I have a question

February 23, 2006

Please forgive my ignorance, but what is SVR?covertop@... wrote: Dear Jade, I think I would at least do it yearly! That's what my gastro does. Of course I wasn't lucky enough to go SVR. I think my friend has his done about every six mos. he went SVR. I think it's important to us to know where we stand with this disease. I am sure if you talked to your reg. physcian he would gladly have it done. Teri I have a question how often should I get retested for Hep C to see if it has come back..... it's like my DR has forgotten all about me now...... do I have to go to a Gastrologist to get tested or can I go to my family physician? Jade I got off treatments in 2004 and my DR has tested me twice..... but I

haven't heard from him since the end of 2004 or so.....

Brings words and photos together (easily) with PhotoMail - it's free and works with .

February 23, 2006

Hi Sheila,

Your not ignorant! It means sustained and for the life of me I can't remember what the v is, responder! LOL

Teri

I have a question

how often should I get retested for Hep C to see if it has come back..... it's like my DR has forgotten all about me now...... do I have to go to a Gastrologist to get tested or can I go to my family physician?

Jade

I got off treatments in 2004 and my DR has tested me twice..... but I haven't heard from him since the end of 2004 or so.....

Brings words and photos together (easily) withPhotoMail - it's free and works with .

February 23, 2006

could the v mean virus or virul. just what is it

anyway. and what am i to expect on the treatment i

will be on?

__________________________________________________

February 23, 2006

SVR = sustained viral response

All who have moved the world to better things

have received their inspiration from the Spirit

within and have always looked to it for instruction.

~ Fillmore~

ALTERNATIVE HOPE FOR HEP c

http://alternativehopeforhepc.com

ALTERNATIVE HOPE EPFX/SCIO

http://alternativehopeepfx.com

Q2 Energy Machine

http://alternativehopeQ2energy.com

February 23, 2006

i keep hearing about it sometimes going away with

treatment then coming back. does this happen often.

also...what about alternative treatments and their

success rate.

__________________________________________________

February 23, 2006

Yes it can come back! Diane is a good one to talk to about alternatives! There isn't any that i'm aware of that will make it go away! But I do take supplements which made my viral count go down to the 1000s rather than the million it was!

Teri

Re: I have a question

i keep hearing about it sometimes going away withtreatment then coming back. does this happen often.also...what about alternative treatments and theirsuccess rate.__________________________________________________

February 24, 2006

Thanks, . I am just learning all of this terminology. It's as if we have our own language. I checked out your websites, and shared the information with my family. You have really been a big help in understanding what we are dealing with, and how to cope with it. This entire group has taught me a lot, and I'm grateful for all of your input. son <dianaroars@...> wrote: SVR = sustained viral responseAll who have moved the world to better things have received their inspiration from the Spirit within and have always looked to it for instruction. ~ Fillmore~

ALTERNATIVE HOPE FOR HEP c http://alternativehopeforhepc.com ALTERNATIVE HOPE EPFX/SCIO http://alternativehopeepfx.com Q2 Energy Machine http://alternativehopeQ2energy.com

Brings words and photos together (easily) with PhotoMail - it's free and works with .

March 20, 2006

Baby that is so sweet! I didn't think you saw the stares though. I do but it

doesn't bother me. There just jealous! Well I'm finally going to bed. I has

to write a blog on 360 because I had to much on my mind.

Love you

Dottie

---------------------------------

Relax. virus scanning helps detect nasty viruses!

March 20, 2006

> I am a bp and my girlfriend is a lp, we have been dating for 8

months and are very happy.<

That's what is important.

