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> I am glad to hear that , , even tho 11 months seems like forever

considering I'm almost 1 month post op. However, we all know that usually time

flies!

> From: " poetryperson " <poetryperson@...>

> Date: 2004/02/16 Mon AM 11:25:49 EST

> < >

> Subject: Re: I am back

>

>

Love

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Joanne ...

Glad to see that you are back and on the road to feeling so much better...

I have been pretty much missing here for awhile due to an old computer giving up ...and then just getting caught up has taken awhile....

it was a surprise when I saw that you got your tx...but of course very happy for you...and family...

welcome back..

LuanneTy's mom

[ ] I am back

Hello to everyone. I have had the most wonderful gift ever. I am so happy I got my liver just in time. As I was so very ill before my Tx it is taking longer then is normal to recover. They told me it may take a year and a half. But, that's ok....i effl better now then I have in a long time. But, now, as my hands hurt I can't be line much. I go on my 'puter every few days for a little bit to read the PBC Digest and my own LiverSupport_L Digest and always the Spiritual Side. You have been so terrific to me...thank you so much. All those cards...love them..I can't wait for the mail every day. My family, bless them, have been a tower of strength to me. My husband took over the entire care of me...he even slept in the hospital (gave him a bed). The Tx went smooth and wasn't long. She also removed my gallbladder. M. Reid....where are you.same as Janice. write me I do not have your addy..lost all addys. I tried to call Jerry but there was no answer. So hopefully he is just having fun. Love to all, Joanne

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  • 3 months later...
Guest guest

Sharon,

So glad you made it home ok - I know how rough this time is for you. I have

thought about you and your family.

I'll be down (I think) June 30th..our reservations run Thursday through

Wednesday. I have to take to the airport in ton on the 5th

and will probably spend most of the day there. Let me know what your work

schedule is like. If you want to see the fireworks from the beach, come on

over!

I am back

> Hi everyone-

>

> I arrived home from Alabama late last night. I stayed with my mom for a

couple of weeks.

> The trip home was rough. Not the driving part, but the finality that came

along the way. As I was driving through Florida, I realized fully that

things will never be the same when I go back to Mobile, that Dad won't be

there when I walk through the door. It actually sunk in more after I left

than when I was home after the service.

>

> I did make it to Mobile in time. I arrived on the 22nd, at about 11 pm

and he passed away the morning of the 23rd. I am very glad and grateful

that I was able to make it in time.

>

> The girls are doing okay. They talk about their Papa, will tell you

he is in heaven with Jesus and Uncle Dick.

>

> The girls went to camp, and are now staying for a couple of weeks with my

mom. She will bring them back here the first of the month.

>

> A huge thank you to everyone for their thoughts, prayers, and memories you

shared with me. I can not tell you how much it helped to read these, and

know you all were there for me.

>

> So, it is back to work on Monday. But a very quiet house with no girls.

But I think I will enjoy it for the time being!

>

> - when are you headed this way?

>

> Thanks again.

>

> Sharon H.

> Mom to , (12, DS) and , (8)

> South Carolina

>

>

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  • 6 months later...

--- Hi I coincidentally feel exactly like you do and weaned off the

meds at the same exact time u did as well! Each time I weaned off

of the meds i feltl ike it got harder to adjust to the semi-

withdrawal symptoms. I am now back on it b/c i was so stressed out

and i feel weird, like scared sometime b/c i feel numb or jsut dont

remember things as much sometimes. I am hopeful that i will get

thru this though, and i feel like maybe it is the holiday season

also that cud cause these things. Let me know if u feel any better,

i have days i feel great and others that feel helpless.

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My daughter is on lexapro and I want her to get off. My pharmacist

(Peoples) who is also a nutritionist said the easiest way to get off

was to start taking 5htp(tryptophan) at night a week before she

starts aand as you wean off the lexapro keep taking the tryptophan.

It helps YOU produce your own seratonin, sleep well and helps with

depression. I took it in the 80's and I loved it. Then PROZAC made

it's debut, came along and all the drug companies needed to make alot

of money so they made tryptophan(which was inexpensive)a prescription

not over the counter. 5htp is actually a step up from tryptophan and

easier to get into the system.... so those GREEDY drug companies

helped make a better natural anti-depressent and sleep aid.

