Get it Free! > easy 1-click access > to your groups. > > Start a group > in 3 easy steps. > Connect with others. > . > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Fundoplication is a anti-reflux procedure they do after myotomy. My eating is good so far. I am 4 months post-op and I am eating almost everything although I eat slowly. Earlier I used to inhale food sometimes which I guess I cannot do anymore. But that's a small price to pay:). Ayondeep > > > > > > Hi All, > > > I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants.Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! > > > - > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Hi No, I will never ever regret having the ectomy. My Thoracic surgeon at the time hit the nail on the head when he said that it was better to do the ectomy now rather than a couple of years down the line when I might not be strong enough to cope with the surgery. I was at the time having terrible problems swallowing with solids and liquids and was starting to loose weight more and more rapidly. In other words I could have died by now had I not had the surgery back in October 2004. It is a bit annoying at times having to explain that I have Achalasia and not Annorexia to people. It is the same when I have to go into hospital for treatment as in recently. Achalasia is pretty rare and not many people including nurses and doctors have heard of it in the general setting of the Gastro Ward in hospital. I recently had to explain about Achalasia to some nurses and my GI doc explained about Achalasia to his team so everyone concerned with my care learned about this rare disease. I also explain about the enormaty of the surgery and if I have to show them my huge scar going from my bellybutton round my left side and up my back to inbetween my shoulder blades and they are then awed at the enormaty of the surgery that we Achalasians sometimes have to go through to get relief of symptoms. ________________________________ From: lauravanauker23 <lauravanauker23@...> achalasia Sent: Tuesday, March 31, 2009 4:42:48 AM Subject: Re: I'm new here --- Wow , what you are experiencing must be so terribly difficult. With the issues you have now, do you regret having the ectomy? You hit the nail on the head about having to give a medical lecture each time you eat. In achalasia@grou ps..com, Hulmes <christine.hulmes@ ...> wrote: > > Hi > I know how you feel about anorexia. I am 5 " 4' tall and weigh about 45 kilos now. I still get people looking at me as if I am ill and sometimes they ask me if I have anorexia and of course I have to explain about Achalasia and it's swallowing difficulties. It is like giving a medical lecture about what happens when I try to eat. But of course I have had the ectomy (Oesophagectomy) for Achalasia and now find that I can only swallow small amounts of food twice a day (not enough to give me my nutrients for my level of activity). So now I have had a feeding J-Tube fitted which is leaking enourmously which again needs treatment. > Please, please think carefully about what treatment that you may or may not have as you sound as if you are eating quite reasonably right now. > My thoughts are with you. Keep in touch and read the posts here regularly. > from the UK > > > > > ____________ _________ _________ __ > From: lauravanauker23 <lauravanauker23@ ...> > achalasia@grou ps.com > Sent: Monday, March 30, 2009 1:01:31 AM > Subject: I'm new here > > > Hi All, > I am new here, and am surprised it has taken me so long to seek out a support group. I just wanted to introduce myself. I am a 26 yr. old female, who has been living with achalasia for about 3 years (well,since noticing the symptoms). I just had my first child in December, and am now breastfeeding, which is of course a huge caloric drain. Pregnancy with achalasia was quite a challenge! I am maintaining a healthy weight, and am able to eat more than when I was pregnant, so that is good. I have just started having food and fluid come up into my throat, nose and even ears when sleeping! Prior to getting pregnant, I had a dialation procedure, which made it possible for me to eat decently. I am currently wrestling with what to do as a long term solution. I have a baby, so surgery scares me terribly at this point. I am able to eat a decent amount, and try to do most of my eating earlier in the day so that I am comfortable at night. I see a gastro specialist > who ultimately recommends surgery for me, and a naturopathic doctor who thinks even after surgery I may still have difficulties. It has been recommended that I try accupuncture, but I cannot afford it at this time. I do a lot of yoga, which seems to help symptoms and relieve stress. One of the main issues I have with achalasia is how it impacts one's social life. I feel like people think I am anorexic, and I feel self conscious when eating in restaurants. Last night we had people over for dinner, and it was fairly late, so I hardly ate anything. I would love to hear how others cope, and more about the risks and benefits of surgery. Thank you all! > - > > > __.._,_.