>In the area we live there aren't many other lp so when we go out

people like to stare on occasion<

Other than when an LPA gathering comes to town, it's the same all

over. I rarely see another person of short stature other than at a

regional or conference. I know there is one other (student) at the

University where I work, but no one has ever mentioned her and I've

only seen her a total of 2 or 3 times and always from afar. And I

would never approach her, not even to spread the LPA word. If I'm

heading in her direction, I'd see if we make eye contact and then

judge if there is room for more. I don't LPA convert, I feel these

days everyone has some access to the internet and can google if they

are interested. ;-)

>is there a good way to handle that?<

My opinion is that every situation is different and I handle it

according to my mood of the day and where I am. Maybe being 50 helps

to make it easier to ignore. I was recently out on a date, that

involved the ever so hated Mall (I don't really like shopping! but it

was an easy place to meet for a first date, they have a gazillion

restaurants. and if it didn't work out, I can always shoe shop.). The

date is of short stature due to OI and in a wheelchair, and I on a red

scooter. Might as well carry a banner saying " STARE, why don't you " .

Not that I didn't notice people looking, but I was busy enjoying

myself and honestly didn't pay much attention. I later discovered that

the gentleman who I was with (who in his own right has spent a

lifetime coping with this) had been more put off by the stares that

were directed at me, then any directed at himself. I was in oblivious

heaven that day, finally someone who could keep up with my chatter.

I'll copy below a rant I posted on another list about a mall visit by

myself, and that was an annoying day. Some days I honestly don't care

who looks or stares.

>It's not a real big deal, I love Dottie for who she is but I think

it's really rude of people.<

For some it's the curiosity of the novelty of seeing a person of

extreme short stature, heck we are rare. Some of the exposure we've

received in the last 5 or so years has helped, but evidently some

don't have cable. For others, it is just general rudeness.

I always cut kids slack, for the most part it is natural curiosity and

I always hope the parents will use the opportunity to educate them

(and not rip their heads off their little necks getting them to look

elsewhere). With kids I usually say 'hi' and that breaks the ice and

the stare. Some ask questions and others smile shyly. One little boy

at the mall recently said " mommy look at the lady " and his mother just

smiled and said " isn't she cool? " and he walked away shaking his head

in agreement.

>Should we confront people and try to inform them of dwarfism, or

ignore them?<

It's all in how comfortable you feel handling it. I stare some adults

down, I ask others " can I help you " . And on a good day, I freak others

out by holding out my hand and saying " oh my god, it's been so long! "

loudly. But, honestly for the most part, I just ignore them.

I can count on one hand really negative interactions and the

frustrating ones have been with those of an older generation that

tends to have beliefs that I'll rarely break. So for those I usually

" yes m'am " them and leave. Of course, I do roll my eyes!!

As you'll see below, some days I am in no mood to educate anyone.

