this is - Cordie.

[Guest guest]

Hi Cordie

Here is some info on Transplanting - click this link.

http://health.dir./group/ /links/013___TRANSPLANTING_001256416296/

I posted some info for you about the new HCV TX med Telaprevir.

http://www.hcvadvocate.org/presentations/telareal.htm <--- click here

http://www.hepatitis-central.com/mt/archives/2010/09/previous_hcv_no.html <--- click here

Telaprevir isnt approved just yet, but it is supposed to be within the next 6 months or so.

Used with the I/R, it is supposed to help non-respnders achieve SVR.

The numbers are something like 67%.

Please talk to your Hep-doc about this option, prior to talking about a transplant.

Transplanting is a last resort.

Gloria, one of our members here reached SVR using this med, after failing to reach SVR the first time on TX.

Cordie, stress is a lot of your mood problems.

You have failed TX 2 times and have every right to be worried sick.

Being bummed out is normal.

Try to relax some if you can.

I would suggest that you have a long and serious talk with your Hep-doc about your concerns.

Make a list and take it with you.

Now, I have done some reading on getting a transplant while still being infected with HCV.

The main thing that I have taken away from my reading is that one will re-infect the new liver.

Then your back in the same 'ol boat.

Yes you will have more time because it will take a long time to ruin the new liver, but eventually that will happen.

I suggest that you talk with your Hep-doc about trying to clear with the 3-D treatment [i/R/Telaprevir] prior to any transplant.

If you can clear the HCV, and have at least 25% of a good liver, your liver should regenerate, and you may not need a transplant.

Maybe your doc can get you in a clinical trial for non-responders.

Your SSI and Medicaid should cover all your med needs from now on.

That is what I have also.

Post as much as you can so that we all know that your ok, and what steps you are following.

The info you share could help someone else as well.

love

don in ks

From: ann winters <dasflueff@...>Subject: [ ] Hi everyone this is Cordie. Cc: cordeliann@...Date: Tuesday, October 12, 2010, 5:03 PM

I wanted to know if anyone out thers could bring me up to speed on getting a liver transplant. I still do not use a pc very well, so I hope someone will respond just to let me know how these communications work. I am a non respnder x2. with cirosis portal hypertension, gastropthopy,and first stage esophagile varicese no bleed yet just an occaional noes bruising. I am trying to decide wether or not to float away. I would rather fight it. Living in the moment is hard work. denial is depressing and futile at best. so you might say I am looking for a good fight. I just got approved for ssi and medicaid no other ins. I am staying at my mums she has pulmonary fibrosis and is doing well Her labs are perfect. I love her but would like my own space. After leaving an abusive relationship of ten years. I feel like I need a little freedom to feel better by myself. Am I kidding myself about a transplant? about feeling better. should I just be

Greatful for the love of my family and sunny days.I am trying to live healthy, sometimes apathy sets in I have no appetite, just pains and fatigue. irritable as hell. Its hard to laugh and always had good sense of humour. A little off the norm perhaps, but it was there. my last interon was dec 7/09. could this still be lingering or is is this just who I am now. any hints. Thank you, hugs and love to all of you Cordie ps

I would do the poison again in a heart beat.