Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 " The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up " , Dan is right, CALL your Doc. NOW. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 " The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up " , Dan is right, CALL your Doc. NOW. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 did you call the Doctor to find out what exactly is coming up? color, size, texture.... there was another lady that actually PB dark slime type and she had blood on her stoma. Please call the doctor. Shirley <shirleys@...> wrote: " The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up " , Dan is right, CALL your Doc. NOW. --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 //The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up.// Oh ! I'm so sorry you are going through this because unfortunately I had to experience that too. The coffee grounds is actually partially digested blood. It's not good and it's not healthy. The acid reflux is not good for your esophagus either. I went through this for SEVERAL months because I didn't equate the problems to the band (I was pregnant at the time so I thought it was all baby related). Well..once I had the baby and realized I was still having all the same problems I *finally* got smart..turned on this board and saw that this is very common and that I was too tight! An unfill will help you tremendously. I had my whole fill taken out because I had gone through so much by having two babies back to back (bandster babies) and I had let the reflux go on for so long I just wanted a rest and I opted to keep it out for a full month but if this hasn't happened for too long they might just be willing to take a bit out. The problem is..the PBing starts the awful cycle-PB, stoma swells..get tighter..eat and then PB again because you're too tight..swell even tighter, etc. Good luck! 364/262/Mini Goal-Something under 259 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Thanks for all the feedback. I have an appointment to have a little bit removed tomorrow, so hopefully this will solve the problem. I appreciate all the support! LaceyKitN <LaceyKitN@...> wrote: //The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up.// Oh ! I'm so sorry you are going through this because unfortunately I had to experience that too. The coffee grounds is actually partially digested blood. It's not good and it's not healthy. The acid reflux is not good for your esophagus either. I went through this for SEVERAL months because I didn't equate the problems to the band (I was pregnant at the time so I thought it was all baby related). Well..once I had the baby and realized I was still having all the same problems I *finally* got smart..turned on this board and saw that this is very common and that I was too tight! An unfill will help you tremendously. I had my whole fill taken out because I had gone through so much by having two babies back to back (bandster babies) and I had let the reflux go on for so long I just wanted a rest and I opted to keep it out for a full month but if this hasn't happened for too long they might just be willing to take a bit out. The problem is..the PBing starts the awful cycle-PB, stoma swells..get tighter..eat and then PB again because you're too tight..swell even tighter, etc. Good luck! 364/262/Mini Goal-Something under 259 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 As an update, I had .2 removed today, and am now able to sip on water. The good news is that there has been no slippage - my band is still in place. Thanks so much for everyone's feedback and support. Hopefully I've finally found my " sweet spot. " honu@... wrote: Get your fill DECREASED OR REMOVED. If it looks like coffee grounds it is blood....and that obviously is NOT good. YOU ARE TOO TIGHT. How do I know? Been there, done that. Get to your doctor NOW before you do more damage. And alcohol, coffee, and all sorts of other things add irritation to your system. To say nothing of the calories in alcohol.... CALL THE DOC RIGHT NOW. Please. dan Throwing Up > I haven't been active on this site, but now have a question for the group as this condition seems to be getting worse. I'm almost at my goal weight, but very restricted (which is good). The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up. Unfortunately, the only thing I've found that dissolves this substance is alcohol which I drink at night. I've tried hot liquids, but that usually doesn't help. > > Does anyone have a suggestion other than having my fill removed? I don't want to start over with trying to find a " sweet spot, " and I know Dr. Spiegel's office will insist on removing all the fill rather than just a couple of points. Any help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Congratulations!!! Glad you are feeling better. You go girl!!! Graves <c-graves@...