I have a question

[Guest guest]

I am taking between 88 mcg and 75 mcg of eltroxin with about 2 mcg cytomel. The

reason for the 'about' is that I have to cut down 25 mcg cytomel as that's what

is available in canada. With the Eltroxin (like Synthroid) I take 75 mcg 4 days

a week and 88 three days a week. It's way too complicated but I have not found

an easy solution.

Ask on...

Kate

Re: I have a question

>

> After having RAI it took over 3 years to get my thyroid levels to

settle down at all. Seemed like every month there was a change. My

TSH went up to 75 before the endo started any replacement, hoping that

that indicated the thyroid was gone. But still I bounced around a

lot. Someone told me it's partly because when you have RAI you have

destroyed the thyroid, but not the autoimmune disease - that it's

still around causing problems. I still bounce around a lot - going

from hyper to hypo and back...

> Kate

>

Yeah, it is a real pain isn't it? How much thyroid replacement are you

taking now Kate. Sorry if I am nosy, and know it can vary for everyone.

Betty

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[Guest guest]

>

> I am taking between 88 mcg and 75 mcg of eltroxin with about 2 mcg

cytomel. The reason for the 'about' is that I have to cut down 25 mcg

cytomel as that's what is available in canada. With the Eltroxin

(like Synthroid) I take 75 mcg 4 days a week and 88 three days a

week. It's way too complicated but I have not found an easy solution.

> Ask on...

> Kate

>

Yes ,it is very complicated. When the bad feeling starts coming to me,

I think okay now am I hypo or hyper. Sooo confusing. Right now I am on

2 grains of Armour plus 50 mcgs of T4.

Also took PTU for two years prior to RAI, so all that combined can

make you more hypo I imagine. The reason for RAI was because my doctor

kept me sooo hypo on PTU, so thought that RAI might help the problem.

Not any better, but think I am going more deeply into hypo now.

[Guest guest]

Hi Tammy and group,

I certainly did not mean disrespect for anyone's decision. This is a very

hard decision to make. I feel I am lucky that if my thyroid is going to be out

that it is apparently doing it naturally. If I continued to stay in the hyper

state I was I may have to elect RAI. Even at this point, I am not sure what

direction my thyroid will take, but I am enjoying feeling much better and have

even been able to stop my beta blocker. Someone wrote and that when your

thyroid goes out your Graves disease continues to stay, that is my

understanding also. I am told I have both Graves and Hastimoto. Which sounds

crazy that it is both hyper and hypo??

Anyways,

I hope that everyone is feeling well,

take care,

Annette

---------------------------------

Want to be your own boss? Learn how on Small Business.

[Guest guest]

Annette,

From what I've heard, the thyroid, unlike say the pancreas and type 2

diabetes, doesn't ever burn out. What happens is that many people's

immune system stops overproducing as they age hence the change in

thyroid hormone status. Hashimoto's sometimes has a period of

hyperthyroidism but then switches to hypothyroidism.

Nissa

>Hi Tammy and group,

> I certainly did not mean disrespect for anyone's decision. This

>is a very hard decision to make. I feel I am lucky that if my

>thyroid is going to be out that it is apparently doing it

>naturally. If I continued to stay in the hyper state I was I may

>have to elect RAI. Even at this point, I am not sure what

>direction my thyroid will take, but I am enjoying feeling much

>better and have even been able to stop my beta blocker. Someone

>wrote and that when your thyroid goes out your Graves disease

>continues to stay, that is my understanding also. I am told I have

>both Graves and Hastimoto. Which sounds crazy that it is both

>hyper and hypo??

>

> Anyways,

> I hope that everyone is feeling well,

> take care,

> Annette

>

>

>---------------------------------

>Want to be your own boss? Learn how on Small Business.

>

>

[Guest guest]

Yes, getting clothing that fits is a PAIN, but there's another problem. People

with different kinds of dwarfism (there are over 200) have different shapes -

some have average torsos and short limbs, some have short torsos and short

limbs, in about a million different configurations. So I'm not aware of any

successful mass marketing of clothes for people with dwarfism. I know that

there is some trading at LPA events, but that's all I know about. What we

generally do (for those of us who didn't get the sewing gene) is find a good

tailor/seamstress and give her/him LOTS of business.

You wouldn't happen to live near Beaumont, TX, would you????

Alyce :-)

[Guest guest]

Alyce is right about her response of having many different body types

and many different forms of dwarfism.

I think gender and age also plays a role in finding clothes that fit.

