Tired

[Guest guest]

I feel exhausted most of the time.  Every once in a rare while I'll have a day

that I feel almost " normal "  and it reminds me of how much I missing feeling

" good " .   I've tried to figure out what makes the difference when I have a

" good " day but I haven't been able to coordinate it with anything in specific.

 

a

From: jrrtt88fan <jrrtt88fan@...>

Subject: tired

hyperaldosteronism

Date: Monday, August 25, 2008, 2:12 PM

I was just wondering if anyone else who has this hyperaldosteronism has

the problem of being exausted? I have times when I feel rather good

then out of nowhere I feel like I hit a brick wall and can't keep my

eyes open and my legs get really weak.

Peggy

[Guest guest]

Hi a

What kind of treatment are you taking for the hyperaldosteronism?  Did you have

your adrenal gland out?  Are you taking Spiro?  I'm just trying to figure out if

I will ever feel good again.  I keep hoping I will after surgery (the 10th) and

my 4 doctors say I will but I guess I'm a bit skeptical.

Peggy

 

[hyperaldosteronism ] tired

hyperaldosteronism

Date: Monday, August 25, 2008, 2:12 PM

I was just wondering if anyone else who has this hyperaldosteronism has

the problem of being exausted? I have times when I feel rather good

then out of nowhere I feel like I hit a brick wall and can't keep my

eyes open and my legs get really weak.

Peggy

[Guest guest]

Tiredness usually means total body K

Is low.

DASH will help ESP low Na

Sent from my iPhone

On Aug 25, 2008, at 2:17 PM, Peggy s <jrrtt88fan@...>

wrote:

> Hi a

> What kind of treatment are you taking for the hyperaldosteronism?

> Did you have your adrenal gland out? Are you taking Spiro? I'm

> just trying to figure out if I will ever feel good again. I keep

> hoping I will after surgery (the 10th) and my 4 doctors say I will

> but I guess I'm a bit skeptical.

> Peggy

>

>

> [hyperaldosteronism ] tired

> hyperaldosteronism

> Date: Monday, August 25, 2008, 2:12 PM

>

> I was just wondering if anyone else who has this hyperaldosteronism

> has

> the problem of being exausted? I have times when I feel rather good

> then out of nowhere I feel like I hit a brick wall and can't keep my

> eyes open and my legs get really weak.

>

> Peggy

>

>

[Guest guest]

I have bilateral adenomas, both of which are functional, so I'm not a candidate

for surgery. I take spiro 200 mg per day which controls my BP and K+ well. I

feel better than before my diagnosis when my K+ was low but still don't feel

" good " , I'm tired most of the time. I assume you had AVS done? I guess you're

aware that several members of our group have had one adrenal out only to have it

the PA return after surgery.

a

From: Peggy s <jrrtt88fan@...>

Subject: Re: tired

hyperaldosteronism

Date: Monday, August 25, 2008, 4:17 PM

Hi a

What kind of treatment are you taking for the hyperaldosteronism?  Did you have

your adrenal gland out?  Are you taking Spiro?  I'm just trying to figure out if

I will ever feel good again.  I keep hoping I will after surgery (the 10th) and

my 4 doctors say I will but I guess I'm a bit skeptical.

Peggy

[Guest guest]

Hello Peggy, Yes, I have the same experience. I can't predict how I

might be from one day to the next. I have to make tentative arrangements

to drive to see my mother 45minutes away, as I don't know whether on

that day I will be so tired I have to lie down/sleep for most of the

day. My legs get to feel so weak it's difficult to even get around the

home and the yard.

Carol

jrrtt88fan wrote:

>

> I was just wondering if anyone else who has this hyperaldosteronism has

> the problem of being exausted? I have times when I feel rather good

> then out of nowhere I feel like I hit a brick wall and can't keep my

> eyes open and my legs get really weak.

