Re: Thanks to those trying to get the word out about plagio

[Guest guest]

,

I think a bunch of us here will really relate to your post. So many of us in

this group feel mistreated, misled and bascially taken for granted by the

medical field. It can be SOOO frustrating! It really does prove what I have

always believed - Parents are the very best advocates their children will

ever have!! That is one of the most important aspects of parenting - being an

advocate for our children. So, if we have to do the research and " force feed "

the information on our doctors I guess that is what we will do. It doesn't

seem right, but for our babies we will do just about anything!

I appreciate your post - I think it reflects the feelings of a large number

of us in this group. We have so many people here who have been so good about

getting the word out and they deserve a round of applause!!!

Marci (Mom to - helmet grad)

Oklahoma

[Guest guest]

I to can relate to the frustration of being in the peds. office and the Dr.

being defensive.

My son has had a head deformity since he was 2 mos. When I expressed my

concerns of his head shape to the Dr. she laughed and called him a " toaster

head " . The Dr. told us not to worry it would round out. My son is now 4

mos. old, and his head is still mishappen, and his forhead is starting to

bulge. After alot of research on Plagio. I found a Specialist at Cedar

Sinae Hospital (they have a plagio clinic) who agreed to see us if I had a

referral from my Dr. On Monday I went to see my Ped. who was upset that I

had educated myself, I showed her literature on the Plagio studies and the

long term results if left untreated. She became angry and said if we banded

our son we would be " torturing him " . The Dr. also stated that in all her

years of practice all babies heads rounded out eventually, and if not they

could have " surgery " to correct the problem, and we should trust her

opinion. She then started to turn to my husband and lead him to believe that

I am being oversensitive to a normal condition. When I told her I would

like a referral she refused. I left the office feeling even more confused

and upset. My husband left feeling that the Dr. must be right and now he

does not want to meet with the specialist. I am still going to the

appointment with the specialist ( he agreed to see us without the referral),

but without the referral our insurance will not pay for the visit. I have

never been so upset, one minute I feel I am doing the best for my son, and

the next I feel I am being neurotic. I have lost sleep and shed many tears.

I am just so confused and very frustrated.

Dori , Wills Mom

[Guest guest]

Aaagh! That is awful. Is it possible to talk to another of the peds

in the same practice perhaps? If it is anything like our practice,

referrals get handled centrally, so it wouldnt matter if it was

actaully a different ped from normal who did the referral.

Im sorry you are having to go through this. Hang in there, and I hope

you find the support you need.

Kimberley

> I to can relate to the frustration of being in the peds. office and

the Dr.

> being defensive.

> My son has had a head deformity since he was 2 mos. When I

expressed my

> concerns of his head shape to the Dr. she laughed and called him

a " toaster

> head " . The Dr. told us not to worry it would round out. My son is

now 4

> mos. old, and his head is still mishappen, and his forhead is

starting to

> bulge. After alot of research on Plagio. I found a Specialist at

Cedar

> Sinae Hospital (they have a plagio clinic) who agreed to see us if

I had a

> referral from my Dr. On Monday I went to see my Ped. who was upset

that I

> had educated myself, I showed her literature on the Plagio studies

and the

> long term results if left untreated. She became angry and said if

we banded

> our son we would be " torturing him " . The Dr. also stated that in

all her

> years of practice all babies heads rounded out eventually, and if

not they

> could have " surgery " to correct the problem, and we should trust

her

> opinion. She then started to turn to my husband and lead him to

believe that

> I am being oversensitive to a normal condition. When I told her I

would

> like a referral she refused. I left the office feeling even more

confused

> and upset. My husband left feeling that the Dr. must be right and

now he

> does not want to meet with the specialist. I am still going to

the

> appointment with the specialist ( he agreed to see us without the

referral),

> but without the referral our insurance will not pay for the visit.

I have

> never been so upset, one minute I feel I am doing the best for my

son, and

> the next I feel I am being neurotic. I have lost sleep and shed

many tears.

> I am just so confused and very frustrated.

> Dori , Wills Mom

[Guest guest]

Dori,

To often these Dr's turn to our spouses and try to get a gang up on

the mommy thing going thinking that the father will be easier to sway

because they are the more rational parent and it is not right.