Have fun in the relationship and hopefully you'll have a happy life

together. The stares will not go away anytime soon, don't let it ruin

the relationship.

~~~~Rant about the mall~~~~read at your own risk!~~~~

WHY DO I HAVE TO MEET STUPID PEOPLE AT THE MALL

5. Why is it overall people are at their most oblivious!! (yes,

we're back on the mall rant) when walking the mall? I uttered the

words " watch out! " over and over last night. Couples chit chatting

who forget there is a world out there outside of them, can we say

'first date' or at leaste 'pre-wedding'? Husbands/boyfriends/men

walking aimlessly behind a woman, just turning as if driven by radar.

If she were to walk into a hole in the floor, he'd follow with

glazed eyes. Is this glazed creature providing any type of advice,

opinion or company? Or is he there solely to haul the loot around and

provide the plastic? Oh, and as company while you munch at the food

court??

And save me from the people who walk like they drive! This confirms

why I live less than a mile from work. If I had to spend every

morning and evening on a highway with these people who can't even

walk in a straight line or note that a sharp right turn means they

hit someone, I'd be dead (from high blood pressure, as well as their

driving). And this was a gender neutral stupidity. If I can turn my

head left and right to look behind me when I turn on my scooter (as

well as my car) and my neck is FUSED, why can't they?

And the teens and post-teen crowds!! JFC, this only confirmed that

I do spend my days in a priviledged environment (not quite sure why

they act better at the University) and now I know why being a dwarf

creates a chip on people's shoulders. Stupid that I am I dared to

walk/ride into Spencer Gifts, I was having a nostalgic moment and

thought I'd look around; what the hell possessed me?? The lack of

empty floor space to manuver around in and the lack of intelligent

species that inhabit (perhaps it was just at that moment in time,

but dayam) that store was about to kill me, talk about having a

stupid moment.

Then I stroll/ride into Old Navy and again remind myself that the

next trip to the mall will be during school hours. One kid who almost

fell over me, because he was walking backwards while talking to his

buddies across the room, kept (loudly) retelling the story of

averting a catastrophe, as if falling over a dwarf on a scooter

would render him a midget. I finally came around the bend and had

to tell him to move on with his life. It seems to have more authority

if a military butch-cut gray haired woman says it (although it does

look sexy, the hair I mean). Even on a small red scooter. They left

the store.

That's about the time I wondered if there was a bar at this mall.

March 21, 2006

First I was going to suggest speaking to your girlfriend if you

haven't. However, she had posted on this list and mentioned she did

not know you had noticed the stares.

As a person with dwarfism, Yes, I notice the stares. However I'm 25

years old and I have many other things going on in my life, I choose

not to let it bother me.

My husband is average height and he notices also. It bothers him that

people can be so rude, more than it bothers me. I have to remind him

to IGNORE the stares. But if someone makes a comment about me, I can't

really hold him back. He will say something. But that is his way.

He sees me as a person who is a " giant with a big heart " . He says that

he knows I have dwarfism, but doesn't " see " that I have dwarfism. If

you know what I mean.

If someone comes up to me to ask me a question, I will answer the

questions and use that opportuntity to " educate " them. My husband does

not step up and speak. He lets me handle this type of a situation. But

if someone were to threaten me, he would take care of the situation

because he is protective of me. But fortunatly, that has not happened!

Hopefully, my personal experience has given you some tips on how to

handle these normal every day experiences that someone with a

disability deals with.

If you want to talk more, please feel free to email me!

a

>

> I am a bp and my girlfriend is a lp, we have been dating for 8

months

> and are very happy. In the area we live there aren't many other lp

so

> when we go out people like to stare on occasion, is there a good way

> to handle that? It's not a real big deal, I love Dottie for who she

> is but I think it's really rude of people. Should we confront

people

> and try to inform them of dwarfism, or ignore them? Thanks for any

> advice you can give.

>

> Rich

>

March 21, 2006

Dear Rich:

My biggie husband and I have been together for 18 years and when we

started going together I basically gave him a " Going through life with a

dwarf 101 " course. Among other things, I told him how people typically

behave and that I typically did my best to ignore rude people and keep

moving and that he'd need to do that too that it would make it easier on

me if he could ignore them too and that there were too many rude people

