Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 olympicpl@... wrote: > > From: olympicpl@... > > Hi, > My husband took his first shot 1 1/2 weeks ago. Since then he has had a > headache, fatigue, tightness in his chest and his left arm feels weak. He > went to Medical yesterday and was given medicine for his headaches. The > doctor told him that if he doesn't feel better that they would run test to > see if it is affecting his liver or kidneys. Is this normal? Can the side > effects of the vaccine start so soon, after only 1 shot? He has to take the > 2nd shot on Monday. He is going to refuse. He only has 9 months left in the > Navy and is very upset that he must ruin his outstanding military record by > refusing this vaccine, but he values his health more. Please let us know > of any information that will help us get through this ordeal. Thank you, > > > Doesn't the Anthrax vaccine insert say something about discontinueing further shots if there is a serious reaction to the vaccine? From what I understand, that is usually standard procedure whenever there is a serious reaction to a vaccine, at least in the civilian world. Please someone correct me if I'm wrong about that. From what I understand, the military has been violating this procedure and forcing people to take follow-up shots despite serious reactions to earlier Anthrax shots. Your husband should go to a civilian doctor or maybe a public health clinic where they are experienced at vaccinating people and get as much documentation as possible to support his case. Unfortunatly the military's attitude to these reactions, is the typical, " suck it up and drive on " motto that those of us in the military had drilled into our heads in bootcamp or basic training. In my Army Reserve unit I've been ridiculed by a few people (fortunatly just a few) as being afraid of needles and a wimp for not re-enlisting because of this vaccine but everyone else is just as scared about the vaccine. I'm very fortunate to be finishing up my 6yr active reserve obligation next month just before my unit will be getting the shots and that I only have 2yrs inactive (god willing they won't call me up). My unit is scheduled to go to the Middle East early next year so they'll probably be starting the shots with my unit at the end of this year. I'm also extremely upset at having to end my career in the reserves as I was planning on staying with my unit until retirement and I found the work very fullfilling and a nice break from civilian life. My reserve unit is like a second family to me and it broke my heart having to tell everyone I was leaving. I can only imagine the pain your husband has to endure making such a decision if they don't grant him a waiver because of his reactions to the shot. I'll be praying for you and your husband that everything works out ok. G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 , I personally began feeling effects after the first shot, however blamed them on stress. I can tell you after 4 shots and many medical visits later it has only gotten worse. I have 14 years of service and am prepared to give that up if we are unable to somehow persuade them to put a stop to the program. Speaking from experience, your health is far more important! Keep the Faith Robi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Dear Friends and Supporters, We are starting to hear from people who are interested in picketing the DVA’s Hospitals and clinics as well as the Federal Court Houses. We have a person in Huston, Texas who is more than willing and able to get things started there and we need to hear for people living in the Huston area. We also need to hear from people living around Pittsburgh, Pa, and Knoxville, TN. We want to see just who is going to make the most noise for the longest period of time. We have all summer to prepare for our mass march on Washington over Veterans Day in November. So let’s make the best of it and get out and get very vocal. We will be starting our picket lines on the first Saturday in June so mark your calendars for June 5, 1999 and we will be picketing throughout the summer until the first of October. Throughout the month of October we will be preparing for our march on Washington. Unless that is the Congress meets every last one of our demands. In the event we are successful this summer and the Congress sees fit to grant our demands before our scheduled March we will still have a march. If everyone is in agreement we will kickoff our march with a celebration of the Marine Corps Birthday cake, dancing and all. Followed on the 11th of November with a mass march down Pennsylvania Avenue from the White House to the Capital. That will be our reward for sweating our buns off during the summer. So get your signs ready. Once everyone has had a chance to relax after the events of May 29th we will kick off our national protest. We will be protesting the denial of our constitutional rights by the Congress, the Department of Veterans Affairs, the Department of Defense, and the Federal Courts. We need people out in every major city across the country carrying picket signs and demonstration. For those who haven’t made the trip yet to our website please do so and make as many copies of the information you can and pass them out to other vets and non vets alike. We still are in need of the names of those individuals who have died while under the care of the DVA as well as your personal testimony so our Members of the Congress can read them. We have groups started up in Tennessee, Georgia, Alabama , and North Carolina. We need to get some groups started up in the rest of the states as well as get more people involved in the states we already have groups started. So if you want to participate drop me an e-mail or a letter via the US Postal Service. My address is posted on the first page of our website. Let me know where you live so I can get you with others who live near you. Jim Hayden Director Veterans Rights NOW http:\\www.veteransrightsnow.org 100,000 Website Campaign http://www.geocities.com/Pentagon/Bunker/3853/campaign.