Re: Question - Need some input--Cheryl

[Guest guest]

Sue,

Thanks for the reply. First thing Monday morning I will start the "bugging" process. By the way, Apnea doctors, his Pediatrician, and ITAP doctors have said all along that it is nothing to really worry about as his head will round out as he starts sitting and crawling and walking.

That frustrates me to no end. It seems to me that they should have shown some concern when he was diagnosed with Torticollis and treated for it.

The PT told us of the importance of "belly time" but it was presented to us in a way that it would help strenghthen the neck muscles. I really wish we were more educated on the importance of positioning and why it should be done. Thanks for listening.

Cheryl......'s Mom Mom

[Guest guest]

Sitting thinking of what you have said leads me to believe that maybe the Specialist is not "squeezing" us in due to the fact that we have no real diagnosis. We have an appointment with 's pediatrician on Tues. to show him and make him recognize that there is a problem here. Do you think it is possible for the Pediatrician to order the x-rays and take a look at them to rule out the premature fusing of a suture? Although, based on everything I have learned over the last few days, I highly doubt that is the problem. The wait wouldn't be nearly as agonizing if we knew for sure that that is not an issue. I hope I am wording things the right way, I have always had a problem putting my feelings into words.

Cheryl

[Guest guest]

Cheryl,

Our orthotist always used both 's actual and adjusted ages, as

she was also a premie. In terms of her treatment, he stressed that

her adjusted age was most important and that it was like starting

treatment on a younger baby. She got her band a 8 months, 1 week and

he said it was like banding a 7 month baby ( she was 5 weeks

premie). Does that make sense? Hope this helps. BTW, it can't

hurt to constantly call the specialist, ask for cancellations, ask to

be put on a list for cancellations, anything you can do to get in

earlier. Mention plagiocephaly and the time window for treatment and

how you need to be seen ASAP! It worked for us...just my 2 cents.

Good luck.

Sue and

> When we first became aware that there was a problem with my

grandson's head

> shape, we had no idea that there was such a thing as Plagio. I

really didn't

> think I would find anything, so I put in a search for " Baby Skulls "

and came

> up with the right links to take me to Plagio, which I am convinced

that he

> has, however we can not get him in to the Specialist until the end

of May.

> That is a real bummer for us because he is already 9 months old. I

do have a

> question that you may or may not be able to answer: He is a

preemie and

> would his adjusted age make a difference considering it is best to

get

> treatment much earlier than this as he will be 11 months old at the

time of

> the initial visit? His adjusted age right now is 6 months.

> Thank you,

> Cheryl Cochran....'s Mom Mom

[Guest guest]

Cheryl,

Soooo many of us have been told that it would " round out " on its own

and that may be the case for a mild case of plagio. We began

actively repositioning when she was 9 weeks old and got no

improvement. Even at 6 months, our ped said it might not get better

but that she was a girl and hair would cover it. He did not notice

her facial asymmetry and ear misalignment. After internet research,

I got another opinion from a craniofacial specialist familiar with

plagio who got us in within 2 weeks due to the time sensitive nature

of this treatment. Please be sure your specialist is familiar with

plagiocephaly, otherwise the wait will have been for nothing. Hope

this helps and good luck.

Sue &

Bakersfield, CA

> Sue,

> Thanks for the reply. First thing Monday morning I will start

the " bugging "

> process. By the way, Apnea doctors, his Pediatrician, and ITAP

doctors have

> said all along that it is nothing to really worry about as his head

will

> round out as he starts sitting and crawling and walking.

> That frustrates me to no end. It seems to me that they should have

shown

> some concern when he was diagnosed with Torticollis and treated for

it.

> The PT told us of the importance of " belly time " but it was

presented to us

> in a way that it would help strenghthen the neck muscles. I really

wish we

> were more educated on the importance of positioning and why it

should be

> done. Thanks for listening.

> Cheryl......'s Mom Mom

[Guest guest]

P.S. I remember being so relieved when the doctor said it would

round out on its own and trusting him so blindly. Never again!!!