I am in my mid-twenties and I'm fairly proportionate beacuse I have

SEDc. I am 3'8 and about 75lbs. My father is in his 70's and has

great difficulties finding clothes that fit and has the same type of

dwarfism as me, but built differently. He needs to find someone to

help alter many of his pants and suit jackets.

For me, I do VERY well because Capris and 3 quarter length sleeve

shirts are part of the current fashion. I do not have alter most of

my pants or long sleeve shirts. Also I am able to go into the Junior

and sometimes Petite Section to find what I'm looking for and they

generally fit. If Capris and 3 quarter sleeve shirts were not in

style, I would need to find someone to alter my clothes.

People with disabilities may have success finding clothing that fit

and others need to have things altered or find clothing that are

specifically designed for people with various disabilities.

I work for a non-profit organziation and the PROBLEM with companies

that create specifically designed clothing or custom made clothing

for people with various types of disabilites is the HUGE COST!!! I

could NOT afford to pay the prices that most of these companies

charge.

It is easier for someone like myself to have a family member teach me

how to use a sewing machine if it came down to it.

~ a

>

> Yes, getting clothing that fits is a PAIN, but there's another

problem. People with different kinds of dwarfism (there are over

200) have different shapes - some have average torsos and short

limbs, some have short torsos and short limbs, in about a million

different configurations. So I'm not aware of any successful mass

marketing of clothes for people with dwarfism. I know that there is

some trading at LPA events, but that's all I know about. What we

generally do (for those of us who didn't get the sewing gene) is find

a good tailor/seamstress and give her/him LOTS of business.

>

> You wouldn't happen to live near Beaumont, TX, would you????

>

> Alyce :-)

>

>

>

[Guest guest]

I agree a, regarding your statement that gender and age plays

a role in our finding clothes that fit. I could be wrong, but I have a

feeling

it may be a bit easier for us female LP's to find clothing that fits with

little or no alterations, than it is for our male friends...in that we can often

do well with gaucho pants, capris, three quarter sleeved shirts, and

mini-skirts or dresses which for us become a perfect fit. Wrap skirts are

really

cool too...providing of course, one remembers to make sure one has TIED the

knot properly first before embarking out into the BIG wide world...

Adelaide

In a message dated 8/15/07 10:30:44 A.M. Eastern Daylight Time,

quartznh@... writes:

I think gender and age also plays a role in finding clothes that fit.

I am in my mid-twenties and I'm fairly proportionate beacuse I have

SEDc. I am 3'8 and about 75lbs. My father is in his 70's and has

great difficulties finding clothes that fit and has the same type of

dwarfism as me, but built differently. He needs to find someone to

help alter many of his pants and suit jackets.

For me, I do VERY well because Capris and 3 quarter length sleeve

shirts are part of the current fashion. I do not have alter most of

my pants or long sleeve shirts. Also I am able to go into the Junior

and sometimes Petite Section to find what I'm looking for and they

generally fit. If Capris and 3 quarter sleeve shirts were not in

style, I would need to find someone to alter my clothes.

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

<<I work for a non-profit organization and the PROBLEM with companies

that create specifically designed clothing or custom made clothing

for people with various types of disabilities is the HUGE COST!!! I

could NOT afford to pay the prices that most of these companies

charge.>>

" Custom made " is the problem. The standardized sizes, being used in the market,

are practically machine stamped before assembly. Standardizing is the key, but

nobody has gone to the trouble. Which makes me ponder all the more. I mean,

isn't the old saying 'find a need and fill it'?

It's possible that no clothing manufacturer has ever considered this to be a

viable enough market but I have a tendency to disagree. Now I'm researching. It

would be interesting to find out what the estimated numbers really are, how many

of such body design for this market.

I see no reason not to be able to get some averages and come up with a whole

other set of standardized pattern dimensions. We could do the same thing as

" girls,teens,miss " in another set of standardized sizes, using unique names for

the divisions of size. Once standardized, I see no reason not to be able to mass

produce in those sizes without being so pricey.

Believe me, my mind in locked into the subject. Thanks, so much for the serious

response.

Judy

Visit http://judysbookshop.com where you will find information on

ceramics,crafts,dreaming and more

[Guest guest]

I find that alot of sites that offer clothes/shoes for LP and or

disabled tend to have very boring and expensive clothes so I pretty

much modify everything I buy. I am a womens size small for tops, and

a childrens size 4 for bottoms (very unbalanced lol). I have a very

short torso, long arms, barrel chest (thats the lovely OI for ya) and

narrow shoulders, so finding stuff IS very hard! I stick to simple

styles, like tank tops, strappy tops ect.