> wrote: As an update, I had .2 removed today, and am now able to sip on water. The good news is that there has been no slippage - my band is still in place. Thanks so much for everyone's feedback and support. Hopefully I've finally found my " sweet spot. " honu@... wrote: Get your fill DECREASED OR REMOVED. If it looks like coffee grounds it is blood....and that obviously is NOT good. YOU ARE TOO TIGHT. How do I know? Been there, done that. Get to your doctor NOW before you do more damage. And alcohol, coffee, and all sorts of other things add irritation to your system. To say nothing of the calories in alcohol.... CALL THE DOC RIGHT NOW. Please. dan Throwing Up > I haven't been active on this site, but now have a question for the group as this condition seems to be getting worse. I'm almost at my goal weight, but very restricted (which is good). The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up. Unfortunately, the only thing I've found that dissolves this substance is alcohol which I drink at night. I've tried hot liquids, but that usually doesn't help. > > Does anyone have a suggestion other than having my fill removed? I don't want to start over with trying to find a " sweet spot, " and I know Dr. Spiegel's office will insist on removing all the fill rather than just a couple of points. Any help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Good! .2 is really small amount but you are feeling so much better. I am happy for you. What did the doctor say about the " coffee grounds type in you saliva " ??? Lidia Graves <c-graves@...> wrote: As an update, I had .2 removed today, and am now able to sip on water. The good news is that there has been no slippage - my band is still in place. Thanks so much for everyone's feedback and support. Hopefully I've finally found my " sweet spot. " honu@... wrote: Get your fill DECREASED OR REMOVED. If it looks like coffee grounds it is blood....and that obviously is NOT good. YOU ARE TOO TIGHT. How do I know? Been there, done that. Get to your doctor NOW before you do more damage. And alcohol, coffee, and all sorts of other things add irritation to your system. To say nothing of the calories in alcohol.... CALL THE DOC RIGHT NOW. Please. dan Throwing Up > I haven't been active on this site, but now have a question for the group as this condition seems to be getting worse. I'm almost at my goal weight, but very restricted (which is good). The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up. Unfortunately, the only thing I've found that dissolves this substance is alcohol which I drink at night. I've tried hot liquids, but that usually doesn't help. > > Does anyone have a suggestion other than having my fill removed? I don't want to start over with trying to find a " sweet spot, " and I know Dr. Spiegel's office will insist on removing all the fill rather than just a couple of points. Any help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 I was told that's actually bile - not blood. But, it's still bad stuff, because it can cause problems in the esophagus. Lidia Savage <crazycibertalk@...> wrote: Good! ..2 is really small amount but you are feeling so much better. I am happy for you. What did the doctor say about the " coffee grounds type in you saliva " ??? Lidia Graves <c-graves@...> wrote: As an update, I had .2 removed today, and am now able to sip on water. The good news is that there has been no slippage - my band is still in place. Thanks so much for everyone's feedback and support. Hopefully I've finally found my " sweet spot. " honu@... wrote: Get your fill DECREASED OR REMOVED. If it looks like coffee grounds it is blood....and that obviously is NOT good. YOU ARE TOO TIGHT. How do I know? Been there, done that. Get to your doctor NOW before you do more damage. And alcohol, coffee, and all sorts of other things add irritation to your system. To say nothing of the calories in alcohol.... CALL THE DOC RIGHT NOW. Please. dan Throwing Up > I haven't been active on this site, but now have a question for the group as this condition seems to be getting worse. I'm almost at my goal weight, but very restricted (which is good). The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up. Unfortunately, the only thing I've found that dissolves this substance is alcohol which I drink at night. I've tried hot liquids, but that usually doesn't help. > > Does anyone have a suggestion other than having my fill removed? I don't want to start over with trying to find a " sweet spot, " and I know Dr. Spiegel's office will insist on removing all the fill rather than just a couple of points. Any help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Sure Glad you got some of that fill out and you're better!! You still seem very tight, though - it's always a mistake to try to get as tight as possible. The goal is to have as LITTLE fill as possible to still do well - and this requires, of course, some effort on our parts. We can never totally rely on a fill, and when we get to goal, most docs will advise a small unfill as we cannot keep a tight fill forever without getting into the serious longterm Band problems of erosions, late slips, pouch stretching, esophagus dilation, etc. Many US docs are just now starrting to lern all this, since few have had patients