Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Connie, this is what terrifies me about treatment. Sheeesh, already my hair is falling out...really, really thin on the top. I have to get creative as it is. I read somewhere about a woman who has dark red hair like mine, she got her daughter to use an eyebrow pencil and draw hair in where she's thinning. I tried it. It works!! For now. I also have some expensive stuff that my b/f bought me, but haven't used it yet. If I were you, I would wait till after treatment. It would be a futile exercise right now. If I gotta go on treatment, then I'm heading to nearest wig shop pronto...hair before rent or food. That's my motto. I've also seen some very well done scarves that look good. I think you can get trained free how to use them by a chemotherapy clinic. Might be something to look into? How much longer on you on treatment? Maybe I could order a wig through the internet and have it delivered to you, then you could send it to me when it's my turn. Hmmmmm, something to think about. Huggggs Carol Constance Dickson wrote: > > My hair is coming out by the handfuls now. For the > Holiday my Daughter bought me the whole set of that > stuff that helps regrow your hair. I think it would > be best to wait till off meds to use it. What you all > think? Seems just grow more to fall out if use it, > before then. > Connie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Connie, this is what terrifies me about treatment. Sheeesh, already my hair is falling out...really, really thin on the top. I have to get creative as it is. I read somewhere about a woman who has dark red hair like mine, she got her daughter to use an eyebrow pencil and draw hair in where she's thinning. I tried it. It works!! For now. I also have some expensive stuff that my b/f bought me, but haven't used it yet. If I were you, I would wait till after treatment. It would be a futile exercise right now. If I gotta go on treatment, then I'm heading to nearest wig shop pronto...hair before rent or food. That's my motto. I've also seen some very well done scarves that look good. I think you can get trained free how to use them by a chemotherapy clinic. Might be something to look into? How much longer on you on treatment? Maybe I could order a wig through the internet and have it delivered to you, then you could send it to me when it's my turn. Hmmmmm, something to think about. Huggggs Carol Constance Dickson wrote: > > My hair is coming out by the handfuls now. For the > Holiday my Daughter bought me the whole set of that > stuff that helps regrow your hair. I think it would > be best to wait till off meds to use it. What you all > think? Seems just grow more to fall out if use it, > before then. > Connie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Connie, this is what terrifies me about treatment. Sheeesh, already my hair is falling out...really, really thin on the top. I have to get creative as it is. I read somewhere about a woman who has dark red hair like mine, she got her daughter to use an eyebrow pencil and draw hair in where she's thinning. I tried it. It works!! For now. I also have some expensive stuff that my b/f bought me, but haven't used it yet. If I were you, I would wait till after treatment. It would be a futile exercise right now. If I gotta go on treatment, then I'm heading to nearest wig shop pronto...hair before rent or food. That's my motto. I've also seen some very well done scarves that look good. I think you can get trained free how to use them by a chemotherapy clinic. Might be something to look into? How much longer on you on treatment? Maybe I could order a wig through the internet and have it delivered to you, then you could send it to me when it's my turn. Hmmmmm, something to think about. Huggggs Carol Constance Dickson wrote: > > My hair is coming out by the handfuls now. For the > Holiday my Daughter bought me the whole set of that > stuff that helps regrow your hair. I think it would > be best to wait till off meds to use it. What you all > think? Seems just grow more to fall out if use it, > before then. > Connie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Hey Connie...you can't use the chemical stuff, cause it interferes with treatment (rogain, minoxidil, etc.) What you can use is NIOXIN. Start right away and it will definitely help to stem the loss...not completely...but I didn't lose my hair. It got thinner, no doubt about it and it also lost it's curl...but I didn't end up bald! You can get it at Trade Secrets (if you have one near you) or go online and type in NIOXIN and you'll get their website. On it is a place to find locations that sell their products near you. It is also sold in some hair salons. I would say to start immediatley with the scalp therapy. I waited and just used the shampoo...but I think I should have used the whole kit and kaboodle from day one. They also have a great lifter to make you hair appear thicker...also a mousse (non-alchol) so it is easier on your hair. I am 4 months post-treatment and my hair IS starting to re-gro it's thickness. I'm still having trouble with not having curl to my hair...sometimes it's there, other times not...oh well....comparatively speaking, I am blessed! It could be worse! Hope this helps. God bless you AND your locks!!!!! Happy Christmas. luv, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Just curious of anyone knows if hair loss is a given on treatment. I have a friend who has gone through the treatment and did not seem to notice anything unusual with hair loss. She may have just been lucky, her sides were pretty mild, nausea the 1st few shots and then felt pretty normal the remainder of treatment. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Connie, I dunno! my hair came back just fine after the meds. Good luck! Let us know alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Just a note: My hair is normally thin, I'd been babying it for a few years to grow looking thicker and it was to my waste when I started treatment and thinned so badly and looked so awful liimp and dull that I cut it all off. Your hair will grow back after treatment. I used Nioxin every other shampoo for my hair. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 The first time on combo the 3 weeks that were suppose to be bad were nothing, piece of cake I thought, tiiiiiill the 4th week and from there got progressively worse. My Hair not only fell out but went totally straight overnight had shoulder length curly hair, like spirals when I went to bed. Woke up with hair almost to my waist, straight. LOL...I finally got my wish, always wanted straight hair, went so far as to have it straightened once. The hair that grew back between the 2 times on the combo therapy was coming in curly like before. Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2001 Report Share Posted December 25, 2001 It is the Nioxin. connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2001 Report Share Posted December 25, 2001 It is the Nioxin. connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2001 Report Share Posted December 25, 2001 i am a hairdresser, and nioxin does not work ,the only thing that can work is if you take something orally, they have a vitamin called hair and nail vitamin, try that,but all your doing with nioxin , is waisting your money..and dont worry ,hair always gtows back, mine came back curly,but i shaved it when it started to fall out by the clumps.i am more concerned about my liver getting better than my hair comming out, if i could get rid of this virus verses loosing my hair, i would take the remmision verses the hair growth. good luck martine Re: Hair It is the Nioxin. connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2001 Report Share Posted December 25, 2001 i am a hairdresser, and nioxin does not work ,the only thing that can work is if you take something orally, they have a vitamin called hair and nail vitamin, try that,but all your doing with nioxin , is waisting your money..and dont worry ,hair always gtows back, mine came back curly,but i shaved it when it started to fall out by the clumps.i am more concerned about my liver getting better than my hair comming out, if i could get rid of this virus verses loosing my hair, i would take the remmision verses the hair growth. good luck martine Re: Hair It is the Nioxin. connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Connie, Got my hair cut to about an inch long so I can wear it all messy and hide my scalp. Also to cut off all the dead feeling hair. Next step is shaving it if more falls out and wearing hats and scarves . I could never wear a wig--it would drive me crazy. I itch just thinking about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Connie, Got my hair cut to about an inch long so I can wear it all messy and hide my scalp. Also to cut off all the dead feeling hair. Next step is shaving it if more falls out and wearing hats and scarves . I could never wear a wig--it would drive me crazy. I itch just thinking about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Connie, Got my hair cut to about an inch long so I can wear it all messy and hide my scalp. Also to cut off all the dead feeling hair. Next step is shaving it if more falls out and wearing hats and scarves . I could never wear a wig--it would drive me crazy. I itch just thinking about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Connie, Got my hair cut to about an inch long so I can wear it all messy and hide my scalp. Also to cut off all the dead feeling hair. Next step is shaving it if more falls out and wearing hats and scarves . I could never wear a wig--it would drive me crazy. I itch just thinking about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 <<> Just curious of anyone knows if hair loss is a given > on treatment>> Nope. Some don't even notice any hair loss. Mostly I just shed and thinned, about the 5th mo thru the 7th or so. Then it stopped. The 6th mo I cut my waist length hair to about an inch all over my head and like someone else said on here, I just wear it all messed up now lol. Very mod! Everyone's hair reacts differently on treatment. Mine grew back just the same as it was, but the short hair was so easy to keep I've decided to keep it short a while. The Nioxin may not have prevented hair loss, but it did make my scalp feel better. Nothing is gonna prevent the thinning on treatment if it thins, it thins. It won't last don't worry. <<Has anyone heard or used Acidolphilus? >> I use acidolphilus every time I take antibiotics, which lately is a lot! It helps put back the bacteria that medication and things can kill and yes it'll help contering yeast infections