I am back

[Guest guest]

Joyce,

Where in New York are you moving too. I am in Bayside, New York

(Queens) and would love to have someone close by to talk to and get together

with. Let me know when and were you will be here in New York. I had My MGB

in Jan 26,2001 at Durham Regional with DrR.at that time I was 297 now I am

225. It is slow but sure, I am recovering from emergency hernia repair.

Love to hear from you email me privately.

Rosemary Commisso (RoCommisso1@...)

[Guest guest]

Hi Joyce,

Welcome back! You are not alone is this revision thing, I too am interested in

one. I had my surgery 5/26/00 and have lost 80 lbs, which I am happy about, but

I still need to lose about 40ish.

I have a 12-month follow-up scheduled with Dr. R on July 24th, so that is one of

the first things I want to talk to him about! I will keep you posted on what he

has to say!

S. of Raleigh

MGB=5/26/00

wrote:

> Hello all....I don't know if you remember me but I had my surgery on

July 19th 2000....My computer broke in December so I haven't been

able to post to the list for along time. Well everything is going

fine with me. The weight loss isn't what I wanted at almost a year

later but I guess I will have to be happy with it. I have lost only

65 pounds in a year. I would like to have a revision done.I have

missed the group and hearing how everyone is doing so I am glad to be

back on. My old name used to be RobandJoyplus4. Have a great day.

Joyce in KY(soon to be Joyce in NY)

MGB-July 19, 2000

[Guest guest]

Hi Joyce! Long time no hear/see!

I'm down 112 or so, but have not lost for about 4

months. The funny thing is people are still remarking

that I'm still losing so much!!! Ha. I'm in a 14,

but with a tummy tuck I think I could do a 12. I'm

really looking forward to having that done! I don't

know when it will be, though. Too many other things

going on.

I do remember you, and just wanted to say hi! What's

up with the move to NY?

Blessings,

~Amy.

--- RobJoyceand4kids@... wrote:

> Hello all....I don't know if you remember me but I

> had my surgery on

> July 19th 2000....My computer broke in December so I

> haven't been

> able to post to the list for along time. Well

> everything is going

> fine with me. The weight loss isn't what I wanted at

> almost a year

> later but I guess I will have to be happy with it. I

> have lost only

> 65 pounds in a year. I would like to have a revision

> done.I have

> missed the group and hearing how everyone is doing

> so I am glad to be

> back on. My old name used to be RobandJoyplus4. Have

> a great day.

>

> Joyce in KY(soon to be Joyce in NY)

> MGB-July 19, 2000

>

>

=====

Amy Poe

MGB 5/22/00 Dr. Rutledge

280/170/goal=160 or size 12 after tummy tuck!

__________________________________________________

[Guest guest]

Hello Amy,

We are moving to NY because my husband got a new job at State University Oneonta

in NY. I will be alot closer to home about 7 hours away instead of this 14 hours

now. We are moving Aug. 4th.

I will have to see about the new insurance to see if it will pay for me to have

a revision so I can get the rest of this weight off. I don't know if I can go

thru Dr.R since he requires $5,000 down(that is what I heard) but guess we will

have to see. Take care of yourself and your weight loss is great. Love, Joyce

[Guest guest]

Hi Joyce,

I live near Oneonta and work in Oneonta and look

forward to maybe meeting you. I had my MGB a yr ago

with Dr. R, and have lost 101 lbs so far. I would love

to welcome you to the area!!! Let me know....email me

privately if you want too.

carebear3_12155@...

Talk to you soon,

Jeanne in NY

--- RobJoyceand4kids@... wrote:

> Hello Amy,

> We are moving to NY because my husband got a new job

> at State University Oneonta in NY. I will be alot

> closer to home about 7 hours away instead of this 14

> hours now. We are moving Aug. 4th.

> I will have to see about the new insurance to see

> if it will pay for me to have a revision so I can

> get the rest of this weight off. I don't know if I

> can go thru Dr.R since he requires $5,000 down(that

> is what I heard) but guess we will have to see. Take

> care of yourself and your weight loss is great.

