Re: liver doc today

[Guest guest]

ny,I don't like those doctors at the clinical trial.  The one you are dealing with is an idiot.  Yes, you had issues on treatment...  basically because they weren't watching you closely enough.  Jerks.  If you are allergic to the medications you develop that reaction within hours of taking the first dosage.  Not months.  Your body can and did handle the medications just fine for 20 some odd weeks.  Yes, the meds made you pretty sick.  They made me pretty sick too.  But by no means does that mean you can't handle it.  I think you just need an aggressive Hepatologist to work with your liver issues...  and I'm sure you can find one on the East Coast pretty easily.  NJ, NY all good places to start looking.  I'm sure your Dad is already scoping it out.  I can also ask my brother-in-law for some names for out there.  He's in Saratoga Springs, NY but he works for a PR firm for major drug companies and works with specialists all the time.  

Glad you gave that woman a piece of your mind..  Hugs,TeriOn Tue, Nov 30, 2010 at 4:49 AM, Barrett <barrjohnm@...> wrote:

 

Hi,

I forgot to say went to the liver doc today, did not turn out good. they took 11 tubes of blood, all doc wanted was data, when I asked about re treatment I was told that I can't re treat as my body can't handle the drugs. I then asked why did I handle it for 4 months (did have my gall bladder become inflamed), then everything fell apart? The treatment was rough

for me, and the doctor said my case is very rare, and now after the treatment is over, which I think is 3 weeks or so that I should have no pain or problems at all, but I have so many. I did give her a piece of my mind, not that she cared but it was good for me to get it off my chest.

She now wants me to get a scope to look inside the GI tract for the stomach feeling it is being ripped apart, I forgot what it is called something with a " e "

I can't believe this! Teri said once if you have a bad reaction it happens right away, not in months. I then asked well if I can't treat in your opinion what are my options, was told we can talk about that next time, but she said that last time.

The only reason why I went is for the prc test. I was undetectable for the last one in October, and so I will still be undetectable in my mind! You have to think positive Until I see a test saying that I have a positive viral load (not sure what it is called when the virus comes back), I am cured!

The treatment was so hard, and the after treatment is really hard, but I really believe that the treatment is good, and better options are coming soon.

I took some oxycodene, really strong pills, yikes! The bottle says 1 pill every 4 hours, I think it is a mis-print as I feel stoned, but I am in no pain right now feel numb.

this message is suppose to be positive, and I hope it is.

Tonight my writing might be out there, but thanks so for listening,

Big

Hugs to everybody,Love ny

[Guest guest]

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR. I'm not sure when you would ever be able to say you are cured. But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.Gloria

ny,I don't like those doctors at the clinical trial. The one you are dealing with is an idiot. Yes, you had issues on treatment... basically because they weren't watching you closely enough. Jerks. If you are allergic to the medications you develop that reaction within hours of taking the first dosage. Not months. Your body can and did handle the medications just fine for 20 some odd weeks. Yes, the meds made you pretty sick. They made me pretty sick too. But by no means does that mean you can't handle it. I think you just need an aggressive Hepatologist to work with your liver issues... and I'm sure you can find one on the East Coast pretty easily. NJ, NY all good places to start looking. I'm sure your Dad is already scoping it out. I can also ask my brother-in-law for some names for out there. He's in Saratoga Springs, NY

but he works for a PR firm for major drug companies and works with specialists all the time.

Glad you gave that woman a piece of your mind.. Hugs,TeriOn Tue, Nov 30, 2010 at 4:49 AM, Barrett <barrjohnm@...> wrote:

Hi,

I forgot to say went to the liver doc today, did not turn out good. they took 11 tubes of blood, all doc wanted was data, when I asked about re treatment I was told that I can't re treat as my body can't handle the drugs. I then asked why did I handle it for 4 months (did have my gall bladder become inflamed), then everything fell apart? The treatment was rough

for me, and the doctor said my case is very rare, and now after the treatment is over, which I think is 3 weeks or so that I should have no pain or problems at all, but I have so many. I did give her a piece of my mind, not that she cared but it was good for me to get it off my chest.

She now wants me to get a scope to look inside the GI tract for the stomach feeling it is being ripped apart, I forgot what it is called something with a "e"

I can't believe this! Teri said once if you have a bad reaction it happens right away, not in months. I then asked well if I can't treat in your opinion what are my options, was told we can talk about that next time, but she said that last time.

The only reason why I went is for the prc test. I was undetectable for the last one in October, and so I will still be undetectable in my mind! You have to think positive Until I see a test saying that I have a positive viral load (not sure what it is called when the virus comes back), I am cured!

The treatment was so hard, and the after treatment is really hard, but I really believe that the treatment is good, and better options are coming soon.

I took some oxycodene, really strong pills, yikes! The bottle says 1 pill every 4 hours, I think it is a mis-print as I feel stoned, but I am in no pain right now feel numb.

this message is suppose to be positive, and I hope it is.

