??

[Guest guest]

In a message dated 1/3/2005 2:23:22 P.M. Eastern Standard Time,

rn4premies@... writes:

Hi all,

Can anyone tell me anything about a child being homebound for school?? At

this point we have decided if gets sick again to possibly make her

homebound( I spoke to the ped today and she agrees) and next year to home

school. but as we are 1/2 way through the school year I didn't know if it was

possible to try and home school until Sept. Her IVIG is being increased from 10

grams to 12 grams to see if it will make a difference, we can still go up if

needed, but as she only tolerates 45cc/hr that is a full day and they said if

we go much higher they may have to run it over two consecutive days.Thanks for

any help.

mom to - CVID,, asthma, GERD

If she's homebound, all you need to do is have your doctor write a

prescription for homebound services with the reasons listed on it. You take

that to

the school and request an IEP for homebound services ASAP. They have to comply.

Then even next year she'll be eligible for homebound services since she is

homebound for health reasons. The school would then have to homeschool her

(which is better than you homeschooling her by yourself since they pay for and

provide the teacher and the materials). I would call your special education

department and ask what they need for homebound services, explain that your

doctor is recommending it for your child and ask how it is done.

Diane, Mom to Kody, age 8.5, Di syndrome, CVID, learning disabled,

asthma, general anxiety disorder, sensory integration disorder, animal lover

and

protector, Yughio expert and chef extraordinaire. Also Mom to Arika, age 17,

senioritis. Kaila, age 13, allergies/asthma, queen of worry warts and

perfectionists. Sami, age 10, allergies/asthma, dyslexic, official family cheer

team captain. Wife to , a loving wonderful dad and hyperactive workaholic.

Check out our website at: www.geocities.com/schmidtzoo/SNAK

[Guest guest]

I'm not sure on the posting of the pics , is a sure best on helping you

with that one.

In the latest Oxygen Magazine, May issue there was an article on abs page 70,

" Your belly flatter then ever " It included 6 major exercises that you do reps

of 15-25 3 sets each. I thought they worked awesome. It takes about 25-30

mins. I did them every other day for about 2 weeks. I noticed a difference

right away. I do follow the BFL way of exercising, but when it comes to my abs.

I tend to very, also my caves. These two spots, I feel you can very, and still

get major results. I don't think I have ever done the BFL ab exercises, and I

have lost over an inch off my waist in 2 months, and I am almost to my goal.

So, and inch is quite a bit. So, don't sweat it, as long as you give them a

great workout, and try to fatigue them enough, you will see results. I'd get

the book soon, before it is off the shelves though.

If you are familiar with ab excersices you may already know of these, so I'll

give you the low down.

Jackknife: 3 sets 10-15 reps strive for 25 reps per set.

Dumbbell side bends: alt sides (about 12 lb to 15 lb) 3 sets 10-15 reps per side

strive for 30 reps.

Frog leg crunch: 3 sets 10-15 reps do all sets without stopping. Strive for 25

reps.

Toe touches: 3 sets 10-15 reps starting out 15-25 more advanced

Oblique Twists: hold a bar across your sholders, and neck 3 sets 10-15 reps

upgrade to 15-25

Bicycle crunches: 3 sets 10-15 reps advanced 15-25 reps.

fuzzyelfone <fuzzyelf@...> wrote:

Does anybody know how to post pics on this site?

Also, the ab exs in the book are either causing me neck or back pain -

do I have to stick with only those exs or are there others that would

be good? I need something that can be easily upgraded as regular floor

crunches are too easy, but adding a weight to my chest causes me not

to be able to support my neck casing major discomfort.

---------------------------------

[Guest guest]

Go to Photos on the left side, do " add album. " Give it your name, then

in the album do " add photo " then " browse " to find the ones on your

computer that you want to use. Then click " upload " and it will put

them in the folder. Be sure not to use too big a photo file. Resize it

the best you can. Hope this helps.

Stasia

[Guest guest]

Thank you

Kerr wrote:

> I'm not sure on the posting of the pics , is a sure best on helping

> you with that one.

