Re: 's trip to neurosurgeon today

[Guest guest]

Glad to hear 's appointment went well. Good luck with the band.

Stasia

> Hello! Just wanted to update about . The neurosurgeon told us

> today that he does not think there is early fusion, so we can go

> ahead and try the helmet. It will be ready on Tuesday. I'm

relieved

> to know there is no cranio, but still am so worried about starting

> this whole process so late. is 11 months old. The neuro

didn't

> appear too optomistic about the helmet therapy. He said surgery at

> this point would be " cosmetic " . Our plastic surgeon did not refer

us

> to a DOC place, but a place local to the hospital he works with.

> They make the helmets there on sight and seem very knowledgeable

> about them. The only thing I was not comfortable with was that

they

> have not made very many for kids 's age. He kinda made us feel

> like we were too late. We want to give it a try .... at least for

a

> few months. That is, if we can get her to keep it on! I know many

> of you must know how I'm feeling, and it's not a good feeling. I'm

> just glad this group is here for the support and the knowing that

we

> are not alone.

>

>

[Guest guest]

,

Glad to hear that you will be going ahead with the helmet therapy.

Don't let the Dr.s get you down alot of families have seen major

improvement even after 11 months. Just keep a positive outlook and

everything will take care of itself.

Good Luck,

April

Mommy to Bri and Mandy

> Hello! Just wanted to update about . The neurosurgeon told us

> today that he does not think there is early fusion, so we can go

> ahead and try the helmet. It will be ready on Tuesday. I'm

relieved

> to know there is no cranio, but still am so worried about starting

> this whole process so late. is 11 months old. The neuro

didn't

> appear too optomistic about the helmet therapy. He said surgery at

> this point would be " cosmetic " . Our plastic surgeon did not refer

us

> to a DOC place, but a place local to the hospital he works with.

> They make the helmets there on sight and seem very knowledgeable

> about them. The only thing I was not comfortable with was that they

> have not made very many for kids 's age. He kinda made us feel

> like we were too late. We want to give it a try .... at least for a

> few months. That is, if we can get her to keep it on! I know many

> of you must know how I'm feeling, and it's not a good feeling. I'm

> just glad this group is here for the support and the knowing that we

> are not alone.

>

>