Hi All

[Guest guest]

Hi Marie,

Have you managed to get on the antibiotics yet?

Chris.

From: Mlf82938@...

gee i was so so sick but better, oh yes thanks my com just got bk on i miss

it up thank god for childrens, my son drives 30 mile just to get me bk on

track, leggs weak, dont know what i had ear side of nexk chest wow glad it

almost over hope its not my sceroderma ra, oh hope not, well how is all my

scleroderma friends out there gee write i do hope your all ok, gee i get

email never heard of those deases, well thanks for readinging i do hope to

hear from ya, oh yes i was told to have blood work on liver for being sick

hope it ok marie

[Guest guest]

In a message dated 12/8/99 7:40:17 AM Eastern Standard Time,

aogilvie@... writes:

<< o keep bags of popcorn in the freezer so that when she has swollen wrists

she can use them to help a litte >>

I have always used heat with holly, the cold always seems to bother her

[Guest guest]

Hi Ady,

I usually write long notes but I've got to pick Josh and Kayla up from

school in just a couple minutes ... so this one will be nice and brief.

First off, I just wanted to say that if there's ever some words that you

don't understand, please ask about them! Somebody on the list may know

what it means and be able to explain it better, which will benefit all

of us. I'm very glad you brought that up! Thanks

I'm so happy to hear that is feeling lots better. I'm glad she's

comfortable about wearing the braces at night. I hope they help keep

those joints in line!

Has her regular pediatrician prescribed a daily multi-vitamin with iron

and fluoride? That's what my kids take, except Josh's doesn't have iron

as he takes those as a special supplement. I used to buy them over the

counter but their insurance covers it if the doctor write out a

prescription. That saves a little

I understand how must feel about coming to terms with having JRA.

I think they all have to go through it. Josh recently wrote a paper for

a writing assignment. The topic was Anything's Possible. It's a national

contest from the PTA, so other kids here may have had to write about it

too? Anyway, Josh's paper was short and sweet but the main concept was

that since anything's possible, it is possible that one day his

arthritis may just go away. And that's his number one wish. I wish I

made a copy of it before he had to turn it in. Maybe I'll post it when

the kids get their papers back

My daughter explains JRA to lots of her friends and classmates. Josh is

more on the quiet side and he's told her he doesn't mind if she tells

people all the details about it. She could probably give a lecture on

it! Well, she often does

Oh, it's time for me to go already. I just wanted to say thanks for

writing. And thanks for the holiday wishes. And I hope that soon megan

will be out there playing along with all of the other little kids, and

not just watching from the sidelines.

Aloha,

Georgina

[Guest guest]

Hi I'm just surfing my husbands site since I have RA and he has

PA---keeping it all in the family. I was just diagnosed last year so I

know what your feeling like your life is turning to s--- right in front

of you. Fortunitely for me I found the http://rheumatic.org site and

when on antibiotics it has worked for me, I think it saved my life, only

time will tell for for now it's working. You might want to read The

Arthritis Breakthought and try the site it will certainly give you more

hope than the arthritis foundation will.

> Katrina & Joe wrote:

>

> From: " Katrina & Joe " <boorah@...>

>

> Hello everyone,

>

> I am 25 and just got this terrible disease. I dont know much about it

> but what I have read doesnt lift my spirits. I have it on my scalp

> elbows and now spreading....... my knees and now spreading there also.

> My foot was swollen so was my toe. now my knee and finger... The med

> icine my doc gave me for my arms legs and scalp doesnt work. I have

> tried EVER over ther counter stuff I can get my hands on.... Now I am

> just using suave . It doesnt make it no worse or make it better. I do

> put baby oil on my scalp at night sometimes..... very messy but it

> helps with the tightness for the next day.... I guess i am just

> screwed for the rest of my life huh.?

> I cant stop picking and itching at it all.... if anyone can help me

> by words or meds PLEASE..... I don't think I can handle all of this

>

> ----------------------------------------------------------------------

> [

[Guest guest]

To Katrina or Joe,

For your scalp psoriasis...try the new over-the-counter shampoo called Nizoral

ND. I use the prescription form and it works well for me. I also use a shampoo

with Tea Tree Oil in it when the psoriasis gets itchy. I use this in the bath

so I can let it sit on my scalp a while. The Tea Tree oil " cools " it all down

and works for several days. Mitchel has an excellent brand.