on earth for him to bust all of their heads. ;-)

Lucky for me, his mother was disabled and he already had some

experience with staring, etc.

He is quietly physically protective of me however and I never have to

worry about my personal safety when he's with me or more importantly,

about my personal space being invaded.

Good luck and best wishes!

-marty (the lady one)

>>> rich_2812@... 03/20/06 5:47 PM >>>

I am a bp and my girlfriend is a lp, we have been dating for 8 months

and are very happy. In the area we live there aren't many other lp so

when we go out people like to stare on occasion, is there a good way

to handle that? It's not a real big deal, I love Dottie for who she

is but I think it's really rude of people. Should we confront people

and try to inform them of dwarfism, or ignore them? Thanks for any

advice you can give.

Rich

===

March 21, 2006

When my son sees someone stare at him, he simply WAVES at them.

Talking at putting someone on the spot. It does!!! He's only 10, but

it gets their attention. TRY IT!

-:|:-*:*' " " *:*.-:|:-**LISA**-:|:-*:*'''''*:*-:|:-**

& PLLC

Legal Secretary to Larry L. Cash and

Alison Bales

Suite 1000, 832 Georgia Avenue

Chattanooga, Tennessee 37402

423-756-6859, ext. 516

Life is not measured by the number of breaths we take, but by the number

of moments that take our breath away.

________________________________

From: dwarfism [mailto:dwarfism ] On

Behalf Of Martha -Merritts

Sent: Tuesday, March 21, 2006 9:38 AM

dwarfism

Subject: Re: I have a question

Dear Rich:

My biggie husband and I have been together for 18 years and when we

started going together I basically gave him a " Going through life with a

dwarf 101 " course. Among other things, I told him how people typically

behave and that I typically did my best to ignore rude people and keep

moving and that he'd need to do that too that it would make it easier on

me if he could ignore them too and that there were too many rude people

on earth for him to bust all of their heads. ;-)

Lucky for me, his mother was disabled and he already had some

experience with staring, etc.

He is quietly physically protective of me however and I never have to

worry about my personal safety when he's with me or more importantly,

about my personal space being invaded.

Good luck and best wishes!

-marty (the lady one)

>>> rich_2812@... 03/20/06 5:47 PM >>>

I am a bp and my girlfriend is a lp, we have been dating for 8 months

and are very happy. In the area we live there aren't many other lp so

when we go out people like to stare on occasion, is there a good way

to handle that? It's not a real big deal, I love Dottie for who she

is but I think it's really rude of people. Should we confront people

and try to inform them of dwarfism, or ignore them? Thanks for any

advice you can give.

Rich

===

March 21, 2006

Hello,

I am an LP and I'm married to a BP. At first my then boyfriend and I had the

same problem, and he didn't like it. He would get very upset. We talked about it

and I explained to him that I have dealt with that all my life and getting upset

is not the answer. I am very outgoing so when people stare or point I do go up

to them and ask them if they would like some information about LP so they would

understand that I have feelings to!!! Alot of people will be really nice and

say sorry its just they had never seen an LP in person. So I think you should

talk to Dottie and she how she feels about it, then just be polite and inform

people that you guys are people with feelings.

Good luck

Charlene

<rich_2812@...> wrote:

I am a bp and my girlfriend is a lp, we have been dating for 8 months

and are very happy. In the area we live there aren't many other lp so

when we go out people like to stare on occasion, is there a good way

to handle that? It's not a real big deal, I love Dottie for who she

is but I think it's really rude of people. Should we confront people

and try to inform them of dwarfism, or ignore them? Thanks for any

advice you can give.

Rich

===

March 23, 2006

Hi Rich, I am a basically a everage size woman, about 5 feet tall and

just starting dating a LP man, just over 4 feet tall a few months

ago. We don't realy have any problems except we do get a few

occasional stares every once in awhile. We usually just ignore them

and if they conntinue to stare then I just go up and ask them if

there is anything I can help them with. From my experience most

people are realy good and respecful, its just that they probably have

never seen it before and are more curious than anything especially

the kids. I guess there isn't realy a right way or wrong way to deal

with it as everyone deals with things diferrently but I would just

ignore it at first if it isn't to much a big deal and they just take

a quick look at you guys. But if they continue to stare and it starts

to bother you, you might want to go up to them and ask them if there

is something you can help them with and explain things if they have

questions as long as they are not rude and asking realy stupid

questions.

