Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 I would like to welcome our newest members to the group: samdneis [sam] Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Carol,First of all welcome to the group. You have found a place where information is as plentiful as the support. There are people here in all stages of their walk with Hep C. From newly diagnosed, to treating, to waiting for treatment, treating with alternative protocols, not treating at all for various reasons and some of us who have gone thru treatment and come out on the other side. You have found a soft spot to land. About Telaprevir.. This drug is currently in front of the FDA awaiting approval. In the clinical trials it was tested on Type 1 Hep C patients as they are the ones that have the hardest time clearing. No studies have been done yet on genotype 2 patients. The purpose of this drug is 2 fold. One, increasing the response rate from 40% to 80 to 85% in a type 1 patient. With type 2 your response rate is already high. The second aim is to possibly decrease treatment time from 48 weeks to 24 weeks. With genotype 2 your treatment time is already 24 weeks. So the Telaprevir appears to be marketed more towards patients with the hard to treat and long treatment time genotype 1. More information will be released when this drug is approved by the FDA. Your doctor will have more information as well when the time gets closer. I would bring your question up to your doctor and get his opinion. He's probably going to tell you exactly what I just did but I'd rather you hear it from your doctor as well. Hope that helps. And yes, you will beat this.. That's the attitude you have to have.Hugs,TeriOn Thu, Dec 30, 2010 at 2:00 AM, countrycharm17 <cdekle17@...> wrote: Hello, I am starting treatment soon for genotype 2 that I have had for at least 20 years. I have a high viral load with no symptoms other than fatigue. I am curious about the new drug Telaprevir. Should I wait until that drug is available? I appreciate any and all suggestions. It's good to know there are others out there fighting this disease. I plan on beating it just like I did breast cancer. One day at a time. Carol Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (59) Recent Activity: New Members 7 New Links 1 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Hi Carol,I was looking at the same issue recently. I have genotype 1 that I have had for over 35 years. My previous biopsy in 2002 indicated that I had fibrosis, but it was considered minor. My last biopsy two months ago shows that it has developed into Cirrhosis. My doctor seemed to suggest that because of the Telaprevir that it would be a good plan to wait until it was available, but because of the progression of the Cirrhosis he was leaning toward starting treatment now using the current treatment model of Pegasys. To help in the decision he had me take a IL28B Polymorphism genotype test, which revealed that I have a CC genotype subtype, which studies show have a 80%+ clear rate using Pegasys. Across the board, Pegasys only has a clear rate of 50%. With those statistics it seems like a good idea to move forward with treatment now. I have an appointment with my gastro 1/4/11 and I expect to get my prescription for Pegasys. I believe that genotype 2 has a 26 week treatment phase and a higher clear rate than genotype 1, so it might make sense to start now. I suppose considering how much damage you have could be a factor in whether to wait or not. Like you, I have no symptoms other than fatigue, but I definitely feel it more as time goes on.Are you taking any supplements or herbs? I am having a hard time deciding what or if I should be taking. My mother has a whole bunch of so called liver friendly supplements and herbs to take, but how do I know if this stuff is any good? I don’t want to do more damage. There have always been snake oil salesman.Good luck and hope to hear your plan and eventual success. Jon from Ohio From: [mailto: ] On Behalf Of countrycharm17Sent: Thursday, December 30, 2010 3:00 AM Subject: [ ] Re: Welcome New Members Hello,I am starting treatment soon for genotype 2 that I have had for at least 20 years. I have a high viral load with no symptoms other than fatigue. I am curious about the new drug Telaprevir. Should I wait until that drug is available? I appreciate any and all suggestions.It's good to know there are others out there fighting this disease. I plan on beating it just like I did breast cancer. One day at a time.Carol>> I would like to welcome our newest members to the group:> > > > > anneeshivayka [Annee]> countrycharm17> > Thank you for joining us.> Please say hi so we can all say hi back.