Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Shirley......I am glad to see bring up the fact that we have to push ourselves...make ourselves get up and go....the more we give in, the weaker we get. Keep fighting! love, Kay ----- Original Message ----- From: carina063@... Sent: Wednesday, March 21, 2001 11:32 AM Subject: Shirl I have written to you but not heard back from you. I am curious if you are seeing a good Dr and what if any blood tests you have had and if you are getting the copies of all your test results and trying different methods other than drugs to help you. Let us know more, we want to help. I am only just over 3 months post explant and I feel like crap allot of the time, I have many issues, including my elevated ana but I am fighting and doing lots of different things and trying to get well. I realize for some of us it is harder to work out or even walk than others, but I still feel it is important that you try to do even the smallest of things to get yourself moving. Maybe you should try the Noni juice I wrote about, it is supposed to be really good for digestive problems. I know for me, I have to push myself allot to do things, but when I do I usually feel better afterwards. Sometimes I am exhausted, but I still push, and it just seems that if you fight hard, the results are better than if you lay down. I understand how hard this is, believe me, I have many problems, some days I am very nausiated and somedays I am so achy almost all the time, and my head thing is off and on and sometimes as bad as it was before, but I know I did the right thing, we just have to get to the root of our problems and then we can heal and in the mean time we must really fight.Giveus details of what is going on, we want to help, or write me and let me know, I have some knowledge that I could share and would like to help you anyway I can.Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi , sorry it took me so long to reply. It takes so much energy to type these days. All my blood work is normal and has always been normal. Weird? I've got wasting muscles in my shoulders and bone spurs in my shoulders. I think my hip too now, it's been grinding these days. It's hard to drive because of my hip pain. I do try and exercise at least every other day. But that takes all my energy. I do nothing else. I'm so fatigued. Where do you get the Noni juice? Do the health food stores have it? I tried the aloe for 2 months, it was very hard to drink, tasted horrible. I didn't notice it helping. I'll try anything at this point. I've been just getting worse and worse. It sucks. Good luck to you and I hope you see improvement soon. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Shirl, I had some really great days but lately fatigue is grinding me down. Sometimes I think I feel worse than when I had the implants and wonder if now that they are gone maybe my immune system is so haywire instead of getting better it is attacking itself worse now that the implants are no longer there to attack. The nonni juice I am getting this weekend. I will let you know how it works but in the meantime I can send you a link to the page on the net you can get it from. Someday maybe we will all get well wouldn't that be great? Hey do you get the terrible head thing like me too? Your ana is normal? What are they basing your scleroderma diagnosis on without an elevated ANA? that is curious, as I know that most people with that disease really have high ANA titers and that there is a certain pattern to the blood since I have a high ANA titer myself and my pattern is speckled, meaning it is an auto immune disease but def not schleroderma, but more likely lupus or something like that. Mixed connective tissue disease meaning basically we don't know what you have . It sucks. I am trying to do this naturally but that is hard too. take care and if you want to communicate with me more often write to me at my other email address which I check more often it is carina063home.com --- shg713@... wrote: > Hi , sorry it took me so long to reply. It > takes so much energy to > type these days. All my blood work is normal and > has always been normal. > Weird? I've got wasting muscles in my shoulders and > bone spurs in my > shoulders. I think my hip too now, it's been > grinding these days. It's hard > to drive because of my hip pain. I do try and > exercise at least every other > day. But that takes all my energy. I do nothing > else. I'm so fatigued. > Where do you get the Noni juice? Do the health food > stores have it? I tried > the aloe for 2 months, it was very hard to drink, > tasted horrible. I didn't > notice it helping. I'll try anything at this point. > I've been just getting > worse and worse. It sucks. Good luck to you and I > hope you see improvement > soon. > > Shirley > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 > Mixed > connective tissue disease meaning basically we don't > know what you have . > It sucks. You're darn right it sucks! This whole thing with the " normal " blood work on many of the ladies, even though we've all been sick as dogs, is what makes this so difficult for us regarding doctors and the manufacturer's, with all their innocent exclamations and " studies " that show the incidence of disease isn't any higher in breast implanted women. If they can't identify a disease, they think it just doesn't exist..