>

> Peggy

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.6.7/1632 - Release Date: 8/25/2008 7:05

AM

>

[Guest guest]

Carol, are you taking any meds or anything? How old are you? I just wish it

would get better. It makes it hard to go to work. I have a desk job and find

myself nodding off at times and my concentration is off... even after taking my

potassium supplements. I'm taking 10 supplements a day and my blood potassium

is barely 3.0. I'm also taking the maximum dosages of 4 b/p meds and my b/p is

still high. I do have a tumor on my left adrenal gland...approximately an inch

big. For several years I have had unexplained tiredness, weakness, memory

" fuzzies " , my balance will be off, etc. I thought I was going crazy and my

former dr kept telling me it was depression and drugging me for that and that it

was age. Anyway, I am having it removed in 2 weeks. The tests show the right

one is working. I'm a little nervous about the surgery but I have to try

something. I really hate taking all the meds. I feel like a walking medicine

cabinet. I'm only 41 years

old and I can't imagine living like this for the rest of my life. I have been

on the DASH diet for a few months and keeping my sodium intake under 2000 mg a

day.

Thank you for listening and letting me know that I'm not the only one feeling

this way.

Peggy

Re: tired

Hello Peggy, Yes, I have the same experience. I can't predict how I

might be from one day to the next. I have to make tentative arrangements

to drive to see my mother 45minutes away, as I don't know whether on

that day I will be so tired I have to lie down/sleep for most of the

day. My legs get to feel so weak it's difficult to even get around the

home and the yard.

Carol

jrrtt88fan wrote:

>

> I was just wondering if anyone else who has this hyperaldosteronism has

> the problem of being exausted? I have times when I feel rather good

> then out of nowhere I feel like I hit a brick wall and can't keep my

> eyes open and my legs get really weak.

>

> Peggy

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.138 / Virus Database: 270.6.7/1632 - Release Date: 8/25/2008 7:05

AM

>

[Guest guest]

Peggy, I'm 62, and have been plagued by these symptoms you describe

" tiredness, weakness, memory 'fuzzies' etc " since 2004.

I had an AVS in 2004 following a confirmed diagnosis of PA. As the

results were inconclusive, I have been on medication since. The

specialist I was seeing prescribed 12.5 mg spironolactone per day and

amiloride (5 or 10 mgs). In 2006 I increased the spiro to 25mg. The only

other medication has been Isoptin (240mg).

In May this year I increased spiro to 50mg and then to 100mg. As

potassium went up to 5.1, I reduced to 75mg. spiro for now.

Recently diagnosed Vitamin D deficiency is being treated with

supplements (2000IU per day).

The specialist (cardiologist) has told me I have a " stiff heart " . He

told me not to take more than 50mg spiro per day. My GP, whom I have

been seeing since late last year has been wonderful - monitoring my

increase in spiro, checking K levels and regularly checking heart

(ECG ). She is trying to get me in to see Dr Stowasser, a leading

researcher in PA. It's so good to have a GP who takes me seriously, and

doesn't attribute everything to neurosis or lifestyle complications. (I

am overweight, for one!)

I keep sodium intake to a minimum, eat mostly vegetables, fruit and grains.

I do hope surgery is successful for you, and gives you blessed relief.

It's nice to know we're not alone in this, isn't it.

Carol

Peggy s wrote:

>

> Carol, are you taking any meds or anything? How old are you? I just

> wish it would get better. It makes it hard to go to work. I have a

> desk job and find myself nodding off at times and my concentration is

> off... even after taking my potassium supplements. I'm taking 10

> supplements a day and my blood potassium is barely 3.0. I'm also

> taking the maximum dosages of 4 b/p meds and my b/p is still high. I

> do have a tumor on my left adrenal gland...approximately an inch big.

> For several years I have had unexplained tiredness, weakness, memory

> " fuzzies " , my balance will be off, etc. I thought I was going crazy

> and my former dr kept telling me it was depression and drugging me for

> that and that it was age. Anyway, I am having it removed in 2 weeks.

> The tests show the right one is working. I'm a little nervous about

> the surgery but I have to try something. I really hate taking all the

> meds. I feel like a walking medicine cabinet. I'm only 4 1 years

> old and I can't imagine living like this for the rest of my life. I

> have been on the DASH diet for a few months and keeping my sodium

> intake under 2000 mg a day.

>

> Thank you for listening and letting me know that I'm not the only one

> feeling this way.

>

> Peggy

>

> Re: tired

>

> Hello Peggy, Yes, I have the same experience. I can't predict how I

> might be from one day to the next. I have to make tentative arrangements

> to drive to see my mother 45minutes away, as I don't know whether on

> that day I will be so tired I have to lie down/sleep for most of the

> day. My legs get to feel so weak it's difficult to even get around the

> home and the yard.