and gastro problems cuz lots of good bacteria live there but some meds just kill them all out along with the bad bacteria. Time to go pop another acidolphilus! hugs all! alley galaxygurl@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 <<> Just curious of anyone knows if hair loss is a given > on treatment>> Nope. Some don't even notice any hair loss. Mostly I just shed and thinned, about the 5th mo thru the 7th or so. Then it stopped. The 6th mo I cut my waist length hair to about an inch all over my head and like someone else said on here, I just wear it all messed up now lol. Very mod! Everyone's hair reacts differently on treatment. Mine grew back just the same as it was, but the short hair was so easy to keep I've decided to keep it short a while. The Nioxin may not have prevented hair loss, but it did make my scalp feel better. Nothing is gonna prevent the thinning on treatment if it thins, it thins. It won't last don't worry. <<Has anyone heard or used Acidolphilus? >> I use acidolphilus every time I take antibiotics, which lately is a lot! It helps put back the bacteria that medication and things can kill and yes it'll help contering yeast infections and gastro problems cuz lots of good bacteria live there but some meds just kill them all out along with the bad bacteria. Time to go pop another acidolphilus! hugs all! alley galaxygurl@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 <<> Just curious of anyone knows if hair loss is a given > on treatment>> Nope. Some don't even notice any hair loss. Mostly I just shed and thinned, about the 5th mo thru the 7th or so. Then it stopped. The 6th mo I cut my waist length hair to about an inch all over my head and like someone else said on here, I just wear it all messed up now lol. Very mod! Everyone's hair reacts differently on treatment. Mine grew back just the same as it was, but the short hair was so easy to keep I've decided to keep it short a while. The Nioxin may not have prevented hair loss, but it did make my scalp feel better. Nothing is gonna prevent the thinning on treatment if it thins, it thins. It won't last don't worry. <<Has anyone heard or used Acidolphilus? >> I use acidolphilus every time I take antibiotics, which lately is a lot! It helps put back the bacteria that medication and things can kill and yes it'll help contering yeast infections and gastro problems cuz lots of good bacteria live there but some meds just kill them all out along with the bad bacteria. Time to go pop another acidolphilus! hugs all! alley galaxygurl@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 <<> Just curious of anyone knows if hair loss is a given > on treatment>> Nope. Some don't even notice any hair loss. Mostly I just shed and thinned, about the 5th mo thru the 7th or so. Then it stopped. The 6th mo I cut my waist length hair to about an inch all over my head and like someone else said on here, I just wear it all messed up now lol. Very mod! Everyone's hair reacts differently on treatment. Mine grew back just the same as it was, but the short hair was so easy to keep I've decided to keep it short a while. The Nioxin may not have prevented hair loss, but it did make my scalp feel better. Nothing is gonna prevent the thinning on treatment if it thins, it thins. It won't last don't worry. <<Has anyone heard or used Acidolphilus? >> I use acidolphilus every time I take antibiotics, which lately is a lot! It helps put back the bacteria that medication and things can kill and yes it'll help contering yeast infections and gastro problems cuz lots of good bacteria live there but some meds just kill them all out along with the bad bacteria. Time to go pop another acidolphilus! hugs all! alley galaxygurl@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 There really isn't much you can do. Mine fell out 3 times!! It started coming back about 3 months after I stopped treatment. You will notice little by little that your brush has less hair in it and less hair is falling into the shower. It's great that you had so much air to begin with. I had to wear hats and a wig! I hope your labs come back great!! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Speaking of hair. May I change the subject just a little? Since Daryl's been ill, and especially since he was hospitalised, he's slowly but surely losing body hair as well as hair on his head. Does anyone know why this happens? What causes it and is it permenant? Thanks anne [ ] Hair Hi Sandy.....It seems to me that in our society, women of our age are not allowed to have 'greys', hairy legs, or any other hair especially on chin, and that dreaded moustachey look I get if I dont get the tweezers out! My eyebrows are half white & brown so now I have to crayon over the white bits to stop me looking like an appaloosa. Your colleague may have been insensitive and Id politely but quietly return the colour to her saying because of the chemicals in it you are unable to use it until you have clearance from your specialist. Me thinks there's too much pressure on women to look like dolly birds and trying to look permanently 25 & anyone showing even one stray grey would be pounced on (bit of an eggeration). Your colleague wouldnt have even thought about what effect her comments had. It was a flippant remark which I wouldnt take seriously. A cancer sufferer/survivor wouldnt use