iron

[Guest guest]

,

I must have strangest case of thyroid disease or something. I've been

diagnosed hyperT and for the last two months I have been taking iron

supplements because I started feeling lightheaded all the time. Just like I

did before I was diagnosed with anemia. So, I started taking iron and I feel

better. I tried stopping the iron but the symptoms reappeared. I'm trying to

figure out if I need to change the balance of copper and zinc which now is at

a 7:1 ratio. Maybe starting the supplements created the iron problem for me.

Deb

------------------------------------------------------------------------

[Guest guest]

Deb,

I'm wonderring if i need Iron in my diet, been very tired,and i also

get very light headed to the point i'm dizzy.

what do you think?,i'm totaly clueless to all this vitamins and minerals

stuff.

thanks,

Sandy

------------------------------------------------------------------------

[Guest guest]

Deb:

How much iron are you taking in ratio to your copper in zinc?

------------------------------------------------------------------------

[Guest guest]

,

I take 45 mg zinc, 8mg copper and 36 mg ferrous sulfate (I'll have to check

that to make sure I'm correct.) Last week, though, I discontinued the iron

supplement because I am having a blood test Wednesday and I want to see if I

am truly deficient in iron and I don't want the supplement to interfere with a

proper diagnosis. Maybe the lightheadedness is coming from something else. I

don't know, but I do need to find out. A turn of the head can cause off

balance and a nauseous feeling. The duration is short but unpleasant.

Deb

------------------------------------------------------------------------

[Guest guest]

Hi Deb:

I was changed to 38 mg of Ferrous Gluconate today upon visiting the doctor. He

has me to take 500 mg of Vitamin C with the iron. How about that? A Family

Practice doctor realizes that Vitamin C is important in helping with the

absorption process. Anyway, the office staff endorsed the idea that Ferrous

Sulfate is highly irritating to the stomach. If you are having any problems,

check another type of iron.

I need to be built up for surgery on Thursday.

Take care.

------------------------------------------------------------------------

[Guest guest]

Deb:

An additional reply to you with regards to turning your head and feeling off

balance and dizzy. Do you have a goiter on your thyroid? If so, it may be

pinching some nerves off in your neck.

------------------------------------------------------------------------

[Guest guest]

This is in regard to this ... that told Deb that dizziness, offbalance

spells may be caused by the goiter pinching the nerves in the neck. Has

anyone out there had any severe or mild neck problems??? That you thought it

can be done by the chiropractor??? This is an interesting answer and I would

never thought of that, .

I've had neck problems for over a year. I wondered if it really is caused by

the thyroid.

I'm new to this group and I'd like to hear everyone's responses. Thanks.

Kozy

------------------------------------------------------------------------

[Guest guest]

hi lisa--my name is barbara. i was reading your note to deb-what's going on

with you? having your thyroid out? please let me know...i am hypert---and on

meds---write soon...b

------------------------------------------------------------------------

[Guest guest]

Hi!

I've had neck problems for about 15 years, have been treated by chiropracters,

physical therapists, body workers, etc., and no one's really helped me. I

don't think it's connected to the thyroid, though, because I got Grave's

disease only last year, and my thyroid is now back to normal (and my neck is

still bothering me).

AntJoan

------------------------------------------------------------------------

[Guest guest]

Hi Barb:

here. Check the board on what I wrote about my situation with the goiter

and all this morning 12/8.

I am scheduled to have a right lobe thyroidectomy on Thursday 12/10 with the

possibility of part of the left. Hope they can leave at least half.

Feel free to e-mail me if you want to ask any questions at lisawick@...

Sincerely,

------------------------------------------------------------------------

[Guest guest]

Dear : I'll be thinking of you on 12-10, and praying that all goes well

with the surgery. Just concentrate on how good you're going to feel, and all

the fun you'll have once this is all behind you. Arl.

------------------------------------------------------------------------

[Guest guest]

Dear Arl:

I sure appreciate your kind words of encouragement. You are a special person.

May your health continue to get better and better.

