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I can't imagine being that young and having your grandsons health problems.

As far as what type of engineering field he could go into, there are many.

Like mechanical engineering for one, but there are a lot of electrical applications that don't require working with equipment that emits high levels of RF power as well. Heck, he is just a little guy and is more interested in fitting in with his friends than thinking too much about his future career, I would imagine. To answer your question, he could go into most any engineering discipline that interests him. He will just have to learn, like me, what equipment to stay away from.

Sounds like you have your hands full. He may have to learn some of his limitations the hard way like we all have to unfortunately. Its real hard for me to see young kids with the weight of the world on there shoulders. It is not fair. But he will work things out over time and make the best of it like the rest of us.

All my best,

Dave

red

We here have discussed that here at home recently. My grandson who lives with us has an ICD due to long qt syndrome therefore is limited in activities etc. He has also been impressed with all the knowledge my husband has and was wondering which engineering field he might be able to work in. He is a very smart boy (very seldom off the honor roll) but is struggling due to his ICD and feeling so different and inadequate in many ways. Learning how to play guitar is helping a little but he refuses to acknowledge his limitations (safety rules) and puts his health at risk many times. Has to be Mr. Macho I guess!! Until Gramma gets hold of him that is (smilin)

Anyway..... Any suggestions on which field or a 13 yr old guy that feels so different that he is keeping icd secret from friends so he can fit in (even to the point of playing body which is slugging each other in the chest till someone passes out or says I quit) His Dr andd EP were shocked by that one especially since his leads aren the typical and has array of wires across his chest instead of the one going down. oh well this gramma is gonna go grey quick!!!

Take Care and Smile Often

DebbiePlease visit the Zapper homepage athttp://www.ZapLife.org

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  • 4 months later...
Guest guest

Ahhhh thanks . We are totally thrilled! She

is having a little bit of trouble getting going in life, but then, she is 4

weeks early too! She is a fighter! (And a cutie, but then all grandparents

think their babies are precious!)

Debby

[ ] Debbie

Debbie

Congratulations to you and the family

on the birth of your new grand daughter

Life is grand

in Montreal

ALL-NEW Messenger - sooooo many all-new ways to express yourself

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  • 1 month later...

Hi that would be great to learn about. Email me if you want. Thanks Debbsmyers3999@... wrote:

I did mean vial of life at the pharmacy of WalMart.Sorry about that. If you have any questions about it just ask. the WV hillbilly

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  • 1 month later...

In a message dated 10/21/2004 12:52:11 PM Eastern Daylight Time, ableasdale@... writes:

Hey Deb,

I hope you and your family have a wonderful 10 day vacation on that cruise ship! Enjoy everymoment of it. With all that has been happening lately (especially at your work!!) you deserve it!

Have fun!

Debbi,

I second that wish for a wonderful, restful and stress free trip.

Bring us back some sun!

Here in Cincinnati/Northern KY, it's been a gloomy, rainy week. (groan)

Hugs,

Jan in Northern KY

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  • 5 months later...
Guest guest

YOu must have read wrong. I am only 80 lbs down not 100. But I am not

giving up. Dr. H. suggested going back to no junk at all and mostly protein. I

started yesterday and I already feel better.

Donna Pinto

December 9, 2003

273\193

5ft 9 1/2

Little Rock

Dr. Hargroder and Dr. Wilshire

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Guest guest

Did you see Dr. R's FAX diet that was post a couple of weeks ago? Might

give it a try.

in Mo

Re: Debbie

>

>

> YOu must have read wrong. I am only 80 lbs down not 100. But I am not

> giving up. Dr. H. suggested going back to no junk at all and mostly

> protein. I

> started yesterday and I already feel better.

>

> Donna Pinto

> December 9, 2003

> 273\193

> 5ft 9 1/2

> Little Rock

> Dr. Hargroder and Dr. Wilshire

>

>

>

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  • 7 months later...

>

> My prayers go out to Debbie and her family

> Hope that they get her better soon.