[Guest guest]

Hi April,

I'm so glad you are joining us. You will really learn a lot here, and

get a lot of support too.

Claudine

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

Group

Isn't Enterferon what we get out of cottage cheese and flax oil? If so we

can buy it.

I got enterferon from Mexico and you don't have to have dairy that way. Any

comments appreciated.

Ann

[Guest guest]

You may not appreciate this comment:

What the hell is Enterferon? Do you mean

Interferon? And how much for how long

a supply? Do you get it through mail ?

Best, JR

Group

Isn't Enterferon what we get out of cottage cheese and flax oil? If so we

can buy it.

I got enterferon from Mexico and you don't have to have dairy that way. Any

comments appreciated.

Ann

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[Guest guest]

JR,

Yes I mean Interferon, sorry, I was in a hurry. I got it from American

Metabolic Institute in San Diego or I should say they actually gave it to me

in Tijuana at Dr. Rubio's clinic. Is there a problem getting it here? I

don't know how much it was because it was in a package with all my meds. I

will try to remember to call them and find out if they can get it for other

people if you like and you don't curse at me again. What do you know about

it? Is that what people take cottage cheese and flax oil for?

JA

[Guest guest]

I asked you those questions for the benefit

of the group. I am not interested personally

at this time but I'll bet there are many out there

who would like to have access to interferon at

a good price. JR

JR,

Yes I mean Interferon, sorry, I was in a hurry. I got it from American

Metabolic Institute in San Diego or I should say they actually gave it to me

in Tijuana at Dr. Rubio's clinic. Is there a problem getting it here? I

don't know how much it was because it was in a package with all my meds. I

will try to remember to call them and find out if they can get it for other

people if you like and you don't curse at me again. What do you know about

it? Is that what people take cottage cheese and flax oil for?

JA

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[Guest guest]

Robbin,

I think that can sometimes be one of teh most frustrating things about

this disease is that it can change so rapidly. One days they are up & playing

teh next they are in teh bed in pain. Ashton has been having problems again

lately too. I find myself at times questioning is this pain or what.. I hate

that I've never had to do that before but it's just getting adjusted if theer

is such a thing to the nature of this disease. I'll be praying for

...... Kris

[Guest guest]

Robbin,

I know school just recently started, but maybe is sore and stiff due

to the schedule change and tiring of a school day? The weather has really

been messing with Kelsey this week, although she is still active and not in

any pain. Today, however, when she was getting off the " big potty " (she just

stopped using a small potty chair, and this is a big deal for her!) she kind

of jumped down and hurt her knees. She cried, and it seemed to bother her for

about an hour after she did it. Things like that really do break your heart,

seeing them go from happy and feeling good, to absolutely miserable and

crying in pain. It always makes me appreciate the good days, though.

I hope gets to feeling better, and can stay that way! I'm sure

school is tough on her, and plays a role in the bad days he had. Take care,

[Guest guest]

I've noticed a few people say their child has been having a rough time the

past week or so, I'm wondering if the season changing could be playing a

role in it, not just rain?

[Guest guest]

I am not very good with word, but Hang in there Robbin. I believe whole

heartedly the damp weather make a big difference, I also think stress make a

difference, Like starting school. I wish you well.

[Guest guest]