When I shop I look at an outfit and think, ok how can I fix this to

fit, not will this fit lol. I am lazy so I don't sew too much, and if

I do I pick simple stuff thats easy to fix. Most everything I buy I

have to either shorten the straps, and cut the bottom off the shirt,

or I wear as a dress.

As for bottoms, I wear only jeans. Its what I prefer. I wear stretch

jeans, hip huggers, bc when I sit and wear pants with a high waiste,

it looks like a I have a huge bulge lol, so hip huggers fit better in

that area. I also wear strenchy skirts too. You may want to try

leggings, they fit good and are making a come back.

Bon

>

> Yes, getting clothing that fits is a PAIN, but there's another

problem. People with different kinds of dwarfism (there are over

200) have different shapes - some have average torsos and short

limbs, some have short torsos and short limbs, in about a million

different configurations. So I'm not aware of any successful mass

marketing of clothes for people with dwarfism. I know that there is

some trading at LPA events, but that's all I know about. What we

generally do (for those of us who didn't get the sewing gene) is find

a good tailor/seamstress and give her/him LOTS of business.

>

> You wouldn't happen to live near Beaumont, TX, would you????

>

> Alyce :-)

>

>

>

[Guest guest]

I found that I had this Lilian, I firstly changed my routine, I had1.5 am, 1.5 midday and 1 around 3pm - when I was taking 4 per day, I found this and that I was getting hypo symptoms again, I dropped the extra half that I was having at midday and I started to feel a whole lot better, then I started again so I upped my NAE by 1 and dropped down to 1.5, 1, .5 and I have been great on that since.

Luv nne

I have a question for all the people taking Armour. There are times when I get a bit 'fluttery' but when I do (which isn't that often) it is about 3 - 3.5 hours after taking my 1 grain Armour. I take 3 grains in the morning and 1 about lunch time. No flutters after the morning ones at all.

[Guest guest]

Do you take any synthetic T3 with your Armour, or just Armour Lilian.

Sheila

I have a question for all the people taking Armour.

There are times when I get a bit 'fluttery' but when I do (which isn't that often) it is about 3 - 3.5 hours after taking my 1 grain Armour.

I take 3 grains in the morning and 1 about lunch time. No flutters after the morning ones at all.

It does not happen every day so I am wondering whether it could be something else and nothing to do with the Armour at all.

Does anyone else have anything similar and could it be something else.

If it happened every day I could reduce or not have the lunch time one, but it doesn't.

Lilian

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1211 - Release Date: 06/01/2008 11:57

[Guest guest]

Just Armour Sheila. No point in cutting it down because it is not happening all the time and tomorrow and for a few days after I will probably be perfectly alright. I just wondered if something like that happened to anyone else who takes it.

However, I have suspicions that it might not be anything to do with the Armour as it would be more consistent if it was. I think it might be a blood sugar thing. Next time it happens I must do a blood test.

Lilian

Do you take any synthetic T3 with your Armour, or just Armour Lilian.

[Guest guest]

Thanks nne. I take 4 grains a day, 3 in the morning and 1 lunch time. I do not like to take it any later as I would be up most of the night. So perhaps I will leave it as it is unless it happens on a more regular basis.

Lilian

I found that I had this Lilian, I firstly changed my routine,

[Guest guest]

I tend to have this early evening sometimes & put this down to adrenals, and perhaps missing my best time to take my 3rd dose of the day. I do not think this is due to armour in me.

Val

I have a question for all the people taking Armour.There are times when I get a bit 'fluttery' but when I do (which isn't that often) it is about 3 - 3.5 hours after taking my 1 grain Armour.Lilian

[Guest guest]

Hi Lilian,

I used to get this but it's not always easy to pin down what's

causing it. I certainly find that insufficient adrenal support can

cause palps but also low magnesium seems to play a part. Do you

suffer with cramps as this could indicate low magnesium? If you

find it happens on a day that you are more active or stressed then

it is more likely to be adrenal. The trouble is that there are a

few deficiencies that might cause the odd flutter.

Luv Bella

>

> I have a question for all the people taking Armour.

>

> There are times when I get a bit 'fluttery' but when I do (which

isn't that often) it is about 3 - 3.5 hours after taking my 1 grain

Armour.

>

> I take 3 grains in the morning and 1 about lunch time. No

flutters after the morning ones at all.

>

> It does not happen every day so I am wondering whether it could be

something else and nothing to do with the Armour at all.

>

> Does anyone else have anything similar and could it be something

else.

