Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 I would like to welcome mish_354Please, get comfortable and perhaps let us know a little bit of the history of your HepC. We are here to give help, support or just hear plain old venting.Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Do share your alternative tx plan.>>>>>>>>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 yes no problem, I Originally Started with Berksons regimen ( Selenium, Sylmarian & Alpha Lipoic Acid), and then expanded it with some of Lloyd 's Recommendations on questions about my concerns and test results. I also use OPC-10. Do You want a list of brands, milligrams and dosage? or just a list of what I'm taking. At 03:38 PM 12/1/2010, you wrote: > > >Do share your alternative tx plan. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Marcia,With the addition of a new drug coming out next year, treatment may take half the time with double the amount of rate of cure. However, Interferon and Ribavirin are still part of the regimen. It will still be at least 24 weeks of what can be a rough road for some people. Not everyone has the horrible side effects but many do. I did. For 48 weeks. But, for me it worked. I am cured and have been since 2006. For me it's a blessing and I was willing to go thru the hell. That is a personal decision that each person has to make on their own with the help of their doctors. I didn't have much choice. I was 6 months from needing to go on a transplant list. That wasn't an option for me. I did what I personally had to do. Hugs,TeriOn Wed, Dec 1, 2010 at 1:38 PM, Marcia Weatherholt-Bernhardt <mwassoc@...> wrote: Geno type 1B originally started with a viral load of 16 mil two years ago. ALt. AST were in the 70's range. Diagnosed via liver biopsy with stage 3 fibrosis. I made the decision based on success rates of RIB/Interferon and debilitating side effects, that it wasn't an option for me. I have been using alternatives for two years now and currently all of my test results are normal. My Viral load is now 1.7 mil, AST/ ALT in the low 20's, Iron low normal, liver enzymes and blood work normal. No symptoms at all, it's like I don't have it. I'm tested once a month and even though my viral load continues to drop, I'm just hanging around until something comes along to eradicate it all together. At 11:23 AM 12/1/2010, you wrote: > > > > >I would truly like to welcome Marcia [mwassoc] to the group!! > >There is an extensive variety of experiences >with the dragon here, so please, get comfortable >and perhaps let us know a little bit of the history of your HepC. > >We are here to give help, support or just hear plain old venting. > >Gloria > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Teri, I know, your the strong one. I may have to go down that road too, just my doctor and I made the decision that he would monitor me once a month on alternatives and see how I do on them before taking that step. I had Rheumatoid Arthritis (JRA) as a child and there were concerns of long term auto immune problems which is a common side effect among others with standard treatment. Have you had any health issues after treatment? At 05:30 PM 12/1/2010, you wrote: > > >Marcia, > >With the addition of a new drug coming out next >year, treatment may take half the time with >double the amount of rate of cure. However, >Interferon and Ribavirin are still part of the >regimen. It will still be at least 24 weeks of >what can be a rough road for some people. Not >everyone has the horrible side effects but many >do. I did. For 48 weeks. But, for me it >worked. I am cured and have been since >2006. For me it's a blessing and I was willing >to go thru the hell. That is a personal >decision that each person has to make on their >own with the help of their doctors. I didn't >have much choice. I was 6 months from needing >to go on a transplant list. That wasn't an >option for me. I did what I personally had to do. > >Hugs, >Teri > > >On Wed, Dec 1, 2010 at 1:38 PM, Marcia >Weatherholt-Bernhardt ><<mailto:mwassoc@...>mwassoc@...