> In the latest Oxygen Magazine, May issue there was an article on abs

> page 70, " Your belly flatter then ever " It included 6 major exercises

> that you do reps of 15-25 3 sets each. I thought they worked awesome.

> It takes about 25-30 mins. I did them every other day for about 2

> weeks. I noticed a difference right away. I do follow the BFL way of

> exercising, but when it comes to my abs. I tend to very, also my

> caves. These two spots, I feel you can very, and still get major

> results. I don't think I have ever done the BFL ab exercises, and I

> have lost over an inch off my waist in 2 months, and I am almost to my

> goal. So, and inch is quite a bit. So, don't sweat it, as long as you

> give them a great workout, and try to fatigue them enough, you will see

> results. I'd get the book soon, before it is off the shelves though.

> If you are familiar with ab excersices you may already know of these, so

> I'll give you the low down.

> Jackknife: 3 sets 10-15 reps strive for 25 reps per set.

> Dumbbell side bends: alt sides (about 12 lb to 15 lb) 3 sets 10-15 reps

> per side strive for 30 reps.

> Frog leg crunch: 3 sets 10-15 reps do all sets without stopping.

> Strive for 25 reps.

> Toe touches: 3 sets 10-15 reps starting out 15-25 more advanced

> Oblique Twists: hold a bar across your sholders, and neck 3 sets 10-15

> reps upgrade to 15-25

> Bicycle crunches: 3 sets 10-15 reps advanced 15-25 reps.

>

> fuzzyelfone <fuzzyelf@...> wrote:

> Does anybody know how to post pics on this site?

> Also, the ab exs in the book are either causing me neck or back pain -

> do I have to stick with only those exs or are there others that would

> be good? I need something that can be easily upgraded as regular floor

> crunches are too easy, but adding a weight to my chest causes me not

> to be able to support my neck casing major discomfort.

>

>

>

>

> ---------------------------------

>

[Guest guest]

It's the upload part that isn't working and the files I'm using are

pretty small...?

Stasia Bachrach wrote:

> Go to Photos on the left side, do " add album. " Give it your name, then

> in the album do " add photo " then " browse " to find the ones on your

> computer that you want to use. Then click " upload " and it will put

> them in the folder. Be sure not to use too big a photo file. Resize it

> the best you can. Hope this helps.

>

> Stasia

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Keep trying. is flaky about stuff. Maybe can get it to

work.

Stasia

[Guest guest]

There are a couple schools of thought on this issue. Many docs now

believe keeping the trough levels around 800-900 is ideal. Still

there are other docs that let patients get below 600 before increasing

the dose and even at that only if the patient is having trouble.

Looking at the clinical picture is going to be a good indicator as to

which school of thought the parent has. If the child is doing fine

meaning no infections and little fatigue that is a good clinical

picture and a doctor may choose not to make any changes no matter what

the numbers are. On the other hand if the child is continually

getting sick right before an infusion and is consistenly low on energy

that patient may try a higher rate even if the levels are low normal.

The main point is to keep a health journal keeping track of the

infusions as well as how the child is doing during that time period

between infusions. That will give you just as much if not more

information than the actual numbers. I hope that helps.

Kris, Mom to Konner and Keegan both CVID

> Hi all,

> I was just wondering, on IVIG what is a good number for IgG when

they check it? I know there is a range, I was wondering what any of

you have been told is acceptable or not and when they may increase

the dose. I'm not even sure this is answerable. Can't hurt to try.

Thanks.

> , Mom to - CVID, asthma, GERD

>

>

[Guest guest]

There are a couple schools of thought on this issue. Many docs now

believe keeping the trough levels around 800-900 is ideal. Still

there are other docs that let patients get below 600 before increasing

the dose and even at that only if the patient is having trouble.

Looking at the clinical picture is going to be a good indicator as to

which school of thought the parent has. If the child is doing fine

meaning no infections and little fatigue that is a good clinical

picture and a doctor may choose not to make any changes no matter what

the numbers are. On the other hand if the child is continually

getting sick right before an infusion and is consistenly low on energy

that patient may try a higher rate even if the levels are low normal.