Sincerely,

:>)

------------------------------------------------------------------------

[Guest guest]

hi lisa---i was diagnosed with grave's in oct. this year----was on ptu became

nauseated--on tapazole now plus the lopressor for my increased heart rate--we

were trying to get pregnant--wanted baby next year some time---now i am very

afraid of getting pregnant while on these meds---endo says meds or

throidectomy---scared of that too!! that's my story in a nutshell--any

advice?? what happened with you///???????how long have you been hyper? what

made you decide to have surgery? please let me know--very anxious to

hear.....barbara

------------------------------------------------------------------------

[Guest guest]

hi--saw your e-mail to lisa---can you tell me anything about the surgery? i am

on meds right now--considering surgery due to the fact i think my future

pregnancy will be less complicated.....thanks...barbara

------------------------------------------------------------------------

[Guest guest]

Georgina' when I asked our rheny aout s anenia he said it has nothing

to to with his diet or whaT he ate or didn't eat he said it goes along with

having a chronic illness has anyone else heard this fron the DR????just

curious Jane

[Guest guest]

JANE MY DAUGHTER'S RHEUMY JUST TOLD ME THAT LAST WEDNESDAY. BUT I'M STILL

CONCERNED ABOUT THE ANEMIA. SHE TAKES MULTI VITAMINS AND FOLIC ACID TOO, BUT

I'M GONNA GET HER SOME IRON TABLETS MYSELF SO I CAME HAVE A PIECE OF MIND.

SHE EATS IRON FOOD WHENEVER SHE DECIDES TO EAT, ESPECIALLY VEGETALES. SHE'S

NOT REALLY A MEAT EATER(ONLY CHICKEN.

SWEETPEA200001@...

[Guest guest]

My daughter has just been dx'd 2 weeks ago. but her ped is still not sure

what caused her to lose 30 pds in a couple of months. she had every test

imaginable does anyone know why? Is there a connection with JRA and weight

lose. she's still doing the ensures three times a day (today she left her

ensure home,accident? I think not).also does anyone know of any natural drugs

that help with JRA, had a bad day yesterday and had to stay home. My

mother wants me to give cod liver oil pills has anyone heard of this

helping?-Michele

[Guest guest]

Michele,

My daughter had a pretty big weight loss also when she first came down with

arthritis. Once we got it under control, she seemed to do much better. I

know when she is not feeling well, the thought of food makes her sick. When

her arthritis went into remission for 5 months she grew 6 inches and put on

20lbs. I think that shows that the arhtritis definately causes the weight

loss. I think when you find something that she likes, just let her eat all

she wants. Let her tell you what sounds good and what doesn't. My daughter

went on a cereal kick for a while. So we would just let her eat bowl after

bowl. Right now her appetite is pretty good and we still supplement with

Boost. I have a feeling once your daughter's arthritis gets more under

control, that her appetite will get better. My prayers are with you...Love,

Diane

[Guest guest]

My daughter, n age 11, was diagnosed with systemic JRA in Nov. of last

year. When she lost her weight we just tried to give her lots of fattening

foods. Her favorite food in the world is ice cream, so we always had Haagen

Das ice cream. Expensive, yes, but she would eat lots of it with chocolate

syrup. The only thing that did put the weight on her finally was when we

had to put her on steroids. Then she ate everything in sight. We are now

tapering down, and her appetite is now normal, and she gained her 10 pounds

back.

I have brought n to a naturapath to see what they had to offer. I do

two things for n. I can't say if it is working though. n is

doing great right now. She is in school full time, and has absolutely no

arthritis. She is a bit stiff in the morning she says, but one would never

know it as she runs down the stairs for breakfast. We made several changes

at the beginning of March, and we don't know why she is doing so good, but

we aren't changing anything for fear of a flare. At the beginning of March

she was put on plaquenil and 20mg of prednisone tapered. Every five days we

go down and we are now on 5mg with never any side effects. Also, at the

same time I put n on Omega 3 fatty acid pills, and 2 tbspns. of flax

seeds. The naturapath we go to has JRA and has never outgrown it. He said

he does lots of different things, but if he doesn't take these everyday, he

can tell the difference. Like I said, I can't honestly tell you that they

are making a difference, because we have changed too many things at the same

time. But my husband who is quite skeptical of naturapaths, doesn't let me

miss her doses of the fish pills and flax seeds. Flax seeds are also high

in omega 3 fatty acids. We may look back and think that we were so stupid

for trying this stuff, but our philosophy is that if it doesn't hurt her ,

we will try it. (And there is some scientific evidence for the justification

of it) Good luck.