> wrote: > > > >Geno type 1B originally started with a viral load >of 16 mil two years ago. ALt. AST were in the >70's range. Diagnosed via liver biopsy with stage >3 fibrosis. I made the decision based on success >rates of RIB/Interferon and debilitating side >effects, that it wasn't an option for me. I have >been using alternatives for two years now and >currently all of my test results are normal. My >Viral load is now 1.7 mil, AST/ ALT in the low >20's, Iron low normal, liver enzymes and blood >work normal. No symptoms at all, it's like I >don't have it. I'm tested once a month and even >though my viral load continues to drop, I'm just >hanging around until something comes along to eradicate it all together. > >At 11:23 AM 12/1/2010, you wrote: > > > > > > > > > >I would truly like to welcome Marcia [mwassoc] to the group!! > > > >There is an extensive variety of experiences > >with the dragon here, so please, get comfortable > >and perhaps let us know a little bit of the history of your HepC. > > > >We are here to give help, support or just hear plain old venting. > > > >Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 yes please> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Strong one.. not so much. I am actually pretty much a wimp. Problems after treatment.. yep. We couldn't figure out why some of the side effects I was experiencing during treatment never went away. The fatigue, pain, depression.. It took until April of this year for me to be diagnosed with Fibromyalgia. Apparently it set in during treatment so when treatment was over, it was still there. I also still have a compromised immune system. Not as bad as it was during treatment, but I never fully got it back. When I get sick now, I get sick hard and for a long time. I avoid sick people. I have never been able to return to work. I am on disability. My ability to multi-task is gone.. actually, sometimes my ability to perform a single task doesn't work. I get distracted very easily. I don't drive as often as I used to pre-treatment. Actually I had to stop driving during treatment and it took me over a year to get back behind the wheel of a car again.. and even now, it's just short distances. I get lost easily now. No clue why, I just lose my bearings even in familiar places. It was a bit of a trade off, but I am no longer in fear of dying. At least not anytime soon. Hugs,TeriOn Wed, Dec 1, 2010 at 8:04 PM, Marcia Weatherholt-Bernhardt <mwassoc@...> wrote: Teri, I know, your the strong one. I may have to go down that road too, just my doctor and I made the decision that he would monitor me once a month on alternatives and see how I do on them before taking that step. I had Rheumatoid Arthritis (JRA) as a child and there were concerns of long term auto immune problems which is a common side effect among others with standard treatment. Have you had any health issues after treatment? At 05:30 PM 12/1/2010, you wrote: > > >Marcia, > >With the addition of a new drug coming out next >year, treatment may take half the time with >double the amount of rate of cure. However, >Interferon and Ribavirin are still part of the >regimen. It will still be at least 24 weeks of >what can be a rough road for some people. Not >everyone has the horrible side effects but many >do. I did. For 48 weeks. But, for me it >worked. I am cured and have been since >2006. For me it's a blessing and I was willing >to go thru the hell. That is a personal >decision that each person has to make on their >own with the help of their doctors. I didn't >have much choice. I was 6 months from needing >to go on a transplant list. That wasn't an >option for me. I did what I personally had to do. > >Hugs, >Teri > > >On Wed, Dec 1, 2010 at 1:38 PM, Marcia >Weatherholt-Bernhardt ><<mailto:mwassoc@...>mwassoc@...