> Love, Joyce

>

__________________________________________________

[Guest guest]

Hi !!! Sorry you are still hurting so much ( I wish I could help you with the depression... Have you been able to talk to anyone about it ??? Are ya able to get around at all ??? Please talk to us when ya can...

{{{ Caring Hugs }}}

Helen

hi gals. i am back with a new email... nothing really changed here... still depressed and suicidal. still in severe pain.

love sandra

www.sendingourlove.org

Signature Creations by

PANDORASBOX8

[Guest guest]

well I am 21 single mom from california. I have progressive multiple sclerosis. I also suffer from extreme depression.

I run a website that helps sick kids called Sending Our Love... (www.sendingourlove.org) Check it out and send the kids some love

Well thats me in a nutshell...

[Guest guest]

Hello

Why don't you tell us your situation from the beginning, You may

already have done so but I for one would like to hear it again.

Regards,

sandrascountry@... wrote:

> hi gals. i am back with a new email... nothing really changed here...

> still depressed and suicidal. still in severe pain.

>

> love sandra

> www.sendingourlove.org

....

[Guest guest]

Hi ,

I am also a single mom. I have 2 daughters, ages 4 & 6. I have a hard time with my illnesses keeping up with them but I do the best I can. My girls understand that I cannot do all those outside "physical" things with them but we do find plenty of other things to do together. My daughters are one of the biggest reasons that I can keep going even when the world seems like it is caving in.

I visited your website and I left a message in your guest book. I am so touched by the stories that I read. I bookmarked the site and will visit again in the near future.

Hugs,

in Finland

well I am 21 single mom from california. I have progressive multiple sclerosis. I also suffer from extreme depression. I run a website that helps sick kids called Sending Our Love... (www.sendingourlove.org) Check it out and send the kids some love Well thats me in a nutshell...

[Guest guest]

Welcome back, ! I've been thinking of you and looking forward to hearing

this good news. It must be pretty nice to stand tall again.

Take care of yourself and heal well.

Sharon

I am back

Hello - I just got back from NYC yesterday and am recovering here in

Alabama now. My surgery was 1-20 with dr farcy. He performed a

pedicle subtraction at L3 and refused L2 - apparently that had never

fused from the earlier surgery.

I did not do the artificial disc. While I am still in pain, I can

tell that he accomplished the realignment - i stand straight with my

head above my hips and as much lordosis as anyone!

My attention span is short b/c of the meds but I will check in and

try to answer Q's if anyone is having surgery soon. in general I

will say that the book by Kathleen McCue and the lists of things to

take to hospital were very valuable and the only thing I would add

is that you want button up nightshirts made of slick material, not

flanel or rough material, because sometimes being able to slide and

extra 2 inches on the sheets into a new position makes all the

difference in the world, and flannel does not slide like satiny

matieral does!

Can someone refresh me on what I do to get the emails delivered to

my email? I have searched the site and annot figure out how to get

that feature on again.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Hi ...

Did you actually wear your nightshirts while in the hospital? If so,

what did you do when someone wanted to examine your back?

Regards,

[Guest guest]

No - I stayed in hospital gown that was open everywhere it seems like while in

hosp. The nightshirts I needed after I was discharged and no longer had nurses

to logroll me.

I did not need ospital bed but did raise my bed using cinderblocks. Did need

potty extender (still do). Alsoshower chair with back and grabber. Sarna

helped the itching and baby powder was good also. If brace (surprise - I got

one) need elastic waist pants and larger shirts to fit over, t shirts for under

(i just used hanes) A

>

> From: " Racine " <lindasjunk2002@...>

> Date: 2004/02/08 Sun PM 09:57:14 EST

>

> Subject: Re: I am back

>

>

Love

[Guest guest]

,

So good to hear you are doing well and back home. I've been thinking

about you and praying for your successful recovery. When you feel up

to it, I'd love to hear more about your experience and recovery. Did

you get to meet Dr. Schwab also? Best wishes for your continuing

improvement.