___ > Messages in this topic (1) Reply (via web post) | Start a new topic > Messages | Files | Photos | Links | Database | Polls | Calendar > > Change settings via the Web ( ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Terms of Use | Unsubscribe > Recent Activity > * 10 > New MembersVisit Your Group > Give Back > for Good > Get inspired > by a good cause. > Y! Toolbar > Get it Free! > easy 1-click access > to your groups.. > > Start a group > in 3 easy steps. > Connect with others. > . > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Welcome, Rajae! Many of us vaccinated and then changed our minds. You are not alone there. Good for you to want to investigate further. Winnie I'm new here Vaccinations > Hello, > > I just joined the group after it was recommended by a current > member (hello, Yousra!). My name is Rajae (pronounced Raja, with > a silent " e " ), and I'm the mom of 12-month old Yasmeen. At her > two-month appointment, we were thinking of doing a > selective/delayed vaccine schedule and had her get one DTaP shot > and the rotavirus vaccine. > > I must say that neither my husband nor I felt good about that > afterwards, and have since regretted those two vaccines... We > talked things over with our pediatrician, letting her know that > we wanted to further research vaccinations first. She agreed. > Yasmeen hasn't had any shots since, and frankly, my journey is > taking me away from wanting to give her any, although no firm > decision has yet to be made. > > In any case, I look forward to learning on this list, and > " meeting " more like-minded people! > > Rajae > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Welcome Rajae! It's busier than usual, but lots of information you can search thru. It's great you have a pedi willing to be open and agree w/you researching your choices! From: rajaenami <rajaenami@...> Subject: I'm new here Vaccinations Date: Tuesday, April 28, 2009, 5:09 PM Hello, I just joined the group after it was recommended by a current member (hello, Yousra!). My name is Rajae (pronounced Raja, with a silent " e " ), and I'm the mom of 12-month old Yasmeen. At her two-month appointment, we were thinking of doing a selective/delayed vaccine schedule and had her get one DTaP shot and the rotavirus vaccine. I must say that neither my husband nor I felt good about that afterwards, and have since regretted those two vaccines... We talked things over with our pediatrician, letting her know that we wanted to further research vaccinations first. She agreed. Yasmeen hasn't had any shots since, and frankly, my journey is taking me away from wanting to give her any, although no firm decision has yet to be made. In any case, I look forward to learning on this list, and " meeting " more like-minded people! Rajae ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Looks like it. But you may be on a too low dose of Iodoral. I'm new here Hi ,I'm kinda new, have been reading posts and trying to figure this all out. I came to this board through posts on the Low Dose Naltrexone board for fibromyalgia people.Was diagnosised with Hashi's in 94 but recent antibiodies tests were negative.Anyway I have decided that I want to supplement with Iodine so this is what I'm doing:Ordered the Iodine/Bromine loading tests from Dr. Flechas' labHave Iodoral 12.5mg 180 tabsMagnesium oilvit C crystalsHimalayan SaltseleniumATP cofactorsvit D3Also am reading Dr. Brownstein's books on Iodine and salt.Right now I take:Blood pressure meds(Verapamil)Doing the 's T-3 protocol (right now I'm cycled off the T-3 and temp is 98.6)I take Low Dose NaltrexoneAlso supplements from Dr. 