> Carol

>

> jrrtt88fan wrote:

> >

> > I was just wondering if anyone else who has this hyperaldosteronism has

> > the problem of being exausted? I have times when I feel rather good

> > then out of nowhere I feel like I hit a brick wall and can't keep my

> > eyes open and my legs get really weak.

> >

> > Peggy

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.138 / Virus Database: 270.6.7/1632 - Release Date:

> 8/25/2008 7:05 AM

> >

>

>

[Guest guest]

Peggy, if your right adrenal is the over-producing one, I am assuming you've

had AVS? If you've had AVS, I wonder why you are not on spironolactone?

Where are you having the surgery?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Peggy s

Carol, are you taking any meds or anything? How old are you? I just wish it

would get better. It makes it hard to go to work. I have a desk job and find

myself nodding off at times and my concentration is off... even after taking

my potassium supplements. I'm taking 10 supplements a day and my blood

potassium is barely 3.0. I'm also taking the maximum dosages of 4 b/p meds

and my b/p is still high. I do have a tumor on my left adrenal

gland...approximately an inch big. For several years I have had unexplained

tiredness, weakness, memory " fuzzies " , my balance will be off, etc. I

thought I was going crazy and my former dr kept telling me it was depression

and drugging me for that and that it was age. Anyway, I am having it removed

in 2 weeks. The tests show the right one is working. I'm a little nervous

about the surgery but I have to try something. I really hate taking all the

meds. I feel like a walking medicine cabinet. I'm only 41 years

old and I can't imagine living like this for the rest of my life. I have

been on the DASH diet for a few months and keeping my sodium intake under

2000 mg a day.

Thank you for listening and letting me know that I'm not the only one

feeling this way.

[Guest guest]

I am no longer on spiro as I had adrenalectomy in 2002 but the side effects

were:

 

Constant menstral bleeding

Massive increase in breast size and my breasts became unbearably sore

GI effects

Hair and nails grew very fast and I was a model for the hairdressing college as

I needed to get my hair cut every two weeks. I looked like the wild woman from

the woods.....

 

There may have been more but that is what I remember.

 

Helen in Scotland.

Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hi

Up until now you have said you have felt no different having not taken

any thyroxine therefore really and truly no-one can possibly answer as

to how you will feel when you start again, one can only hope you feel

better than you did before. Everyone is so different as has been

demonstrated. Hope all goes well for you.

Chris

>

> Hello

> Feeling tired today, not a great a deal of energy and having to push

> myself, must be the 22 days lack of thyroxine i am feeling now. My

> whole body seems to ache and feel sluggish.

> Does anyone know if when I start in again this week that I will have

to

> wait for it to take effect again, I mean like the 6 weeks we say it

> takes for it to fully absorb after a dose increase?

>

> I really hope thats not the case.

>

[Guest guest]

Yes very difficult to say which problem is causing which symptoms but it seems pretty obvious to me that 22 days off thyroxine will eventaully have an effect, I will figure it out on my own, I havent felt too much of an difference not taking it, but wont go on about it here anymore. Thanks to everyone who has helped and offered support--- On Tue, 2/9/08, chrischids <no_reply >

Hi Up until now you have said you have felt no different having not taken any thyroxine therefore really and truly no-one can possibly answer as to how you will feel when you start again, one can only hope you feel better than you did before. Everyone is so different as has been demonstrated. Hope all goes well for you.Chris>> Hello> Feeling tired today, not a great a deal of energy and having to push > myself, must be the 22 days lack of thyroxine i am feeling now. My > whole body seems to ache and feel sluggish.> Does anyone know if when I start in again this week that I will have to > wait for it to take effect again, I mean like the 6 weeks we say it >

takes for it to fully absorb after a dose increase?> > I really hope thats not the case.>

[Guest guest]

Hi

I wholeheartedly agree that 22 days off thyroxine would have some

affect, I cannot leave it off for 1 day, which was why Chuck in the

first instance said we were two people that could not be compared.

I dont have adrenal problems so I cannot comment on that at all.

You dont have to figure it out on your own, there are plenty of

people here that can maybe reassure you, all I was saying was that

no-one can realistically tell you how you should feel or will feel

and are not seeing Dr P this week?

Chris

> >

> > Hello

> > Feeling tired today, not a great a deal of energy and having to

push

> > myself, must be the 22 days lack of thyroxine i am feeling now.

My

> > whole body seems to ache and feel sluggish.