>

>

>

>

Ditto: Tori

>

> ---------------------------------

> Find your next car at Canada Autos

>

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  • 2 weeks later...

Thank you! I know I am going to make it OK now! I am really feeling much stronger

Debby

[ ] Debbie

Debbie

So glad that you are home and on the mend

every day will get a little easier.

Find your next car at Canada Autos

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.8/184 - Release Date: 11/27/2005

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  • 1 month later...

You know. The preparations like if you get the spinal thing plus getting the Iv started in your hand. Them marking the leg that is going to get the surgery. Cleaning the area and putting that orange stuff on. Things like that.judy <judywade109@...> wrote: What are the preps? Well my surgery is one week, one day away. TKR. I gave blood for my surgery last week. Here in a couple of hours I'm going in for my presurgerystuff at the hospital, ekg, chest x-ray, blood test, ect and to meet with the anesthesiast. Is it ok to get nervous yet? I hope so cause my stomach is a churning! Debbie Find Great Deals on Holiday Gifts at

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  • 1 month later...

Charlotte,

I looked this group up. Sounds very unique. :) My son has an endocrine disease, type 1 diabetes. Except it's not that rare anymore. Benita

I also run a support group for parents of children with rare endocrine disorders (KS) and it is called Unique Child, so that caught my eye too lol!

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,

I don’t missed what ever this was a response

to, lol but it caught my attention because you were speaking to genetics.

My son 12 with AS, also has Kallmann’s Syndrome. Due to

the combo of the AS and KS her was referred to the national Birth Defects

Center for extensive genetics testing. He had virtually all the markers

for Fragile X but did not have it. They also tested for PW and just about

everything else you can think of. He has the almond shaped eyes, the prominent

ears, small hands and feet. After all the testing he still only had AS

& KS. I also run a support group for parents of children with rare

endocrine disorders (KS) and it is called Unique Child, so

that caught my eye too lol!

-Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of JULIE JOHNSTON

Sent: Sunday, February 12, 2006

4:13 AM

Autism and Aspergers Treatment

Subject: Debbie

We don't

know what Chromosome is affected.

Initially it

WAS 15 (they thought he had PWS), but now the docs aren't sure.

But he has a

lot of the markers for a genetic something - like single palmer creases, low

set small ears, dysmorphic features...............

We are in Unique

- it's a UK

based support group, but they have members worldwide. As you say, the support

id great. We were at the conference last October - it was just so good the meet

up with other people

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  • 2 weeks later...

Funny - our kids have a bunch of possible symptoms but not one of them have the same combo. So you do exactly what you do- treat the symptom. I would send the idic15.org web site to your genetic dr to see what he has to say. Have a sick kid today so I will talk to you later! Deb C.JULIE JOHNSTON <julie.johnston12@...> wrote: We had the FISH test repeated a couple of years ago - basically cos it had been so long since the 1st one. I live in hope of someone seeing us in a clinic and saying "oh, I've seen this before it's "whatever"!! What we may have to accept is that 's list of "things" may be unique to HIM. I'm not sure how much of stuff like the autistic behaviour is due to the ?genetic stuff and how much he may have had anyway. You know................ most days we just get on with life. We don't know life any differently. I knew from day 2 that he had probs. In fact, at 2 hours old, the docs noted things like single palmer creases, dysmorphic features, low set ears and so on. Now that would be enough to send even the most junior of docs running for a syringe and a lab form. !6 years ago (when they didn't know as much) they didn't really query it - they waited to see what else may turn up. No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.375 / Virus Database: 267.15.12/265 -

Release Date: 20/02/2006 Deb C.

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  • 2 years later...
Guest guest

Thanks ...You're so sweet!! Yes, better days ahead for us all!

Debbie

>

> My my!!!! you sound like you have been busy! with your neck and your

> Mom. Hope everything settles down for all of us!! HUH??? just

checking

> on you. Making sure you were alright!!! cindy

>

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  • 5 months later...