The main point is to keep a health journal keeping track of the

infusions as well as how the child is doing during that time period

between infusions. That will give you just as much if not more

information than the actual numbers. I hope that helps.

Kris, Mom to Konner and Keegan both CVID

> Hi all,

> I was just wondering, on IVIG what is a good number for IgG when

they check it? I know there is a range, I was wondering what any of

you have been told is acceptable or not and when they may increase

the dose. I'm not even sure this is answerable. Can't hurt to try.

Thanks.

> , Mom to - CVID, asthma, GERD

>

>

[Guest guest]

Hi ,

I just had my yearly check-up for and his IGG level right before his

infusion was 625. He is infused every 4 weeks. I thought this was great,

he had an IGG level of 32 at diagnosis. Anyway, the Dr. was happy with

this, however, she said they would like to see that number in the 800 range.

She increased him from 10grams - 12 grams.

Now, I go to Children's Hospital of Philadelphia. I don't know who's

recommendation 800 is, but I just went there in May. Jeeze, I would be

thrilled with 800, but I really was quite happy with the 625 considering

where we were. had about 6 breakthrough infections over the course of

the year, all mild. Again, I thought that was great considering we had 6 in

3 months at the beginning, but the Drs. feel he can do even better.

One thing I did ask them was, " Is there anything specific I need to worry

about as far as exposure " . She said, " Enterovirus' (coxsackie and viral

meningitis). She said they don't seem to be covered with the IVIG like most

other things do. If was to be exposed to that, they would want to

know. (Just a tid bit of info...)

Kim, Mom to 8 - CVID

??

> Hi all,

> I was just wondering, on IVIG what is a good number for IgG when they

> check it? I know there is a range, I was wondering what any of you have

> been told is acceptable or not and when they may increase the dose. I'm

> not even sure this is answerable. Can't hurt to try. Thanks.

> , Mom to - CVID, asthma, GERD

>

>

[Guest guest]

Hi ,

I just had my yearly check-up for and his IGG level right before his

infusion was 625. He is infused every 4 weeks. I thought this was great,

he had an IGG level of 32 at diagnosis. Anyway, the Dr. was happy with

this, however, she said they would like to see that number in the 800 range.

She increased him from 10grams - 12 grams.

Now, I go to Children's Hospital of Philadelphia. I don't know who's

recommendation 800 is, but I just went there in May. Jeeze, I would be

thrilled with 800, but I really was quite happy with the 625 considering

where we were. had about 6 breakthrough infections over the course of

the year, all mild. Again, I thought that was great considering we had 6 in

3 months at the beginning, but the Drs. feel he can do even better.

One thing I did ask them was, " Is there anything specific I need to worry

about as far as exposure " . She said, " Enterovirus' (coxsackie and viral

meningitis). She said they don't seem to be covered with the IVIG like most

other things do. If was to be exposed to that, they would want to

know. (Just a tid bit of info...)

Kim, Mom to 8 - CVID

??

> Hi all,

> I was just wondering, on IVIG what is a good number for IgG when they

> check it? I know there is a range, I was wondering what any of you have

> been told is acceptable or not and when they may increase the dose. I'm

> not even sure this is answerable. Can't hurt to try. Thanks.

> , Mom to - CVID, asthma, GERD

>

>

[Guest guest]

Some questions I hope someone has answers for

[a] any electro means of strengthening atrophied muscles?

any electro means of reviving pancreas, for glucose/insulin rejuvenation?

[c] any cheap microscope with darkfield stage available?

Thanks, bob

[Guest guest]

In a message dated 4/16/2006 8:46:20 PM Eastern Standard Time, lodgpole@... writes:

[a] any electro means of strengthening atrophied muscles?