I am a bp and my girlfriend is a lp, we have been dating for 8 months

and are very happy. In the area we live there aren't many other lp so

when we go out people like to stare on occasion, is there a good way

to handle that? It's not a real big deal, I love Dottie for who she

is but I think it's really rude of people. Should we confront people

and try to inform them of dwarfism, or ignore them? Thanks for any

advice you can give.

Rich

March 23, 2006

Hi Charlene, I am a AH woman and have just started dating a LP man

recently. We don't usually have any problems but we do get the

occasional stare. I have founf that most people are realy good its just

that they probably have never seen a LP before and probably more so

have never seen a AH woman dating a LP man. I think its more because

they have never sen it before and are just curious, especially the

kids, and are not trying to be rude. If they just take a quick stare I

just ignore them but if thet continue to stare I will go up to them and

ask them if there is anything I can help them with and asnwer any

questions they have as long as they are being nice about it and not

rude. So far we haven't realy had any problems. Peronally it doesn't

bother me at all and if they are starring at me they are leaving

someone else alone.

Hello,

I am an LP and I'm married to a BP. At first my then boyfriend and I

had the same problem, and he didn't like it. He would get very upset.

We talked about it and I explained to him that I have dealt with that

all my life and getting upset is not the answer. I am very outgoing so

when people stare or point I do go up to them and ask them if they

would like some information about LP so they would understand that I

have feelings to!!! Alot of people will be really nice and say sorry

its just they had never seen an LP in person. So I think you should

talk to Dottie and she how she feels about it, then just be polite and

inform people that you guys are people with feelings.

Good luck

Charlene

May 8, 2006

Hi Flipflopgal,

I'm also new to this site, and I'm glad I found it. I feel like

I've already learned good stuff from the members, and hope you will,

too. I am a type 1 diabetic, and was diagnosed as hypothyroid about

6 years ago. I have heard that some thyroid tests are not as good

as others when diagnosing the problem. I unfortunately don't know

what the best test is--but maybe you can check with a doctor about

other tests than the TSH? I think you can test your T4 levels and

maybe T3 as well? Not positive about that, but I have heard a

hypothyroid problem can appear on one test and not the other. I

recommend going to see an endocrinologist--they are the experts in

the endocrine system, of which the thyroid is part. My doctor

actually does ultrasounds of the thyroid gland in her office--she

found a nodule on my husband's thyroid that way.

Have you ever been tested for food allergies? That may be another

reason you feel so bloated, though I would definitely check on the

thyroid, as well, since it sound like you have a lot of those

symptoms, too.

Good luck!

Teressa

>

> I have had repeated blood tests, but, only one doctor told me that

my

> Thyroid was a problem and he was a pshychiatrist and he wanted me

to

> have repeats of my Ts2 & Ts4. I told this to my regular doctor

and he

> said my thyroid was in regular bonds. I am constantly bloated. I

> know it isn't from eating, because food isn't an issue for me. My

> husband has to make me remember to eat so I don't have other

issues.

> I am huge for my size (those are my words no one elses) I am 4'

10 "

> and over 211. I hurt, ache from the bloat and the pain in my

joints.

> My right side of my neck hurts some times. And, goiter on the

Thyroid

> and Thyroid problems run in my family and I have stressed this to

my

> doctors. My Great Aunt says I should ask for a Xray of my

Thyroid,

> she had a Goiter wrapped around her Thyroid that wrapped around

her

> heart and no one believed her. My hair line is recedding, I lose

more

> hair when I comb it then I ever have it is dry and lifeless. What

> type of doctor would you suggest that I go to that specializes in

> Thyroid problems. Also, I have a huge problem with constapation

also.

>

> Thanks for your help. I know that is alot of questions in one

> question, but, I am desperate. Flipflopgal

>

May 8, 2006

Thanks for the information, I will have to check into

a endiocrinologist. I appreciate the help.

Flipflopgal

--- teressa_bur <teressa_bur@...> wrote:

> Hi Flipflopgal,

>

> I'm also new to this site, and I'm glad I found it.

> I feel like

> I've already learned good stuff from the members,

> and hope you will,

> too. I am a type 1 diabetic, and was diagnosed as

> hypothyroid about

> 6 years ago. I have heard that some thyroid tests

> are not as good

> as others when diagnosing the problem. I

> unfortunately don't know

> what the best test is--but maybe you can check with

> a doctor about

> other tests than the TSH? I think you can test your

> T4 levels and

