Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Graves "disease" is cured with enough iodine!! http://www.optimox.com Gracia Yes - don't do it. You need to learn more about the long term impacts of RAI before making a decision that impacts you permanently. Graves disease is very treatable with anti-thyroid medication.Please read Elaine 's book Graves Disease; her articles on Suite 101 are a good place to start. Especially read the articles about RAI, antibodies and Thyroid Eye Disease.http://www.suite101.com/welcome.cfm/graves_diseaseThen, you can join the Graves Disease group for great guidance fro the other folks there.>> I'm scheduled for RAI at the end of the month. Is there anything I > need to know because my doctor is very vague when I ask questions. My > concern right now is the rapid heartbeat, hairloss, heat intolerance, > tremors associated with Grave's disease.> No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1434 - Release Date: 5/15/2008 7:24 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2010 Report Share Posted August 27, 2010 Sam, are you saying that if one has RT3 they should not take T3 only? If you are, what should they do instead? I was sick as a dog with the RT3 and levoxyl. It was tried three times and each time a disaster. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: Sam . <k9gang@...> Subject: Re: RAI hypothyroidism Date: Friday, August 27, 2010, 8:26 AM " Mopping up " ? " As a precaution " ? EEK! OMG, RadioActive Iodine goes to more places in the body than just the thyroid! It goes to EVERY SINGLE iodine receptor in the body! And it makes the person getting it MORE susceptable to cancer later on in life. Remember, I was given that poison, as were quite a number of the members in my thyroidless group. 25% of them have pituitary damage, some have affected hypothalamus, a few have damaged or now failed adrenal glands, many have ovary and testicular damage, salivary gland damage, damaged eyes, etc. Monitor his body temp daily. It should not go below 98.2. If it does, it means a slowed metabolism/hypOthyroid. Temp should not vary by more than 0.2 degrees. If it does, it's adrenal. That's how you monitor his thyroid/adrenal before things fall apart too much. Your son is now at a 40% higher risk of developing more serious heart issues because of the lack of a thyroid, the radiation, and the t4 drug which itself carries the side effect of heart problems. As to RT3, that is what the body normally turns excess t4 into so it can exit the body. Low ferritin, poor adrenal function (low cortisol), t4 drug are things that can cause RT3 to increase, because there is the inability of the body to convert t4. One should never ever 'treat' higher than normal RT3 since it is usually always temporary and is usually caused by other things. I am a person who has lost a family member to cancer treatment. Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2010 Report Share Posted August 27, 2010 Sam, You wrote: > > > ...OMG, RadioActive Iodine goes to more places in the body than just > the thyroid! It goes to EVERY SINGLE iodine receptor in the body! > And it makes the person getting it MORE susceptable to cancer later on > in life. > Technically there is no such thing as a receptor for elemental iodine. There are many receptors for iodine compounds. The ones we are most worried about with hypoT are receptors for T3. However, if you do not have a working thyroid gland and are taking hormone supplements, your receptors should be amply filled already (from the medication), and there will be no pathway for radioactive iodine to be incorporated into the thyroxine pathway (since this is the normal job of the thyroid gland). I verified this distribution with a radiation survey meter about a week after Mike's test. _All_ the activity was concentrated above the waist, mostly in the neck and upper chest. As I said, except for the thyroid gland itself, elemental iodine mainly concentrates in breast and salivary tissue. The gamma scan done at the hospital said the same thing; breast and salivary glands. I was actually surprised at the salivary concentration. It meant we had to change a fairly " hot " pillowcase every morning after he slept on it. In contrast he seemed to perspire relatively little, although we did change all his bedding and clothing everyday as well. Your information about body temperature is also incorrect, unless you mean the basal temperature (measured at the same time each day), since the _average_ human circadian variation in core temperature is more than 2 full degrees C or 3.6 degrees F. A normal rate of change is about 0.2 degrees F per hour, but that is a different issue. I took part in a circadian rhythm study when I was in my twenties, and everyone there had variations of several degrees each day. Also, since body temperature increase is a normal reaction to disease, there are lots of things besides the adrenals that can change your basal readings. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Sam . wrote: > > > Wow, you still seem to be extremely under-informed about all this. > So, show me one peer-reviewed medical paper that discusses receptors for elemental iodine. Are you discounting the gamma scan that showed where the iodine went? Or my survey meter which I personally held next to Mike, his bedding, and his clothes? Are you questioning the daily body temperature fluctuations, which you said should never be greater than 0.2 degrees F? Here are some plots of the daily temperature rhythm from published studies, some compared to people with hot flashes or insomnia: http://www.undoctoredhealth.com/2009/04/thyroid-self-testing.html http://www.endotext.org/neuroendo/neuroendo15/figures/figure4.png http://www.internetmasterycenter.com/products/circadian.jpg http://img.medscape.com/slide/migrated/editorial/cmecircle/2004/3271/images/buys\ se/slide041.gif What exactly do you need to re-educate me about? I have already been around the block with the faculty of an endocrinology department and all the other doctors I told you about that agreed with them. Since the nodules were confirmed to be malignant, my perspective is that their judgment to remove them saved Mike's life. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Sam . wrote: > > > Wow, you still seem to be extremely under-informed about all this. > So, show me one peer-reviewed medical paper that discusses receptors for elemental iodine. Are you discounting the gamma scan that showed where the iodine went? Or my survey meter which I personally held next to Mike, his bedding, and his clothes? Are you questioning the daily body temperature fluctuations, which you said should never be greater than 0.2 degrees F? Here are some plots of the daily temperature rhythm from published studies, some compared to people with hot flashes or insomnia: http://www.undoctoredhealth.com/2009/04/thyroid-self-testing.html http://www.endotext.org/neuroendo/neuroendo15/figures/figure4.png http://www.internetmasterycenter.com/products/circadian.jpg http://img.medscape.com/slide/migrated/editorial/cmecircle/2004/3271/images/buys\ se/slide041.gif What exactly do you need to re-educate me about? I have already been around the block with the faculty of an endocrinology department and all the other doctors I told you about that agreed with them. Since the nodules were confirmed to be malignant, my perspective is that their judgment to remove them saved Mike's life. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Sam, I was on Armour when this all happened. When I couldn't take the Armour anymore, and they discovered the RT3, I was put onto T3 only. It was working. I was titrating up very slowly. Then at some point the doctors decided I should add T4. Terrible idea I got sick as a dog again. Then back to the T3, then tried T4 again, same result. Then after the last time with again the same results, I decided no more. I've been on T3 only and I'm much happier. Then the drugstore changed the mfr, and that put me back again. Now I'm goiing to start back on the one that was working well. My adrenals, and iron are good. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: Sam . <k9gang@...> Subject: Re: RAI hypothyroidism Date: Saturday, August 28, 2010, 8:48 AM Exactly. Low ferritin, unaddressed (or improperly addressed) adrenal issues, et al, are usually the cause.Those things are impossible to treat with a synthetic t3 drug. In the case of synthetic t4 drugs, when the body can not tolerate them, can not convert them, etc, that unuseable 'excess' t4, albeit synthetic, gets turned into RT3 so it can be exited out of the body. Sam > > > From: Sam . <k9gang@...> > Subject: Re: RAI > hypothyroidism > Date: Friday, August 27, 2010, 8:26 AM > > > " Mopping up " ? " As a precaution " ? EEK! > > OMG, RadioActive Iodine goes to more places in the body than just the thyroid! It goes to EVERY SINGLE iodine receptor in the body! > And it makes the person getting it MORE susceptable to cancer later on in life. > > Remember, I was given that poison, as were quite a number of the members in my thyroidless group. 25% of them have pituitary damage, some have affected hypothalamus, a few have damaged or now failed adrenal glands, many have ovary and testicular damage, salivary gland damage, damaged eyes, etc. > > Monitor his body temp daily. It should not go below 98.2. If it does, it means a slowed metabolism/hypOthyroid. > Temp should not vary by more than 0.2 degrees. If it does, it's adrenal. That's how you monitor his thyroid/adrenal before things fall apart too much. Your son is now at a 40% higher risk of developing more serious heart issues because of the lack of a thyroid, the radiation, and the t4 drug which itself carries the side effect of heart problems. > > As to RT3, that is what the body normally turns excess t4 into so it can exit the body. Low ferritin, poor adrenal function (low cortisol), t4 drug are things that can cause RT3 to increase, because there is the inability of the body to convert t4. One should never ever 'treat' higher than normal RT3 since it is usually always temporary and is usually caused by other things. > > I am a person who has lost a family member to cancer treatment. > > > Sam > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 Sam, I was on Armour when this all happened. When I couldn't take the Armour anymore, and they discovered the RT3, I was put onto T3 only. It was working. I was titrating up very slowly. Then at some point the doctors decided I should add T4. Terrible idea I got sick as a dog again. Then back to the T3, then tried T4 again, same result. Then after the last time with again the same results, I decided no more. I've been on T3 only and I'm much happier. Then the drugstore changed the mfr, and that put me back again. Now I'm goiing to start back on the one that was working well. My adrenals, and iron are good. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: Sam . <k9gang@...> Subject: Re: RAI hypothyroidism Date: Saturday, August 28, 2010, 8:48 AM Exactly. Low ferritin, unaddressed (or improperly addressed) adrenal issues, et al, are usually the cause.Those things are impossible to treat with a synthetic t3 drug. In the case of synthetic t4 drugs, when the body can not tolerate them, can not convert them, etc, that unuseable 'excess' t4, albeit synthetic, gets turned into RT3 so it can be exited out of the body. Sam > > > From: Sam . <k9gang@...> > Subject: Re: RAI > hypothyroidism > Date: Friday, August 27, 2010, 8:26 AM > > > " Mopping up " ? " As a precaution " ? EEK! > > OMG, RadioActive Iodine goes to more places in the body than just the thyroid! It goes to EVERY SINGLE iodine receptor in the body! > And it makes the person getting it MORE susceptable to cancer later on in life. > > Remember, I was given that poison, as were quite a number of the members in my thyroidless group. 