Tx

[Guest guest]

Some people, like myself, will never get over the sides that the tx caused but most do. My hvc has come back which I figured it would 6 months after they took me off the tx. I have opted not to do the tx again because from my experince it was worst that the Hep-c. About the working while on tx I found that I couldn't because of the sides. As far as your family is concerned they most likley don't have a clue as to what the tx does to you and your ability to do even the smallest task. Thank God I had 2 brothers that were very understanding and picked up my slack at work.

I know it's tough but if you are this far along don't give up. I'll put you on my prayer list, and will be glad to answer any questions that you might have

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body but rather to skid in broadside, thoroughly used up, totally worn out, and loudlyProclaiming, WOW! What a ride!" Eddie Hinman

[Guest guest]

Is

going to be the only one we have on tx now, except for Jon on maintenance?

De

[Guest guest]

im pretty sure of it..pat

RE: Tx

Is going to be the only one we have on tx now, except for Jon on maintenance?

De

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[Guest guest]

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start. At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!! I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too. Peace and love, Kim Scars are souveniers you never lose.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Then

you & can do it together. You know, I didn’t realize how tired

and worn out I’d been until about a year after tx and now feel better

than I have in years (most of the time). I’ve learned not to try to do

too much though – right, Patty?

De

Re: Tx

Actually, the plan for me is to start tx around the

end of August. I found a study at the Texas Liver Coalition that starts

August 29th. If I qualify (cholesterol and diabetes under control), then

hopefully I will be able to join the study. If not, then I plan to go

back to my GI and he will put me on tx then. Either way, sometime shortly

after 8-29 I should start.

At first, a wasn't looking forward to starting tx at

all. Now, I am so READY. I am tired of hurting and never feeling

good. I was really worried about not being able to wrk. Suzie gave

me some good advice not long ago: " Just buck up and do it " I

think I'll listen. I have to do what I have to do to get better. I am

getting a better mental attitude about tx now. I believe that it will

work, I can work,and life will be great. I also believe that it will be

TERRIFIC after tx!!

I will keep everyone posted on the news as it

develops. Thanks for keeping me in thoughts and prayers, as I keep all of

you there too.

Peace and love,

Kim

Scars are souveniers you

never lose.

[Guest guest]

Gail...Tell me @ your vacation...enquiring minds want to know..Sooo glad you got away for awhile sweety..Love ..pat

RE: Re: Tx

Then you & can do it together. You know, I didn’t realize how tired and worn out I’d been until about a year after tx and now feel better than I have in years (most of the time). I’ve learned not to try to do too much though – right, Patty?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kim stillSent: Sunday, July 23, 2006 12:30 AMHepatitis CSupportGroupForDummies Subject: Re: Tx

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start.

At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!!

I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too.

Peace and love,

Kim

Scars are souveniers you never lose.

I am using the free version of SPAMfighter for private users.It has removed 217 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

Gail...Tell me @ your vacation...enquiring minds want to know..Sooo glad you got away for awhile sweety..Love ..pat

RE: Re: Tx

Then you & can do it together. You know, I didn’t realize how tired and worn out I’d been until about a year after tx and now feel better than I have in years (most of the time). I’ve learned not to try to do too much though – right, Patty?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kim stillSent: Sunday, July 23, 2006 12:30 AMHepatitis CSupportGroupForDummies Subject: Re: Tx

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start.

At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!!

I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too.

Peace and love,

Kim

Scars are souveniers you never lose.

I am using the free version of SPAMfighter for private users.It has removed 217 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

A lot of people that have been on treatment have worked.Just try to plan your shots where you are off for a couple of days.If you work Mon to Friday then take your shot friday after supper or friday night,then by monday you will be ok.Your first shot will give you a reaction.I felt like someone stuck me in the fridge I was so so cold.So get a hot water bottle or heating pad and go to bed shortly after the shot to sleep through most of the sides.I was on the very old treatment of interferon x3 and riboveron and was sick all the time cause of three shots a wk.If I had one shot a wk I would have been ok.Plan to start on your time off and you will be able to work and learn to pace yourself now cause your not going to be able to do everything,so get your priorities in place now.Take care hon and we will help you through it.

Gail

Re: Tx

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start.

At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!!

I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too.

Peace and love,

Kim

Scars are souveniers you never lose.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Finally learned to pace yourself did you girl.That is the secret,pace yourself and everything will get done,but on your bodies time,not your minds time.Hi girls I had a great vacation and am back.