I have some info on this if anyone needs it.

Debbie

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  • 4 months later...
Guest guest

So glad that you are able to get back online - I find the posts to be

so helpful that I don't know what I would do if I couldn't read them

every few days. Good luck with trying to drop a few pounds - been there

and it is not easy but it can be done. It could make a big difference

to how you feel and your liver functions. Take it one day at a time,

Keep smiling

Hugs

Marie (Ont)

> Hello all my friends

> I wanted to thamk all of you for the prayer and good thoughts. They

worked. I

> am back home and on line. We managed to come up with the money for

the phone

> so i will be able to stay online.

> My liver isn't to good but the doc say's not to worry it's probably

becouse I

> am fat. I show signs of NFLD I think that is right, My liver is being

> replaced with fat and he says that is making my liver tests come back

bad so if I

> lose more weight I should be ok. If the tests don't get better after

I lose the

> weight then we will descuss other options.

> I think he is nuts but oh well.

> Hope all of you are doing good.

>

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Guest guest

Thanks Marie it is hard but I am determined. I just need to get off my lazy behind and get in gear.

Hope you are ok and enjoying the summer.

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  • 4 months later...

I had a hard time deciding but I think I am going

to try Weight Watchers (Flex plan). I was on WW

before and lost weight only to gain it back

during chemo.

I decided on the WW flex plan because I saw a

nutritionist in the hospital who said I should

follow an 1800 calorie diet. With flex points, I

can keep better track of that. We will see :)

S

--- Jase4567@... wrote:

> Welcome back. I am glad you are healthy.

> What program are you going

> to follow?

>

> NH...

> Mom to Abby Liz 10/94

> Anne 7/99

>

" Where are all the good men dead, in the heart or in the head? "

__________________________________________________

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> I was in the group last year and had to go no-mail due to finding out

> I had cancer.

Welcome back, . Glad to see you're doing so well!

>Treatment is over and it is time to get healthy!

But does your oncologist *want* you to lose any weight? My dad's told him

*not* to go on any diets, not to lose weight, that if he *did* he was to

report back immediately.

Going on a healthy food and exercise plan for health and fitness is another

thing, so when you *do* start to lose weight, be sure to let your doc know

that this is happening on purpose.

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---WELCOME BACK KAREN!!!!!!!!!!!

How wonderful that you are committing to good health!! Congratulations

also on getting through the treatment for cancer!!!

Faye

PS I am a breast cancer survivor: diagnosis 11/96; lumpectomy and

radiation jan/ feb/ 97; tamoxifan for five years.

We both have lots to be grateful for.

> Hello everyone,

>

> I was in the group last year and had to go no-mail due to finding out

> I had cancer. Treatment is over and it is time to get healthy!

>

> Have a good night all.

>

> S

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Welcome back !

--- scarlet_hunter <scarlet_hunter@...>

wrote:

> Hello everyone,

>

> I was in the group last year and had to go

> no-mail due to finding out

> I had cancer. Treatment is over and it is time

> to get healthy!

Live, Love, Laugh

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Welcome back!! I'm new around here, but i'm glad you are feeling

better and have decided to rejoin us!!

> Hello everyone,

>

> I was in the group last year and had to go no-mail due to finding

out

> I had cancer. Treatment is over and it is time to get healthy!

>

> Have a good night all.

>

> S

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Hi Sue,

I am over 300 and they (I have 2 oncologists and

my PCP Lol) said that I can go on a healthy food

and diet regimen. None of them have told me to do

it, but I have asked all 3 and they are ok with

it. It may take months for me to get the energy

back that I had pre-surgery and treatment, but I

can still walk and use the exercise bike.

It is odd. Before all of this happened, I would

push myself and then be wiped out for days

because of overdoing it. Now, I can become

exhausted just when walking and I have learned to

realize what is happening and stop myself before

I overdo it.

There were steroids in my treatment every 3

weeks, so I gained almost 25 pounds because of

it. Lucky me. Most people LOSE weight during

chemo! Hmph!

S

--- Sue in NJ <veggiesue22@...> wrote:

> But does your oncologist *want* you to lose any

> weight? My dad's told him > *not* to go on any

diets, not to lose weight, > that if he *did* he

was to > report back immediately.