25% of them have pituitary damage, some have affected hypothalamus, a few have damaged or now failed adrenal glands, many have ovary and testicular damage, salivary gland damage, damaged eyes, etc. > > Monitor his body temp daily. It should not go below 98.2. If it does, it means a slowed metabolism/hypOthyroid. > Temp should not vary by more than 0.2 degrees. If it does, it's adrenal. That's how you monitor his thyroid/adrenal before things fall apart too much. Your son is now at a 40% higher risk of developing more serious heart issues because of the lack of a thyroid, the radiation, and the t4 drug which itself carries the side effect of heart problems. > > As to RT3, that is what the body normally turns excess t4 into so it can exit the body. Low ferritin, poor adrenal function (low cortisol), t4 drug are things that can cause RT3 to increase, because there is the inability of the body to convert t4. One should never ever 'treat' higher than normal RT3 since it is usually always temporary and is usually caused by other things. > > I am a person who has lost a family member to cancer treatment. > > > Sam > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2010 Report Share Posted August 29, 2010 On 8/29/2010 11:12 AM, wrote: > > Hi, Chuck. Are you still a professor of physics and Campus Radiation > Safety Officer at Pittsburg State University, Pittsburg, Ks? > Guilty as charged. Thanks for the kind wishes. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2010 Report Share Posted August 29, 2010 , don't you know you save the big guns for when you really need them? LOL <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> > > Hi, Chuck. Are you still a professor of physics and Campus Radiation > Safety Officer at Pittsburg State University, Pittsburg, Ks? > Guilty as charged. Thanks for the kind wishes. Chuck ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Not since ships were powered by rowers. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> > > > > Hi, Chuck. Are you still a professor of physics and Campus Radiation > > Safety Officer at Pittsburg State University, Pittsburg, Ks? > > > Guilty as charged. > > Thanks for the kind wishes. > > Chuck ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 On 8/30/2010 6:46 PM, Sam . wrote: > > Chuch, as much knowledge as you have, I hoped you would have known > better. But, I understand - it's normal to try and justify decisions made. > In this case, that is easy to do. Had we listened to you, he very likely would be dead by now. He had three follicular tumors, which is the more aggressive and malignant of the common varieties, much faster progressing than the more common papillary carcinoma and nearly impossible to correctly identify without surgery. Contrary to your wait-and-see advice, the combination of tumor size, Mike's age, and the post-op pathology all confirmed that the carcinoma was on the verge of metastasis. We could not have waited longer. As I tried to respectfully tell you prior to the surgery, you are giving advice without knowing the details, based on generalities that can often be wrong. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 This is for Sam. I really don't know who you are, but evidently you have been recognized as a knowledgeable person. I think that since Chuck and his wife had to make the agonizing decisions they made for their son, that at this point some consoling would be in order instead of berating him. Whether you are right or wrong is not the issue at this point. When a parent has to make a decision for surgery for a child it is one of the hardest things they have to do. I know because I had to make a decision for surgery when my son was just a baby. Some kindness and support would be the best thing anyone can do for him at this time. I hope you aren't angry at what I said, I am concerned for Chuck and his family, who will now have to deal with more issues for their son's health. I hope you will offer him the benefit of whatever knowledge and information you have to help him and his family. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> > > Chuch, as much knowledge as you have, I hoped you would have known > better. But, I understand - it's normal to try and justify decisions made. > In this case, that is easy to do. Had we listened to you, he very likely would be dead by now. He had three follicular tumors, which is the more aggressive and malignant of the common varieties, much faster progressing than the more common papillary carcinoma and nearly impossible to correctly identify without surgery. Contrary to your wait-and-see advice, the combination of tumor size, Mike's age, and the post-op pathology all confirmed that the carcinoma was on the verge of metastasis. We could not have waited longer. As I tried to respectfully tell you prior to the surgery, you are giving advice without knowing the details, based on generalities that can often be wrong. Chuck ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2012 Report Share Posted January 27, 2012 Hi ,I wish I had documentation for you. All I have is the scare I received when the RAI capsule was brought out in a little cup and the person bringing it was decked out in full protective gear. in AlaskaOn Fri, Jan 27, 2012 at 6:55 AM, Kuziw <akuziw@...> wrote: Hi Following the latest visit to my specialist, I have now agreed to say goodbye to my thyroid because the growth I have (I have posted before -I was diagnosed in '09 with papillary cancer and been working on strengthening my body with iodine, diet and supplementation since) has somehow decided to compress my vocal cord and the left one now is paralysed. The op is planned for mid feb but I wanted some help from you guys - I do not want to agree to the RAI and in fact I know I won't be going that way, however I would like to present the specialist with information as to why RAI is not the best thing since sliced bread which he is saying it is with the usual - " it will get rid of any stray cells which we couldn't remove with the TT " . Can anyone point me in the direction of some information or send me something that would help explain my reasons why I can't consider it? Thanks a lot Quote Link to comment Share on other sites More sharing options...
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