Hi Debbie,

I am sorry to hear about your battles. It might be worth reading

Monday 20/10/08 7.13AM Alison Trotta-Marshall's message.

We all want to tap into 's vast library of knowledge but

please do read some of the other messages on this site, not just those

from but there are suggestions for some helpful links to

other sites offering really helpful information.

I hope you give them a try. I am from the UK and just by coming to this

site, I have met some other women from the UK I would not have had the

opportunity to have met and I am looking forward to conversing with

them soon.

Take care.

In iodine , " debbie.wooten29 " <debbie.wooten29@...>

wrote:

>

> I have been taking Armour for six weeks and feel fine. I have taken

> quarters of Iodine but actually have started halfs. I still haven't

> seen any weight lose on the contrary my cloths are getting tighter. I

> am at the heavest I have been in many many years. Is this weight

> actually going to come off or I am I just going up and up and up the

> scale. What can I do, I am hating myself at this point. I hate

> everything!

>

> The Armour is at 2.15 a day

> 1/2 or 25 mgs of Iodoral

> Celtic Sea Salt

> Liq Cal & Mag tablespoon a day

>

> Please tell me what I can do?

>

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I belone the the TPA but I haven't tapped into that very much.

> >

> > I have been taking Armour for six weeks and feel fine. I have

taken

> > quarters of Iodine but actually have started halfs. I still

haven't

> > seen any weight lose on the contrary my cloths are getting

tighter. I

> > am at the heavest I have been in many many years. Is this weight

> > actually going to come off or I am I just going up and up and up

the

> > scale. What can I do, I am hating myself at this point. I hate

> > everything!

> >

> > The Armour is at 2.15 a day

> > 1/2 or 25 mgs of Iodoral

> > Celtic Sea Salt

> > Liq Cal & Mag tablespoon a day

> >

> > Please tell me what I can do?

> >

>

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  • 1 month later...

Thanks Joanne! I am really enjoying doing this photography. Being 4 years old,

she DOES have her opinions, and she does not like the shots, so we are hoping

that the pump will go well with her.

We are just optimistic that the pump will work and that she will adjust to it

easily.

Debby

[ ] Debbie

Debbie, One of my granddaughters also has Type 1 diabetes ...she is on the

pump and that makes everything so mucheasier. She did get sick of it for a spell

last year and went back to shots.then after a while got sick of all the shots

and is back happily on the pump. Actually I think she felt as if she stood out

having the pump.as it is visible (you know kids) .........but, she obviously got

over that quickly . ; - ) Congrats on your photo work. It is so nice when you

can make koney doing something you love. Joanne

__________________________________________________________

Click here to find the satellite television package that meets your needs.

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s6OR8dZ3eB4mwFtHGBuJ/

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what type of photography do u photograph. my son is a teacher a a local

h.s. phys. ed and health, coaches varsity baseball there actually was

baseball coach of the year in our county his wife is a neo natal r.n.

kids are 21 and 19 now he also teachers driver's ed. coaches freshmen

basketball too. very busy family. well anyway he and his wife (who

really loved photography for years) started a company called SPORTSHOTS

and they have contacts now with diff. sports teams and do ind. and team

shots they have an internet site and the parents go there to order pics.

they do wrestling, baseball basketball etc.. i never thought i would see

the day when my son was a photographer. it is something they do

together and really enjoy spending the time together.

Live well. love much, laugh often

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How neat . I do photos mostly of nature....mostly hummingbirds and

flowers. We have gone to the mountains and taken photos there, and also to the

ocean. I have considered doing the sports, but I don't know if I am really into

that. It is a good field, but perhaps in the future.

If you want, you can go to my site and see my photos. I just have a little

site, and it is homemade. I have a friend who is going to do it " right "

eventually, but for now, at least people can see my photos. It is at

www.designsbydebby.com Feel free to visit.

Have a great day tomorrow!

