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Greetings,

You mentioned that: " I was originally diagnosed with hyper thyroid

which was treated and to be honest I haven't felt as well as that eversince. "

Could you please clarify how it was treated?

Best,

.

>

> Hi everyone, this is my first post. Please be gentle. I have been reading

your threads for some time but in honesty I am ignorant to the vast amount of

knowledge that you all seem to share...but it is my intention to get there to

assist with my own problem and that of the many others who only seem to have a

slightly sub standard quality of life. Firstly please let me say how grateful I

am that I don't have a terminal illness. I am forever the optimist and hope one

day that my meds will be tweeked. I was originally diagnosed with hyper thyroid

which was treated and to be honest I haven't felt as well as that eversince. I

then went on the Thyroid Register and was found to have hypo thyroid and have

been on Thyroxine ever since (1996) I know I have got Antibodies. I am

presently on 125mcg's, my hair is getting thinner and thinner and I have no

spare energy (I am very fortunate that I am quite active but towards the end of

the day I can't be bothered to go out socially - but I get round this by taking

a nap when needed). I have a very understanding husband if you know what I

mean! Anyway my last results were TSH 0.42 (0.35 - 5.5) T4 20.7 (9 - 24). BUT

I STILL FEEL RUBBISH AND MY HAIR IS GETTING THINNER AND THINNER AND COMING OUT.

MY NAILS WON'T GROW ANYMORE. MY EYELASHES ARE THINNER! But I do have a lovely

family and I enjoy my job so I am luckier than most. I am hoping to be referred

to a Specialist when my Antibody test comes back and hopefully someone may give

me the luxury of trialling some T3 as well as T4. To be honest I haven't been

100% since taking Thyroxine. I got slight IBS, I had a shocking Perimenopause

and fatigue, aching joints I think the only thing that I haven't suffered is

depression but I am as I say forever the optimist and I am resilient. I am so

looking forward to the meeting in Birmingham and I hope I haven't frightened you

all off. Please let me know how you managed to get treated by these 'proper

thyroid specialist'

> Many thanks

>

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Guest guest

Hi Hazel,

Welcome to the group! It's nice to have another Bristol person here. :-)

How awful to think you might have had RAI unnecessarily. I have just made

another mental note not to go near doctors!

A similar thing happened to a friend recently. She was in hospital for a heart

op and they insisted she was hyperthyroid. (In fact she was just taking

Armour.) She had to stop taking it for a few months until she was no longer

under their spotlight. She had to put up with her hypothyroid symptoms coming

back, but she is building up to her previous dosage again now and beginning to

feel better.

Miriam

>

> Hello everyone,

>

> I'm another new member. Just to give some brief details: I became ill

suddenly in February 1991 following a Hepatitis B vaccination that I was

required to have as a student nurse and have been ill and unable to work ever

since; some months after becoming ill I was diagnosed with ME.

>

> Over the years I have developed, amongst other things, both thyroid and

adrenal problems and take T3, T4 and Hydrocortisone (for some reason I can't

tolerate the Nutri Thyroid and Adrenal products), along with various nutritional

supplements. I had radio-active iodine treatment in 2002, as I was diagnosed

with an over-active thyroid and had reacted badly to carbimazole - but I have

since been told by one doctor that it is possible that my thyroid wasn't really

over-active; rather, my system was not using the thyroid hormones properly

meaning that they had built up in my blood stream - so the blood tests showing

elevated levels of T3 and T4 were really a " false positive " . I wish I had known

this before I had the radio iodine!

>

> I am pretty much housebound and have to spend much of the time resting - so I

apologise in advance if I am not able to take part very much.

>

> Best Wishes.

>

> Hazel.

>

> www.oneagleswings.me.uk

> http://oneagleswingsme.blogspot.com/

>

>

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19:40:00

>

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Guest guest

HELLO IT'S JESSICA. I WAS DIAGNOSED IN 07, NOT TO SURE IF YOU GUYS REMEMBER ME.I WAS HAVING A HOUSING SITUATION BECAUSE OF ME HAVING HEP-C,THE COUNTY WAS HAVING A PROBLEM PLACING ME IN A SHELTER FOR ME AN MY DAUGHTER AND HUSBAND. WELL GOOD NEWS,THANKS TO ME NOT TAKING NO FOR AN ANSWER,THE COUNTY PUT ME IN A HOTEL. AND MY HUSBAND STILL LOOKING FOR EMPLOYMENT. I WAS SUPPOSED TO START MY TREATMENT BUT COULD NOT AT THE TIME. I STILL CAN'T RIGHT NOW BECAUSE I AM MY DAUGHTER PRIME CAREGIVER WHILE MY HUSBAND DOES WORK FIRST. BUT I HAVE A COUPLE QUESTIONS ABOUT CERTAIN THINGS THAT HAS BEEN HAPPENING WITH MY HEALTH. FOR EXAMPLE.. DOES THE BODY LOOSE CALCIUM BECAUSE OF HEP-C? THANK YOU FOR ALL YOUR KIND WORDS BEFORE SORRY I WAS GONE FOR A MOMENT BTU REALY NEED TO VENT..

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