As for the Dr. giving your little one the nick name toaster head (how

dear she) that would have been my first signal that she wasn't the

right Dr. for my girls.

Please understand that I am not trying to make you feel bad in any way

but that I am trying to convey that you have every right to feel angry

and hurt and distrustful of the Dr.

How could she feel that putting a child in a band or helmet is torture

and then in the next breath turn to you and say that if it dosn't

round out there is always surgery. HELLO since when is surgery

something we take so nonchalantly. If surgery dosn't have to be an

option then why are so many Dr's willing to use it. Esp. when the

studies all show that way too many children have had unnecessary

surgery to correct what could have just been done with some plastic

and foam.

As for the referal I would insist on it and if the Ped. still refuses

then I would report her to the Ins. Co. and ask for them to give you

the referal due to the fact that she refuses to do so.

I hope this helps some.

April

Mommy to Bri and Mandy

> I to can relate to the frustration of being in the peds. office and

the Dr.

> being defensive.

> My son has had a head deformity since he was 2 mos. When I expressed

my

> concerns of his head shape to the Dr. she laughed and called him a

" toaster

> head " . The Dr. told us not to worry it would round out. My son is

now 4

> mos. old, and his head is still mishappen, and his forhead is

starting to

> bulge. After alot of research on Plagio. I found a Specialist at

Cedar

> Sinae Hospital (they have a plagio clinic) who agreed to see us if I

had a

> referral from my Dr. On Monday I went to see my Ped. who was upset

that I

> had educated myself, I showed her literature on the Plagio studies

and the

> long term results if left untreated. She became angry and said if

we banded

> our son we would be " torturing him " . The Dr. also stated that in

all her

> years of practice all babies heads rounded out eventually, and if

not they

> could have " surgery " to correct the problem, and we should trust

her

> opinion. She then started to turn to my husband and lead him to

believe that

> I am being oversensitive to a normal condition. When I told her I

would

> like a referral she refused. I left the office feeling even more

confused

> and upset. My husband left feeling that the Dr. must be right and

now he

> does not want to meet with the specialist. I am still going to the

> appointment with the specialist ( he agreed to see us without the

referral),

> but without the referral our insurance will not pay for the visit.

I have

> never been so upset, one minute I feel I am doing the best for my

son, and

> the next I feel I am being neurotic. I have lost sleep and shed

many tears.

> I am just so confused and very frustrated.

> Dori , Wills Mom

[Guest guest]

That is terrible!!!!! (

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support

----- Original Message -----

From: Wsull37449@...

Plagiocephaly

Sent: Tuesday, April 03, 2001 6:49 PM

Subject: Re: Thanks to those trying to get the word out about plagio

I to can relate to the frustration of being in the peds. office and the Dr. being defensive.My son has had a head deformity since he was 2 mos. When I expressed my concerns of his head shape to the Dr. she laughed and called him a "toaster head". The Dr. told us not to worry it would round out. My son is now 4 mos. old, and his head is still mishappen, and his forhead is starting to bulge. After alot of research on Plagio. I found a Specialist at Cedar Sinae Hospital (they have a plagio clinic) who agreed to see us if I had a referral from my Dr. On Monday I went to see my Ped. who was upset that I had educated myself, I showed her literature on the Plagio studies and the long term results if left untreated. She became angry and said if we banded our son we would be "torturing him". The Dr. also stated that in all her years of practice all babies heads rounded out eventually, and if not they could have "surgery" to correct the problem, and we should trust her opinion. She then started to turn to my husband and lead him to believe that I am being oversensitive to a normal condition. When I told her I would like a referral she refused. I left the office feeling even more confused and upset. My husband left feeling that the Dr. must be right and now he does not want to meet with the specialist. I am still going to the appointment with the specialist ( he agreed to see us without the referral), but without the referral our insurance will not pay for the visit. I have never been so upset, one minute I feel I am doing the best for my son, and the next I feel I am being neurotic. I have lost sleep and shed many tears. I am just so confused and very frustrated. Dori , Wills Mom

[Guest guest]

Go April! )

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support

----- Original Message -----

From: April and

Plagiocephaly

Sent: Tuesday, April 03, 2001 7:34 PM

Subject: Re: Thanks to those trying to get the word out about plagio

Dori,To often these Dr's turn to our spouses and try to get a gang up on the mommy thing going thinking that the father will be easier to sway because they are the more rational parent and it is not right. As for the Dr. giving your little one the nick name toaster head (how dear she) that would have been my first signal that she wasn't the right Dr. for my girls. Please understand that I am not trying to make you feel bad in any way but that I am trying to convey that you have every right to feel angry and hurt and distrustful of the Dr. How could she feel that putting a child in a band or helmet is torture and then in the next breath turn to you and say that if it dosn't round out there is always surgery. HELLO since when is surgery something we take so nonchalantly. If surgery dosn't have to be an option then why are so many Dr's willing to use it. Esp. when the studies all show that way too many children have had unnecessary surgery to correct what could have just been done with some plastic and foam. As for the referal I would insist on it and if the Ped. still refuses then I would report her to the Ins. Co. and ask for them to give you the referal due to the fact that she refuses to do so.I hope this helps some.AprilMommy to Bri and Mandy> I to can relate to the frustration of being in the peds. office and the Dr. > being defensive.> My son has had a head deformity since he was 2 mos. When I expressed my > concerns of his head shape to the Dr. she laughed and called him a "toaster > head". The Dr. told us not to worry it would round out. My son is now 4 > mos. old, and his head is still mishappen, and his forhead is starting to > bulge. After alot of research on Plagio. I found a Specialist at Cedar > Sinae Hospital (they have a plagio clinic) who agreed to see us if I had a > referral from my Dr. On Monday I went to see my Ped. who was upset that I > had educated myself, I showed her literature on the Plagio studies and the > long term results if left untreated. She became angry and said if we banded > our son we would be "torturing him". The Dr. also stated that in all her > years of practice all babies heads rounded out eventually, and if not they > could have "surgery" to correct the problem, and we should trust her > opinion. She then started to turn to my husband and lead him to believe that > I am being oversensitive to a normal condition. When I told her I would > like a referral she refused. I left the office feeling even more confused > and upset. My husband left feeling that the Dr. must be right and now he > does not want to meet with the specialist. I am still going to the > appointment with the specialist ( he agreed to see us without the referral), > but without the referral our insurance will not pay for the visit. I have > never been so upset, one minute I feel I am doing the best for my son, and > the next I feel I am being neurotic. I have lost sleep and shed many tears. > I am just so confused and very frustrated. > Dori , Wills Mom

[Guest guest]

Dori,

Hi! This is Marci - we chatted in the Plagio Chat Room last night. I still

think you should try to change peds if you can and get a second opinion. For

sure you should change peds if for no other reason then for calling your

child a " toaster head " . That would have sent me straight through the

roof!!!!!!!!!!!!!!!!!! Dori - you are doing the right thing in pursuing

treatment. Obviously your instinct is telling you to do so and that mommy

instinct is rarely ever wrong!

Please let us know how the appointment with the specialist goes. If the

specialist is willing he/she might be willing to write a letter to your ped

explaining the condition and the possible complications involved if left

untreated. Maybe your ped won't let you educate her, but how can she turn a

blind eye to the words of an expert!

Good luck and please keep us posted. You are doing the right thing for Will.

Marci (Mom to - helmet grad)

Oklahoma

[Guest guest]

Maybe your ped won't let you educate her, but how can she turn a blind eye to the words of an expert

Good one, Marci!

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support

----- Original Message -----

From: marcisch@...

Plagiocephaly

Sent: Wednesday, April 04, 2001 6:19 AM

Subject: Re: Thanks to those trying to get the word out about plagio

Dori,Hi! This is Marci - we chatted in the Plagio Chat Room last night. I still think you should try to change peds if you can and get a second opinion. For sure you should change peds if for no other reason then for calling your child a "toaster head". That would have sent me straight through the roof!!!!!!!!!!!!!!!!!! Dori - you are doing the right thing in pursuing treatment. Obviously your instinct is telling you to do so and that mommy instinct is rarely ever wrong!Please let us know how the appointment with the specialist goes. If the specialist is willing he/she might be willing to write a letter to your ped explaining the condition and the possible complications involved if left untreated. Maybe your ped won't let you educate her, but how can she turn a blind eye to the words of an expert!Good luck and please keep us posted. You are doing the right thing for Will.Marci (Mom to - helmet grad)Oklahoma