Debby

[ ] Re: Debbie

what type of photography do u photograph. my son is a teacher a a local

h.s. phys. ed and health, coaches varsity baseball there actually was

baseball coach of the year in our county his wife is a neo natal r.n.

kids are 21 and 19 now he also teachers driver's ed. coaches freshmen

basketball too. very busy family. well anyway he and his wife (who

really loved photography for years) started a company called SPORTSHOTS

and they have contacts now with diff. sports teams and do ind. and team

shots they have an internet site and the parents go there to order pics.

they do wrestling, baseball basketball etc.. i never thought i would see

the day when my son was a photographer. it is something they do

together and really enjoy spending the time together.

Live well. love much, laugh often

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Debbie,

I don't know about Lyrica and knee pain, but according to my surgeon, the back

pain-and I had a fusion from L5-S1, is separate from my knee pain. I had knee

pain, and eventually both replaced, long before my back problems, due to my job,

and I was overweight, and had arthritis. I'm no longer overweight, but still

have severe knee pain in my last knee that was replaced, am waiting till after

the holidays to go to an ortho again, the one I had no longer takes anything to

do with Medicare. My husband is on Lyrica and has been, he's very overweight,

but has no knee pain, just back. Don't know if any of this helps, but have you

been to an orthopaedic dr. yet to check out the pain? I eventually had bone

rubbing against bone, they started out with injections, then did something a

series of using Synvisc to kind of add cushioning in between, then he did an

arthroscopy to clean it out, then came the replacement. Obviously this took

place over a bit of time,

but one of my knees has lasted over 10 years with no problems. The same dr. did

both, just don't know why the second one didn't do as well. And I had to quit

work shortly after it was done because I had my back problems, so I didn't

really put any pressure on the second knee from my job. They say knee

replacements last 10-15 years depending on life style, job, etc. I just plain

hurt with this knee, and it's affecting the way I walk, and my hips. And my

sleep! This is probably more information than you asked for, I apologise, but

thanks for letting me vent. Hope you find out something soon.

 

Jeannie

________________________________

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  • 11 months later...

You're on your way, Girl! You will hear sound and in the beginning you'll

probably curse a little! LOL But as time and therapy go on, I think you

will be thrilled. There is a woman in your neck of the woods who was

pre-lingual, I believe her name is Lee. Maybe she will see this. She is

understanding speech and went to college! So take heart! Jackie :o)

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Jackie

Do you mean donna Lee?

If sok I know her personally.  But she is really too busy to actually give me

time to ask questions and look over her implant pieces, etc.  To date, she is

the only person I ahve met in person with an implant.

Have a great day!

Debbie Cole

___

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The Lee that Jackie mentioned is from Seattle. She is not active in the

group tho she mayy still be a member. She was definitely one busy woman

when she got her CI. LOL

*---* *---* *---* *---* *---*

I intend to live forever; so far, so good.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

Re: Re: Debbie

Jackie

Do you mean donna Lee?

If sok I know her personally. But she is really too busy to actually give me

time to ask questions and look over her implant pieces, etc. To date, she is

the only person I ahve met in person with an implant.

Have a great day!

Debbie Cole

___

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What did I miss? I saw my name and recognize myself! Fill me in.

Yes, my understanding of speech went from 3% all my life to at least 60%

now. I still need to lipread but I am understanding speech more than I ever

dream of.

You may contact me off list if you want to.

Lee

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Aha - I knew you'd show up, Lee! It's nice to " see " you. There is a

woman here looking into a CI and she is mostly pre-lingual. I was telling her

how successful you've been. Hope you and your crew are happy and well.

Jackie :o)

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Hi Lee,

Your ears were butning, eh? Good that you recognnixed yourself! LOL

*---* *---* *---* *---* *---*

The sooner you fall behind, the more time you'll have to catch up.

--

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

Re: Debbie

> What did I miss? I saw my name and recognize myself! Fill me in.

>

> Yes, my understanding of speech went from 3% all my life to at least 60%

> now. I still need to lipread but I am understanding speech more than I

> ever

> dream of.

>

> You may contact me off list if you want to.

>

> Lee

>

>

>

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