>

> Going on a healthy food and exercise plan for

> health and fitness is another > thing, so when

you *do* start to lose weight, > be sure to let

your doc know > that this is happening on

purpose.

>

>

" Where are all the good men dead, in the heart or in the head? "

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

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Congrats to you! Go girl!

--- cambfaye <cafaye@...> wrote:

> ---WELCOME BACK KAREN!!!!!!!!!!!

> How wonderful that you are committing to good

> health!! Congratulations

> also on getting through the treatment for

> cancer!!!

> Faye

> PS I am a breast cancer survivor: diagnosis

> 11/96; lumpectomy and

> radiation jan/ feb/ 97; tamoxifan for five

> years.

> We both have lots to be grateful for.

>

>

" Where are all the good men dead, in the heart or in the head? "

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

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>but I have asked all 3 and they are ok with it.

I was amazed at how much my dad's oncologist ruled his life after a while.

Then again, he had like 5 different bouts of cancer, including both lungs 6

years apart, and was very stubborn and needed to be told what to do by

someone other than his wife.

> There were steroids in my treatment every 3

> weeks, so I gained almost 25 pounds because of

> it. Lucky me. Most people LOSE weight during

> chemo! Hmph!

My dad never lost weight the whole 15 years he had his cancers until the

last 2 weeks. Well, once he did as a side effect of one of the new meds he

was on, but as soon as that stopped he gained it right back. And he was

never on steroids - it was all good food that kept him at a healthy weight.

Why couldn't I have inherited *that* from him instead of his father's asthma

and the round shape from his mother's side? LOL

Sue in NJ

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  • 1 month later...

-Donna,

I'm so sorry to read of the loss of your friends, both of them too

young :o( I hope you start to feel better and have the strength and

foritude to get though all you need to in the next few weeks.

hugs Helen and (8,systemic)

-- In , ajaoky@a... wrote:

>

> Hey to all...if you did not already know, I have been without my

computer

> for several days and as of today...I'm Back! Times have also been

tough for the

> Fox-Keidel home. Unfortunately I lost 2 friends and have spent the

last 2

> days attending funerals. One friend a young man of only 29, was a

friend of the

> family since his birth. He was a next door neighbor while a child

and has

> been the best friend of my niece and nephew and great friend of

our family...his

> death is being investigated. My other friend was also a friend of

the family

> and she died of heart problems at the age of 52 and my husbands

grandmother

> had a heart attack Wednesday and is currently fighting for her

life. As for

> I still have no real answers but many things are being

ruled out. We

> start seeing a new ped on Monday and I cannot wait! I really

think he may have

> really bad reflux disease but I will wait and see. There are many

things

> occurring in my family and I am asking that my friends please say

a prayer. It

> has been a tough few weeks! Our holiday party for the AJAO is

Friday and I am

> really worried about my stamina so say an extra prayer for me

please.

> I hope that everyone did have a great Thanksgiving and although I

feel very

> stressed these days I am more blessed than stressed!

> Hugs to all!

> Donna

>

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  • 3 months later...
Guest guest

Hi . I was just searching through messages b/c in May I will

be scheduled for a pedicule subtraction osteotomy. I have done lots

of research and I will be at NYU for my surgery. My question is, and

I know everyone is different, how long did it take to recover? I

know I will need time to heal but I just need some idea of what it

will be like. I hope you are feeling well, I am just figuring out

this forum so please forgive me if I missed other messages posted by

you. I look forward to hearing from you.

>

> ,

>

> Congratulations, and welcome back. I hope you feel better and

better.

>

>

> I am back

>

>

> Hello - I just got back from NYC yesterday and am recovering here

in

> Alabama now. My surgery was 1-20 with dr farcy. He performed a

> pedicle subtraction at L3 and refused L2 - apparently that had

never

> fused from the earlier surgery.

>

> I did not do the artificial disc. While I am still in pain, I

can

> tell that he accomplished the realignment - i stand straight with

my

> head above my hips and as much lordosis as anyone!

>

> My attention span is short b/c of the meds but I will check in

and

> try to answer Q's if anyone is having surgery soon. in general I

> will say that the book by Kathleen McCue and the lists of things

to

> take to hospital were very valuable and the only thing I would

add

> is that you want button up nightshirts made of slick material,

not

> flanel or rough material, because sometimes being able to slide

and

> extra 2 inches on the sheets into a new position makes all the

> difference in the world, and flannel does not slide like satiny

> matieral does!