's website (thyrocare, Adaptogen,Fibrocare and Healthy Foundation)Digestive Enzymes and BetaineFlagyl (only twice a week to slowly address possible ameobas)Also waiting for labs on thyroid, Vit D levels and cholesterolAm I on the right track? Missing Anything?Thanks for your input,Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 I Haven't started the Iodoral yet. I just got the Iodine/bromine loading tests in the mail today so will be doing that this weekend. I plan to start once I get the results and have the consult with Dr Flechas. I am anxious to start the Iodoral but want to make sure I do this right. I feel sometimes like I am trying so many things at once that how will I know what is really helping. I was wondering about tyrosine? I think you said it helps use the iodine better? One thing is my mother died of ovarian cancer so this is part of my motivation in using the LDN, and now from what I have learned about Iodine it seems that is crucial for me too. I've really learned alot and appreciate every one here and their sharing their stories. Tina - -- In iodine , " ladybugsandbees " <ladybugsandbees@...> wrote: > > Looks like it. But you may be on a too low dose of Iodoral. > > > > > I'm new here > > > Hi , > > I'm kinda new, have been reading posts and trying to figure this all out. I came to this board through posts on the Low Dose Naltrexone board for fibromyalgia people.Was diagnosised with Hashi's in 94 but recent antibiodies tests were negative. > > Anyway I have decided that I want to supplement with Iodine so this is what I'm doing: > > Ordered the Iodine/Bromine loading tests from Dr. Flechas' lab > Have Iodoral 12.5mg 180 tabs > Magnesium oil > vit C crystals > Himalayan Salt > selenium > ATP cofactors > vit D3 > > Also am reading Dr. Brownstein's books on Iodine and salt. > > Right now I take: > > Blood pressure meds(Verapamil) > Doing the 's T-3 protocol (right now I'm cycled off the T-3 and temp is 98.6) > I take Low Dose Naltrexone > Also supplements from Dr. 's website (thyrocare, Adaptogen,Fibrocare and Healthy Foundation) > Digestive Enzymes and Betaine > Flagyl (only twice a week to slowly address possible ameobas) > > Also waiting for labs on thyroid, Vit D levels and cholesterol > > Am I on the right track? Missing Anything? > > Thanks for your input, > > Tina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Tyrosine is one of the building blocks in thyroid hormones as is iodine. Tyrosine won't help your whole body with iodine just used in the thyroid. Steph I'm new here> > > Hi ,> > I'm kinda new, have been reading posts and trying to figure this all out. I came to this board through posts on the Low Dose Naltrexone board for fibromyalgia people.Was diagnosised with Hashi's in 94 but recent antibiodies tests were negative.> > Anyway I have decided that I want to supplement with Iodine so this is what I'm doing:> > Ordered the Iodine/Bromine loading tests from Dr. Flechas' lab> Have Iodoral 12.5mg 180 tabs> Magnesium oil> vit C crystals> Himalayan Salt> selenium> ATP cofactors> vit D3> > Also am reading Dr. Brownstein's books on Iodine and salt.> > Right now I take:> > Blood pressure meds(Verapamil)> Doing the 's T-3 protocol (right now I'm cycled off the T-3 and temp is 98.6)> I take Low Dose Naltrexone> Also supplements from Dr. 's website (thyrocare, Adaptogen,Fibrocare and Healthy Foundation)> Digestive Enzymes and Betaine> Flagyl (only twice a week to slowly address possible ameobas)> > Also waiting for labs on thyroid, Vit D levels and cholesterol> > Am I on the right track? Missing Anything?> > Thanks for your input,> > Tina> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Hi , Welcome to the group ! My name is , and I am the mother of a two-year old girl who is completely unvaccinated and perfectly healthy :-) My story is similar to yours in the sense that my first intention was to delay vaccines, and I had also taken an appointment for her to get a vaccine when she was one, and a few days before, I didn't feel good at all, just like you. I don't know if that was my intuition or mother instinct, but I'm really glad I listened to it, because I finally cancelled her vaccination appointment. I also started to read more on the subject, and I realize today what a great decision I made the day I decided not to vaccinate her at all. This group is wonderful. I've learned more in the past few weeks, since I joined, than in the past two years since I started questioning vaccines. Welcome again ! > > Hi, just though I'd send out my intro! I joined the group a week or so ago and have been consistently a few days behind but have