BTW, it's pretty much impossible to reposition a 9 month old who

usually can sleep however he wants! lol Sue

> > Sue,

> > Thanks for the reply. First thing Monday morning I will start

> the " bugging "

> > process. By the way, Apnea doctors, his Pediatrician, and ITAP

> doctors have

> > said all along that it is nothing to really worry about as his

head

> will

> > round out as he starts sitting and crawling and walking.

> > That frustrates me to no end. It seems to me that they should

have

> shown

> > some concern when he was diagnosed with Torticollis and treated

for

> it.

> > The PT told us of the importance of " belly time " but it was

> presented to us

> > in a way that it would help strenghthen the neck muscles. I

really

> wish we

> > were more educated on the importance of positioning and why it

> should be

> > done. Thanks for listening.

> > Cheryl......'s Mom Mom

[Guest guest]

P.S. I remember being so relieved when the doctor said it would

round out on its own and trusting him so blindly. Never again!!!

BTW, it's pretty much impossible to reposition a 9 month old who

usually can sleep however he wants! lol Sue

> > Sue,

> > Thanks for the reply. First thing Monday morning I will start

> the " bugging "

> > process. By the way, Apnea doctors, his Pediatrician, and ITAP

> doctors have

> > said all along that it is nothing to really worry about as his

head

> will

> > round out as he starts sitting and crawling and walking.

> > That frustrates me to no end. It seems to me that they should

have

> shown

> > some concern when he was diagnosed with Torticollis and treated

for

> it.

> > The PT told us of the importance of " belly time " but it was

> presented to us

> > in a way that it would help strenghthen the neck muscles. I

really

> wish we

> > were more educated on the importance of positioning and why it

> should be

> > done. Thanks for listening.

> > Cheryl......'s Mom Mom

[Guest guest]

OOPS! Sorry for the double post! Sue ;~)

> > > Sue,

> > > Thanks for the reply. First thing Monday morning I will start

> > the " bugging "

> > > process. By the way, Apnea doctors, his Pediatrician, and ITAP

> > doctors have

> > > said all along that it is nothing to really worry about as his

> head

> > will

> > > round out as he starts sitting and crawling and walking.

> > > That frustrates me to no end. It seems to me that they should

> have

> > shown

> > > some concern when he was diagnosed with Torticollis and treated

> for

> > it.

> > > The PT told us of the importance of " belly time " but it was

> > presented to us

> > > in a way that it would help strenghthen the neck muscles. I

> really

> > wish we

> > > were more educated on the importance of positioning and why it

> > should be

> > > done. Thanks for listening.

> > > Cheryl......'s Mom Mom

[Guest guest]

Please be sure your specialist is familiar with plagiocephaly, otherwise the wait will have been for nothing.

Sue! Very good point! Cheryl, please call this specialists office to find out, and if s/he doesn't see plagio babies, you can find a list of recommended specialists at

http://www.plagiocephaly.org/ppcs-location.asp

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: sbonna@...

Plagiocephaly

Sent: Saturday, March 31, 2001 8:51 AM

Subject: Re: Question - Need some input--Cheryl

Cheryl,Soooo many of us have been told that it would "round out" on its own and that may be the case for a mild case of plagio. We began actively repositioning when she was 9 weeks old and got no improvement. Even at 6 months, our ped said it might not get better but that she was a girl and hair would cover it. He did not notice her facial asymmetry and ear misalignment. After internet research, I got another opinion from a craniofacial specialist familiar with plagio who got us in within 2 weeks due to the time sensitive nature of this treatment. Please be sure your specialist is familiar with plagiocephaly, otherwise the wait will have been for nothing. Hope this helps and good luck.Sue & Bakersfield, CA> Sue,> Thanks for the reply. First thing Monday morning I will start the "bugging" > process. By the way, Apnea doctors, his Pediatrician, and ITAP doctors have > said all along that it is nothing to really worry about as his head will > round out as he starts sitting and crawling and walking.> That frustrates me to no end. It seems to me that they should have shown > some concern when he was diagnosed with Torticollis and treated for it.> The PT told us of the importance of "belly time" but it was presented to us > in a way that it would help strenghthen the neck muscles. I really wish we > were more educated on the importance of positioning and why it should be > done. Thanks for listening.> Cheryl......'s Mom Mom