Tonight my writing might be out there, but thanks so for listening,

Big

Hugs to everybody,Love ny

[Guest guest]

Gloria,If he can maintain SVR for 6 months.. that's all he needs.  CURED.  That virus won't ever pop up again...  lets just hope for undetectable blood tests for a few more months now... 

Hugs,TeriOn Tue, Nov 30, 2010 at 9:39 PM, Gloria <gadamscan@...> wrote:

 

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR.  I'm not sure when you would ever be able to say you are cured.  But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.

Gloria

[Guest guest]

Teri & nyYou know that I'm pulling for that major big time!!! It's going to happen, we all just know that. But, ny, you are in my prayers. You have been a very gallant man for going through such a horrible time. Now it's definitely time for the healing and getting some parental love and attention.Gloria

Gloria,If he can maintain SVR for 6 months.. that's all he needs. CURED. That virus won't ever pop up again... lets just hope for undetectable blood tests for a few more months now...

Hugs,TeriOn Tue, Nov 30, 2010 at 9:39 PM, Gloria <gadamscan@...> wrote:

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR. I'm not sure when you would ever be able to say you are cured. But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.

Gloria

[Guest guest]

Hi Gloria,yes I am hoping this that after having such a rough tx, in the end I will be SVR and free :)thanks so much,Hugs, nyFrom: Gloria <gadamscan@...> Sent: Tue, November 30, 2010 5:39:51 PMSubject: Re: [ ]

liver doc today

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR. I'm not sure when you would ever be able to say you are cured. But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.Gloria

ny,I don't like those doctors at the clinical trial. The one you are dealing with is an idiot. Yes, you had issues on treatment... basically because they weren't watching you closely enough. Jerks. If you are allergic to the medications you develop that reaction within hours of taking the first dosage. Not months. Your body can and did handle the medications just fine for 20 some odd weeks. Yes, the meds made you pretty sick. They made me pretty sick too. But by no means does that mean you can't handle it. I think you just need an aggressive Hepatologist to work with your liver issues... and I'm sure you can find one on the East Coast pretty easily. NJ, NY all good places to start looking. I'm sure your Dad is already scoping it out. I can also ask my brother-in-law for some names for out there. He's in Saratoga Springs, NY

but he works for a PR firm for major drug companies and works with specialists all the time.

Glad you gave that woman a piece of your mind.. Hugs,TeriOn Tue, Nov 30, 2010 at 4:49 AM, Barrett <barrjohnm@...> wrote:

Hi,

I forgot to say went to the liver doc today, did not turn out good. they took 11 tubes of blood, all doc wanted was data, when I asked about re treatment I was told that I can't re treat as my body can't handle the drugs. I then asked why did I handle it for 4 months (did have my gall bladder become inflamed), then everything fell apart? The treatment was rough

for me, and the doctor said my case is very rare, and now after the treatment is over, which I think is 3 weeks or so that I should have no pain or problems at all, but I have so many. I did give her a piece of my mind, not that she cared but it was good for me to get it off my chest.

She now wants me to get a scope to look inside the GI tract for the stomach feeling it is being ripped apart, I forgot what it is called something with a "e"

I can't believe this! Teri said once if you have a bad reaction it happens right away, not in months. I then asked well if I can't treat in your opinion what are my options, was told we can talk about that next time, but she said that last time.

The only reason why I went is for the prc test. I was undetectable for the last one in October, and so I will still be undetectable in my mind! You have to think positive Until I see a test saying that I have a positive viral load (not sure what it is called when the virus comes back), I am cured!

The treatment was so hard, and the after treatment is really hard, but I really believe that the treatment is good, and better options are coming soon.

I took some oxycodene, really strong pills, yikes! The bottle says 1 pill every 4 hours, I think it is a mis-print as I feel stoned, but I am in no pain right now feel numb.

this message is suppose to be positive, and I hope it is.

Tonight my writing might be out there, but thanks so for listening,

Big

Hugs to everybody,Love ny

[Guest guest]

HI Teri,thanks:)that is what I am praying for staying SVR for 6 months, then I am free and won't have to even think about treatment again:)Bigs Hugs,nyFrom: Theresa Gottlieb <theresagottlieb@...> < >Sent: Tue, November 30, 2010 5:47:10

PMSubject: Re: [ ] liver doc today

Gloria,If he can maintain SVR for 6 months.. that's all he needs. CURED. That virus won't ever pop up again... lets just hope for undetectable blood tests for a few more months now...

Hugs,TeriOn Tue, Nov 30, 2010 at 9:39 PM, Gloria <gadamscan@...> wrote:

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR. I'm not sure when you would ever be able to say you are cured. But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.