out more than a few years until nbow. the longterm bad effects are well-known in Europe and Australia, where the Band has been used much longer. The stomach simply cannoty tolerate a tight fill forever, nad many bands are lost when people try to keep a tight fill for long. This is why changing the emnotional eating and other HEAD things is so very important! With a good fill we should be able to meet all the following pretty easily: - Get in the 64-100 oz a day of no-calorie fluids easily - meet the nutrition goals of 1200-1500 cal a day. Never less. - 50-60 gm of solid protein daily for women, 60-70 for men - 25 gm of food fiber a day - 1200-1500 mg a day of calcium - 1000 for men - adequate GOOD fats, few BAD fats - have no trouble with regular barfing, pain, pb's or any other trouble - banding is not an illness or disease! - have no constipation or other bowel problems If people are not able to do all these things, something is wrong that will get them into trouble soonber or later, and often very setrious trouble. Sandy R > Get your fill DECREASED OR REMOVED. If it looks like coffee grounds it is blood....and that obviously is NOT good. > > YOU ARE TOO TIGHT. How do I know? Been there, done that. > > Get to your doctor NOW before you do more damage. > > And alcohol, coffee, and all sorts of other things add irritation to your system. To say nothing of the calories in alcohol.... > > CALL THE DOC RIGHT NOW. Please. > > dan > > Throwing Up > > > I haven't been active on this site, but now have a question for the group as this condition seems to be getting worse. I'm almost at my goal weight, but very restricted (which is good). The problem is that I have a lot of mucus and saliva build-up in the pouch, and many times it burns and I throw up. Sometimes this lasts for an entire day, and it look like coffee grounds when it comes up. Unfortunately, the only thing I've found that dissolves this substance is alcohol which I drink at night. I've tried hot liquids, but that usually doesn't help. > > > > Does anyone have a suggestion other than having my fill removed? I don't want to start over with trying to find a " sweet spot, " and I know Dr. Spiegel's office will insist on removing all the fill rather than just a couple of points. Any help? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 would do this on occasion, and it was acid reflux. It wasn't Down syndrome related.  Moyers Kay Independent Beauty Consultant 832-816-7992 www.marykay.com/jendmoyers ________________________________ From: April Auburn <april@...> Sent: Tuesday, June 16, 2009 9:48:50 AM Subject: Throwing Up I've been noticing a lot recently that my daughter Iris, who is 2 years old, will often throw up when she doesn't otherwise appear to be sick. Afterwards, she just continues to play as if nothing has happened. I'm wondering if this is related to her low muscle tone. Today is the second time I have had my workout at the Y interrupted because of this. I brought her home and she's her usual playful happy self. She went straight to the kitchen and started signing " eat. " I've made an appointment to discuss this with her pediatrician, but I was also wondering if other parents have had experience with this with their children who have Down Syndrome? -April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 If this is new, then I would have it checked out. If this is something that has always been happening, it can very well have to do with the low muscle tone (which is often the reason behind the acid reflux as well) Try doing mouth, throat, and swallowing exercises with her, for instance like the ones done by Castillo Morales therapists are good, but anything that strengthens the muscles is good. Stomach muscles included! Fiona outgrew this when she was 6. all the best Gundula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 When was that age, she would eat until she threw up. She didn't seem to know when she was full. When I filled her plate, I just guessed how much food she needed. She finally learned when to stop. I never forced my kids to clean their plates. I always told them, " When you're full, stop eating. " granny On Tue, Jun 16, 2009 at 9:48 AM, April Auburn <april@...>wrote: > > > I've been noticing a lot recently that my daughter Iris, who is 2 > years old, will often throw up when she doesn't otherwise appear to be > sick. Afterwards, she just continues to play as if nothing has > happened. I'm wondering if this is related to her low muscle tone. > Today is the second time I have had my workout at the Y interrupted > because of this. I brought her home and she's her usual playful happy > self. She went straight to the kitchen and started signing " eat. " > I've made an appointment to discuss this with her pediatrician, but I > was also wondering if other parents have had experience with this with > their children who have Down Syndrome? > > -April > > > -- Not for ourselves but for the whole world we were born Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Logan, 7, spits up all the time. We have noticed that sometimes