Re: Iron

>My daughter has just been dx'd 2 weeks ago. but her ped is still not sure

>what caused her to lose 30 pds in a couple of months. she had every test

>imaginable does anyone know why? Is there a connection with JRA and weight

>lose. she's still doing the ensures three times a day (today she left her

>ensure home,accident? I think not).also does anyone know of any natural

drugs

>that help with JRA, had a bad day yesterday and had to stay home. My

>mother wants me to give cod liver oil pills has anyone heard of this

>helping?-Michele

>

>------------------------------------------------------------------------

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>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

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>1/2120/1/_/524922/_/954936486/

>------------------------------------------------------------------------

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

georgina,

zhondrese has poly. jra and we found out friday that's she has anemia.

her ped./ rheumy said it was due to the jra, so she will start her iron

monday. she has to eat more food high in iron too, but that's gonna be hard

to do because she doesn't hardly eat. she has never been one to eat how can i

get her to eat? i am open for suggestions and she's allergic to milk and

dairy products too.

ywellen (sweetpea200001)

[Guest guest]

Hi Bonnie,

I hope you don't mind that I'm replying to you on the list. That way

others can see this info, too. It might be helpful for some here and I

don't think tincture of yellowdock has ever been mentioned here, before.

Sometimes these sorts of supplements are just as good, or better, than

prescribed items. Like you said, sometimes there are fewer side effects.

Last time anemia was an issue for Josh, the pediatrician said it looked

as if he may have an inherited condition called thallysemia(sp?).

Certain of his blood cells are actually smaller than normal ones should

be, and it may be related to his body's misuse/misabsorption of iron.

That's why despite a healthy diet and even when he was taking high iron

supplementation, his blood work was still skewed. I think anemia is part

of the whole parcel of systemic JRA. I'm not sure if it's as common in

the pauci and polyarticular types. Do you know?

We haven't personally tried any of the magnet treatments. Some people do

swear by them, though. I'll be interested to hear about how it works

with Alana. Do let us know. I hope it helps. I think someone here posted

about positive results from using a magnetic bed-mattress cover? What is

your take on theories behind why they might work?

Much Aloha,

Georgina

Bonnie wrote:

>

> Georgina,

> You may want to try using tincture of yellowdock. I'm anemic myself and

> don't like using iron pills (don't like the affects I get) I started using

> yellowdock tincture a little more than 2 years ago. I really see the anemia

> through my nails. If I don't use the yellowdock for a few weeks, I see the

> nails get weak and within 2 days of taking it, they are great.

> Alana has not had iron problems and I have been using the yellowdock with

> her. The doc is amazed that she's not anemic.

>

> Also, have you tried using magnets at all with your son. A woman I know had

> Alana just play with these magnets for about 5 minutes. Her hand was

> swollen and not closing much, within 5 minutes she could almost make a fist.

> I'm going to order today, will keep you posted on how she does.

>

> Didn't want to put this on the list till I see how it goes.

>

> Hope all is well.

> Bonnie

[Guest guest]

Geogina,

I'll let you know what's going on...... this has been a really crazy week.

I did an experiment this month and did not use the yellowdock to see if it

made a difference... she is much more anemic this month, but her sed rate

that had come down to 25 when she was on 20 mg of pred every other day as we

weaned the pred down to 5mg every other day went sky high to 128 so who

knows if that sent the anemia up or the yellowdock non use? It's so hard to

see what works and what doesn't. Alana's fingers were very swollen and the

doc is upping her mtx which I'm really unhappy about, he put her on sub q ,

the pediatrition administered it Friday , but I'm soloing on next Friday

(thank god my good friend is a nurse practitioner and will watch me next

week to make sure I'm doing it right

In terms of the nutritional supplements, I'm working with the owner of a

nutrition company I work with that you really need to be a doc to work with

them. He's been doing a lot of work with auto immune problems and is

helping me out. We just started today on a new program. He wants to

totally saturate Alana's system with good nutrition, protein, good EFA's,

etc. After a week we'll see how she feels and than start adding some other

things to the mix. I'll let you know how that works. Till I know and see,

I don't want to give info out to you guys, let me do this experimentation.

In terms of the magnets, we'll see. We put her on bracelets, insoles and

will be putting a bed pad on the bed tonight. My feeling on why magnets

work is a few things. Magnets increase the circulation in the body. When

you have arthritic joints the blood is not moving through the system well,

you get cold fingers and toes and you see purple joints, the magnets should

help that. Like I said, we are just starting them and I will make my

judgements in a month.

Will keep you posted.

I will tell you that the MTX really throughs Alana for a loop, she sleeps on

Saturday till around 1 oclock and then back for a nap a few hours later, it

really wastes the entire day. Rhem is talking about adding Embrel to the

mix to get her off the pred, anyone do that with postitive effects?

