Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi : I wonder if I could bother you to send me the latest version of the schedule for get “togethers” in the Bay Area for the Brain Gym work. Thanks so much Ann Farris Author: The Other Side of Dyslexia www.dyslexiadiscovery.com 415-552-6330 From: [mailto: ] On Behalf Of Freitas Sent: Monday, February 27, 2006 6:36 PM Children with Challenges Subject: welcome new member Welcome a new member who writes: " I have almost 5 year old, ex-25 weeker preemie twins and would like to learn and try reflex integration for them. " Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi : I wonder if I could bother you to send me the latest version of the schedule for get “togethers” in the Bay Area for the Brain Gym work. Thanks so much Ann Farris Author: The Other Side of Dyslexia www.dyslexiadiscovery.com 415-552-6330 From: [mailto: ] On Behalf Of Freitas Sent: Monday, February 27, 2006 6:36 PM Children with Challenges Subject: welcome new member Welcome a new member who writes: " I have almost 5 year old, ex-25 weeker preemie twins and would like to learn and try reflex integration for them. " Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 , thank you so much for that warm welcome. It all started about less than a year ago when a speach therapist evaluated my grandaughter and said she had a speach delay. Then 2 months afterwards there was another evaluation and she said that she thought she had some kind of seizure; like petit mal. This was in October. We immediatelly took her to a Child Neurologist and tests began. Epiliepsy was ruled out but her Lactic Acid and Piruvates levels (together) were high. 45 total when they should be 30. Again they were repeated. It took almost a month for those results to get back here. I live in Puerto Rico. This time the combined total was 100. Very high. There she said that the child had a Genetic/Metabolic Disorder and referred us to a Genetecist with two other tests. Carnitine and another about creatinine. These came out ok. We went to see the Genetecists and he did an extensive examination on her. There he showed us about her hypotonia and repeated movements around something or someone. We had never observed that. I almost fainted when he pulled her thumb all the way to her arm. She has as I understand soft muscles. That is in her mouth also and does not let her be able to speak well. She is a very active 3 year old. Her skin is real clear (white), but since my mother, I and my daughter and all our families are white, (though not as white as her) we saw nothing wrong. On her father's side some members do have darker skin and they have noticed how white she is. I do notice that after a while the sun really bothers her unles we are at the beach, which she loves. Let me be very sincere and a little personal here; I personally love people of all skin colors. To me there is no difference. Every human being is unique, special, beautiful and wonderful. I do not work In Human Resources since I was disabled (1997) due to back problems. But when I'm feeling better my goal in life in helping others in any way that I can. I help Victims of Domestic Violence and as an Environmentalist. I wanted you to know a little about me personally. He started her on two suplements: Biotine and Thiamine. Ordered the Urine Acylglicide profile and Plasma Acylcarnitine (C-2/C-18)and as soon as those results are in to bring her in immediatelly. I asked him about a possible diagnosis and he said at the moment he is more inclined to Oxidative Metabolic Disorder till the new results came in. I had done so much research on the Internet and had all those papers with me. He told us to watch out for any symptoms related to low sugar. I am a diabetic. And studied Nursing even though I never worked but have always kept updated on most fields. I would love to hear from the members on any feedback that you can give me and on your experiences. I will read the Boards and get as much information as I can. Thank you so much for acepting me in your group and may God Bless you and your loved ones forever and always! Yoly Perea > > Please welcome a new member who writes: > > I'm the grandmother of a 3 y/o girl.Presents speach delay & hypotonia. > The Genetecists, has given a tentative DX of Oxidative Metabolic > Disorder. I want to know as much as I can to help them. > > Val > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hello everyone I would like to correct this our newest member is Char and her husband who suffers from pain is Terry. Sorry for the mistake. Sharon Group Owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 WELCOME TERRY I HOPE WE CAN ANSWER ANY QUESTIONS THAT YOU AND YOUR HUSBAND MIGHT HAVE. THIS IS A GREAT GROUP FILLED WITH VERY SUPPORTIVE MEMBERS. TAKE CARE AND DON'T BE SHY! rob <html><div>No greater burden can be borne by an individual than to know no one cares or understands. </div></html> >From: " darkstarzz1019 " <darkstarzz1019@...