Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 I use Motherwort, bugleweed and lemonbalm. I buy it dried and make a tincture. Then I make a tea and spike it with the tincture. Re: RAI I can't give advice on the RAI except to say that I wouldn't (DIDN"T) do it. I have had graves for over 5 years and with these same symptoms, along with insomnia (except for hair loss - I had chemo to get that!) Anyway today I have minimal incidences with symptoms because I use herbs to manage the graves while I am trying to saturate with iodine. I'm up to 75mgs daily and as long as I take my herb tea concoction in the morning I am fine all day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Hi , "I use Motherwort, bugleweed and lemonbalm. I buy it dried and make a tincture. Then I make a tea and spike it with the tincture. " - I have used the essiac tea "sence" just once for cancer/detox. I haven't used teas for energy - I'm getting that with the iodine. I used the herbal tea mix to manage the hyper symptoms. RAI I'm scheduled for RAI at the end of the month. Is there anything I need to know because my doctor is very vague when I ask questions. My concern right now is the rapid heartbeat, hairloss, heat intolerance, tremors associated with Grave's disease. No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1432 - Release Date: 5/14/2008 7:49 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Whatever you do, if at all possible, don't do the RAI. I had the RAI done 3 years ago. It's the biggest regret in my life. THE BIGGEST!! Get the facts. Do the iodine. I was diagnosed with Graves, also, and my TSH come to find out was NORMAL. The only effect I was having from the graves was heart palpitations. That's it. Had I known then what I know now, I would have gone the other route, but I trusted my stupid endo. We're here for you!! K > > Hi , > " I use Motherwort, bugleweed and lemonbalm. I buy it dried and make a tincture. Then I make a tea and spike it with the tincture. " - I have used the essiac tea " sence " just once for cancer/detox. I haven't used teas for energy - I'm getting that with the iodine. I used the herbal tea mix to manage the hyper symptoms. > > > > > RAI > > > I'm scheduled for RAI at the end of the month. Is there anything I > need to know because my doctor is very vague when I ask questions. My > concern right now is the rapid heartbeat, hairloss, heat intolerance, > tremors associated with Grave's disease. > > > > ________________________________ > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.16/1432 - Release Date: 5/14/2008 7:49 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2010 Report Share Posted August 27, 2010 " Mopping up " ? " As a precaution " ? EEK! OMG, RadioActive Iodine goes to more places in the body than just the thyroid! It goes to EVERY SINGLE iodine receptor in the body! And it makes the person getting it MORE susceptable to cancer later on in life. Remember, I was given that poison, as were quite a number of the members in my thyroidless group. 25% of them have pituitary damage, some have affected hypothalamus, a few have damaged or now failed adrenal glands, many have ovary and testicular damage, salivary gland damage, damaged eyes, etc. Monitor his body temp daily. It should not go below 98.2. If it does, it means a slowed metabolism/hypOthyroid. Temp should not vary by more than 0.2 degrees. If it does, it's adrenal. That's how you monitor his thyroid/adrenal before things fall apart too much. Your son is now at a 40% higher risk of developing more serious heart issues because of the lack of a thyroid, the radiation, and the t4 drug which itself carries the side effect of heart problems. As to RT3, that is what the body normally turns excess t4 into so it can exit the body. Low ferritin, poor adrenal function (low cortisol), t4 drug are things that can cause RT3 to increase, because there is the inability of the body to convert t4. One should never ever 'treat' higher than normal RT3 since it is usually always temporary and is usually caused by other things. I am a person who has lost a family member to cancer treatment. Sam > > > > > > ... I own the group called " thyroidless " and I am literally sick to my > > stomach > > to know that your heart patient son had his thyroid removed AND was given > > RAI, no matter the reason.... > > > > In this case the RAI ablation was just mopping up, a precaution > recommended by most of the faculty of the department of endocrinology at > KU Medical Center. The thyroid surgeon was the only one suggesting the > RAI follow up might not be needed. We consulted two oncologists and a > cardiologist before deciding the doctors at KU were probably right. At > any rate, the malignant gland was already removed, forever. The RAI > served to show there were no hot spots left. > > He seems to be doing fine on T4, although his TSH dropped below the > range last week. They just adjusted the dose. > > We monitor several of his numbers weekly due to the heart valve. If he > shows any sign of adrenal, RT3, or binding involvement, we will know > what to do. His primary care physician was actually once one of my students. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Wow, you still seem to be extremely under-informed about all this. I don't have time to re-educate you. I'm just so very sorry your son has recieved such horrendous medical treatment. I tried to help, but oh well. You know where my thyroidless group is, and I hope you use it at some point... Sam > > > > > > ...OMG, RadioActive Iodine goes to more places in the body than just > > the thyroid! It goes to EVERY SINGLE iodine receptor in the body! > > And it makes the person getting it MORE susceptable to cancer later on > > in life. > > > Technically there is no such thing as a receptor for elemental iodine. > There are many receptors for iodine compounds. The ones we are most > worried about with hypoT are receptors for T3. However, if you do not > have a working thyroid gland and are taking hormone supplements, your > receptors should be amply filled already (from the medication), and > there will be no pathway for radioactive iodine to be incorporated into > the thyroxine pathway (since this is the normal job of the thyroid gland). > > I verified this distribution with a radiation survey meter about a week > after Mike's test. _All_ the activity was concentrated above the waist, > mostly in the neck and upper chest. As I said, except for the thyroid > gland itself, elemental iodine mainly concentrates in breast and > salivary tissue. The gamma scan done at the hospital said the same > thing; breast and salivary glands. > > I was actually surprised at the salivary concentration. It meant we had > to change a fairly " hot " pillowcase every morning after he slept on it. > In contrast he seemed to perspire relatively little, although we did > change all his bedding and clothing everyday as well. > > Your information about body temperature is also incorrect, unless you > mean the basal temperature (measured at the same time each day), since > the _average_ human circadian variation in core temperature is more than > 2 full degrees C or 3.6 degrees F. A normal rate of change is about 0.2 > degrees F per hour, but that is a different issue. I took part in a > circadian rhythm study when I was in my twenties, and everyone there had > variations of several degrees each day. Also, since body temperature > increase is a normal reaction to disease, there are lots of things > besides the adrenals that can change your basal readings. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Exactly. Low ferritin, unaddressed (or improperly addressed) adrenal issues, et al, are usually the cause.Those things are impossible to treat with a synthetic t3 drug. In the case of synthetic t4 drugs, when the body can not tolerate them, can not convert them, etc, that unuseable 'excess' t4, albeit synthetic, gets turned into RT3 so it can be exited out of the body. Sam > > > From: Sam . <k9gang@...> > Subject: Re: RAI > hypothyroidism > Date: Friday, August 27, 2010, 8:26 AM > > > " Mopping up " ? " As a precaution " ? EEK! > > OMG, RadioActive Iodine goes to more places in the body than just the thyroid! It goes to EVERY SINGLE iodine receptor in the body! > And it makes the person getting it MORE susceptable to cancer later on in life. > > Remember, I was given that poison, as were quite a number of the members in my thyroidless group. 25% of them have pituitary damage, some have affected hypothalamus, a few have damaged or now failed adrenal glands, many have ovary and testicular damage, salivary gland damage, damaged eyes, etc. > > Monitor his body temp daily. It should not go below 98.2. If it does, it means a slowed metabolism/hypOthyroid. > Temp should not vary by more than 0.2 degrees. If it does, it's adrenal. That's how you monitor his thyroid/adrenal before things fall apart too much. Your son is now at a 40% higher risk of developing more serious heart issues because of the lack of a thyroid, the radiation, and the t4 drug which itself carries the side effect of heart problems. > > As to RT3, that is what the body normally turns excess t4 into so it can exit the body. Low ferritin, poor adrenal function (low cortisol), t4 drug are things that can cause RT3 to increase, because there is the inability of the body to convert t4. One should never ever 'treat' higher than normal RT3 since it is usually always temporary and is usually caused by other things. > > I am a person who has lost a family member to cancer treatment. > > > Sam > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2010 Report Share Posted August 29, 2010 Hi, Chuck. Are you still a professor of physics and Campus Radiation