> > Does anyone know if when I start in again this week that I will

have

> to

> > wait for it to take effect again, I mean like the 6 weeks we say

it

> > takes for it to fully absorb after a dose increase?

> >

> > I really hope thats not the case.

> >

>

[Guest guest]

It was necessary that I stopped the thyroxine to treat my adrenals, I didnt stop when I took NAE and had no effect from taking that really, I wanted to do it right this time with the HC and I think I have, but any improvements, and there are some, are just so slow! I obviously needed the HC because the initial small starting dose had no effect on me whatsoever!

Sorry If I sounded off with you, wasnt anything personal, just me getting frustrated.

I am going to start my thyroxine again tomorrow night, at 50mcg, it will be 2 weeks since I started the HC on thursday and am going to give taking the thyroxine at night a try. I guess 2 yrs on thyroxine with adrenals like mine will have taken its toll, but I knew nothing of the adrenal connection back then--- On Tue, 2/9/08, chrischids <no_reply >

Hi I wholeheartedly agree that 22 days off thyroxine would have some affect, I cannot leave it off for 1 day, which was why Chuck in the first instance said we were two people that could not be comparedChris> >> > Hello> > Feeling tired today, not a great a deal of energy and having to push > > myself, must be the 22 days lack of thyroxine i am feeling now. My > > whole body seems to ache and feel sluggish.> > Does anyone know if when I start in

again this week that I will have > to > > wait for it to take effect again, I mean like the 6 weeks we say it > > takes for it to fully absorb after a dose increase?> > > > I really hope thats not the case.> >>

[Guest guest]

Hi

Feel free to sound off at me as much as you want, I can take it no

probs.

I find taking thyroxine at night much more beneficial and good luck

with the restart.

Chris

>

Sorry If I sounded off with you, wasnt anything personal, just me

getting frustrated.

> I am going to start my thyroxine again tomorrow night, at 50mcg,

it will be 2 weeks since I started the HC on thursday and am going

to give taking the thyroxine at night a try. I guess 2 yrs on

thyroxine with adrenals like mine will have taken its toll, but I

knew nothing of the adrenal connection back then

>

>

>

>>

>

>

>

>

>

[Guest guest]

Tis a case of waiting and seeing . Poor love - you should be starting back on your thyroxine now, there is really no reason to wait any longer now that you are beginning to get back the symptoms of being hypothyroid. Nobody has to wait 6 weeks - it takes 6 weeks for the whole of the thyroxine to be absorbed, you should feel some effect fairly quickly.

Luv - Sheila

Feeling tired today, not a great a deal of energy and having to push myself, must be the 22 days lack of thyroxine i am feeling now. My whole body seems to ache and feel sluggish.Does anyone know if when I start in again this week that I will have to wait for it to take effect again, I mean like the 6 weeks we say it takes for it to fully absorb after a dose increase?

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.14/1646 - Release Date: 01/09/2008 18:03

[Guest guest]

Thanks, Im going to give it a go anyway--- On Tue, 2/9/08, chrischids <no_reply >

Hi Feel free to sound off at me as much as you want, I can take it no probs.I find taking thyroxine at night much more beneficial and good luck with the restart.Chris>Sorry If I sounded off with you, wasnt anything personal, just me getting frustrated.> I am going to start my thyroxine again tomorrow night, at 50mcg, it will be 2 weeks since I started the HC on thursday and am going to give taking the thyroxine at night a try. I guess 2 yrs on thyroxine with adrenals like mine will have taken its toll, but I knew nothing of the adrenal connection back then> > > >> > > > > >

[Guest guest]

Thanks Sheila, I will start it again tomorrow night, hope I can get in the habit of taking at night cos I have been so used to taking it in the mornings! I also dont want to take it at the same time as the HC to begin with.--- On Tue, 2/9/08, sheilaturner <sheilaturner@...>

Tis a case of waiting and seeing . Poor love - you should be starting back on your thyroxine now

Luv - Sheila

Feeling tired today, not a great a deal of energy and having to push myself, must be the 22 days lack of thyroxine i am feeling now. My whole body seems to ache and feel sluggish.Does anyone know if when I start in again this week that I will have to wait for it to take effect again, I mean like the 6 weeks we say it takes for it to fully absorb after a dose increase?

