Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 In a message dated 8/9/2001 9:28:29 AM Pacific Daylight Time, suzzzies2000@... writes: > Suzie - mother of 12, systemic jra since age > 7. Manteca, California > We are close, I am in Antioch Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 I'm Kathy, mother of Taliesen (Tally), aged 6, diagnosed with systemic onset January 2000. I live in Clemson, SC along with my dog (Roy), cat (), fish (lucky) and bird (rainbow). He's doing great....he's in the 1st grade and so far, so good. I'm praying I'm going to hear medicated remission at the next appointment but I know how this disease so I hate to get my hopes up. Our home page is http://hometown.aol.com/akally/ I have pics there and a favorite saying in my thoughts section. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 I agree this helps get to know each other... I also like to sign my emails like this, as a reminder, like I have seen others do...thats great too... and Cary parents to 15 mos. (Dx at 1 year pauciarticular JRA), Utica NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 I'm , mother of (14), (almost13), (10) polyarticular jra, and (6). __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Amy, mom to Buzz 8; still waiting for rheum. apt.; and Chelsea 11 and 6. Husband Chris RE: ROLL CALL mbvanert@... wrote: Since I am new to this group and I am seeing new faces popping up here almost daily, I wondered if it would be alright to have a " roll call " of sorts. I am curious to know where everyone is from, how many children they have, diagnoses, etc. so I can get to know everyone and maybe others who have been here for awhile can refresh their memory banks too. What do you think? I'll start............. > - mom to Halie 6 1/2, Poly JRA Dx'd 7 days ago, and Emma 4 > Chico, California n or AJ (your choice) Hubby is Mark, Mom to 18, Holly 7 (diagnosed systemic jra at 9 months) and 5 Massachusetts Sharon -mom to Meghann 14 1/2 yr. Pauciarticular onset JRA dx'd at 22 months............pretty darn close to you.... Corning, Ca and work in Chico. opps she's the youngest.....boys 26 and 23 and another daughter 19....LOL...guess I should forget the rest of the group....oh and of course, husband rich and lhasa--BJ Teri and parents to (4 yrs old) and . has pauciarticular JRA currently in remission. Rome,NY Robbin 38 Years old mom to 14 years old diagnosed Feb 2000 Atlanta Ga OOOOOPPPPPPSSSS i forgot to mention this i am married to my hubby for 25 years and have a son 23 years old then melissa lololol aunt to 9 with polyarticular systemic JRA Diane, mom to Breanne (4) and (2) (diagnosed with pauciarticular at 17 mos., but currently in remission), husband is Ken. Suzie - mother of 12, systemic jra since age 7. Manteca, California Silke, mom to Ulrich (15), psoriasis arthritis, husband Carsten und daughters Deike (3) and Inken (14) Germany, near Hamburg Michele, mom to , 14, pauci diagnosed Oct. 2000. Also, ,17 and ,11. DH Ed, in Midlothian, IL in the southern suburbs of Chicago. Lynn Glosson,hubby is Ronnie,mom to Timmy and (she was diagnosed at 1yr 10 months) by the way is 2yrs 5 months now Lynn G , Mom to n (age 12 with systemic JRA), Katelyn-10, and age 4. Portland, Oregon Tonya mom to daughter Terah 5 dx'd in June 2001 with systemic JRA, husband Tony and daughter 7, Lake Tx 1 hour south of Houston. Charlie father of Elliot age 7 (systemic JRA since age 2) Wife Rena Teaneck, NJ Georgina ~ Mom to Kayla, age 10 and , age 12 (systemic JRA since age 6). We live on the island of Maui in Hawaii. Anton, Father of Vivien age 12 (systemic JRA since age 5)., brother of Maxime 10 and Emeline 9 We live in Grenoble (France) see our homepage at http://anton.gruss.free.fr/photo.htm To manage your subscription settings, please visit: For links to websites about JRA: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Robin & , Parents of ey (5 months) and (age 2 1/2 years - Polyarticular diagnosed 4 months ago). Find the best deals on the web at AltaVista Shopping! http://www.shopping.altavista.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hi all Seems that I'm the only one from outside of the USA! I'm Adrienne (30) and I am currently engaged to (36). I live in Johannesburg South Africa (where spring is just about to come along I HOPE), with my youngest Greg (4), step daughter Chelaine (6) and my (8) who was diagnosed two and a half years ago. See ya! Ady Ogilvie (011) 686 6323 (Telephone) (011) 686 6666 (Fax) > Re: ROLL CALL > > n or AJ (your choice) Hubby is Mark, Mom to 18, Holly 7 > (daignosed systemic jra at 9 months) and 5 Massachusetts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Kristi,mom to Ashton(14) polyarticular JRA dx...April 1999,Also Daughter Katelyn(9) and hubby ..Landis,North Carolina (just north of Charlotte) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 I'm Janet and I have a 15 year old daughter with systemic JRA. Husband is Tim. We're in Sterling Heights, Michigan. Anyone from our area. Would love to have someone to talk to occasionally that can really relate to what's going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Dayna, We see Dr. Sherry as well. He has done a good job with my son Robbie. Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Oops, I guess in my roll call, I never said where we are from - Lynn & Barry , parents to Mickey (7, systemic, dx at 3) and Kinsey (5, daughter). We live in Kincardine, Ontario, Canada - on the beautiful sandy shores of Lake Huron. From: Adrienne Ogilvie <aogilvie@...> Reply- Date: Fri, 10 Aug 2001 07:49:32 +0200 " ' ' " < > Subject: RE: ROLL CALL Hi all Seems that I'm the only one from outside of the USA! I'm Adrienne (30) and I am currently engaged to (36). I live in Johannesburg South Africa (where spring is just about to come along I HOPE), with my youngest Greg (4), step daughter Chelaine (6) and my (8) who was diagnosed two and a half years ago. See ya! Ady Ogilvie (011) 686 6323 (Telephone) (011) 686 6666 (Fax) > Re: ROLL CALL > > n or AJ (your choice) Hubby is Mark, Mom to 18, Holly 7 > (daignosed systemic jra at 9 months) and 5 Massachusetts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Dayna, mother of (13). We are in Everett, WA. sees Dr. Sherry at Children's Hospital in Seattle. She was diagnosed in March with Systemic JRA. Also have a 5 1/2 yr. Old son, Deric. He may be facing Type 1 diabetes. Found out yesterday. What an adventure this is! Re: ROLL CALL Great idea, ! Since our humble beginnings at Onelist in 1998, which then merged with Egroups, which then became ... our JRA List group has grown to include approximately 273 members. It sure would be nice to hear from some of the quieter list members, too. Maybe this will present the opportunity for them to come out and say hello Thanks, Georgina To manage your subscription settings, please visit: For links to websites about JRA: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Lorie and Bobby Belcher parents of Liberty age 4 with poly JRA, Jaden 21/2yrs, and 8 mos Oops, I guess in my roll call, I never said where we are from - Lynn & Barry , parents to Mickey (7, systemic, dx at 3) and Kinsey (5, daughter). We live in Kincardine, Ontario, Canada - on the beautiful sandy shores of Lake Huron. From: Adrienne Ogilvie <aogilvie@...> Reply- Date: Fri, 10 Aug 2001 07:49:32 +0200 " ' ' " < > Subject: RE: ROLL CALL Hi all Seems that I'm the only one from outside of the USA! I'm Adrienne (30) and I am currently engaged to (36). I live in Johannesburg South Africa (where spring is just about to come along I HOPE), with my youngest Greg (4), step daughter Chelaine (6) and my (8) who was diagnosed two and a half years ago. See ya! Ady Ogilvie (011) 686 6323 (Telephone) (011) 686 6666 (Fax) > Re: ROLL CALL > > n or AJ (your choice) Hubby is Mark, Mom to 18, Holly 7 > (daignosed systemic jra at 9 months) and 5 Massachusetts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Well, looks like I forgot some info too. One more time here. Lorie and Bobby Belcher parents of Liberty age 4 with poly JRA, dx in Feb of this year. We are finally getting a handle on this for now and she has begun walking again. Yeah! Now we can start with some therapy so that maybe she will walk straight. ) Also 2 other children, boys, Jaden 21/2yrs, and 8 mos in great health. My husband is often concerned about Jaden as he is always pointing to his knees or ankles and saying " owie " and needing lots of kisses. I suppose the whole thing with Liberty has made us a little nervous but right now I think Jaden just needs some extra attention. Sweet boy. Must be hard to be the healthy one. I know that sounds weird but I really think it must be true. Re: ROLL CALL > > n or AJ (your choice) Hubby is Mark, Mom to 18, Holly 7 > (daignosed systemic jra at 9 months) and 5 Massachusetts > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Barb...mom to Chase 8, Systemic JRA and diagnosed in May of 2001. Also, Ty (19), Bo (17) and Tanner (5). Husband Tobi and we live in Reading, Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Wow, you guys travel over here for that? Dayna Re: ROLL CALL Dayna, We see Dr. Sherry as well. He has done a good job with my son Robbie. Jana To manage your subscription settings, please visit: For links to websites about JRA: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Kellie-mom 6 1/2 polyarticular. diag. oct 2000 >From: mbvanert@... >Reply- > >Subject: ROLL CALL >Date: Thu, 09 Aug 2001 05:02:22 -0000 > > > > > > - mom to Halie 6 1/2, Poly JRA Dx'd 7 days ago, and Emma 4 >Chico, California > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Oliver, father to Damien (6 years of age). He has had Systemic JRA since 9 months old. We live just south of London, England. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 and Milt, parents of (7) and (4) - pauciarticular diagnosed in March 2000 at age 2-1/2. Hopefully in remission. By the way, suzzzies2000 in California - what is this California Children's Services you mentioned? We live in Los Angeles. > > Teriand parents to (4 yrs old) and > . has > pauciarticular JRA currently > > in remission. > > Rome,NY __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Jane C. mother to ( systemic jra) age 10. we live in town, R.I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 , California Childrens services is a great state service. I thankfully have excellent benefits through my employment, but when I didn't they paid for everything for christine. Now they cover anything my insurance doesn't pick up. Like physical therapy, my insurance will only pay for certain facilities, of course the ones that do not deal with children, therefore they are usually afraid to touch christine. Who is your rhuemotologist? They are the ones that got CCS involved with for me. They will even pay for dental and orthodonture if it is related to the disability. You can use some of the studies that are posted here to get them to pay for that. My personal email is kenandsuzie@... If you need more information, I can get the phone numbers and anything else you might need. It is a great service!!! --- Chow <catchow_meow@...> wrote: > and Milt, parents of (7) and (4) > - > pauciarticular diagnosed in March 2000 at age 2-1/2. > > Hopefully in remission. > > By the way, suzzzies2000 in California - what is > this > California Children's Services you mentioned? We > live > in Los Angeles. > > > > > Teriand parents to (4 yrs old) and > > . has > > pauciarticular JRA currently > > > in remission. > > > Rome,NY > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 -Tabithas(16yrsold.polyarticular..diagnosed in 1989)gary-14,skyelynn-2,breanna-2,destiney-1.....york,pennsylvania From: " W and C Price " <immasche@...> Reply- Subject: roll call Date: Thu, 09 Aug 2001 09:16:32 -0700 , Mom to n (age 12 with systemic JRA), Katelyn-10, and age 4. Portland, Oregon _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 father to age 6 systemic, wife Lori Columbia , Mo. --- Georgina <gmckin@...> wrote: > Great idea, ! Since our humble beginnings at Onelist in 1998, > which then merged with Egroups, which then became ... our > JRA List group has grown to include approximately 273 members. > > It sure would be nice to hear from some of the quieter list members, > too. Maybe this will present the opportunity for them to come out and > say hello > > Thanks, > Georgina > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Tammy, hahahaha What a hoot!!! Your household sounds somewhat like mine. lol My son Matt 14 aspires to be a veterinarian, so we have 7 box turtles ( all at different stages of recovery from road accidents to lawn mower mayhem ) Hilda,Jack, Limpy, Snout, Yeller,Jake,and blackberry, 1 lopp eared rabbit named Lucky (saved from the stew pot),Cat named momma who adopted us with three kittens ( we've found good homes for two ... oh and the latest addition for the outside of course is bugeye the garter snake. Shew good thing I stopped with one kid....I couldn't take much more of this !!!! Tree from Louisville , Kentucky:):):) JRA 31 years dx'd , wife to 44 goin on 10, son Matt14 no JRA, but severe inhalant and food allergies,ADD. ROLL CALL Tammy...mother to Gabby (3 years old Systemic diagnosed almost a year ago) and to Annie, age 8 (fine & walking picture of health), wife to Jim, surrogate mother to Nikki (border collie/11 years old); Tommy (adopted homeless maine coon cat/age unknown); iel (old skinny ugly cat/11 years old); Ginger (homeless adopted guinea pig/age unknown); Rob & Darlene (2 Beta Fish/who cares)...Oh, we're all from stown, PA. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 oops i guess i had another blonde moment when i sent the last one (lol) .. my name is Kellie hubby named .. 6 1/2 dx'd 10/2000 polyarticular jra.- 3 and kitty cat midnight.. we live in Erie Pennsylvania.. >From: " angel 73 " <angelsbabysis@...> >Reply- > >Subject: Re: ROLL CALL >Date: Fri, 10 Aug 2001 17:07:05 -0400 > >Kellie-mom 6 1/2 polyarticular. diag. oct 2000 > > > >From: mbvanert@... > >Reply- > > > >Subject: ROLL CALL > >Date: Thu, 09 Aug 2001 05:02:22 -0000 > > > > > > > > > > > > - mom to Halie 6 1/2, Poly JRA Dx'd 7 days ago, and Emma 4 > >Chico, California > > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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