Kris

i try to push her to her limit so she will see her own limitations

tuesday we were walking home and she looked at me and said ma i told you i

cant do this i am hurting bad i told her just 2 more blocks honey and we

will be home

i finally let her rest to see the other kids running and playing everyday

and melissa has to rest like this shes 13 years old she is supose to be out

playing without saying ma i am tired or i am hurting

this is fustrateing

this morning she was slow getting dressed and we were late to school this

tardy woman put down it was for personal reasons and it was not excused

tardy

this woman knows whats going on i have talked to her alot

but she HAS to cover her butt she said

i am calling the doctor today and telling her whats going on

it wouldnt be so bad if the school didnt put so much pressure on us parents

to get the kids there on time

as i told her look do you know if you will be sick in the morning she said

no

i said ok then i dont know if melissa will be jumping around in the morning

or in bed saying she cant move her smart remark was then you need to wake

her up earlier and see ooooooooooooooo i almost lost my control over that

i turned around and walked out and said melissa might just be late tomorrow

to

she said why i said well it MIGHT be raining lololololol

thought yall would like a laugh this morning

i laughed all the way home

then told my hubby about it lololol

i have papers i printed out for this reason for 504 plan

it states everything the child needs in the 504 lololol

think i will have a sarcastic attitude with her when i hand her a copy of

this

and say your homework tonight is to READ every word in this

and no skiping over anything cause i will ask you questions when you least

expect it

Robbin

[Guest guest]

get your daughter a cinder block or a brick to sit next to the toilet

this will help her step up and have her legs on something instead of dangling

and it helps to get off better

melissa was really small when she first started useing the big one

she would have to climb on it till my father in law suggestted this

a few heads in the toilet made her scared of it lolololol

i remember the day she ran in the bathroom and jumped on the toilet

cause my son said it was snowing outside

lololol the lid use to be closed all the time but this day it was open

and she ended up in that toilet feet first lololololol

Robbin

[Guest guest]

i have wondered that myself

new routine adjusting to it

but i do feel changes in the season does

weather also

with melissas asthma the changes in season does it

Robbin

[Guest guest]

Robbin,

My mom has a little step stool she uses for Kelsey at her house, so I plan to

get one just like it. She used to not be able to climb up on the toilet by

herself because of her hands, but after being around her cousin, also 3, and

seeing her use the " big potty " , Kelsey won't use the little one anymore! lol

I'm glad, and she is also putting weight on her hands now to push herself up

on it. In fact, last night I cleaned up the little potty chair and packed it

away! Anyway, thanks for the advice

[Guest guest]

lololol you put it away i did melissas to

hers was my sons then she used it now its in the attic of my garage

waiting on grand kids lolololol

no time soon i hope

Robbin

[Guest guest]

I thought of letting the girls decorate a cinder block, because our bathroom

floor is very slippery. My mom uses a little stool, but her bathroom has

carpet in it. Great idea!

[Guest guest]

Hi Robbin,

That's a good idea, about the cinder block. You could either paint it

with nice colors/designs, or maybe even cover it with felt or something?

Being so heavy, it would be more of a permanent bathroom fixture,

instead of the stepping stools that we use around here. They have those

little rubber stoppers on the bottom so they don't slip much but they do

move a little.

Thanks for sharing that story. Made me smile

Aloha,

Georgina

Robbin40@... wrote:

>

> get your daughter a cinder block or a brick to sit next to the toilet

> this will help her step up and have her legs on something instead of dangling

> and it helps to get off better

> melissa was really small when she first started useing the big one

> she would have to climb on it till my father in law suggestted this

> a few heads in the toilet made her scared of it lolololol

> i remember the day she ran in the bathroom and jumped on the toilet

> cause my son said it was snowing outside

> lololol the lid use to be closed all the time but this day it was open

> and she ended up in that toilet feet first lololololol

> Robbin

[Guest guest]

Hi,

Hang in there, Robbin. With your determined perseverence they're bound

to get the point sooner or later. Hopefully, sooner Sorry it has to

be so hard, though.

Take care,

Georgina

Robbin40@... wrote:

> Kris

> i try to push her to her limit so she will see her own limitations

> tuesday we were walking home and she looked at me and said ma i told you i

> cant do this i am hurting bad i told her just 2 more blocks honey and we

> will be home

> i finally let her rest to see the other kids running and playing everyday

> and melissa has to rest like this shes 13 years old she is supose to be out

> playing without saying ma i am tired or i am hurting

> this is fustrateing

> this morning she was slow getting dressed and we were late to school this

> tardy woman put down it was for personal reasons and it was not excused

> tardy

> this woman knows whats going on i have talked to her alot

> but she HAS to cover her butt she said

> i am calling the doctor today and telling her whats going on

> it wouldnt be so bad if the school didnt put so much pressure on us parents

> to get the kids there on time

> as i told her look do you know if you will be sick in the morning she said

> no

> i said ok then i dont know if melissa will be jumping around in the morning

> or in bed saying she cant move her smart remark was then you need to wake

> her up earlier and see ooooooooooooooo i almost lost my control over that

> i turned around and walked out and said melissa might just be late tomorrow

> to

> she said why i said well it MIGHT be raining lololololol

> thought yall would like a laugh this morning

> i laughed all the way home

> then told my hubby about it lololol

> i have papers i printed out for this reason for 504 plan

> it states everything the child needs in the 504 lololol

> think i will have a sarcastic attitude with her when i hand her a copy of

> this

> and say your homework tonight is to READ every word in this

> and no skiping over anything cause i will ask you questions when you least

> expect it

> Robbin

[Guest guest]

Hi Debra,

I'm glad the Paxil is helping. I didn't have the nausea, but my trembling hands took at least a couple of weeks before they stopped. I know it takes time for the body to adjust to the med.

As for the pred, I'd ask your doc what his strategy is. Some docs treat the flare with pred, taper, and monitor for relapse. In the early stages, some feel this is better than continual medication. A small percent never relapse, so I guess it's worth the try.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: debra yarbrough [mailto:Chan_lace_@...]Sent: Friday, October 06, 2000 8:12 AM egroupsSubject: [ ] Hi AllGood Morning, I have a couple of questions and hope someone has the answers.I started on paxil last week 20mg at bedtime, I am feeling better much lessstressed but I am continuosly nauseated from the time I get up untilmid-afternoon. I have been living on diet 7up and it was so bad yesterday Icouldn't take my supplements. Has anyone else had this problem with paxiland how long will it last? Also, it seems like there were some post onprednisone taken every day vs every other day. I have been reduced to pred5mg every other day since July with no discussion of adding imuran. Is thisunusual?Debrayour gentle friendGod Bless_______________________________________________________Say Bye to Slow Internet!http://www.home.com/xinbox/signup.html

[Guest guest]

Dear Connie,

Wow, just what you didn't need! Another problem!

I have read that there is a high incidence of Diabetes

type II in people with HCV. But don't give up! Maybe

this place they told you about can put you in touch

with other places to get help. Keep us posted.

Take care,

Claudine

---

<constance_clearwater_florida@...> wrote:

> I was in the ER last night and this morning. I have

> been told I have Diabetes.

__________________________________________________

[Guest guest]

Dear Connie

I am sorry to hear the troubles you are having with diabetes and expensive

prescriptions. A while ago I looked after a friend who had, among other

things, diabetes. she got a blood sugar measuring gadget from the drugstore

and used it twice a day or more often if she was feeling ill. She then

adjusted her levels with her diet . She used fruit & fruit juices a lot,

also pasta to give her a quick boost when her levels were low. When her

levels were toohigh she avoided these foods. she ate lots of protein too.

This worked for her. she was quite seriously ill, having been hospitalised

with malnutrition due to untreated something or other colitis (sorry brain

fog!!). She recovered quite fast, and never took meds for the diabetes.

One thing to definitely avoid is sugar. also honey and maple syrup. so cut

out the chocolate ice cream, sorry!!

hope this helps. love sylv

Hi All

> I was in the ER last night and this morning. I have

> been told I have Diabetes. But, at least it can be

> controlled with pills (Dr said that). It is

> constantly something. Sometimes you just feel like

> giving up. I went there because I had a pelvic

> infection (Thrush), the Dr said it was because of the

> Hep C and the Diabetes. They gave me two

> prescriptions to fill knowing I had no insurance or

> money and they cost $142. together. Tuesday (Monday

> is Columbus day)I will contact this place they told me

> about. It is called MAP, I am told they will help

> with the scripts my blood sugar was either 330 or 360

> I can't remember. Well, I am going to do some

> research because I know nothing about blood sugar

> levels etc........Take Care, Connie

>

>

> __________________________________________________

>