> maybe T3 as well? Not positive about that, but I

> have heard a

> hypothyroid problem can appear on one test and not

> the other. I

> recommend going to see an endocrinologist--they are

> the experts in

> the endocrine system, of which the thyroid is part.

> My doctor

> actually does ultrasounds of the thyroid gland in

> her office--she

> found a nodule on my husband's thyroid that way.

>

> Have you ever been tested for food allergies? That

> may be another

> reason you feel so bloated, though I would

> definitely check on the

> thyroid, as well, since it sound like you have a lot

> of those

> symptoms, too.

>

> Good luck!

> Teressa

>

> >

> > I have had repeated blood tests, but, only one

> doctor told me that

> my

> > Thyroid was a problem and he was a pshychiatrist

> and he wanted me

> to

> > have repeats of my Ts2 & Ts4. I told this to my

> regular doctor

> and he

> > said my thyroid was in regular bonds. I am

> constantly bloated. I

> > know it isn't from eating, because food isn't an

> issue for me. My

> > husband has to make me remember to eat so I don't

> have other

> issues.

> > I am huge for my size (those are my words no one

> elses) I am 4'

> 10 "

> > and over 211. I hurt, ache from the bloat and the

> pain in my

> joints.

> > My right side of my neck hurts some times. And,

> goiter on the

> Thyroid

> > and Thyroid problems run in my family and I have

> stressed this to

> my

> > doctors. My Great Aunt says I should ask for a

> Xray of my

> Thyroid,

> > she had a Goiter wrapped around her Thyroid that

> wrapped around

> her

> > heart and no one believed her. My hair line is

> recedding, I lose

> more

> > hair when I comb it then I ever have it is dry and

> lifeless. What

> > type of doctor would you suggest that I go to that

> specializes in

> > Thyroid problems. Also, I have a huge problem

> with constapation

> also.

> >

> > Thanks for your help. I know that is alot of

> questions in one

> > question, but, I am desperate. Flipflopgal

> >

>

__________________________________________________

May 8, 2006

I have had tremendous success with Milk Thistle, Liver-Aid and Dr. s Liver and Gall Bladder Support. Also, taking prenatal vitamins. My problem was that even though my labwork was all regulated, I had all the symptoms. It was so bad, they were testing me for fibromyalgia, lupus, MS, etc. Drink lots of water too. I am unable to get out of bed right away in the mornings, or exercise with out following the program that involves these elements.

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

May 20, 2006

I would try to see en endocrinologist ASAP. There is something going

on with you, be it thyroid or not. It sounds like thyroid, but the

symptoms for thyroid are so similar to many other hormonal

imbalances. I think an ultrasound would be more benificial than an x-

ray, and a nuclear medicine scan even better.

Good luck,

>

> I have had repeated blood tests, but, only one doctor told me that

my

> Thyroid was a problem and he was a pshychiatrist and he wanted me

to

> have repeats of my Ts2 & Ts4. I told this to my regular doctor

and he

> said my thyroid was in regular bonds. I am constantly bloated. I

> know it isn't from eating, because food isn't an issue for me. My

> husband has to make me remember to eat so I don't have other

issues.

> I am huge for my size (those are my words no one elses) I am 4'

10 "

> and over 211. I hurt, ache from the bloat and the pain in my

joints.

> My right side of my neck hurts some times. And, goiter on the

Thyroid

> and Thyroid problems run in my family and I have stressed this to

my

> doctors. My Great Aunt says I should ask for a Xray of my

Thyroid,

> she had a Goiter wrapped around her Thyroid that wrapped around

her

> heart and no one believed her. My hair line is recedding, I lose

more

> hair when I comb it then I ever have it is dry and lifeless. What

> type of doctor would you suggest that I go to that specializes in

> Thyroid problems. Also, I have a huge problem with constapation

also.

>

> Thanks for your help. I know that is alot of questions in one

> question, but, I am desperate. Flipflopgal

>

May 20, 2006

That sounds just like me. They finally figured out that I have too much fluid on me and it is added a lot of weight on the scale. I also have high blood pressure now and I have never had it in my life and I am almost 41 now. I take the Lisinopril for the High blood pressure but before that I was on it because I had fluid in or around my joints.

-- Re: I have a question

I would try to see en endocrinologist ASAP. There is something going

on with you, be it thyroid or not. It sounds like thyroid, but the

symptoms for thyroid are so similar to many other hormonal

imbalances. I think an ultrasound would be more benificial than an x-

ray, and a nuclear medicine scan even better.

Good luck,

>

> I have had repeated blood tests, but, only one doctor told me that

my

> Thyroid was a problem and he was a pshychiatrist and he wanted me

to