chemicals on hair whilst taking chemo treatment. I liken our treatment of AIH on a par with chemo drugs but of course at a much much lower dose. Ive been practical bald with ridiculous tufts of hair that refused to do the right thing and fall out. Once my hair grew back I was going to have highlights but my hairdresser refused to do it as she said with my colouring Id look false & artificial. So Im about 50% grey and actually enjoyed it because I had to buy a whole new lot of makeup & some clothes because it made my colouring somewhat paler. Now, after a visit to the doctors I have a semi-permanent put in by the hairdresser which lasts for 30 shampoos. She told me never to colour my hair myself, only to let a professional do it...I suppose because the hairdresser brushes it on rather than smother the whole scalp with the stuff and which the chemicals could be absorbed thru the skin. I only started having semis when my lfts were near normal and havent had any ill effects. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Ann, it sounds like alopecia…an autoimmune disease where you lose your hair. My cousin had this…. Debby Re: [ ] Hair Speaking of hair. May I change the subject just a little? Since Daryl's been ill, and especially since he was hospitalised, he's slowly but surely losing body hair as well as hair on his head. Does anyone know why this happens? What causes it and is it permenant? Thanks anne [ ] Hair Hi Sandy.....It seems to me that in our society, women of our age are not allowed to have 'greys', hairy legs, or any other hair especially on chin, and that dreaded moustachey look I get if I dont get the tweezers out! My eyebrows are half white & brown so now I have to crayon over the white bits to stop me looking like an appaloosa. Your colleague may have been insensitive and Id politely but quietly return the colour to her saying because of the chemicals in it you are unable to use it until you have clearance from your specialist. Me thinks there's too much pressure on women to look like dolly birds and trying to look permanently 25 & anyone showing even one stray grey would be pounced on (bit of an eggeration). Your colleague wouldnt have even thought about what effect her comments had. It was a flippant remark which I wouldnt take seriously. A cancer sufferer/survivor wouldnt use chemicals on hair whilst taking chemo treatment. I liken our treatment of AIH on a par with chemo drugs but of course at a much much lower dose. Ive been practical bald with ridiculous tufts of hair that refused to do the right thing and fall out. Once my hair grew back I was going to have highlights but my hairdresser refused to do it as she said with my colouring Id look false & artificial. So Im about 50% grey and actually enjoyed it because I had to buy a whole new lot of makeup & some clothes because it made my colouring somewhat paler. Now, after a visit to the doctors I have a semi-permanent put in by the hairdresser which lasts for 30 shampoos. She told me never to colour my hair myself, only to let a professional do it...I suppose because the hairdresser brushes it on rather than smother the whole scalp with the stuff and which the chemicals could be absorbed thru the skin. I only started having semis when my lfts were near normal and havent had any ill effects. Jan Group Rules 1. Please no religious, political, race or sexual preference discussions. 2. NO slamming of other members, advertising or vulgarity. Thank you! To UNsubscribe send a blank e-mail to -unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 I liken our treatment of AIH on a par with chemo drugs but of course at a much much lower dose. Jan. Thanks for your words also...The statement you made above will be the way I will explain to her since she has fought cancer twice in the eight years I have worked with her. She will be able to understand it better that way. I am sure she did not intentionally hurt my feelings..I think she was trying to be nice but she does lack tact. I do not want her to feel what I felt. I think she will understand and who knows maybe we can become a little better friends. All of the people I work with knows about each others illnesses since we are a small office of less than 25 and we usually try to be there for each other. Thanks Sandy in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Here is one last thought raised about post op issues and then I will be quiet for a while. Someone had asked about hair growing back. Mine is now a decent short haircut - 10 weeks after the cut. I have been taking vitamins and my hair grows pretty fast. I agree that I would cut it all off again before surgery. But my best piece of advice if you are a brave home colorist is to buy a box of haircolor that has base color and highlights in same box. I used Loreal Coleur Experte (in Biscotti)! It comes in a dark red box. You need a friend. You dye all your hair one darker color then use a mascara looking thing to add highlights. For some reason the variations in color make the hair look better, and maybe longer. At the very least, it is a fun activity and gets your mind off your back while you wonder " Is Biscotti a code word for orange? " It cheered me up immensely. Have fun... Quote Link to comment Share on other sites More sharing options...
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