From: http://www.hawkslim.com/Questions.htm

The concept of electrical muscle stimulation has been in existence for well over 200 years. Galvani observed first in 1780, the twitching of the muscles of a frog’s leg under the influence of electricity; Volta proved twenty years later that this was due to the sudden "make" of the current flow in an electric cell. The induction or faradic coil was discovered by Faraday in 1831; Duchenne in 1855 described its application for electric stimulation of muscles. Remak first demonstrated the motor points for accurate electrical testing of muscles. Du Bois Reymond in 1849 formulated the law of electrical muscle stimulation and first employed the induction coil for muscle stimulation. He also made the first make and break key for interrupting an electric current. Bergonie of Bordeaux constructed the first device for general electric muscle stimulation by faradism; Kellogg, of Battle Creek, described the first sinusoidal muscle stimulating apparatus. The later methods of electrodiagnosis by condenser discharges and chronaxia testing also led to the employment of these forms of low frequency devices for muscle stimulation. Under the term of currents of low frequency a variety of currents are included. Their common physical characteristics are that their voltage or tension is constantly changing and is quite high. As a rule, these currents are composed of relatively wide, high energy electrical pulses flowing at frequencies of from 50 to 100 Hz between the electrodes applied to the body. These are the so called Faradic-type currents, produced by all conventional EMS devices. The effect of the current is to cause tetanic contraction of muscle. The therapeutic importance of low-frequency currents is twofold: (1) They furnish a characteristic procedure known as electrodiagnosis for the recognition of pathological conditions of the motor tract; (2) they furnish means for the stimulation of weak or paralysed muscles, a form of electrical muscle excitation valuable in the treatment of injuries and diseases.

http://www.neurocare.com/nc1000a.html

Under the term of currents of low frequency a variety of currents are included. Their common physical characteristics are that their voltage or tension is constantly changing and is quite high. As a rule, these currents are composed of relatively wide, high energy electrical pulses flowing at frequencies of from 50 to 100 Hz between the electrodes applied to the body. These are the so called Faradic-type currents, produced by all conventional EMS devices. The effect of the current is to cause tetanic contraction of muscle.

The therapeutic importance of low-frequency currents is twofold: (1) They furnish a characteristic procedure known as electrodiagnosis for the recognition of pathological conditions of the motor tract; (2) they furnish means for the stimulation of weak or paralysed muscles, a form of electrical muscle excitation valuable in the treatment of injuries and diseases.

The concept of electrical muscle stimulation has been in existence for well over 200 years. Galvani observed first in 1780, the twitching of the muscles of a frog’s leg under the influence of electricity; Volta proved twenty years later that this was due to the sudden “make†of the current flow in an electric cell. The induction or faradic coil was discovered by Faraday in 1831; Duchenne in 1855 described its application for electric stimulation of muscles. Remak first demonstrated the motor points for accurate electrical testing of muscles. Du Bois Reymond in 1849 formulated the law of electrical muscle stimulation and first employed the induction coil for muscle stimulation. He also made the first make and break key for interrupting an electric current. Bergonie of Bordeaux constructed the first device for general electric muscle stimulation by faradism; Kellogg, of Battle Creek, described the first sinusoidal muscle stimulating apparatus. The later methods of electrodiagnosis by condenser discharges and chronaxia testing also led to the employment of these forms of low frequency devices for muscle stimulation.

Under the term of currents of low frequency a variety of currents are included. Their common physical characteristics are that their voltage or tension is constantly changing and is quite high. As a rule, these currents are composed of relatively wide, high energy electrical pulses flowing at frequencies of from 50 to 100 Hz between the electrodes applied to the body. These are the so called Faradic-type currents, produced by all conventional EMS devices. The effect of the current is to cause tetanic contraction of muscle.

The therapeutic importance of low-frequency currents is twofold: (1) They furnish a characteristic procedure known as electrodiagnosis for the recognition of pathological conditions of the motor tract; (2) they furnish means for the stimulation of weak or paralysed muscles, a form of electrical muscle excitation valuable in the treatment of injuries and diseases.

[Guest guest]

the results shown vs exercise weren't terribly good, the consumer

devices, anyway. it may tone a muscle but may not do much for the

nerves and the rest of the system like joints, etc involved in it.

Tensing and isometrics do seem to work (been years, you can google all

this, but it's what I remember)>

bG

>

> In a message dated 4/16/2006 8:46:20 PM Eastern Standard Time,

> lodgpole@... writes:

> [a] any electro means of strengthening atrophied muscles?