> have repeats of my Ts2 & Ts4. I told this to my regular doctor

and he

> said my thyroid was in regular bonds. I am constantly bloated. I

> know it isn't from eating, because food isn't an issue for me. My

> husband has to make me remember to eat so I don't have other

issues.

> I am huge for my size (those are my words no one elses) I am 4'

10"

> and over 211. I hurt, ache from the bloat and the pain in my

joints.

> My right side of my neck hurts some times. And, goiter on the

Thyroid

> and Thyroid problems run in my family and I have stressed this to

my

> doctors. My Great Aunt says I should ask for a Xray of my

Thyroid,

> she had a Goiter wrapped around her Thyroid that wrapped around

her

> heart and no one believed her. My hair line is recedding, I lose

more

> hair when I comb it then I ever have it is dry and lifeless. What

> type of doctor would you suggest that I go to that specializes in

> Thyroid problems. Also, I have a huge problem with constapation

also.

>

> Thanks for your help. I know that is alot of questions in one

> question, but, I am desperate. Flipflopgal

>

July 4, 2006

My TSH was 0.01 before RAI and up to 66 afterwards. It bounced around for

months, then became normal for a couple of years before going above normal

again. I had to start on synthroid (thyroid supplement)and have had the

dosage uped several times in the past few years as my thyroid seems to be

burning out a little more each year.

Tammy

I have a question

Hi All:

Just a quick question - last year I was diagnosed with Graves my TSH was

less than 0.01 and I took PTU for awhile till I started putting on tons of

weight and then I weaned myself off it. Last week my TSH was measured at

almost 40 and it turns out that my thyroid has burned itself out and I now

require thyroid supplement. I was just wondering if anyone else had had this

happen?

Thanks for taking the time to answer.

July 6, 2006

>

> Hi ,

> I have had Graves disease, blood test .000 May 2004. I did not

choose to go on any medication because I feared the sulfa in both

choices of medications. I am allergic to sulfa, and the doctor was

not real confident that I wouldn't have a reaction. Anyway, My

thyroid has naturally been burning itself out and the last few

months my t3 and t4 are within normal range. I have switched Endo's

and he said some people thyroids just naturally correct themselve or

more than likely burn themselve out and then a thyroid supplement

will be needed. My antibodies, continue to be extremely high. My

tsh is still undetectable.

> I go back in Oct, and some days I feel hypo and others like the

hyper is coming back.

> Now Tammy, I thought once you had RAI that it would

automatically kill your thyroid, so it is not burning out naturally,

it is doing what the RAI's purpose was (that is just my

understanding, I may be wrong). I feel if my is going to burn

itself out, I prefer that it do it naturally.

>

> Good luck to both of you,

> Annette

>

>I had RAI Feb.2004, went hypo five months later. Took PTU for

almost two years before RAI. Went hypo while on PTU and thought I

was going in Myxedema coma. I am wondering if my thyroid hormones

are still swinging up and down, because it is so hard to find the

right dose. It is just so aggravating, but most likely the same as

trying to regulate on an antithyroid drug.

My hair is not as thick as it use to be. It is very fine and have

lost a lot of it.Dont know if it is from RAI or so much up and down

swings of thyroid hormones.

I thought that the RAI slowly kills your thyroid over the years.

This can vary for everyone.

July 6, 2006

,

I have heard of the thyroid burning itself out (without surgery or RAI to

permenantly push it that way). It also can have alot to do with thyroid

antibodies acitivity. Check out articles online from Elaine and J.

Shoman. They are both patient advocates and write articles that are published

online. I am sure there are articles on the topic of sponateous switches from

hyperT to hypoT, and visa versa.

Kim

I have a question

Hi All:

Just a quick question - last year I was diagnosed with Graves my TSH was less

than 0.01 and I took PTU for awhile till I started putting on tons of weight and

then I weaned myself off it. Last week my TSH was measured at almost 40 and it

turns out that my thyroid has burned itself out and I now require thyroid

supplement. I was just wondering if anyone else had had this happen?

Thanks for taking the time to answer.

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July 6, 2006

After having RAI it took over 3 years to get my thyroid levels to settle down at

all. Seemed like every month there was a change. My TSH went up to 75 before

the endo started any replacement, hoping that that indicated the thyroid was

gone. But still I bounced around a lot. Someone told me it's partly because

when you have RAI you have destroyed the thyroid, but not the autoimmune disease

- that it's still around causing problems. I still bounce around a lot - going

from hyper to hypo and back...

Kate