Re: Question - Need some input

[Guest guest]

When we first became aware that there was a problem with my grandson's head shape, we had no idea that there was such a thing as Plagio. I really didn't think I would find anything, so I put in a search for "Baby Skulls" and came up with the right links to take me to Plagio, which I am convinced that he has, however we can not get him in to the Specialist until the end of May. That is a real bummer for us because he is already 9 months old. I do have a question that you may or may not be able to answer: He is a preemie and would his adjusted age make a difference considering it is best to get treatment much earlier than this as he will be 11 months old at the time of the initial visit? His adjusted age right now is 6 months.

Thank you,

Cheryl Cochran....'s Mom Mom

[Guest guest]

Thank you so much for your reply...It is greatly appreciated and I also feel a little bit more at ease now.

Cheryl.......'s Mom Mom

[Guest guest]

Jaya,

When Josh was diagnosed, by his pt, she told us he

had " paleoencephaly " . When I typed this in to search,

it didn't exist!! DUH, if your going to diagnose,

make sure you have the proper disease / condidtion!

I logged onto Dr. a and asked about

paleoencephaly, and was told it was plagiocephaly and

go to the Grace Lorileigh webpage. In there was the

link to the board.

Jill

--- Jaya Dong <angandjaya@...> wrote:

> Hello All,

>

> As you know I am busy redesigning the CAPPS website.

> I have a

> question for you all. When you first knew something

> was not right

> wiht your child's head and decided to go to the web,

> what words did

> you place in the search engine? I am looking for

> words other then

> Plagio that people would search under.

>

> You can e-mail me privately if you would like at

> angandjaya@...

>

> As always, thank you for you unending support!

>

> Sincerely,

> Jaya Dong

> http://www.CAPPSkids.org

>

>

__________________________________________________

[Guest guest]

Hi Jaya...

Thanks for all of your hard work!!!

When I finally was brave to research I tried all sorts of things.... "Abnormal Head Shape" got me to the Texas Cranialfacial Institute, and lead me to the plagiocephaly words which I could put into search engines, and then lead to other sites.

H. Mom to Quinn, DOC graduate 10/00 for scaphocephalic head shape.

(aka Kali)

-----Original Message-----From: Jaya Dong [mailto:angandjaya@...]Sent: Saturday, March 31, 2001 8:39 AMPlagiocephaly Subject: Question - Need some inputHello All,As you know I am busy redesigning the CAPPS website. I have a question for you all. When you first knew something was not right wiht your child's head and decided to go to the web, what words did you place in the search engine? I am looking for words other then Plagio that people would search under.You can e-mail me privately if you would like at angandjaya@...As always, thank you for you unending support!Sincerely,Jaya Donghttp://www.CAPPSkids.org