> > love> don in ks> > To post on forum:> <--- click here> > Links Library:> http://health.dir./group/ /links <--- click here> > Our Sponcer:> http://www.healthyhepper.com/ <--- click here> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Hi Jon, First of all, good luck on your treatment. I hope you have good results with the pegasys. It's interesting that your Dr wants you to wait until Teleprevir is available. Maybe he thinks its worth the risk? I think we are all in charge of our own health and know what treatment is best. I am suspicious of ALL medicines. Western or eastern. With my cancer they want you to take certain drugs such as Tamoxifen that is supposed to suppress estrogen if your cancer is positive for it, but then it can cause cancer of the ovaries. That just seems asanine to me. I have done research on naturopathic remedies for hep c and I almost took on in particular ahcc but my dr recommended against it. Its a mushroom blend manufactured in Japan. I would ask your dr about it but most likely they will not want you taking it during treatment because it could interfere. Good luck to you, Carol > > > > I would like to welcome our newest members to the group: > > > > > > > > > > anneeshivayka [Annee] > > countrycharm17 > > > > Thank you for joining us. > > Please say hi so we can all say hi back. > > > > love > > don in ks > > > > To post on forum: > > <mailto: %40> > <--- click here > > > > Links Library: > > http://health.dir./group/ /links <--- click > here > > > > Our Sponcer: > > http://www.healthyhepper.com/ <--- click here > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Awesome information! Thanks! Everything I had seen up until that piece had it geared toward Type 1's. If your doc has been putting you off on treatment, maybe she is waiting for this drug...? A lot of doctors are. Makes going thru the treatment a bit easier, at least emotionally, if you know it's going to work. Treatment can be a rough ride, it was for me but maybe knowing the treatment would work would help. I was scared to death for the whole 48 weeks that I might be going thru treatment for nothing. I still cringe when they test me and I've been clear for 5 years now. Hugs,TeriOn Thu, Dec 30, 2010 at 2:49 PM, countrycharm17 <cdekle17@...> wrote: Hi Teri, Thank you for the warm welcome! With your information I dug a little deeper to see if there was any studies on genotype 2 and came across this: http://health.dir./group/Hepatitis C/message/11732. Wonderful news for those with genotype 1 who had a low success rate and now have hope for a cure after enduring treatment. For me, it might be worth the wait, if its only a few months to make sure I get a 100% success rate. I will definitely talk to my Dr. Curious though, she has been putting me off taking the treatment for months now. That's what prompted me to join this group and find out more options on treatment. Thank you again for your insightful information, Cheers, Carol > > > > > > > Hello, > > > > I am starting treatment soon for genotype 2 that I have had for at least 20 > > years. I have a high viral load with no symptoms other than fatigue. I am > > curious about the new drug Telaprevir. Should I wait until that drug is > > available? I appreciate any and all suggestions. > > > > It's good to know there are others out there fighting this disease. I plan > > on beating it just like I did breast cancer. One day at a time. > > > > Carol > > > > > > Reply to sender<cdekle17@...?subject=Re%3A%20Welcome%20New%20Members>| Reply > > to group< ?subject=Re%3A%20Welcome%20New%20Members>| Reply > > via web post< /post;_ylc=X3oDMTJxYzRlZHNwBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHNlYwNmdHIEc2xrA3JwbHkEc3RpbWUDMTI5MzY5NzM0Mg--?act=reply & messageNum=36075>| Start > > a New Topic< /post;_ylc=X3oDMTJlOGd1YW40BF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwNmdHIEc2xrA250cGMEc3RpbWUDMTI5MzY5NzM0Mg--> > > Messages in this topic< /message/17147;_ylc=X3oDMTM2cTExZ3I4BF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHNlYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTI5MzY5NzM0MgR0cGNJZAMxNzE0Nw-->( > > 59) > > Recent Activity: > > > > - New Members< /members;_ylc=X3oDMTJmOG5yNmRvBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzEyOTM2OTczNDI-?o=6> > > 7 > > - New Links< /links;_ylc=X3oDMTJnb3Y4MG9tBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZsaW5rcwRzdGltZQMxMjkzNjk3MzQy> > > 1 > > > > Visit Your Group< ;_ylc=X3oDMTJlbnU4ZGprBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTI5MzY5NzM0Mg--> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Hi Teri, First of all congratulations on being free of hep c! That's great! I know it can be stressful when they test you. Mammograms for me are very hard. I've been clear 3 1/2 years. They say cured is 5. Isn't that what they say for hep c too? Can you now give blood? I always wondered that. Take care, Carol > > > > > > > > > > > > > > > Hello, > > > > > > > > I am starting treatment soon for genotype 2 that I have had for at > > least 20 > > > > years. I have a high viral load with no symptoms other