> >Reply-neck pain >neck pain >Subject: Welcome New Member >Date: Sun, 28 May 2006 10:22:29 -0000 > >Hello everyonme I would like you to welcome our newest member Terry. >Her husband suffers from chronic pain. Hopefully soon she will >introduce them both and we look forward to getting to know you. I am >sorry that his pain has brought you to this group but you couldn't >find a nicer more caring bunch of people around. Again a warm welcome >to both of you. Sharon Group Owner > > > > > > > > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Hi , Thanks for letting me join your group. I am 43 years old and have been dealing with my back issues for 5 years now. I originally hurt my back working in my yard. I didn't know that I had any underlying conditions so I never really took care of it the way I should. I was told that I had degenerative disk disorder and it was way advanced for my age at the time. The day I hurt my back, I completely destroyed my bottom 3 disk starting with S1. For about 6 months I tried epidural shots, physical surgery, pain meds, and didn't get any relief so I decided on the surgery. One surgery led to another and then another. I've had infections from them that they had to go in and clean out which was another surgery. I am fused from L5/S1 - L1/L2 - 5 levels. Above the fusion, I have developed arthritis which also causes pain. After suffering for about 3 or so years, my pain Dr. suggested a trial stimulator. I went for it but it took over a year for my insurance to approve it. It did help about 65%. I was able to sit through an entire movie! It has been a year since the trial and I know that I need to get it done but I am having a very hard time trying to convince myself to let another Dr touch me with a knife. I have developed a major case of post traumatic stress disorder from all the pain. I woke up from my 3rd surgery before I had any pain meds in me and it was the worst experience in my life! I am still going to a pain Dr. each month and that is as far as I have gotten in the last year. Thanks for letting me share, > > , > Hi my name is . I am one of the moderators of this group. I would like to welcome you. > I have had RSD for over 7 years and have had my scs for 1 1/2 years.I get great relief with my scs. Sure I'm not 100 % pain free.. but it is much better then it was. > Would you like to tell the group about yourself? > We have many careing and knowageble people here that can help any questions or concerns you may have. > I do understand how bad the fusions can be. My husband is going to be having his 2nd cervical fusion surgery June 3rd... > Did you just have the trial so far? When is your surgey scheuled for? > Take care and let us know if you have any wuestions.. We are all here for each other.. > Hope you have a great Memorial Day weekend !!! > soft hugs > T > group moderator > lisa > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 susan welcome to the group, i am mike group owner here. I started this group about 7 years ago when i got my stimulator I hurt me back while working with adults with mental illness a pateint ran his head into my back football tackle type. his head hit my back hard i have a about 12 steriod injections for 2 years then a IDET surgery then a Anterior luimbar fusion then a spinal cord stimulator. anyway im glad your stimulator helped you alot if you need anything let me know mike2boys@... Mike Maxey Group Owner > > > > , > > Hi my name is . I am one of the moderators of this group. I would > like to welcome you. > > I have had RSD for over 7 years and have had my scs for 1 1/2 > years.I get great relief with my scs. Sure I'm not 100 % pain free.. but > it is much better then it was. > > Would you like to tell the group about yourself? > > We have many careing and knowageble people here that can help any > questions or concerns you may have. > > I do understand how bad the fusions can be. My husband is going to be > having his 2nd cervical fusion surgery June 3rd... > > Did you just have the trial so far? When is your surgey scheuled > for? > > Take care and let us know if you have any wuestions.. We are all here > for each other.. > > Hope you have a great Memorial Day weekend !!! > > soft hugs > > T > > group moderator > > lisa > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 I would like to welcome our newest member to the group: cornfielduk [] Thank you for joining us. Please say hi so we can all say hi back. love don in ks To post on forum: <--- click here Links Library: http://health.dir./group/ /links <--- click here Our Sponcer: http://www.healthyhepper.com/ <--- click here Quote Link to comment Share on other sites More sharing options...
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