>

> Can someone refresh me on what I do to get the emails delivered

to

> my email? I have searched the site and annot figure out how to

get

> that feature on again.

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod

Malalignment Syndrome. Not medical advice. Group does not control ads

or endorse any advertised products.

>

>

>

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Guest guest

Hi ,

I am thinking of going with a few Docs out of NYU for my revision

surgery. I live in the NY area. What Docs are you considering?

Thanks

Carol

...........................

On Sun, 19 Mar 2006 17:36:34 -0000 " sweetnygrl2 " <sweetnygrl2@...>

writes:

> Hi . I was just searching through messages b/c in May I will

> be scheduled for a pedicule subtraction osteotomy. I have done lots

>

> of research and I will be at NYU for my surgery. My question is,

> and

> I know everyone is different, how long did it take to recover? I

> know I will need time to heal but I just need some idea of what it

> will be like. I hope you are feeling well, I am just figuring out

> this forum so please forgive me if I missed other messages posted by

>

> you. I look forward to hearing from you.

>

>

>

>

> >

> > ,

> >

> > Congratulations, and welcome back. I hope you feel better and

> better.

> >

> >

> > I am back

> >

> >

> > Hello - I just got back from NYC yesterday and am recovering

> here

> in

> > Alabama now. My surgery was 1-20 with dr farcy. He performed a

>

> > pedicle subtraction at L3 and refused L2 - apparently that had

> never

> > fused from the earlier surgery.

> >

> > I did not do the artificial disc. While I am still in pain, I

> can

> > tell that he accomplished the realignment - i stand straight

> with

> my

> > head above my hips and as much lordosis as anyone!

> >

> > My attention span is short b/c of the meds but I will check in

> and

> > try to answer Q's if anyone is having surgery soon. in general I

>

> > will say that the book by Kathleen McCue and the lists of things

>

> to

> > take to hospital were very valuable and the only thing I would

> add

> > is that you want button up nightshirts made of slick material,

> not

> > flanel or rough material, because sometimes being able to slide

> and

> > extra 2 inches on the sheets into a new position makes all the

> > difference in the world, and flannel does not slide like satiny

>

> > matieral does!

> >

> > Can someone refresh me on what I do to get the emails delivered

>

> to

> > my email? I have searched the site and annot figure out how to

>

> get

> > that feature on again.

> >

> >

> >

> > Support for scoliosis-surgery veterans with Harrington Rod

> Malalignment Syndrome. Not medical advice. Group does not control

> ads

> or endorse any advertised products.

> >

> >

> >

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Guest guest

Hi Carol,

I am having my surgery done by Dr. Dryer and Dr. Errico at NYU. I

have a lot of faith... It's a 10-12 hour surgery but I am little

less nervous and much more comfortable with the doctors. The

hospital is 2 1/2 hours away from where I live in NY, but there is

no one closer. Thankfully I have relatives in Staten Island, I do

not like being alone when I am away from home (I'm still a big baby

at 30...:)

Good luck in your search and whatever comes.

> > >

> > > ,

> > >

> > > Congratulations, and welcome back. I hope you feel better and

> > better.

> > >

> > >

> > > I am back

> > >

> > >

> > > Hello - I just got back from NYC yesterday and am recovering

> > here

> > in

> > > Alabama now. My surgery was 1-20 with dr farcy. He

performed a

> >

> > > pedicle subtraction at L3 and refused L2 - apparently that

had

> > never

> > > fused from the earlier surgery.

> > >

> > > I did not do the artificial disc. While I am still in pain,

I

> > can

> > > tell that he accomplished the realignment - i stand straight

> > with

> > my

> > > head above my hips and as much lordosis as anyone!

> > >

> > > My attention span is short b/c of the meds but I will check

in

> > and

> > > try to answer Q's if anyone is having surgery soon. in

general I

> >

> > > will say that the book by Kathleen McCue and the lists of

things

> >

> > to

> > > take to hospital were very valuable and the only thing I

would

> > add

> > > is that you want button up nightshirts made of slick

material,

> > not

> > > flanel or rough material, because sometimes being able to

slide

> > and

> > > extra 2 inches on the sheets into a new position makes all

the

> > > difference in the world, and flannel does not slide like

satiny

> >

> > > matieral does!