Annette

[Guest guest]

I hope your brace is comfortable, . I still have dreams I'm wearing one,

and it's been 30 years!

Re: I am back

>

>

Love

[Guest guest]

,

Congratulations, and welcome back. I hope you feel better and better.

I am back

Hello - I just got back from NYC yesterday and am recovering here in

Alabama now. My surgery was 1-20 with dr farcy. He performed a

pedicle subtraction at L3 and refused L2 - apparently that had never

fused from the earlier surgery.

I did not do the artificial disc. While I am still in pain, I can

tell that he accomplished the realignment - i stand straight with my

head above my hips and as much lordosis as anyone!

My attention span is short b/c of the meds but I will check in and

try to answer Q's if anyone is having surgery soon. in general I

will say that the book by Kathleen McCue and the lists of things to

take to hospital were very valuable and the only thing I would add

is that you want button up nightshirts made of slick material, not

flanel or rough material, because sometimes being able to slide and

extra 2 inches on the sheets into a new position makes all the

difference in the world, and flannel does not slide like satiny

matieral does!

Can someone refresh me on what I do to get the emails delivered to

my email? I have searched the site and annot figure out how to get

that feature on again.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Gosh, Beth, I believe you just wrote one of the most supporting letters I

have seen in a long time! I actually choked while reading it. Now, THAT is

what

we're about here, right? I don't mean to say that we can't " vocalize " our

own hurts, etc., but we are all looking for support, and you just gave it in a

major way!

Sincerely,

Carole M.

[Guest guest]

,

WELCOME BACK GIRL!!! SO glad you're back home and recovering well. Isn't it

wonderful to feel and look " normal " again, with the new lumbar lordosis and

all??!! I think I've said before that, while I'm not a particularly vain person,

I did find myself " posing " in front of my full length mirror at home more often

than usual after my revision!! It sounds silly, I know...but it was just so

amazing to me to be standing up stright again after staring at my feet for so

many years prior to my revision surgery (June 2000)!!! Even though you may feel

a bit " whacked-out " (as my teenaged son used to say to me!) from your recovery

meds, I'm sure you feel better just being back in your own home, in your own

bed, with your family!! I know I did!

And speaking of beds...you are absolutly right about wearing silky night

clothes. I still only wear nighties or P.J.'s that are slippery. I think that

log rolling is permenantly etched into our brains from all of our surgeries!!

And it makes it SO much easler to change positions in bed when you can slide a

bit as compared to getting stuck on your sheets when you're wearing flannel.

My hubby and I hate silk sheets...someone gave us a set when we got married 21

yrs ago and we tried them once...they're still folded in the linen closet,

un-used!! We live in land now, but we're originally from Erie,Pa.; we're

more used to lake effects storms and bitterly cold winters then these rather

mild Md. winters. We don't consider wearing long-johns to bed under our jammies

that unusual at all!! So on cold nights, I'll wear my thermals under my silky

night clothes so as not to stick to the sheets but still stay warm and toasty!.

My hubby also does not care for flannel sheets...he's a 100% cotton kinda'guy!

It's been a pretty cold winter this year in land so my thermals have gotten

a lot of use. Ever since I went through menopause, I seem to be cold all the

time, even when it's warm outside. God, it's hell getting old, isn't it?!

Congratulations for surviving yet anaother spinal procedure!! Stay

patient while you're going through this recovery time...you're going to have

good and bad days, but in time, the good ones will outshine the bad ones!! The

difficult stuff is in your past now....relax, don't push yourself and try to do

too much too soon. Each day will be different and slowly but surely, you'll be

back to your old self again...the person you were BEFORE Flatback Syndrome

changed your life!

All the best,

Beth

[Guest guest]

So what's wrong with 100% cotton flannel sheets? (Most are 100% cotton.) Soft,

absorbant, warm in winter, cool in summer. We use them year-round, but as for

night clothes, well, it's just the two of us and I've been trained for 13 years

now to dress as Hubby prefers! (You know, the suit God gave me!)

Re: I am back

,

WELCOME BACK GIRL!!! SO glad you're back home and recovering well. Isn't it

wonderful to feel and look " normal " again, with the new lumbar lordosis and

all??!! I think I've said before that, while I'm not a particularly vain person,

I did find myself " posing " in front of my full length mirror at home more often

than usual after my revision!! It sounds silly, I know...but it was just so

amazing to me to be standing up stright again after staring at my feet for so

many years prior to my revision surgery (June 2000)!!! Even though you may feel

a bit " whacked-out " (as my teenaged son used to say to me!) from your recovery

meds, I'm sure you feel better just being back in your own home, in your own

bed, with your family!! I know I did!

And speaking of beds...you are absolutly right about wearing silky night

clothes. I still only wear nighties or P.J.'s that are slippery. I think that

log rolling is permenantly etched into our brains from all of our surgeries!!

And it makes it SO much easler to change positions in bed when you can slide a

bit as compared to getting stuck on your sheets when you're wearing flannel.

My hubby and I hate silk sheets...someone gave us a set when we got married 21

yrs ago and we tried them once...they're still folded in the linen closet,

un-used!! We live in land now, but we're originally from Erie,Pa.; we're

more used to lake effects storms and bitterly cold winters then these rather

mild Md. winters. We don't consider wearing long-johns to bed under our jammies

that unusual at all!! So on cold nights, I'll wear my thermals under my silky

night clothes so as not to stick to the sheets but still stay warm and toasty!.

My hubby also does not care for flannel sheets...he's a 100% cotton kinda'guy!

It's been a pretty cold winter this year in land so my thermals have gotten

a lot of use. Ever since I went through menopause, I seem to be cold all the

time, even when it's warm outside. God, it's hell getting old, isn't it?!

Congratulations for surviving yet anaother spinal procedure!! Stay

patient while you're going through this recovery time...you're going to have

good and bad days, but in time, the good ones will outshine the bad ones!! The

difficult stuff is in your past now....relax, don't push yourself and try to do

too much too soon. Each day will be different and slowly but surely, you'll be

back to your old self again...the person you were BEFORE Flatback Syndrome

changed your life!

All the best,

Beth

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

> More power to you! I was simply saying that being kind of slippery helps you

move around in bed better in thosefirst post op weeks, which I am still in.

(OOH, that did not come out quite the way I meant which might be result of too

much Valentine thoughts!!) Slippery sheets or bedclothes is what I was referring

to!

> From: " Sharon Green " <sharon.green18@...>

> Date: 2004/02/15 Sun PM 04:33:02 EST

> < >

> Subject: Re: I am back

>

>

Love

[Guest guest]

He-he. I was just responding to Beth's comment that her husband doesn't go for

flannel sheets and is a " 100% cotton kind of guy " .

Re: I am back

>

>

Love

[Guest guest]

,

I think it's terrific that you're having " Valentine-thoughts " so soon after

surgery! Good for you!!

Wishes and love for a speedy recovery,

Beth

[Guest guest]

Oh, boy. I do not even know what we are talking about. I just want to chime in

and say that I never noticed the slightest problem with any kind of sheets after

any of my surgeries. Maybe I am just not very observant.

I will say, speaking of husbands, that some things are kind of awkward to do

when you are required to wear your post-op TLSO throughout.

Re: I am back

>

>

Love

[Guest guest]

For 's sake, I hope you're right, Beth.

Let's also hope my second revision is my last.

I want to add that no one should be discouraged for many months after a

revision. I had marked improvement around month #11, after thinking I had done

all the recuperating I was going to do.

Re: I am back

,

WELCOME BACK GIRL!!! SO glad you're back home and recovering well. Isn't it

wonderful to feel and look " normal " again, with the new lumbar lordosis and

all??!! I think I've said before that, while I'm not a particularly vain person,

I did find myself " posing " in front of my full length mirror at home more often

than usual after my revision!! It sounds silly, I know...but it was just so

amazing to me to be standing up stright again after staring at my feet for so

many years prior to my revision surgery (June 2000)!!! Even though you may feel

a bit " whacked-out " (as my teenaged son used to say to me!) from your recovery

meds, I'm sure you feel better just being back in your own home, in your own

bed, with your family!! I know I did!