than fatigue. I > > am > > > > curious about the new drug Telaprevir. Should I wait until that drug is > > > > available? I appreciate any and all suggestions. > > > > > > > > It's good to know there are others out there fighting this disease. I > > plan > > > > on beating it just like I did breast cancer. One day at a time. > > > > > > > > Carol > > > > > > > > > > > > Reply to sender<cdekle17@?subject=Re%3A%20Welcome%20New%20Members>| > > Reply > > > > to group< < %40>?subject\ =Re%3A%20Welcome%20New%20Members>| > > Reply > > > > via web post< > > /post;_ylc=X3oDMTJxYzRlZHNwBF9TAzk3\ MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHNlYwNmdHIE\ c2xrA3JwbHkEc3RpbWUDMTI5MzY5NzM0Mg--?act=reply & messageNum=36075>| > > Start > > > > a New Topic< > > /post;_ylc=X3oDMTJlOGd1YW40BF9TAzk3\ MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwNmdHIEc2xrA250cGMEc3Rp\ bWUDMTI5MzY5NzM0Mg-- > > > > > > > Messages in this topic< > > /message/17147;_ylc=X3oDMTM2cTExZ3I\ 4BF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHN\ lYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTI5MzY5NzM0MgR0cGNJZAMxNzE0Nw-- > > >( > > > > 59) > > > > Recent Activity: > > > > > > > > - New Members< > > /members;_ylc=X3oDMTJmOG5yNmRvBF9TA\ zk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZtYnJzB\ HN0aW1lAzEyOTM2OTczNDI-?o=6 > > > > > > > 7 > > > > - New Links< > > /links;_ylc=X3oDMTJnb3Y4MG9tBF9TAzk\ 3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZsaW5rcwR\ zdGltZQMxMjkzNjk3MzQy > > > > > > > 1 > > > > > > > > Visit Your Group< > > ;_ylc=X3oDMTJlbnU4ZGprBF9TAzk3MzU5N\ zE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDM\ TI5MzY5NzM0Mg-- > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Carol,Cured for Hep C is now 6 months of SVR after treatment is over. If the virus stays gone for 6 months after treatment ends it is gone for good. Once you are SVR or Sustained Viral Response, meaning there are no little viruses running around in your bloodstream, the antibody for HCV will still be there showing that you were exposed to it at some time. Because of that, you cannot donate blood. http://hepatitis.about.com/od/lifestyle/f/Donate.htmClearing Hep C was rough but worth it. It feels good knowing I've got rid of that dragon! Hugs,TeriOn Thu, Dec 30, 2010 at 4:03 PM, countrycharm17 <cdekle17@...> wrote: Hi Teri, First of all congratulations on being free of hep c! That's great! I know it can be stressful when they test you. Mammograms for me are very hard. I've been clear 3 1/2 years. They say cured is 5. Isn't that what they say for hep c too? Can you now give blood? I always wondered that. Take care, Carol > > > > > > > > > > > > > > > Hello, > > > > > > > > I am starting treatment soon for genotype 2 that I have had for at > > least 20 > > > > years. I have a high viral load with no symptoms other than fatigue. I > > am > > > > curious about the new drug Telaprevir. Should I wait until that drug is > > > > available? I appreciate any and all suggestions. > > > > > > > > It's good to know there are others out there fighting this disease. I > > plan > > > > on beating it just like I did breast cancer. One day at a time. > > > > > > > > Carol > > > > > > > > > > > > Reply to sender<cdekle17@?subject=Re%3A%20Welcome%20New%20Members>| > > Reply > > > > to group< < %40>?subject=Re%3A%20Welcome%20New%20Members>| > > Reply > > > > via web post< > > /post;_ylc=X3oDMTJxYzRlZHNwBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHNlYwNmdHIEc2xrA3JwbHkEc3RpbWUDMTI5MzY5NzM0Mg--?act=reply & messageNum=36075>| > > Start > > > > a New Topic< > > /post;_ylc=X3oDMTJlOGd1YW40BF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwNmdHIEc2xrA250cGMEc3RpbWUDMTI5MzY5NzM0Mg-- > > > > > > > Messages in this topic< > > /message/17147;_ylc=X3oDMTM2cTExZ3I4BF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BG1zZ0lkAzM2MDc1BHNlYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTI5MzY5NzM0MgR0cGNJZAMxNzE0Nw-- > > >( > > > > 59) > > > > Recent Activity: > > > > > > > > - New Members< > > /members;_ylc=X3oDMTJmOG5yNmRvBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzEyOTM2OTczNDI-?o=6 > > > > > > > 7 > > > > - New Links< > > /links;_ylc=X3oDMTJnb3Y4MG9tBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZsaW5rcwRzdGltZQMxMjkzNjk3MzQy > > > > > > > 1 > > > > > > > > Visit Your Group< > > ;_ylc=X3oDMTJlbnU4ZGprBF9TAzk3MzU5NzE0BGdycElkAzI0MzY3MzIEZ3Jwc3BJZAMxNzA1MDYxNjk4BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTI5MzY5NzM0Mg-- > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2011 Report Share Posted January 4, 2011 hi From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Mon, January 3, 2011 8:12:31 PMSubject: [ ] Welcome New Members I would like to welcome our newest members to the group: rivera.m7938 [Margarita] Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
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