he does it on purpose and others it's not controllable. He spits up numerous times during the day. Certain foods affect it more... milk, chocolate, red based drinks, WATER.. he throws up everytime he drinks water. He has had the testing for reflux and it showed nothing. We are stumped. It's a pain. It's hard to take him anywhere because he spits up all over the place. Maverick used to do the same.. but he out grew it at a younger age and it was not to the extent that Logan does it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 It could be reflux. Alot of our kids have it and sometimes it is silent and they aspirate. Did she have trouble as an infant nursing or eating? Loree Throwing Up I've been noticing a lot recently that my daughter Iris, who is 2 years old, will often throw up when she doesn't otherwise appear to be sick. Afterwards, she just continues to play as if nothing has happened. I'm wondering if this is related to her low muscle tone. Today is the second time I have had my workout at the Y interrupted because of this. I brought her home and she's her usual playful happy self. She went straight to the kitchen and started signing " eat. " I've made an appointment to discuss this with her pediatrician, but I was also wondering if other parents have had experience with this with their children who have Down Syndrome? -April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 Thank you all for the helps about nausea . But I'm not nauseated. I quess there isn't much I can do. Anything I eat has to come back up in a few mins, kinda like reflux. Last night I hadn't eaten so I was just throwing up water. I don't know. But I'm not nauseated, just throwing up everything I eat or drink. Puzzling ... http://facebook.com/people/andTrudy-Kinsey/1340460877 " " A well- behaved woman never made history " ...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 TrudyIs there any chance that you have a hiatus hernia?? Last night I thought I was close to choking to death. In an absolute panic state and I live alone.Anyway, all I was eating was an orange. Only, I swear that the hernia came up just as I swallowed the piece of orange. It wasn't pleasant. After it was over, my adrenalin left me shaky and even sleepy for a few minutes.Gloria Thank you all for the helps about nausea . But I'm not nauseated. I quess there isn't much I can do. Anything I eat has to come back up in a few mins, kinda like reflux. Last night I hadn't eaten so I was just throwing up water. I don't know. But I'm not nauseated, just throwing up everything I eat or drink. Puzzling ... http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 I think I do. The GI doc wantted to do the endoscopy, buut now's not the time. Will do it when tx over.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Nov 24, 2010, at 9:25 PM, Gloria <gadamscan@...> wrote: TrudyIs there any chance that you have a hiatus hernia?? Last night I thought I was close to choking to death. In an absolute panic state and I live alone.Anyway, all I was eating was an orange. Only, I swear that the hernia came up just as I swallowed the piece of orange. It wasn't pleasant. After it was over, my adrenalin left me shaky and even sleepy for a few minutes.Gloria Thank you all for the helps about nausea . But I'm not nauseated. I quess there isn't much I can do. Anything I eat has to come back up in a few mins, kinda like reflux. Last night I hadn't eaten so I was just throwing up water. I don't know. But I'm not nauseated, just throwing up everything I eat or drink. Puzzling ... http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 Do you know that they actually found my hernia after either a CT scan or an Ultra Sound. It became really bad after my liver surgery. So, now I takes pills for it.Funny thing, the original pills for the hernia, were huge. If anyone has trouble swallowing pills, this would be impossible. Can you imagine - a huge pill to help someone to be able to swallow. Anyway, GP changed my prescription recently and now the pills are really little.Gloria I think I do. The GI doc wantted to do the endoscopy, buut now's not the time. Will do it when tx over.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Nov 24, 2010, at 9:25 PM, Gloria <gadamscan@...> wrote: TrudyIs there any chance that you have a hiatus hernia?? Last night I thought I was close to choking to death. In an absolute panic state and I live alone.Anyway, all I was eating was an orange. Only, I swear that the hernia came up just as I swallowed the piece of orange. It wasn't pleasant. After it was over, my adrenalin left me shaky and even sleepy for a few minutes.Gloria Thank you all for the helps about nausea . But I'm not nauseated. I quess there isn't much I can do. Anything I eat has to come back up in a few mins, kinda like reflux. Last night I hadn't eaten so I was just throwing up water. I don't know. But I'm not nauseated, just throwing up everything I eat or drink. Puzzling ... http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
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