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Sherry Lynn, I hope all goes well for you. I'll keep you in my prayers. Marilyn 1st shot Hello Everyone: Well in 1 1/2 hrs. I go see my gastro nurse so she can show me how to do my 1st shot. I am scared to death, and have a migraine for 2 days now worrying about the possible side effects. But, I guess the pro's outweigh the cons for me on this issue. Will let you know later how it went (hopefully,it won't knock me out). Hope everyone is feeling pretty good today. May God Bless you and keep you safe. Sherry Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Jeff, my first shot was a doosy too but I got some anti nausea meds and they really help. I think tylenol would be better than aspirin but I don't know. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 In a message dated 2/19/03 12:34:21 PM Pacific Standard Time, phoenixmic@... writes: > I think tylenol would be better than aspirin but I > don't know. The nurses told me to take Tylenol or Ibuprofin, not aspirin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Hi Jeff, I usually take my shot about 8pm at night and then take a couple of Tylenol PM to help me sleep through the night, and hopefully, sleep through the worst side effects. I think everyone reacts differently, because I usually don't get any side effects until 24 hours after my shot (the next night). I hope your side effects get less as you go along. Keep drinking LOTS of water. I don't take aspirin because they destroys my blood platelets, and the meds do that on their own. I'm just ultra sensitive to aspirin. Anti-inflammatory drugs aren't supposed to be good for your liver. Unfortunately, I have arthritis, so things like Aleve are the only things that help my arthritis. Oh, well, I just take my Tylenol - 6 a day is supposed to be safe I'm told. It doesn't help the inflammation, though. I can't tell what sides are from the Peg-Intron and which ones are from the Rebetol. The fever and aches do get less as the week progresses, but the fatigue seems to stay constant. My headaches come and go all week. Well, I'm headed for my afternoon nap. I had my 5th shot Monday night, so this isn't one of my good days. Good luck with your treatment. Marie in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Jeff, My husband had the same reaction you did the first shot, about 5-6 hours later. Terrible chills, headache, et. and up all night. Now the sides are less severe.....We stocked up on Tylenol before hand that's the only thing our Doctor wants him to take...... Kelli -- 1St Shot I took my first shot of the new Peg-Intron Alfa-2b Yesterday morning 8Am 02-18-02. My dose is 120ug per .5 ml of Alfa-2b with 1000mg of Ribavirin,divided into two 200mg pills in the morning and three 200mg pills in the evening. I was fine for 2.5 hours after the shot. After that I got chills really bad and had to leave work. I stayed in bed with the chills until 4Pm. At that point I got up to use the bathroom. I had a killer headache. So I took two aspirin and went back to bed. The aspirin helped with the chills but not the headache. During this time I was drinking water, this is suppose to help with the side effects. I did get up at 7pm to eat some chicken noodle soup. I took another aspirin at 8pm Then I went to bed at 9pm. The aspirins never helped with the headache but the chills subsided some. I a woke a couple of times in the night covered in sweat. I slept all night, and when I got up this morning I felt better. I still have a headache but not as near as bad. I have not taken any aspirin yet today. I took a shower and was feeling OK not 100% but ok. I just took my morning Ribavirin 30mins ago with my breakfast. I took today off from work so Im going to laydown for a while. I dont know yet how my body reacts to the Ribavirin I'm hoping that the side effects are not as bad as the shot. I will keep you up to date. Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 I have been told that along with Alcohol, Tylonol (sp)? should not be taken. That was one of the first things doc had told my husband and myself. If any pain meds are to be taken, Ibuprofen is the only one safe and less damaging to the liver. If a stronger pain reliver is needed than the doctor has been prescribing vicroprofen instead of vicodene. I have noticed in a few e-mails that alot of people are still using Tylonol. Is my doctor not giving me the right information? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 My doctor told me just tylenol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 I was told that you can safely takeup to 6 tylenol a day without hurting your liver. I was also told not to take anti-inflammatories like ibuprofen. I wish I could take anti-inflammatories, but it's the only thing that used to work for my arthritis. I only take one tylenol at a time, if my fever or aches get too much, and I take 2 tylenol pm on shot night. So, I stay well within the limits. This information is just what I've gotten from people who have talked to their doctors and done their own research. I'm no expert myself. My doctor did prescribe Darvon for the arthritis in my back, because he said it was better for my liver than the over-the-counter pain meds. But, I haven't needed it yet. Take care, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 At a conference I recently attended, it was recommended that a person use what they are used to taking. Tylenol is bad on the liver- but only if taken in large doses. If its taken as recommended, its safe to use. Aspirin and Ibuprofen are hard on the stomach, especially for some. They also tend to thin the blood. There may be a reason why the doctor recommended Ibuprofen. Be sure to ask the doctor lots of questions, including why! Re: 1St Shot I have been told that along with Alcohol, Tylonol (sp)? should not be taken. That was one of the first things doc had told my husband and myself. If any pain meds are to be taken, Ibuprofen is the only one safe and less damaging to the liver. If a stronger pain reliver is needed than the doctor has been prescribing vicroprofen instead of vicodene. I have noticed in a few e-mails that alot of people are still using Tylonol. Is my doctor not giving me the right information? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 my sides didnt kick in until around week3-4. I could feel the pills after about 4-5 days..You will notice that you cant walk as far and that you are trying to breath deeper. I really notice that since I have upped the riba I am struggleing for air again..besides the headache i am doing ok..hope it doesnt happend every week...I will need to make an appt with my PCP if it does...my sons shouldler has a slight tear in the rotator muscle, so he is out for a few more days, hopefully, and tues i get a esophgial dilitation..oh joy..geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Good luck Geri,, my brother used to have to have that done.. Just take it slower when you are short of breath,, you are probably anemic and your hemoglobin is low,, are you taking procrit yet?us4heavenbound@... wrote: my sides didnt kick in until around week3-4. I could feel the pills after about 4-5 days..You will notice that you cant walk as far and that you are trying to breath deeper. I really notice that since I have upped the riba I am struggleing for air again..besides the headache i am doing ok..hope it doesnt happend every week...I will need to make an appt with my PCP if it does...my sons shouldler has a slight tear in the rotator muscle, so he is out for a few more days, hopefully, and tues i get a esophgial dilitation..oh joy..geri Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Hi Valarie Yes, Im sure your syringe had meds in it,, lol,, sometimes,, somepeople are just lucky and dont have severe side effects from tx,, I didnt have much other than headaches and a severe increase in body and joint aches.. I think because I had so much in pain before I was even diagnosed that the increase I had after shots just didnt seem so bad.. Im sure you will find that each shot is different too,, sometimes I had more headaches and other times my lower back and butt muscles hurt more.. but thats why my doc gave me pain meds and it was so helpful on those days.. Yes, it can be cumulative and you might find that you will feel worse as time goes along but then again, you might NOT too! From what I have heard and read, most ppl have most of the side effects during the first 6-8 weeks and then it seems to stabilize out and its just the fatigue that gets them... Make sure you get your labs drawn often enough to make sure you dont have anemia that is not be addressed,, with procrit.. take care and congrats on that first shot! jaxValarie <flap85274@...> wrote: This group is a blessing. I have learned so much since joining. I did as sugested and took my pills with toast and peanut butter and had no problems. Drank lots of water all day long. Last night I took my 1st shot. I did not think I was going to be able to do it at first but I took a deep breath, said a prayer and before I knew it, I was done. I got some chills a couple hours afterwards but that was it. Now I wonder if the syring really had medicine. Are the meds cummulative and build up? How does the treatment work on getting rid of the virus? I want to thank all of you for yours prayers and support...this group rocks!ValarieJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 > > Now I wonder if the syring really had medicine. Are the meds cummulative and > build up? How does the treatment work on getting rid of the virus? I > want to thank all of you for yours prayers and support...this group > rocks! > > Valarie > it's funny you should ask that-I gave myself my second injection (first one on my own) yesterday afternoon and as far as I can ascertain-I HAVE NO SIDE EFFECTS!!!!-I even called Scherring and spoke to one of the nurse counselors and she reasurred me that I did indeed inject myself properly. You and I must be the " lucky " ones. I hope both of our good track records continue. What genotype are you? how long are you to be on the therapy? Take care, Tamara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Well my first shot went well, I'm doing them Friday mornings so I can get the 5 kids off to school with no problems on Monday mornings. They bumped the riba up this time and hands have bumps all ready. Outside of a little achey and much less anxiety this time I'm praying things go like last time except I stay undectable! Got a big handicap toliet for my 12 yr old so all the water drinking isnt a drag. I did learn to pace myself and eat right so my crazy schedule can be done. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Good job! Now, water water water water water and more water. Take care of yourself, don't push too hard. Eat when you can. Rest when you can. Let us know if you need anything or are ready to jump off a cliff.. I'm good at cliff rescues! Hugs,Teri On Sun, Nov 7, 2010 at 3:12 PM, pam miller <pammango@...> wrote: Well my first shot went well, I'm doing them Friday mornings so I can get the 5 kids off to school with no problems on Monday mornings. They bumped the riba up this time and hands have bumps all ready. Outside of a little achey and much less anxiety this time I'm praying things go like last time except I stay undectable! Got a big handicap toliet for my 12 yr old so all the water drinking isnt a drag. I did learn to pace myself and eat right so my crazy schedule can be done. Pam Quote Link to comment Share on other sites More sharing options...
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