> > >

> > > Can someone refresh me on what I do to get the emails

delivered

> >

> > to

> > > my email? I have searched the site and annot figure out how

to

> >

> > get

> > > that feature on again.

> > >

> > >

> > >

> > > Support for scoliosis-surgery veterans with Harrington Rod

> > Malalignment Syndrome. Not medical advice. Group does not

control

> > ads

> > or endorse any advertised products.

> > >

> > >

> > >

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  • 2 months later...
Guest guest

That's a big fish :)

That stinks that you have been sick. I would start off slowly, b/c

your body has really been through a lot and I wouldn't want to push it

too hard. If you already paid for the gym, you really should go! But

if you KNOW you're not going to, then getting a bike and riding inside

and doing weights at home is the next best thing.

I'm working out from home - it's not always ideal, but I keep the

weights right next to the tv, so when I want to just plop in front of

it and do nothing, I see them and feel motivated.

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Guest guest

Where the heck are you that it is that cold in May!!??

Anyway, I would never recommend pouring warm water over a frozen

windsheild. Do you not have a defroster?

Your work-arounds sound pretty good, but you will quickly want more

resistance than the bands, I would think. At this point, though,

doing something is much better than doning nothing.

Malaria is one of those illnesses that leaves you really weak, from

the anemia. It is not surprising that your system is still catching

up and you feel lethargic. Be kind to yourself as you get back on track.

Barbara

>

> Hi 2 all!

>

> I went to Mozambique 6 weeks ago and got malaria, so naturally i

> didn't have the strength to go to gym.

>

> Now after a few weeks of no excersize i want to get back to gym but

> don't know where to start.

>

> I use to go at 5 in the mornings, but its so cold i have to scrape

> ice off my windscreen before i can go (i tried pouring water over

> it, but it ice back up immediately) so now i' thinking of going at

> 7pm after work. BUT (don't shoot me) then i lack motivation and

> just want to veg infront of the tv.

>

> I've been thinking about getting myself a stationary bike (to use

> twice a day for moderate cardio of 30mins, and every second day i'll

> add HIIT) and some of those strength bands to train at home 3 times

> a week during the winter. My main aim is to loose fat...

>

> how does that sound? Any ideas, encouragement or comments will be

> appreciated!

>

> I also posted a photo under gerkiss-baracuda.

>

> ciao!

>

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  • 3 months later...

Welcome back ...we were beginning to be worried

about you. :) You have a lot of catching up to do.

Glad you've found a house and all settled in neighbor.

Maggie

Alabama

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Well let me be the first to welcome you back and then I can have

words with you later.  Where the heck…….Ok save that for another

day.  Welcome back.  Glad your still alive.

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of

Sent: Friday, August 25, 2006 7:09 PM

achalasia

Subject: I am back

Hello all. I am finally back on the internet.

We had a hectic move

from the UK. We found a house to buy adn we are all moved in and

getting settled into our daily routines. Our new e-mail address is

mueller4mar@....

You still can get e-mails to me at

mt4mar@.... I hope everyone is

doing well and to all the new

members I welcome you to our group and our family. If anyone has any

questions or just wants to talk feel free to get in touch of me.

in Warner Robons GA.

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Dear , I am so relieved to hear from you. I have been worrying about your whereabouts and did not know what to do about it. I am pleased to hear that things are going well for you. Did you see from my post on Thursday that Meena should now have had her surgery? Please give my love to Merissa, Jaimie and and say that I hope everything is good and happy for them. With love from Ann in England XX WELCOME BACK MARTIN <mt4mar@...> wrote: Hello all. I am finally back on the internet. We had a hectic move from the UK. We found a house to buy adn we are all moved in and getting settled into our daily routines. Our new e-mail address is mueller4marwindstream (DOT) net. You still can get e-mails to me at mt4mar . I hope everyone is doing well and to all the new members I welcome you to our group and our family. If anyone has any questions or just wants to talk feel free to get in touch of me. in Warner Robons GA.

Try the all-new . "The New Version is radically easier to use" – The Wall Street Journal

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