>

> If it happened every day I could reduce or not have the lunch time

one, but it doesn't.

>

> Lilian

>

[Guest guest]

Ah, yes Lilian! I definitely get flutters after eating sweet stuff and

now avoid it unless it's a special occasion. Sweet stuff places

greater demands on cortisol which then causes a deficit.

Luv Bella

>

> However, I have suspicions that it might not be anything to do with

the Armour as it would be more consistent if it was. I think it

might be a blood sugar thing. Next time it happens I must do a blood

test.

>

> Lilian

>

> Do you take any synthetic T3 with your Armour, or just Armour

Lilian.

>

[Guest guest]

Hi Lilian,

I used to get odd ‘pinches’

but not any thing I could put logically. I think that all you could try is to

change the time of your 1 grain- maybe even taking it at night- though the T3

may affect your sleep. Or even taking it all as one dose like I do.

I take 3 grains in the morning and 1 about lunch

time. No flutters after the morning ones at all.

Lilian

[Guest guest]

Hi Lilian

I sometimes get it early evening but not every day. I am currently on 1 1/2 in morning and 1 in afternoon.

Chan

I have a question

I have a question for all the people taking Armour.

Support the World Aids Awareness campaign this month with for Good

[Guest guest]

I am so far behind, as you can see. I have changed the times to 8am for the 4 grain and 11am for the 1 grain. There is an improvement. I am gradually taking the 1 grain earlier and earlier so that I can take all 5 in the morning. I think that is what is going to do it for me.

Lilian

I used to get odd ‘pinches’ but not any thing I could put logically. I think that all you could try is to change the time of your 1 grain- maybe even taking it at night- though the T3 may affect your sleep. Or even taking it all as one dose like I do.

[Guest guest]

> I used to get odd 'pinches' but not any thing I could put

logically.

What are 'odd pinches' ?

luv keri>

[Guest guest]

Hi Keri,

Just an odd twinge or small sharpish pain.

Subject: Re: I have a question

> I used to get odd 'pinches' but not any thing I could put

logically.

What are 'odd pinches' ?

luv keri>

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing medication.

[Guest guest]

Hi Lilian,

Yes, That’s how I

ended up with one big dose daily- not recommended, but it stopped the pm dips

in energy and I get to sleep at night better- I’m a night owl anyway. I

really would like to take my meds an hour or so before I wake up!!!! I do try

to swallow my Armour if I get up in the night , but it’s never a regular

wakening.

I have a question

I am so far behind, as you can see. I have

changed the times to 8am for the 4 grain and 11am for the 1 grain.

There is an improvement. I am gradually taking the 1 grain earlier

and earlier so that I can take all 5 in the morning. I think

that is what is going to do it for me.

Lilian

Messages

are not a substitute for professional medical advice. Always consult with a

suitably qualified practitioner before changing medication.

[Guest guest]

Where did it say that?

I have a question

>I ordered the Iodoral & noticed it said under info If You were exposed

> to radiation. I asked since this past year I had way too much

> radiation, even a very well known blood Dr who looked at my records sd

> way to much don't do anymore! I was wondering why it said that if

> anyone knows? thanks

>

>

> ------------------------------------

>

>

>

>

>

[Guest guest]

>

> Where did it say that?

>

>

>

> I have a question

>

>

> >I ordered the Iodoral & noticed it said under info If You were

exposed

> > to radiation. I asked since this past year I had way too much

> > radiation, even a very well known blood Dr who looked at my

records sd

> > way to much don't do anymore! I was wondering why it said that if

> > anyone knows? thanks

> >

> > When I looked over the page advertising it & it had precautions

that was one of them.

> > ------------------------------------

> >

> >

> >

> >

> >

[Guest guest]

Hi, Pam - try the surgeon locator on the Inamed site:

http://www.lapband.com/

some docs will not accept another's patients, largely becuase of the liability.

But call around and you'll likely find one.

Do be sure you've has a recent fluoro to be sure there is no dilation - that

can be a reason for feeling we need more fill too. A new doc will probably want

one anyway, as well as a surgical report and fill history. you can work on

getting these sent to you now.

Sandy r

>

> Hi,

> I haven't posted in awhile. We were living in Texas when I had my surgery and

have since moved to Ohio. My Dr in Tx was supposed to refer me to a Dr here in

of Ohio, but I haven't been able to get ahold of him. Does anyone know of one

in the Cleveland area, or even Youngstown or even in western Pa. I need to have

an adjustment done.

> Thanks in advance.

> Pam Lenhart

>