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Shirl, I apologize for taking this long to get back to you. I have thought so often about you and your situation. How are you feeling at this time? No doubt, the scope was a stress on your body, and you reacted severely to this intrusion. I would view it as a serious flare, and hopefully things have calmed down for you now. I am no expert of course....just an opinion. My personal gut feeling about the overall picture is that your body is seriously hypoxic, which means oxygen is just not getting into your cells. It is a vicious cycle, where toxins are overloaded and prevent oxygen from being used properly, which creates more cellular toxins from fermentation...and it continues in a downward spiral, a classic case of degenerative disease. That is, until you can reverse the situation and increase cellular oxygen. The anesthesia more than likely was a load your body didn't need, added on to the load you are already dealing with--another straw to break the camel's back! Shirl, I feel so bad for you! I think the primary goal you need to focus on is getting more oxygen into your cells. The oxyplus group talks about this alot, and specifically Dr. Saul Pressman has alot to say about this. I have saved some of his letters, and found this one, which I hope you will find to be helpful. You may want to search the archives of the other group to get more valuable info. I have used all of these items below, EXCEPT for the methylene blue. However, I wouldn't hesitate to take it if I thought carbon monoxide was an issue for me. To deliver cellular oxygen, you need:1) Glutathione (take N-acetyl cysteine, or whey powder)2) Iron (to make red blood cells)3) Calcium (to allow oxygen into the cell)4) Vitamin D (to allow absorption of calcium in the gut)5) Boron (to allow activation of Vitamin D in the kidneys)6) B vitamins (to control utilization in the cell, and maintain integrity of DNA)7) Co-Q10 (to enhance delivery of oxygen in the cell)Beyond that, there is:1) Methylene blue (possibly necessary to eliminate carbon monoxide)2) Homozon (cleanse the colon, supply extra oxygen)3) Ozone (to raise partial pressure of O2, eliminate rouleaux, enhance oxidation in the cell, increase ATP production, eliminate viruses, bacteria, anerobic cells, oxidize toxins.) Methylene blue is a blue aniline dye made from methanol, used in thelaboratory for staining tissue samples on slides for viewing under amicroscope. It is a methyl donor with the ability to cleave carbon monoxideoff hemoglobin, transforming it into harmless carbon dioxide, which is thenexhaled. When the body is poorly oxygenated, the sugar that is burned in oxygen bythe cell for energy burns poorly, producing carbon monoxide instead ofcarbon dioxide. This can build up and produce a condition known asmethemoglobin anemia. People over the age of fifty almost always have somemethemoglobin in their blood. Also, driving in traffic with the vents open,a faulty gas furnace or gas water heater, or a smoky fireplace can cause abuildup of carbon monoxide in the blood. Carbon monoxide in the system acidifies the blood, irritates the organs andcauses a lowering of body temperature, which microbes of all types prefer.The body's natural way of dealing with bacteria and viruses is to shut offthe intake of food and raise the body temperature, which we call a fever, inorder to 'burn the bugs out'. For many years, methylene blue has been used to treat cyanosis, caused by alack of oxygen in the blood, and carbon monoxide poisoning. It is injectedintravenously in severe cases. It has also been used for bladder and kidneyinfections. Dr. Wilner has recommended its use in treating cancer, and morerecently, it has been shown to eliminate HIV in the blood. Most people find that they have a boost in energy after taking methyleneblue, some in as little as a week. The recommended dosage is 5 drops in ahalf glass of water at bedtime. If cancer or HIV is involved, therecommendation is 15 drops in water twice a day. Transfer the drops to theglass over a stainless sink, as porcelain will stain.Methylene blue is non-toxic and its only side effects are making the tongueblue for about an hour, and sometimes causing the urine to be green.Methylene blue should not be taken by anyone who has a deficiency of G-6-PD(glucose-6-phosphate-dehydrogenase), or anyone with an obstruction of theurinary tract, the duodenum or the pyloric valve. In addition, it is notadvised for anyone suffering from glaucoma.Best of Health!Dr. Saul Pressman, DCh, LTOH ----- Original Message ----- From: shg713@... Sent: Friday, October 05, 2001 9:59 AM Subject: Patty I have been real sick for the last few weeks. Not getting out of bed for days on occasion. I had an upper and lower scope to look at my colon and my stomach. They found severe inflammation and an esophageal stricture which my doctor dilated. Anyway my question for Patty or anyone that might have any ideas on this is, I wasn't doing bad until I had these scopes and I haven't been the same since. I was wondering about the anesthesia? I've had severe muscle spasms and pain and fatigue every day following the scopes. I can't figure this out. I can't find anything on the net about the after effects of anesthesia. I've just been miserable. Anyone have any ideas? Thanks -Shirl- Quote Link to comment Share on other sites More sharing options...
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