Bonnie

Regional Director, PHD Products

http://phdproducts.com mailto:bonnie@...

800-863-3403

Re: iron

>Hi Bonnie,

>

>I hope you don't mind that I'm replying to you on the list. That way

>others can see this info, too. It might be helpful for some here and I

>don't think tincture of yellowdock has ever been mentioned here, before.

>Sometimes these sorts of supplements are just as good, or better, than

>prescribed items. Like you said, sometimes there are fewer side effects.

>Last time anemia was an issue for Josh, the pediatrician said it looked

>as if he may have an inherited condition called thallysemia(sp?).

>Certain of his blood cells are actually smaller than normal ones should

>be, and it may be related to his body's misuse/misabsorption of iron.

>That's why despite a healthy diet and even when he was taking high iron

>supplementation, his blood work was still skewed. I think anemia is part

>of the whole parcel of systemic JRA. I'm not sure if it's as common in

>the pauci and polyarticular types. Do you know?

>

>We haven't personally tried any of the magnet treatments. Some people do

>swear by them, though. I'll be interested to hear about how it works

>with Alana. Do let us know. I hope it helps. I think someone here posted

>about positive results from using a magnetic bed-mattress cover? What is

>your take on theories behind why they might work?

>

>Much Aloha,

>Georgina

>

>Bonnie wrote:

>>

>> Georgina,

>> You may want to try using tincture of yellowdock. I'm anemic myself and

>> don't like using iron pills (don't like the affects I get) I started

using

>> yellowdock tincture a little more than 2 years ago. I really see the

anemia

>> through my nails. If I don't use the yellowdock for a few weeks, I see

the

>> nails get weak and within 2 days of taking it, they are great.

>> Alana has not had iron problems and I have been using the yellowdock with

>> her. The doc is amazed that she's not anemic.

>>

>> Also, have you tried using magnets at all with your son. A woman I know

had

>> Alana just play with these magnets for about 5 minutes. Her hand was

>> swollen and not closing much, within 5 minutes she could almost make a

fist.

>> I'm going to order today, will keep you posted on how she does.

>>

>> Didn't want to put this on the list till I see how it goes.

>>

>> Hope all is well.

>> Bonnie

>

>------------------------------------------------------------------------

>DON'T HATE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>1/2120/1/_/524922/_/955328927/

>------------------------------------------------------------------------

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

Michele,

This most likely has nothing to do with your daughters weight loss, but

has she been tested for parasites? My son lost major weight, the

doctors said they had tested for everything ... but it turned out he

had Giardia for months. It is believed that the Giardia " trigged " the

JRA. Jana

[Guest guest]

Ray they have always had me on a low iron diet. My iron levels are always high so don't want me to have more. They even checked me for hemochromotosis.

I am no doctor but you should do what your doc recommends. If you have questions contact them and tell them your concerns. Maybe he is unaware of to much iron or maybe because of yur other problems this is better for you.

Good luck,

the WV hillbilly

[Guest guest]

There is information available online, though each situation is different..

This is from the liver foundation.

Sheena

http://www.liverfoundation.org/db/articles/1084

Iron and hepatitis C

The liver plays an important role in the metabolism of iron since it is the

primary organ in the body that stores this metal. Patients with chronic

hepatitis C sometimes have an increase in the iron concentration in the liver.

Excess iron can be very damaging to the liver. Studies suggest that high iron

levels reduce the response rate of patients with HCV to interferon. Patients

with chronic HCV whose serum iron level is elevated, or who have cirrhosis,

should avoid taking iron supplements. In addition, these patients should

restrict their intake of iron-rich foods, such as red meats, liver, and

iron-fortified cereals, and should avoid cooking with iron-coated cookware and

utensils.

carol regina <carolregina2001@...> wrote:

MY FRIEND WHO HAS HEP C, HAS LOW IRON...I THINK DOC GAVE HER IRON

PILLS.... SAID HER IRON IS LOW...?????? I DON'T UNDERSTAND..CAN U HELP?

fredsdogjim <fredsdogjim@...> wrote:

i am going to inform the Dr that gave me prenatal high in iron to

understand that was a wrong thing to do i threw them awaysend reports

to me at fredsdogjim@... i will print and forward them to the DR

that did and does not understasnd thankyou so he will not kill anybody

jim

>

> no IRON FOR HEPATITIS PEOPLE............. period... want reports?

love ya, sally

>

>

>

>

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