> wrote: > > > >Geno type 1B originally started with a viral load >of 16 mil two years ago. ALt. AST were in the >70's range. Diagnosed via liver biopsy with stage >3 fibrosis. I made the decision based on success >rates of RIB/Interferon and debilitating side >effects, that it wasn't an option for me. I have >been using alternatives for two years now and >currently all of my test results are normal. My >Viral load is now 1.7 mil, AST/ ALT in the low >20's, Iron low normal, liver enzymes and blood >work normal. No symptoms at all, it's like I >don't have it. I'm tested once a month and even >though my viral load continues to drop, I'm just >hanging around until something comes along to eradicate it all together. > >At 11:23 AM 12/1/2010, you wrote: > > > > > > > > > >I would truly like to welcome Marcia [mwassoc] to the group!! > > > >There is an extensive variety of experiences > >with the dragon here, so please, get comfortable > >and perhaps let us know a little bit of the history of your HepC. > > > >We are here to give help, support or just hear plain old venting. > > > >Gloria > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 which Do You want- 1.) a list of brands, milligrams and dosage? or 2.) just a list of what I'm taking. At 06:13 PM 12/1/2010, you wrote: > > >yes please > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Hi Marcia, I'd like to see a list of brands, milligrams, dosage, etc---and any comments you have regarding your regimen or any alternative info you think is useful. I'll look up those links to the LDN conferences and post them. Also, Joyce has some results of LDN on her website from several people. I'll post the site. Have you explored anything from ny Delirious?? I haven't --but am somewhat curious--not greatly curious or I would have explored it. SuziQ > > which Do You want- > 1.) a list of brands, milligrams and dosage? > or > 2.) just a list of what I'm taking. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 MORNING DRINK: 1 lemon squeezed with 5 grams (approx 1tsp) Ascorbic Acid-NOW BRAND, 1 tsp Ultra Uscorbic c-BIO IMMUNE, 2 to 3 filled droppers of Nu-Naturals Stevia. MORNING SUPPLEMENTS: 1-260mcg Aller Aid Formula II (Slenium)-ALLERGY RESEARCH GROUP 1- 300mg Oxymatrine-*AMS 2-270mg (proanthocyanidins) Blueberry Extract-*AMS 2-500mg Naringenin-*AMS 2-250mg Silymarin-MRM BRAND 2-250mg (45mg Oleuropein)-Olive Leaf- PARADISE BRAND-NOTE: To be taken for 4 days, stopped for 3 days and repeat. (4days on, 3 days off) 1- 600 mg Alpha Lipoic acid-DOCTORS BEST BRAND 1-B100 Caps-TWINLAB BRAND 1-BONE UP caps (Calcium Blend for bone health) JARROW FORMULAS BRAND MID MORNING: 4 caps full of PURE ALOE FORCE-HERBAL ANSWERS INC. BRAND AFTERNOON: 2-250mg Silymarin-MRM BRAND 1- 300mg Oxymatrine-*AMS LATE AFTERNOON: 4 caps full of PURE ALOE FORCE-HERBAL ANSWERS INC. BRAND 10 oz MILK THISTLE TEA-*AMS BULK AFTER DINNER: 1-260mcg Aller Aid Formula II (Slenium)-ALLERGY RESEARCH GROUP 1- 300mg Oxymatrine-*AMS 2-270mg (proanthocyanidins) Blueberry Extract-*AMS 2-500mg Naringenin-*AMS 2-250mg Silymarin-MRM BRAND 2-250mg (45mg Oleuropein)-Olive Leaf- PARADISE BRAND-NOTE: To be taken for 4 days, stopped for 3 days and repeat. (4days on, 3 days off) 1- 600 mg Alpha Lipoic acid-DOCTORS BEST BRAND 1-B100 Caps-TWINLAB BRAND 1-BONE UP caps (Calcium Blend for bone health) JARROW FORMULAS BRAND 10 oz MILK THISTLE TEA-*AMS BULK 10 oz LICORICE TEA-*AMS BULK BEFORE BED: 2-1050 mg Laktoferrin-ALLERGY RESEARCH GROUP 1-Phosphatidyl Choline (Helps Laktoferrin absorption)-ALLERGY RESEARCH GROUP BRAND 1 to 2 400 mg MAGNESIUM CAPS-TWINLAB BRAND * Alternative Medicine Solutions-Lloyd At 06:40 AM 12/2/2010, you wrote: > > >Hi Marcia, >I'd like to see a list of brands, milligrams, >dosage, etc---and any comments you have >regarding your regimen or any alternative info >you think is useful. I'll look up those links to >the LDN conferences and post them. Also, Joyce >has some results of LDN on her website from >several people. I'll post the site. Have you >explored anything from ny Delirious?? I >haven't --but am somewhat curious--not greatly >curious or I would have explored it. > >SuziQ > > > > > > which Do You want- > > 1.) a list of brands, milligrams and dosage? > > or > > 2.) just a list of what I'm taking. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Everythng brand, does how often > > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> >> >> >>>> Quote Link to comment Share on other sites More sharing options...
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