been soaking it all in! I was told about this group by someone on another group I'm on (earthmamas) and I also took Sheri's vaccine dangers online class. > > My name is , I'm 31 and live in Colorado Springs, CO with my husband, Garry and 14 month old daughter, Camryn. Camryn was born at home, is still breastfed, and is totally unvaccinated. I read Dr. Sears' " Vaccine Book " and made her 2 month appt. planning on doing a selective delayed schedule. But in the days leading up to her appointment I was feeling very uneasy, crying, etc. After talking to a few people online as well as my midwife, I decided not to do them, at least at that point. As many people said, basically, you can't unring a bell. So I started reading more, in books and online, went to a seminar at a chiropractor's office, took Sheri's class, etc. And every day I am more and more confident in our decision not to vaccinate at all. > > I always love learning more and look forward to that here and getting to know some of you better! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 , Welcome aboard. Good for you for listening to your instincts, and for seeking more knowledge! You'll learn a LOT here. I'm a mom to two completely unvaccinated boys, ages 3 1/2 and 16 months, and I live in Highlands Ranch, CO. Email me privately if you ever want to get together for a playdate! My kids and I Iove to get out and about; the Springs is a nice little drive from here. On Sun, Aug 23, 2009 at 9:05 PM, erinfloyd101<erinfloyd101@...> wrote: > > > Hi, just though I'd send out my intro! I joined the group a week or so ago > and have been consistently a few days behind but have been soaking it all > in! I was told about this group by someone on another group I'm on > (earthmamas) and I also took Sheri's vaccine dangers online class. > > My name is , I'm 31 and live in Colorado Springs, CO with my husband, > Garry and 14 month old daughter, Camryn. Camryn was born at home, is still > breastfed, and is totally unvaccinated. I read Dr. Sears' " Vaccine Book " and > made her 2 month appt. planning on doing a selective delayed schedule. But > in the days leading up to her appointment I was feeling very uneasy, crying, > etc. After talking to a few people online as well as my midwife, I decided > not to do them, at least at that point. As many people said, basically, you > can't unring a bell. So I started reading more, in books and online, went to > a seminar at a chiropractor's office, took Sheri's class, etc. And every day > I am more and more confident in our decision not to vaccinate at all. > > I always love learning more and look forward to that here and getting to > know some of you better! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Hi, --welcome! I wish I had thought to question vaccines before blindly allowing it in my older two children. You are very smart to be on top of this so early on. You won't regret it--I promise, although it's easy that confidence shaken when your child gets sick. Just be prepared with what you would do if/when she gets sick. I've never gone wrong there (somehow!) but have with vaccines. Winnie I'm new here Vaccinations > Hi, just though I'd send out my intro! I joined the group a > week or so ago and have been consistently a few days behind but > have been soaking it all in! I was told about this group by > someone on another group I'm on (earthmamas) and I also > took Sheri's vaccine dangers online class. > > My name is , I'm 31 and live in Colorado Springs, CO with my > husband, Garry and 14 month old daughter, Camryn. Camryn was > born at home, is still breastfed, and is totally unvaccinated. > I read Dr. Sears' " Vaccine Book " and made her 2 month appt. > planning on doing a selective delayed schedule. But in the days > leading up to her appointment I was feeling very uneasy, crying, > etc. After talking to a few people online as well as my > midwife, I decided not to do them, at least at that point. As > many people said, basically, you can't unring a bell. So I > started reading more, in books and online, went to a seminar at > a chiropractor's office, took Sheri's class, etc. And every day > I am more and more confident in our decision not to vaccinate at all. > > I always love learning more and look forward to that here and > getting to know some of you better! > > > > > Quote Link to comment Share on other sites More sharing options...
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