And speaking of beds...you are absolutly right about wearing silky night

clothes. I still only wear nighties or P.J.'s that are slippery. I think that

log rolling is permenantly etched into our brains from all of our surgeries!!

And it makes it SO much easler to change positions in bed when you can slide a

bit as compared to getting stuck on your sheets when you're wearing flannel.

My hubby and I hate silk sheets...someone gave us a set when we got married 21

yrs ago and we tried them once...they're still folded in the linen closet,

un-used!! We live in land now, but we're originally from Erie,Pa.; we're

more used to lake effects storms and bitterly cold winters then these rather

mild Md. winters. We don't consider wearing long-johns to bed under our jammies

that unusual at all!! So on cold nights, I'll wear my thermals under my silky

night clothes so as not to stick to the sheets but still stay warm and toasty!.

My hubby also does not care for flannel sheets...he's a 100% cotton kinda'guy!

It's been a pretty cold winter this year in land so my thermals have gotten

a lot of use. Ever since I went through menopause, I seem to be cold all the

time, even when it's warm outside. God, it's hell getting old, isn't it?!

Congratulations for surviving yet anaother spinal procedure!! Stay

patient while you're going through this recovery time...you're going to have

good and bad days, but in time, the good ones will outshine the bad ones!! The

difficult stuff is in your past now....relax, don't push yourself and try to do

too much too soon. Each day will be different and slowly but surely, you'll be

back to your old self again...the person you were BEFORE Flatback Syndrome

changed your life!

All the best,

Beth

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Oh Joanne, welcome back! It is wonderful that you are doing so well!

God bless you! You are a great encouragement!

Debby

[ ] I am

back

Hello to everyone. I have had

the most wonderful gift ever. I am so happy I got my liver just in

time. As I was so very ill before my Tx it is taking longer then is

normal to recover. They told me it may take a year and a half. But,

that's ok....i effl better now then I have in a long time. But, now, as

my hands hurt I can't be line much. I go on my 'puter every few days for

a little bit to read the PBC Digest and my own LiverSupport_L Digest and

always the Spiritual Side. You have been so terrific to me...thank you so

much. All those cards...love them..I can't wait for the mail every

day. My family, bless them, have been a tower of strength to me. My

husband took over the entire care of me...he even slept in the hospital (gave him

a bed). The Tx went smooth and wasn't long. She also removed my

gallbladder. M. Reid....where are you.same as Janice. write me I do

not have your addy..lost all addys. I tried to call Jerry but there was

no answer. So hopefully he is just having fun. Love to all,

Joanne

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[Guest guest]

Hi Joanne,

That is the most wonderful news. Your blessed with such a loving family, but so are they with you.

Please take good care of yourself!

with love,

Loes The Netherlands

-----Oorspronkelijk bericht-----Van: Jj Cathcart [mailto:JJCATHCART@...] Verzonden: maandag 16 februari 2004 17:45Aan: moderators@...; Onderwerp: [ ] I am back

Hello to everyone. I have had the most wonderful gift ever. I am so happy I got my liver just in time. As I was so very ill before my Tx it is taking longer then is normal to recover. They told me it may take a year and a half. But, that's ok....i effl better now then I have in a long time. But, now, as my hands hurt I can't be line much. I go on my 'puter every few days for a little bit to read the PBC Digest and my own LiverSupport_L Digest and always the Spiritual Side. You have been so terrific to me...thank you so much. All those cards...love them..I can't wait for the mail every day. My family, bless them, have been a tower of strength to me. My husband took over the entire care of me...he even slept in the hospital (gave him a bed). The Tx went smooth and wasn't long. She also removed my gallbladder. M. Reid....where are you.same as Janice. write me I do not have your addy..lost all addys. I tried to call Jerry but there was no answer. So hopefully he is just having fun. Love to all, Joanne