Gail

RE: Re: Tx

Then you & can do it together. You know, I didn’t realize how tired and worn out I’d been until about a year after tx and now feel better than I have in years (most of the time). I’ve learned not to try to do too much though – right, Patty?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kim stillSent: Sunday, July 23, 2006 12:30 AMHepatitis CSupportGroupForDummies Subject: Re: Tx

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start.

At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!!

I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too.

Peace and love,

Kim

Scars are souveniers you never lose.

[Guest guest]

Gail, Hey Girl, I wondered where you went. I am a little behind for the day, I have been with the grand kids and am just now catching up for the day... Tell all about your vacation... Love, hugs, prayers, and peace -- Re: Re: Tx Gail...Tell me @ your vacation...enquiring minds want to know..Sooo glad you got away for awhile sweety..Love ..pat RE: Re: Tx Then you & can do it together. You know, I didn’t realize how tired and worn out I’d been until about a year after tx and now feel better than I have in years (most of the time). I’ve learned not to try to do too much though – right, Patty? De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kim stillSent: Sunday, July 23, 2006 12:30 AMHepatitis CSupportGroupForDummies Subject: Re: Tx Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start. At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!! I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too. Peace and love, Kim Scars are souveniers you never lose. I am using the free version of SPAMfighter for private users.It has removed 217 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! Letter ©Chezmf Graphics by Chezmf

[Guest guest]

I had a great holiday.I sent you some pictures to you that were taken at the Vancouver airport.There is me,my youngest daughter and her boyfriend.I am the old one.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Pat McBrideSent: July 23, 2006 10:54 AMHepatitis CSupportGroupForDummies Subject: Re: Re: Tx

Gail...Tell me @ your vacation...enquiring minds want to know..Sooo glad you got away for awhile sweety..Love ..pat

RE: Re: Tx

Then you & can do it together. You know, I didn’t realize how tired and worn out I’d been until about a year after tx and now feel better than I have in years (most of the time). I’ve learned not to try to do too much though – right, Patty?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kim stillSent: Sunday, July 23, 2006 12:30 AMHepatitis CSupportGroupForDummies Subject: Re: Tx

Actually, the plan for me is to start tx around the end of August. I found a study at the Texas Liver Coalition that starts August 29th. If I qualify (cholesterol and diabetes under control), then hopefully I will be able to join the study. If not, then I plan to go back to my GI and he will put me on tx then. Either way, sometime shortly after 8-29 I should start.

At first, a wasn't looking forward to starting tx at all. Now, I am so READY. I am tired of hurting and never feeling good. I was really worried about not being able to wrk. Suzie gave me some good advice not long ago: "Just buck up and do it" I think I'll listen. I have to do what I have to do to get better. I am getting a better mental attitude about tx now. I believe that it will work, I can work,and life will be great. I also believe that it will be TERRIFIC after tx!!

I will keep everyone posted on the news as it develops. Thanks for keeping me in thoughts and prayers, as I keep all of you there too.

Peace and love,

Kim

Scars are souveniers you never lose.

I am using the free version of SPAMfighter for private users.It has removed 217 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

We love helping people thru tx because we get to be bossy -- DRINK YOUR

WATER!!!!! LOL JK, its because we've been there.

/De

Re: is there anyone who is

getting treatment in sacramento ca

Wonderful news about you and your son. I live in Fontans inbetween Los

Angeles and San Bernardino, Ca. I am starting week 5 of my tx, everyone

reacts different to tx. I have had hardly any bad days since I have been on

it. I was so scared but the wonderful souls here in group really help

during this time. They gave me the courage to go on treatment. Good luck,

you and your son are in my prayers. hugs WW/pat

[Guest guest]

I know Shering-Plough has the same setup with the nurse and all that. Pat you may need to speak to your doc about uping your anti d. especially if you been on the same dose for a while. Big hugs honey d patricia <pandas2@...> wrote: Hey Tim Roche whom I get meds from has 24 hr. nursing hot line just to talk and you can also sign up for your personal nurse who calls you once a month. I am sure the other companys that make this stuff as same thing.