Gloria

[Guest guest]

HiThanks so much!I feel it will too, thank you so much for keeping me in your prayers:)yes it is healing time, still dealing with some issues from the after tx, but hopefully soon I will start to feel normal again, whatever that was like.Hugs, nyFrom: Gloria <gadamscan@...> Sent: Tue, November 30, 2010 8:04:14 PMSubject: Re: [ ] liver doc today

Teri & nyYou know that I'm pulling for that major big time!!! It's going to happen, we all just know that. But, ny, you are in my prayers. You have been a very gallant man for going through such a horrible time. Now it's definitely time for the healing and getting some parental love and attention.Gloria

Gloria,If he can maintain SVR for 6 months.. that's all he needs. CURED. That virus won't ever pop up again... lets just hope for undetectable blood tests for a few more months now...

Hugs,TeriOn Tue, Nov 30, 2010 at 9:39 PM, Gloria <gadamscan@...> wrote:

nyIn the meantime, let's hope that when you get through all the terrible stuff that the tx did do to you, that we also learn that you are and are staying SVR. I'm not sure when you would ever be able to say you are cured. But, it would seem to me that if the virus doesn't poke it's heads out to be counted, then you are free.

Gloria

[Guest guest]

HI Teri,Thanks so much!I second that!!I feel this too, if they watch me closer, and listen to me when complaining about the bloating (among lots of other issues) and that my ademin (can't spell the stomach but with the a) hurts I might not have the bladder & kidneys issues now. Yeah I was thinking that too, you can't blame interferon 20 weeks in for all the problems, yeah I know I did, but looking back I think if my body rejected interferon it would have happen after the first shot or two not on the 20th shot. All my issues were building up, and I think they just exploded and my body gave out. Don't mean to sound bitter at them, but I am as I blame them for me having all my health issues

now. I think with the right doctor & team I could have made it through the tx, yeah I had a real rough time and everyday I thought somebody just put me out but I was pushing through regardless and if I was not pulled off f. would have followed through.yes Dad is already looking for places there, he thinks if needed there is a doctor who will treat me great there. I talked with him today, he seems much calmer, but don't me the next doctor you interview as if you are hiring him to work for your company and if they can't answer questions or you don't like them for any reason time to move away. I thought this was strange, but then he asked if I had a company and I was going to hire a flash developer what would I ask? I had a lot or responses, so he said change those questions to the doctor, and you will find a great one!thanks so much for looking too

:)yeah I feel so much better after telling her how I felt!big hugs, nyFrom: Theresa Gottlieb <theresagottlieb@...> < >Sent: Tue, November 30, 2010 9:30:29 AMSubject: Re: [ ] liver doc today

ny,I don't like those doctors at the clinical trial. The one you are dealing with is an idiot. Yes, you had issues on treatment... basically because they weren't watching you closely enough. Jerks. If you are allergic to the medications you develop that reaction within hours of taking the first dosage. Not months. Your body can and did handle the medications just fine for 20 some odd weeks. Yes, the meds made you pretty sick. They made me pretty sick too. But by no means does that mean you can't handle it. I think you just need an aggressive Hepatologist to work with your liver issues... and I'm sure you can find one on the East Coast pretty easily. NJ, NY all good places to start looking. I'm sure your Dad is already scoping it out. I can also ask my brother-in-law for some names for out there.

He's in Saratoga Springs, NY but he works for a PR firm for major drug companies and works with specialists all the time.

Glad you gave that woman a piece of your mind.. Hugs,TeriOn Tue, Nov 30, 2010 at 4:49 AM, Barrett <barrjohnm@...> wrote:

Hi,

I forgot to say went to the liver doc today, did not turn out good. they took 11 tubes of blood, all doc wanted was data, when I asked about re treatment I was told that I can't re treat as my body can't handle the drugs. I then asked why did I handle it for 4 months (did have my gall bladder become inflamed), then everything fell apart? The treatment was rough

for me, and the doctor said my case is very rare, and now after the treatment is over, which I think is 3 weeks or so that I should have no pain or problems at all, but I have so many. I did give her a piece of my mind, not that she cared but it was good for me to get it off my chest.

She now wants me to get a scope to look inside the GI tract for the stomach feeling it is being ripped apart, I forgot what it is called something with a "e"

I can't believe this! Teri said once if you have a bad reaction it happens right away, not in months. I then asked well if I can't treat in your opinion what are my options, was told we can talk about that next time, but she said that last time.

The only reason why I went is for the prc test. I was undetectable for the last one in October, and so I will still be undetectable in my mind! You have to think positive Until I see a test saying that I have a positive viral load (not sure what it is called when the virus comes back), I am cured!

The treatment was so hard, and the after treatment is really hard, but I really believe that the treatment is good, and better options are coming soon.

I took some oxycodene, really strong pills, yikes! The bottle says 1 pill every 4 hours, I think it is a mis-print as I feel stoned, but I am in no pain right now feel numb.

this message is suppose to be positive, and I hope it is.

Tonight my writing might be out there, but thanks so for listening,

Big

Hugs to everybody,Love ny