> From: http://www.hawkslim.com/Questions.htm

>

> The concept of electrical muscle stimulation has been in existence

for well

> over 200 years. Galvani observed first in 1780, the twitching of the

muscles of

>

[Guest guest]

Sorry, if I misunderstood your post.

HRH

New Member

Hello,

I'm new to the group. I'm very glad I found you - there's not a lot of

info. on infantile scoliosis out there. My son, Noah, has been

diagnosed with Infantile Scoliosis. He is 21 months old. We were

referred by his pediatrican to Dr. Lonstein at TC Spine Center in

Mpls. I'm told he is a good doctor. We've had one appt. so far.

Noah's curve is 30 degrees and his RVAD is 20. The doctor says Noah

is " right on the fence " as far as determining whether or not his curve

is likely to progress. We are to go back in 3 months to have a new

set of x-rays. If he is progressing - I will definately want to

discuss casting as an option. A lot of what I'm reading has indicated

that Noah's numbers are not good, so I'm trying to prepare myself for

the worst without panicking. Any thoughts or advice is appreciated.

Thanks!

[Guest guest]

No need to apologize ! I don't know why he wouldn't cast Max

unless it was because he thought he couldn't help him. He's an odd duck

but he has been very good to us and is clearly very dedicated to Sammy.

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of heather hyatt

Sent: Monday, April 16, 2007 1:07 PM

infantile scoliosis treatment

Subject: Re: ??

Sorry, if I misunderstood your post.

HRH

New Member

Hello,

I'm new to the group. I'm very glad I found you - there's not a lot of

info. on infantile scoliosis out there. My son, Noah, has been

diagnosed with Infantile Scoliosis. He is 21 months old. We were

referred by his pediatrican to Dr. Lonstein at TC Spine Center in

Mpls. I'm told he is a good doctor. We've had one appt. so far.

Noah's curve is 30 degrees and his RVAD is 20. The doctor says Noah

is " right on the fence " as far as determining whether or not his curve

is likely to progress. We are to go back in 3 months to have a new

set of x-rays. If he is progressing - I will definately want to

discuss casting as an option. A lot of what I'm reading has indicated

that Noah's numbers are not good, so I'm trying to prepare myself for

the worst without panicking. Any thoughts or advice is appreciated.

Thanks!

[Guest guest]

Good idea! I've only met one other person with heterochromia in my

life, and that was when I was a kid. My parents and siblings have it

too though. If we had a meet, where would it be? I think this group is

from all over the world. I'm in Australia (Queensland).

[Guest guest]

Hey everybody! I was wondering has anybody ever heard of someone w/

heterochromia passing it along to thier children? Silly question just

wondering!

[Guest guest]

>

> Good idea! I've only met one other person with heterochromia in my

> life, and that was when I was a kid. My parents and siblings have it

> too though. If we had a meet, where would it be? I think this group is

> from all over the world. I'm in Australia (Queensland).

hello carra,

I'm in QLD too. I have one blue eye and one green. I got it from my

father.>

[Guest guest]

no vaccine in the world is good.On Thu, Aug 21, 2008 at 12:49 AM, <messianicvegan@...> wrote:

shingles vaccinations, just a question, I'm hearing a lot lately about people getting shingles , & I'm wondering about the vaccination against it , is it a good thing or like the rest of the vaccinations bad ?

Shalom Haver (Hello Friend);Dee , & All the vegan furkids " May God bless you and keep you! " May God deal kindly and graciously with you! " May God bestow favor upon you and grant you peace! " B'Shem Yeshua Hamashiach, Amen

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

no vaccine in the world is good.On Thu, Aug 21, 2008 at 12:49 AM, <messianicvegan@...> wrote:

shingles vaccinations, just a question, I'm hearing a lot lately about people getting shingles , & I'm wondering about the vaccination against it , is it a good thing or like the rest of the vaccinations bad ?

Shalom Haver (Hello Friend);Dee , & All the vegan furkids " May God bless you and keep you! " May God deal kindly and graciously with you! " May God bestow favor upon you and grant you peace! " B'Shem Yeshua Hamashiach, Amen

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Here here!