If you are on Pegasys the number is 1-877-734-2797 and the address is www.pegassist.com . It will all go well just stay positive. I never had any reaction until week 3 then it wasn't that big of a deal. Heading into week 6 I am on a roller coaster with emotions, sad then mad, headache but not bad and tummy hurting but my fault for not drinking enough water yesterday. That number is toll free and open 24 hours aday, very nice people. Good luck sweetie and all is going to be fine, another dragon bites the dust lol. hugs...pat . SAVE LIVES BE AN ORGAN DONOR

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Hey D, yup will tell him about mood swings feel like I am on a big trip and it isn't fun lol. Trying to be good and kind cause I dislike mean people but find I just wanna be confortational at times ha. Thats what my honey tells me are you feeling confortational honey? That usually cracks me up and changes the meanie mood sometimes. Hate taking Imodium every week but can't stand running to the bathroom all the time and the stomach cramps ouch. Now when I blow my nose I get blood but could be from dry air right now, don't get bloody noses. Feel like I am falling apart and can't seem to control it very well right now. I only take 20 mg. of prozak so they will probably up the dose. Need something to give me some get up and go becoming quite the couch potato. Sorry for rambling. hugs..WWdanne <dannegrl2003@...> wrote: I know Shering-Plough has the same setup with the nurse and all that. Pat you may need to speak to your doc about uping your anti d. especially if you been on the same dose for a while. Big hugs honey d patricia <pandas2sbcglobal (DOT) net> wrote: Hey Tim Roche whom I get meds from has 24 hr. nursing hot line just to talk and you can also sign up for your personal nurse who calls you once a month. I am sure

the other companys that make this stuff as same thing. If you are on Pegasys the number is 1-877-734-2797 and the address is www.pegassist.com . It will all go well just stay positive. I never had any reaction until week 3 then it wasn't that big of a deal. Heading into week 6 I am on a roller coaster with emotions, sad then mad, headache but not bad and tummy hurting but my fault for not drinking enough water yesterday. That number is toll free and open 24 hours aday, very nice people. Good luck sweetie and all is going to be fine, another dragon bites the dust lol. hugs...pat . SAVE LIVES BE AN ORGAN DONOR Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

Hi Pat, How bad are the bloody noses? Do you bruise easier now than before? If you do or even if you don't, it might be smart to ask your doctor to check your platelet count. I started getting the same thing a while back, when I blew my nose I got blood. I thought it was environmental too, then I started to bruise every time I gave myself my Insulin shots & found bruises that I couldn't explain - no memory of hurting myself, tripping or bumping into things - no reason for the bruising that I could think of . My doc did a complete blood count(CBC) & my platelets came back low. There's not much they can do about it except give a platelet transfusion but it's good to know. If your

spleen is enlarged it can start destroying your platelets instead of destroying the other stuff - infectious bacteria etc - that it's supposed to so ask your doc. Hugs, SuZie & Sir SpYke the Soother - she's always worrying about people, get it checked & it'll calm her down a bit.patricia <pandas2@...> wrote: Now when I blow my nose I get blood but could be from dry

air right now, don't get bloody noses.

Next time I'm coming back as a cat

[Guest guest]

Hi Suzie, they aren't bad just mainly when I blow my nose. As far as bruising I have always been a bruiser half the time don't know how I got them lol. I don't see anything like more bruising just feel not good. Stomach hurts don't want to eat again etc. I just had a lab done last week and see the doc tomorrow. Right side hurts for some reason will tell all my complaints tomorrow lol. Hugs...patsuzie <suzieandsandy@...> wrote: Hi Pat, How bad are the bloody noses? Do you bruise easier now than before? If you do or even if you don't, it might be smart to ask your doctor to check your platelet count. I started getting the same thing a while back, when I blew my nose I got blood. I thought it was environmental too, then I started to bruise every time I gave myself my Insulin shots & found bruises that I couldn't explain - no memory of hurting myself, tripping or bumping into things - no reason for the bruising that I could think of . My doc did a complete blood count(CBC) & my platelets came back low. There's not much they can do about it except give a platelet transfusion but it's good to know. If your spleen is enlarged it can start destroying your

platelets instead of destroying the other stuff - infectious bacteria etc - that it's supposed to so ask your doc. Hugs, SuZie & Sir SpYke the Soother - she's always worrying about people, get it checked & it'll calm her down a bit.patricia <pandas2sbcglobal (DOT) net> wrote: Now when I blow my nose I get blood but could be from dry air right now, don't get bloody noses. Next

time I'm coming back as a cat

[Guest guest]

I'm an easy bruiser too, Very fair skinned redhead so I know what you mean. The thing is, I found so many more bruises that I couldn't explain that I asked my doc, it was freaking me out, nosebleeds & bruises. She ordered the tests & Voils, we knew what it is. I just hate not knowing, it makes me feel out of control & control is very important to me. It won't cost you anything to ask will it? SuZie & Sir Spyke the Snooper, almost as nosy as her - it's a cat thing.patricia <pandas2@...> wrote: Hi Suzie, they aren't bad just mainly when I blow my nose. As far as bruising I have always been a bruiser half the time don't know how I got them lol. suzie <suzieandsandy > wrote: Hi Pat, it might be smart to ask your doctor to check your platelet count.