Safety Officer at Pittsburg State University, Pittsburg, Ks? If so I doubt too many of us can " educate " you. I rather suspect Mike is very lucky to have someone of you capacity looking out for him. I wish you and him the best... .. .. > Posted by: " Chuck B " gumboyaya@... > <mailto:gumboyaya@...?Subject=%20Re%3A%20RAI> gumbo482001 > <gumbo482001> > > > Sat Aug 28, 2010 9:25 am (PDT) > > > > Sam . wrote: > > > > > > Wow, you still seem to be extremely under-informed about all this. > > > So, show me one peer-reviewed medical paper that discusses receptors for > elemental iodine. Are you discounting the gamma scan that showed where > the iodine went? Or my survey meter which I personally held next to > Mike, his bedding, and his clothes? Are you questioning the daily body > temperature fluctuations, which you said should never be greater than > 0.2 degrees F? Here are some plots of the daily temperature rhythm from > published studies, some compared to people with hot flashes or insomnia: > > http://www.undoctoredhealth.com/2009/04/thyroid-self-testing.html > <http://www.undoctoredhealth.com/2009/04/thyroid-self-testing.html> > http://www.endotext.org/neuroendo/neuroendo15/figures/figure4.png > <http://www.endotext.org/neuroendo/neuroendo15/figures/figure4.png> > http://www.internetmasterycenter.com/products/circadian.jpg > <http://www.internetmasterycenter.com/products/circadian.jpg> > http://img.medscape.com/slide/migrated/editorial/cmecircle/2004/3271/images/buys\ se/slide041.gif > <http://img.medscape.com/slide/migrated/editorial/cmecircle/2004/3271/images/buy\ sse/slide041.gif> > > What exactly do you need to re-educate me about? I have already been > around the block with the faculty of an endocrinology department and all > the other doctors I told you about that agreed with them. Since the > nodules were confirmed to be malignant, my perspective is that their > judgment to remove them saved Mike's life. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Not always. Sometimes a shot across the bow will reduce the probability of having to roll out the big guns! [ggg] .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20RAI> > matchermaam <matchermaam> > > > Sun Aug 29, 2010 3:53 pm (PDT) > > > > , don't you know you save the big guns for when you really need > them? LOL > > <>Roni > Immortality exists! > It's called knowledge! > > Just because something isn't seen > doesn't mean it's not there<> > > > > > > Hi, Chuck. Are you still a professor of physics and Campus Radiation > > Safety Officer at Pittsburg State University, Pittsburg, Ks? > > > Guilty as charged. > > Thanks for the kind wishes. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Chuch, as much knowledge as you have, I hoped you would have known better. But, I understand - it's normal to try and justify decisions made. Thyroid cancer is usually very very slow to grow, so there was time to consider less drastic alternatives. Unfortunately the 'cancer' word seems to make people's heads explode, even when they hear it as " suspicious for cancer " . Take DCIS, for example... BTW, when needing to find out whether or not it's safe for a fox to guard the hen house, it's not usually a good idea not to get your information from other foxes (the endo dept). Just keep a close eye on your kid. It's not going to be an easy ride for him now. You know where the thyroidless group is. This isn't really the time to start 'burning bridges'... Sam ===== What exactly do you need to re-educate me about? I have already been around the block with the faculty of an endocrinology department and all the other doctors I told you about that agreed with them. Since the nodules were confirmed to be malignant, my perspective is that their judgment to remove them saved Mike's life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2012 Report Share Posted January 27, 2012 Hi Following the latest visit to my specialist, I have now agreed to say goodbye to my thyroid because the growth I have (I have posted before -I was diagnosed in '09 with papillary cancer and been working on strengthening my body with iodine, diet and supplementation since) has somehow decided to compress my vocal cord and the left one now is paralysed. The op is planned for mid feb but I wanted some help from you guys - I do not want to agree to the RAI and in fact I know I won't be going that way, however I would like to present the specialist with information as to why RAI is not the best thing since sliced bread which he is saying it is with the usual - "it will get rid of any stray cells which we couldn't remove with the TT". Can anyone point me in the direction of some information or send me something that would help explain my reasons why I can't consider it? Thanks a lot Quote Link to comment Share on other sites More sharing options...
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