Re: MIA/Diabetes/and a major whine

[Guest guest]

Hi Sherry,

Our stories sound similar. I know I had liver disease in 1966 when I had liver

tests. I just thought it was from a bad case of Hep A. I could have had it

since 1953 when I had blood transfusions with my 2nd child or a shot from a

doctor before disposable needles around 1956 or a little drug use in the early

60's. I,also, have recently been diagnosed with diabetes.

You do not have to see Dr Berkson to take his oral supplements. I took them

before I saw him and he told me I was fine when I got there. Don,

unfortunately, is wrong about phone help. Dr B does NOTHING on the phone and is

about 7 or 8 months out on appts. He requires medical records before deciding

to take anyone as a new patient. He MAY consult by phone with a doctor

interested in his protocol. And his ALA IV's (along with a B-12 shot daily

during the IV's) can be administered by any doctor willing to do them. I can

send you a number of articles on his protocol to take to your new doctor to

read, if you are interested. ALL you get from Dr B is twice daily IV's of ALA

and the B-12 shot and 2 consults (one before and one after your series of IV's)

He requires an extensive lab work-up at a lab just before you get there or when

you get there. Mine were done by a lab in Las Cruses. My vitamin D was very

low, so he recommended that I take D-3. The other thing you get there is lots of

encouragement from other patients doing IV's. The IV's are done in a large room

with as many as 12 or so other patients and many talk about their experiences.

Most of the chairs are recliners to relax in while doing the IV. His nurses are

ALWAYS present in the IV room and chat and answer basic questions. He gets his

liquid ALA from a pharmacy in Santa Ana Calif (can't remember the name, but have

it in my files). He is currently using low dose naltrexone along with his basic

protocol. I have files and videos on that as well.

I have emailed the doctor doing research on metformin in England and he has

requested a viral load to see if it is affecting my Hep C. Bless his heart--he

responded to my email. I do have some stomach pain now and then and occasional

diahrea with the metformin--if I don't eat with it. Not doing great with diet,

etc. I have also lost 20 lbs on metformin--without really trying. Do realize

it is not an option for you, but thought I'd comment on it.

I do hope your doctor might consider doing Dr B's protocol there for you. Or at

least that she approve his oral supps. Can't remember if I sent you the

literature earlier. If not, I'll get it right out so you have it for Friday.

It is fine to " whine " . How can we know how you are if you don't tell us? I

rarely whine as I feel pretty good. My worst time was 10 years ago when I was

caring for my mother with Alzheimers. That is when my liver disease was

diagnosed as Hep C. I was really wiped out back then.

Hope to hear from you--either on forum or direct.

Hugs, SuziQ

>

> Hi Sherry in Florida here.

> I ended up going to a new endocrinologist for diabetes and she took me off

metformin and put me on insulin. I'm glad of this because the MF was making me

sick as a dog and I feel I can maybe get some control over these blood sugars

with an aggressive attack. Apparently she's worked with patients who also have

hepc and has been charged with keeping many of them healthy enough to stay on

transplant lists. I really liked her alot and she was very forward thinking. She

did say that because of the liver disease I should not be on metformin or the

previous avandia. I'm planning to show her the article on metformin suppressing

the HCV this Friday when I see her again. I had really hoped the med would work

for me ....kind of killing two birds with one pill ya know?

>

> So now I'm sticking needle pens in my big bloated stomach 3-4 times a day and

staying on a fairly lowcarb diet. I don't even know why I'm writing...just

wanted to connect and complain I guess. I am not a candidate for treatment for

several reasons, one of which is that I have a 21 yo daughter with Down Syndrome

and Autism and her own serious medical issues going on. She needs 24/7 care, is

nonverbal and I adore her. My husband hasn't beat me up in a couple of decades

lol......and is a good guy. But he's gotta work every day and he travels too. I

just feel like I am getting worse and worse physically. I have fibro too

although I can't tell what problems are coming from what anymore. My brain is so

foggy and my vision is coming and going with the high blood sugars, and the

pain...allover muscle and joint, head and back...plus the total exhaustion and

fatigue is really getting me fed up tonight.

>

> I may have contracted this disease as early as 1965 so it's been festering and

multiplying for a very long time. Sometimes I feel like I am really dying

now...and other times I just wish I would. I sure wish Berkson was near us. I'm

sorry...I'm going to go lie down while I have a chance. Hubby is home...making

dinner. Did I mention he has MDS a blood cancer currently in remission which we

battled all last year. And my kiddo keeps going severely anemic and needs to be

hospitalized for transfusions and iron infusions . It seems like every time I

seriously tried to improve upon my own health one of them would pop up with

something immediately lifethreatening and...well, what can I say? Please don't

anyone tell me I need to take care of myself in order to take care of them. I

know all about it...but right now I can't take care of anyone.

>

> Please forgive me. Just having heard so much tears and laughter here lately

inspired me to vent. Lucky you haha.

> Sherry

>