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.14/1646 - Release Date: 01/09/2008 18:03

[Guest guest]

Hi

I keep my thyroxine on my bedside table with my night cream and

coaster for my cuppa which I always take to bed. The dogs is there

also and as soon as I get into bed she is there wanting hers first.

Chris

>

> Thanks Sheila, I will start it again tomorrow night, hope I can get

in the habit of taking at night cos I have been so used to taking it

in the mornings! I also dont want to take it at the same time as the

HC to begin with.

>

>

>

[Guest guest]

Hi

Could be, I dont know, but taking it at night I wake up more

refreshed, nice and early and with more energy, taking it in the

morning I cannot get going so the absorption thing really does make

sense.

Chris

> >

> > Thanks Sheila, I will start it again tomorrow night, hope I can

get

> in the habit of taking at night cos I have been so used to taking

it

> in the mornings! I also dont want to take it at the same time as

the

> HC to begin with.

> >

> >

> >

>

[Guest guest]

Was there any chat regarding taking Armour at night - with the additional T3/ T2/T1 etc?

luv - Sheila

-Hi From memory on the about.com forum instigated this experimentabout 4 years ago and amongst the research she did I am sure she foundthat thyroid hormone 'puts out' during the sleeping hours, so that bytaking our meds at night we are more in line with natural supply. (Iwelcome correction by our wonderful scientific minds)I take my meds at night, it takes about 2 weeks to settle in and Iwouldnt take my meds any other way. I got some great dreams at thestart and continue to have deep refreshing sleep. Nightime meds arethe only way to go for this little brown duck.I was nervous that it would keep me awake - but it doesn't at all.Freeman>

..

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[Guest guest]

Yes Shelia, Armour at night discussed at that time as well as T4 only

and T4/T3. I take armour 4grains at night one dose - no worries.

fantastic results. Allow 2 weeks to settle, even possible dose

reduction for some. Gives me a deep refreshing sleep...wouldnt go

back to morning dosing for all the tea in china....and I luv me cuppa.

jennyfreeman

>

> Was there any chat regarding taking Armour at night - with the

additional T3/ T2/T1 etc?

>

> luv - Sheila

>

>

>

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02/09/2008 06:02

>

[Guest guest]

Oh Wow - then I will give it a go. I often forget my afternoon dose until around 6.00p.m. so tomorrow, I will go without and take it at night. Do you take it when you go to bed or in the evening. I am almost always awake around 5.30a.m. and rather than lying in bed looking at the ceiling, I get up and work, but then I do get quite tired at night when I want to enjoy myself.

I will definitely be giving this one a trial from tomorrow - and will get to do the same and see how we get on. I will report back. Is anybody else who takes Armour up to try this?

Luv - Sheila

Yes Shelia, Armour at night discussed at that time as well as T4 onlyand T4/T3. I take armour 4grains at night one dose - no worries. fantastic results. Allow 2 weeks to settle, even possible dosereduction for some. Gives me a deep refreshing sleep...wouldnt goback to morning dosing for all the tea in china....and I luv me cuppa.jennyfreeman>> Was there any chat regarding taking Armour at night - with theadditional T3/ T2/T1 etc?> > luv - Sheila>

..

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[Guest guest]

>

> > I get a lot of interupted sleep and i tend to forget my afternoon

dose so from tomorrow i will save it for bed time,had to stop the bi

carb kept running toilet once i stopped it my bowels returned to

normal i was only trying it just in case i had candida because i once

had fungal toe nail will let you know how i get on with night dose.

Marie

>

> .

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.15/1648 - Release Date:

02/09/2008 17:29

>

[Guest guest]

I started bicarb about 10 days ago, the first week, yes, I was running to the loo - almost getting 'taken short' but this week, I seem to have got used to it because I am now having normal bowel action. However, I will stop it for a couple of weeks after four weeks. I don't have Candida Albicans either, at least, I am almost sure I don't, but I want to keep my inside clear of the possibility.

Luv - Sheila

Re: Tired

>> > I get a lot of interupted sleep and i tend to forget my afternoon dose so from tomorrow i will save it for bed time,had to stop the bi carb kept running toilet once i stopped it my bowels returned to normal i was only trying it just in case i had candida because i once had fungal toe nail will let you know how i get on with night dose. Marie > > . > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.15/1648 - Release Date: 02/09/2008 17:29>

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[Guest guest]

evening everyone; jenny with regards to taking armour at night, how

long before a benefit was felt ? regards jane

>

>