I would not put any vaccine of any kind into myself, my family or my

pets (or the land, water supply or oceans for that matter). Even if

the premise of tying up the immune system chronically (instead of

acutely, as in an actual instance of the dis-ease) for life were

viable, the chemicals and crap they put in the vaccines will always

classify them as toxic.

t

On Aug 21, 2008, at 1:19 AM, Monika Reign B. wrote:

>

> no vaccine in the world is good.

>

>

>

>

> On Thu, Aug 21, 2008 at 12:49 AM, <messianicvegan@...> wrote:

> shingles vaccinations, just a question, I'm hearing a lot lately

> about people getting shingles , & I'm wondering about the

> vaccination against it , is it a good thing or like the rest of the

> vaccinations bad ?

>

> Shalom Haver (Hello Friend);

> Dee , & All the vegan furkids

> " May God bless you and keep you!

> " May God deal kindly and graciously with you!

> " May God bestow favor upon you and grant you peace! "

> B'Shem Yeshua Hamashiach, Amen

>

>

>

>

> It's only a deal if it's where you want to go. Find your travel deal

> here.

>

>

>

[Guest guest]

Here here!

I would not put any vaccine of any kind into myself, my family or my

pets (or the land, water supply or oceans for that matter). Even if

the premise of tying up the immune system chronically (instead of

acutely, as in an actual instance of the dis-ease) for life were

viable, the chemicals and crap they put in the vaccines will always

classify them as toxic.

t

On Aug 21, 2008, at 1:19 AM, Monika Reign B. wrote:

>

> no vaccine in the world is good.

>

>

>

>

> On Thu, Aug 21, 2008 at 12:49 AM, <messianicvegan@...> wrote:

> shingles vaccinations, just a question, I'm hearing a lot lately

> about people getting shingles , & I'm wondering about the

> vaccination against it , is it a good thing or like the rest of the

> vaccinations bad ?

>

> Shalom Haver (Hello Friend);

> Dee , & All the vegan furkids

> " May God bless you and keep you!

> " May God deal kindly and graciously with you!

> " May God bestow favor upon you and grant you peace! "

> B'Shem Yeshua Hamashiach, Amen

>

>

>

>

> It's only a deal if it's where you want to go. Find your travel deal

> here.

>

>

>

[Guest guest]

I spoke with over the weekend. She was very sick and felt it necessary to

go to the hospital.

<3Kendra

>

> >

> >

> >

> >

> >

> > I received a notice tonight on FaceBook that Amy Oliver woke up Sunday

morning

> > unable to breathe, was taken to the hospital, and is currently in the ICU

> > intubated. I don't have any info beyond this, but am trying to get in touch

> > with her husband, Will, to get an update and see if there is anything he

might

> > need. I'll update as soon as possible...

> >

> > Amy M.

> >

> >

[Guest guest]

Yeah I just read her FB page. Scary. If you talk to her & think of it,

tell her I am thinking of her. thanks K.

On 4/14/09 11:21 PM, " Kendra " <kendranicole@...> wrote:

>

>

>

>

>

> I spoke with over the weekend. She was very sick and felt it necessary

> to go to the hospital.

>

> <3Kendra

>

>

>> >

>>> > >

>>> > >

>>> > >

>>> > >

>>> > >

>>> > > I received a notice tonight on FaceBook that Amy Oliver woke up Sunday

>>> morning

>>> > > unable to breathe, was taken to the hospital, and is currently in the

ICU

>>> > > intubated. I don't have any info beyond this, but am trying to get in

>>> touch

>>> > > with her husband, Will, to get an update and see if there is anything he

>>> might

>>> > > need. I'll update as soon as possible...

>>> > >

>>> > > Amy M.

>>> > >

>>> > >

[Guest guest]

How can I tell if I'm having a bad day or if thr Riba-depresion is to blame? I'm

on 75 mg Elavil already. I would think some depression is normal under these

circumstances.

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

" A well- behaved woman never made history " ...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx