Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Our daughter Maggie was banded at 1 year. We achieved great success. It hink it is because she grew a lot during that time. She was always off the height chart since birth on the tall end and went from a 18 month clothes to some size 3ts in just 4 months. Don't feel guilty - many of us had Doctors who said it would round out on its own. My own Doc said Maggies would still round out at her 10 month check up. Good luck. Oh - by the way, Maggie wore her helmet for 4 months and we achieved about 80% correction. Her forehead is perfect. He right side is still more rounded than the left though. Kaycee in Albany, NY > Hi everybody, > > First, I would like to thank you ALL for being so supportive.I've > been reading all your messages for a while now, but this is the first > time I'm writing.I live in the UK, and here, children are not treated > for plagiocephaly AT ALL.I was so desperate since my son Boris was 4 > weeks old.It took about 4 months just to diagnose him with > plagiocephaly.As many of you, we were told it would 'round' by > itself, which never happened.I found some information on ivillage.com > about helmets, but when I told to Dr.s about this, they said it is no > good, doesn't help at all etc.So we just decided that we have to live > whith that.But I couldn't.I am so angry with myself that I didn't > look on the web about helmets earlier.I've seen some articles about > treatment with DOC band in older children.I know that it can help > even if started at 18 months, but not as efective.Are there any mums > whose child started as late?We are going to Spain next week(only > there in Europe we can get DOC band).Any advice would be helpfull.I > am so sad we waited so long,and feel kind of guilty. > Thanx again for being so supportive and great mums. > andra-Boris's mum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi andra, Dont feel guilty - we all listen to what doctors tell us, because they are supposed to be the experts. You've done the right thing in finding out more, and Boris will thank you for that. Im also from the UK, but living in the US. I know that STAR bands are made to order and mailed out, so if you could find an orthotist in the UK who is willing to oversee the treatment, that might be a possibility if Spain doesnt work out. The STAR band site is http://www.orthomerica.com . I know Jaya was looking into treatment in Europe, so hopefully she may have more answers. Good luck, and dont feel bad about this - you are doing your best and that makes Boris a very lucky boy. Kimberley (Evan and Hope's Mummy) > Hi everybody, > > First, I would like to thank you ALL for being so supportive.I've > been reading all your messages for a while now, but this is the first > time I'm writing.I live in the UK, and here, children are not treated > for plagiocephaly AT ALL.I was so desperate since my son Boris was 4 > weeks old.It took about 4 months just to diagnose him with > plagiocephaly.As many of you, we were told it would 'round' by > itself, which never happened.I found some information on ivillage.com > about helmets, but when I told to Dr.s about this, they said it is no > good, doesn't help at all etc.So we just decided that we have to live > whith that.But I couldn't.I am so angry with myself that I didn't > look on the web about helmets earlier.I've seen some articles about > treatment with DOC band in older children.I know that it can help > even if started at 18 months, but not as efective.Are there any mums > whose child started as late?We are going to Spain next week(only > there in Europe we can get DOC band).Any advice would be helpfull.I > am so sad we waited so long,and feel kind of guilty. > Thanx again for being so supportive and great mums. > andra-Boris's mum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi Kimberley, thank you for telling me about http://www.orthomerica.com,I already contacted them,but unfortunately, Orthomerica can not sell the STARband in the UK due to EEC(European Economic Community) and EFTA (European Extended Free Trade Association) required compliance.But,anyway,I already made arrangements with people in Spain.They are going to assist to the 5th Spanish-Sirian Congress in Damascus to explain their experience about the plagiocephaly and its treatment with Doc Band ®.For that reason, we can see them after the Eastern week.I can't wait!Since we are getting treatment abroad, there is no way insurance will pay for any expencies(which will be huge,because we can't travel every 2 weeks for check- ups).Fortunatelly, we have friends in Spain and can spend some time with them.I think I would sell everything I have, just to get the treatment! Thank you for everything you wrote.It really means a lot! andra-Boris's mum > > Hi everybody, > > > > First, I would like to thank you ALL for being so supportive.I've > > been reading all your messages for a while now, but this is the > first > > time I'm writing.I live in the UK, and here, children are not > treated > > for plagiocephaly AT ALL.I was so desperate since my son Boris was > 4 > > weeks old.It took about 4 months just to diagnose him with > > plagiocephaly.As many of you, we were told it would 'round' by > > itself, which never happened.I found some information on > ivillage.com > > about helmets, but when I told to Dr.s about this, they said it is > no > > good, doesn't help at all etc.So we just decided that we have to > live > > whith that.But I couldn't.I am so angry with myself that I didn't > > look on the web about helmets earlier.I've seen some articles about > > treatment with DOC band in older children.I know that it can help > > even if started at 18 months, but not as efective.Are there any > mums > > whose child started as late?We are going to Spain next week(only > > there in Europe we can get DOC band).Any advice would be helpfull.I > > am so sad we waited so long,and feel kind of guilty. > > Thanx again for being so supportive and great mums. > > andra-Boris's mum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Good luck with Spain - it is good that you have friends out there. Not only does it cut the cost of each trip, but it also means you have somewhere more home-like to stay, and you will all be more comfortable. Hopefully Boris will put on a nice growth spurt as soon as he is in the band and it will be off in no time. Keep us all posted on how it goes, Kimberley (Hope and Evan's Mummy) > > > Hi everybody, > > > > > > First, I would like to thank you ALL for being so supportive.I've > > > been reading all your messages for a while now, but this is the > > first > > > time I'm writing.I live in the UK, and here, children are not > > treated > > > for plagiocephaly AT ALL.I was so desperate since my son Boris > was > > 4 > > > weeks old.It took about 4 months just to diagnose him with > > > plagiocephaly.As many of you, we were told it would 'round' by > > > itself, which never happened.I found some information on > > ivillage.com > > > about helmets, but when I told to Dr.s about this, they said it > is > > no > > > good, doesn't help at all etc.So we just decided that we have to > > live > > > whith that.But I couldn't.I am so angry with myself that I didn't > > > look on the web about helmets earlier.I've seen some articles > about > > > treatment with DOC band in older children.I know that it can help > > > even if started at 18 months, but not as efective.Are there any > > mums > > > whose child started as late?We are going to Spain next week (only > > > there in Europe we can get DOC band).Any advice would be > helpfull.I > > > am so sad we waited so long,and feel kind of guilty. > > > Thanx again for being so supportive and great mums. > > > andra-Boris's mum Quote Link to comment Share on other sites More sharing options...
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