Next time I'm coming back as a cat

[Guest guest]

Hi Suzie, well seen the doc today and things haven't gone completely nuts with the labs lol. My red and white count have fallen pretty good so if another drop she will give me something for it. Its so wierd alot of my labs that were normal are now high and low readings. They will do another viral load next time, and she said to use some spray for my nose its just dry. Far as nausea and the like just keep putting up with it. Stomach sore cause liver abit swollen etc. Hasn't changed any meds as she said it usually gets better after the 8th week. Oh joy can't wait lol. Take care ...pat

[Guest guest]

Perhaps your M.D. could give you something to help you sleep. Or

you could try a homeopathic Boiron product called "sleeplessness/restless

sleep." Homeopathic products are extremely safe, yet they work.

I've used this product for years, and it helps me a lot.

Ellen

Gach wrote:

I had the cytoxan

today. Tolerated it well. My only problem

is that I can't sleep, because of the cortizon. Andy

[Guest guest]

Andy,

I took Ambien for that reason.

Joan

From: Gach

Sent: Thursday, July 22, 2010 5:17 PM

Subject: TX

I had the cytoxan today. Tolerated it well.

My only problem is that I can't sleep, because of the cortizon.

Andy

[Guest guest]

Andy,Are you scheduled to have a Neulasta shot at any time.  that's the one that my body has difficulty tolerating. 

On Thu, Jul 22, 2010 at 7:31 PM, Joan McEnery <jmcenery@...> wrote:

 

Andy,

 

I took Ambien for that reason.

 

Joan

From: Gach

Sent: Thursday, July 22, 2010 5:17 PM

Subject: TX

 

I had the cytoxan today.  Tolerated it well.

 

My only problem is that I can't sleep, because of the cortizon. 

 

Andy

 

[Guest guest]

Same thing happened to me, ask for sleep medication. CarolSent from Carol Ray's iPhoneOn Jul 22, 2010, at 4:17 PM, " Gach" <unclewolf@...> wrote:

I had the cytoxan today. Tolerated it well.

My only problem is that I can't sleep, because of the cortizon.

Andy

[Guest guest]

,

I'm with you, . I'm heading down to Stanford on Monday to see if Dr

Coutre will find me eligible for his PCI trials. I have my doubts as my

neuts seem stuck at 0.4.

If this doesn't work out it may have to be Revlimid for me - assuming

Celgene picks up the tab. We're still waiting to hear from them. But I'd

rather do the PCI32765.

Look forward to hearing your report. Hang in!

Fred Hummel

Arcata, CA Dx 1/97

On Fri, Oct 22, 2010 at 3:31 PM, <jb50192@...> wrote:

>

>

> Hi Folks - I think I am about to go on Dr. Furmans's PCI trial - I'm rather

>

> exciteed about it - will let you know -

>

>

[Guest guest]

Yes, please, any that are post-tx weigh in on this subject.

And, yes, I keep thinking I'm all well now. Then reality knocks me over LoL.

Quess it's gonna take some time to actually be all well. In my head I am well

and strong, however, I just can't seem to get up out of this dang chair....!

You said it exactly, Don.. " naked and exposed " very vulnerable . But this too

will pass.

Hubby told me I have six weeks to turkey season. And that handgun Santa brought

me at Christmas, waaayy cool!

Yeah, I'll figure out how to get back to " me " .

BTW, another Yippee !! Atta Girl ! to marie !

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

" A well- behaved woman never made history " ...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

TrudyI took my very last Riba pills on a Thursday. The very next day I had to go to Vancouver for tests. Well, I decided that because I shouldn't have any problem with the fatigue, I'd stay over with my girlfriend. Wrong!!! It just didn't happen that fast. Even the weekend after that one, I was back over to Vancouver for a HepC Conference. I was dragging by the time I got home.Then, I had that real spurt of energy about two months after the surgery. Almost felt 10 yrs younger! Now, I'm not sure what is zapping my energy; but, I have a sneaking hunch it's got to do with so much stress.Gloria

Yes, please, any that are post-tx weigh in on this subject.

And, yes, I keep thinking I'm all well now. Then reality knocks me over LoL. Quess it's gonna take some time to actually be all well. In my head I am well and strong, however, I just can't seem to get up out of this dang chair....!

You said it exactly, Don.." naked and exposed" very vulnerable . But this too will pass.

Hubby told me I have six weeks to turkey season. And that handgun Santa brought me at Christmas, waaayy cool!

Yeah, I'll figure out how to get back to " me".

BTW, another Yippee !! Atta Girl ! to marie !

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

"A well- behaved woman never made history"...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx