Re: Not plagio related but I ask for your prayers....

[Guest guest]

Oh Amy!

You and your daughter will definitely be in my thoughts!! Please let us know how it goes.

Of course you can turn to us for support! That's what we're here for! If we can discuss potty training, we can certainly discuss biopsies!!! )

Chin up, OK!

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: syddesi2@...

Plagiocephaly

Sent: Thursday, March 29, 2001 4:58 PM

Subject: Not plagio related but I ask for your prayers....

I am not that religious but I do believe that sometimes a little extra prayer doesn't hurt. I have told many of you that my 10 year old had to have a Lymphnode biopsy done on 9/1 of last year. Thankfully everything turned out fine. Unfortunately after a recheck today(we found a new lump in Dec), she has again been referred to the surgeon for what looks like another biopsy. I thought that once you had a biopsy you are all clear, but unfortunately that is not the case with reactive Lymphnodes. I am not afraid for the surgery. It only takes an hour. I hate that she will have another 2 inch scar on her neck and I hate the blood tests and chest xrays and most of all I hate the week of waiting for the results (3-5 days usually). The scariest part is of course talking to a doctor about "cancer". It makes me cry just to type it. I am sure that it will turn out to be nothing, last time it was nothing. Unfortunately once they become larger than 3 cm in diameter they must be biopsied. I am defiantely thinking positive and I am not crying my eyes out (what a surprise). But I feel so bad for my daughter. She was so scared last time and when she hears the doctor say "cancer", you should see her face! She knows what it is. I hate discussing it with the doctor...I HATE IT! It feels so weird to hear him say it to me...i know that's not what it will be. I just know it. Unfortunately there is always a little part of me that says, what if? Please keep us in your prayers - our appt. is 4/9 unfortunately the doctor is away next week.I am turning to you all because you are always there for me. Thank you for all the support!!!!!Amy (Max's mom) and and Sydney too

[Guest guest]

Amy,

I'll be thinking positive thoughts for you and your daughter :-) I'll

say some prayers as well. As a mother that word " cancer " scares me!!

I'm sure everything will be ok!

Actually my little guy - 20 months old - has a swollen gland in his

neck (about 1 cm) and has had it since he was about 3 mos old. I have

one too and it's on the same side as his - I've had mine for years.

The doctors have told me it's nothing and that my sons is nothing as

well. But I think I'll go and talk to him about it again.

Take care,

[Guest guest]

Hi , There is a condition known as reactive lymphnode Hypoplasia (sp?)

where the lymphnodes react to no known reason. It can be hereditary. I am

hoping that is what it is, it is what we diagnosed her with last time but

unfortunately when they get to be a certain size, they require a biopsy.

also had much smaller sized (a little larger than a pea) when she was

a baby and I took her to the doc and they said that it was nothing. I didn't

know that one had gotten larger until her well visit last June. Then of

course they run a zillion tests and treat with anti-biotics and wait for it

to go away...and then I think last resort is a biopsy. I hope that I didn't

worry you. Actually, is adopted and we don't have a medical history

so as far as I know, her whole biological family could be walking around with

lumpy necks! I am sure that is the case with my daughter, and your little

guy. Sorry if I worried you...

Amy(Max's mom)

[Guest guest]

Amy,

You and your daughter are on my calendar on April 9. I will pray for all of

you - I can't even imagine how scary this must all be. Do you mind if I ask

which daughter? I would like to pray for her by name if that is ok with you.

Amy - I TOTALLY believe in the power of prayer not because I am super

religious, but because I have seen it work. (and I do mean REALLY work) I'm

sorry you couldn't get in any earlier - that must be frustrating.

I will be thinking of you. Your family and daughter will be on my prayer list.

Marci (Mom to )

Oklahoma

[Guest guest]

Amy,

You will be in my prayers! Keep that positive

attitude. Let us know how it goes....

Jill(Mom to Josh & Jarred, Accord,NY)

--- syddesi2@... wrote:

> I am not that religious but I do believe that

> sometimes a little extra prayer

> doesn't hurt.

> I have told many of you that my 10 year old had to

> have a Lymphnode biopsy

> done on 9/1 of last year. Thankfully everything

> turned out fine.

> Unfortunately after a recheck today(we found a new

> lump in Dec), she has

> again been referred to the surgeon for what looks

> like another biopsy. I

> thought that once you had a biopsy you are all

> clear, but unfortunately that

> is not the case with reactive Lymphnodes. I am not

> afraid for the surgery. It

> only takes an hour. I hate that she will have

> another 2 inch scar on her

> neck and I hate the blood tests and chest xrays and

> most of all I hate the

> week of waiting for the results (3-5 days usually).

> The scariest part is of

> course talking to a doctor about " cancer " . It makes

> me cry just to type it.

> I am sure that it will turn out to be nothing, last

> time it was nothing.

> Unfortunately once they become larger than 3 cm in

> diameter they must be

> biopsied. I am defiantely thinking positive and I am

> not crying my eyes out

> (what a surprise).

> But I feel so bad for my daughter. She was so

> scared last time and when she

> hears the doctor say " cancer " , you should see her

> face! She knows what it

> is. I hate discussing it with the doctor...I HATE

> IT! It feels so weird to

> hear him say it to me...i know that's not what it

> will be. I just know it.

> Unfortunately there is always a little part of me

> that says, what if?

> Please keep us in your prayers - our appt. is 4/9

> unfortunately the doctor is

> away next week.

>

> I am turning to you all because you are always there

> for me. Thank you for

> all the support!!!!!

> Amy (Max's mom) and and Sydney too

>

__________________________________________________

[Guest guest]

You and your family are in our prayers Amy!

Judy and Genna (banded 3/13/01)

[Guest guest]

Hi Marci,

Her name is . Actually, unlike all the plagio visits I am not in a

rush to go to this doctor. I am afraid that he will immediately schedule

surgery rather than wait a little while. Thank you for the prayers.

Amy